Health Care Roundup: ACA Open Enrollment and “Junk” Insurance; E-Cigarette Ban; Integrative Oncology; FDA Breast Implant Warning; More
Open enrollment for the Affordable Care Act’s (ACA) Healthcare.gov marketplace is in full swing. After major technical glitches, in addition to cuts to enrollment marketing and assistance, the number of enrollees is down this year from past years. As the Washington Post reports, the administration is also redirecting some Healthcare.gov users to private insurance exchanges that sell “junk” health plans — short-term limited duration plans that do not include […]
NCCS Presents 4th Annual Ellen L. Stovall Award to Dr. Harmar Brereton and Dana Dornsife for Their Innovation and Dedication to Cancer Survivors
Washington, D.C. – The National Coalition for Cancer Survivorship (NCCS) presented the 4th annual Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care to Dr. Harmar Brereton and Dana Dornsife on November 13. Named for former NCCS CEO Ellen Stovall, who died in 2016 due to complications from three cancer treatments, the award highlights those who continue Ellen’s work of transforming cancer care to further incorporate […]
Health Care Roundup: Drug Pricing Bill Advances; ACA Open Enrollment & Premium Data; Cancer Overdiagnosis; “Medicaid Haves and Have-Nots”; More
House Drug Pricing Bill Advances Out of Committee – The biggest health care news this week was the approval by the House Ways and Means Committee of H.R. 3, the Lower Drug Costs Now Act — Speaker Pelosi’s drug pricing bill. The bill advanced along party lines, with opponents citing a recent report from the Congressional Budget Office (CBO) that said the plan would harm drug innovation and reduce the number of new drugs coming to the […]
NCCS Urges FDA to Finalize Graphic Health Warnings for Cigarette Packs and Advertisements
NCCS joined with public health and medical organizations in a comment letter to the U.S. Food and Drug Administration (FDA) regarding the proposed rule to establish health warnings for cigarette packages and advertisements. The comment letter outlines the overwhelming evidence that shows color graphic health warnings on cigarette packages and ads substantially increases and promotes greater public understanding of the dangers of smoking, […]
Health Care Roundup: Metastatic Breast Cancer Awareness; More on “Junk Insurance;” Reviewing Effects of California’s Surprise Billing Law; More
Ads Offering Bare-Bones Coverage are Everywhere – This Axios article highlights the growing trend of plans being advertised across the internet as “Trumpcare” plans. The problem? “Trumpcare doesn’t exist, and many of these advertised plans offer bare-bones coverage.” “It’s impossible to expect consumers to discern between the good guys and the con artists,” said Sabrina Corlette, a health insurance researcher at Georgetown University. “And […]
Health Care Roundup: Cokie Roberts; Survivorship in the News; Junk Insurance Doesn’t Cover the Bills; Seeking Help and Encouragement; More
Tennessee became the first state in the country to release a plan proposing to block grant its Medicaid program. Currently, the federal government pays each state “a certain percentage of the cost of care for anyone eligible for health coverage.” If changed to a block grant program, the federal government would “instead pay a state a lump sum each year while freeing it from many of Medicaid’s rules, including who must be allowed into […]
Remembering Cokie Roberts, a Tireless Advocate for Cancer Survivors
The National Coalition for Cancer Survivorship mourns the loss of Cokie Roberts, who died yesterday from complications of breast cancer. Mrs. Roberts was a generous supporter of NCCS both before and after her own seventeen-year cancer experience. In 1998, she co-hosted NCCS’s THE MARCH…Coming Together to Conquer Cancer, in honor of her ABC News colleague Sam Donaldson, a then three-year survivor of melanoma, and her sister, […]
NCCS Survivorship Survey: Cancer Survivors Share Their Top Concerns
As part of its Elevating Survivorship initiative, NCCS fielded an online survey to understand cancer survivorship experiences and needs across a range of cancer patients. NCCS and our partner patient advocacy organizations promoted the survey to our constituents, and 1,380 cancer survivors responded. Some of the key findings include […]
Health Care Roundup: What President Trump’s Health Care Plan Might Include; Recurrence Anxiety; Are There Too Many NCI Cancer Centers?; More
In August, we noted that President Trump and other members of his administration mentioned that they intend to unveil a substantial health care plan later this month. As we await the details of that plan, we wanted to share this Kaiser Health News article that examines what such a plan may, or may not, include. Congress returns to Washington next week, after the August recess. We will monitor and report on Congressional action on policy […]
How the Patient Perspective Improved My Cancer Research and Changed My Career Path
The first time I heard the words “you have cancer,” I was sitting in the doctor’s office with my best friend Katie. We were both 28 years old. Katie had a lump removed from her breast the Monday before Thanksgiving and I was home in New Jersey a few days before the holiday to hang out with her post surgery. We were supposed to go to DSW that Wednesday morning when she got a call that her doctor wanted to see her that day. I collapsed on the floor […]
Health Care Roundup: Medicare Payments for CAR-T; Cancer Screenings in Older Adults; Cancer and At-Home DNA Tests; End of Life Care; More
CAR-T therapies, a cutting-edge type of immunotherapy, are seen by many as the next generation for cancer treatments. Of course, they are expensive and complicated to administer. The Centers for Medicare and Medicaid Services (CMS) recently announced long-awaited policies regarding payment for these treatments. CMS stated, “Medicare will pay for CAR-T therapies so long as they’re administered in health care facilities that follow the […]
NCCS Announces 2019 Stovall Award Honorees, Dr. Harmar Brereton and Dana Dornsife
(NCCS) is pleased to announce that the 2019 winners of the Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care are Harmar Brereton, MD, founder of the Northeast Regional Cancer Institute, and Dana Dornsife, founder and board chair of the Lazarex Cancer Foundation. Now in its fourth year, the cancer community’s embrace of the award named after longtime NCCS CEO Ellen Stovall continues to be a testament to her lasting […]
Health Care Roundup: Cancer Care Planning Bill Introduced; Drug Pricing Measures Advance; Rural Hospitals Struggling in States that Did Not Expand Medicaid; More
On July 23, the Cancer Care Planning and Communications Act (CCPCA), H.R. 3835, was reintroduced in the House of Representatives. The bill is sponsored by Rep. Mark DeSaulnier (D-CA) and Rep. Buddy Carter (R-GA), co-chairs of the Congressional Cancer Survivors Caucus. The CCPCA is NCCS’ top legislative priority as it would increase access to comprehensive cancer care planning for millions of Medicare beneficiaries. If implemented in Medicare […]
NCCS Applauds Introduction by Reps. DeSaulnier and Carter of Bipartisan “Cancer Care Planning and Communications Act”
Washington, D.C. – Today, Rep. Mark DeSaulnier (D-CA) and Rep. Buddy Carter (R-GA), co-chairs of the Congressional Cancer Survivors Caucus, introduced H.R. 3835, the Cancer Care Planning and Communications Act (CCPCA). A legislative priority of the National Coalition for Cancer Survivorship (NCCS), the bill would create a Medicare service to reimburse providers for time and resources used to create cancer care plans for Medicare beneficiaries. […]
Health Care Roundup: ACA Lawsuit Update; Chronic Pain Study; “Have Cancer, Must Travel;” “Survivorship Issues Reshape a Researcher’s Career;” More
Last week, a three-judge panel of the 5th Circuit Court of Appeals in New Orleans heard arguments in the Texas v. United States case that has the potential to invalidate the Affordable Care Act (ACA). Two judges asked pointed questions that seemed sympathetic to the case against the ACA. While this is disheartening for cancer patients who rely so heavily on the ACA, observers from Kaiser Health News and others cautioned that a long road remains […]
Patient Groups Urge Court to Prioritize Patients and Uphold Health Care Law
Protections for Pre-Existing Conditions and Coverage Standards at Risk — Patient groups are urging the Fifth Circuit Court of Appeals to prioritize patient protections, including those for people with pre-existing conditions, when it hears oral arguments today in the case Texas v. United States. The case is being appealed after a lower court ruling that the entire health care law should be struck down because Congress repealed the individual […]
Health Care Roundup: Medicaid Work Requirement Studies; Care Coordination/Planning; Financial & Emotional Distress; Cancer in Firefighters; More
New ACA Replacement Plan? – This week, President Trump hinted at his intention to introduce a new health care plan. Health care remains a very popular political issue among most voters. With widespread reports saying that many Republicans in Congress would rather not make health care or Affordable Care Act (ACA) replacement a top issue in the upcoming elections, it will be interesting to see whether the president follows through in the months ahead. […]
Health Care Roundup: ACA Erased Key Racial Cancer Disparity; ‘Survivor’ Debate; Isolation in Survivorship; Remembering Two Cancer Pioneers; More
Today marks one year since the Trump administration announced it would not defend the ACA and that the entire law should be struck down, including protections for pre-existing conditions. In just one month, oral arguments are scheduled in the Fifth Circuit Court of Appeals. New research released last week at the annual American Society of Clinical Oncology (ASCO) meeting shows that the ACA’s Medicaid expansion reduced racial disparities […]
NCCS Wellness and Survivorship Blog Series Wrap-Up
Each week throughout May, NCCS published a blog post written by cancer survivors looking at the significance of physical and mental health, exercise, and nutrition during and after cancer treatment. The authors all varied in stage of life, type of cancer, and years since initial diagnosis. What they had in common however, was the passion and thoughtfulness to share their stories with the hope of helping others. We hear often from survivors and advocates […]
Health Care Roundup: Executive Order on Price Transparency; Coping with Cancer; New Data on Cancer Disparities; US Health Spending; More
Executive Order on Price Transparency — This week, the Washington Post reported that the Trump administration is preparing an executive order that would require insurers and hospitals to disclose negotiated discounted rates for services. The executive order is intended to foster greater price transparency across a broad swath of the health-care industry as consumer concerns about medical costs emerge as a major issue in the lead-up […]
Running: Fuel for My Body and Soul After Cancer
Being diagnosed with cancer stinks. It is a traumatic experience that will ripple through your life for years to come. For me it was no different. I was diagnosed with endometrial cancer at 31 and underwent treatment for a year, which included high doses of steroids. After almost two years of remission my cancer returned and had begun to spread to my uterus. My oncologist advised me that a hysterectomy was needed and within a few weeks […]
Moving Through and Beyond Stage IV Colorectal Cancer
By Stacy Hurt, MHA, MBA. “But I’m an athlete and a non-smoker. I do everything right!” Those were my first words to the gastroenterologist who told me that the 11cm tumor in my rectum was “most likely cancer.” You would’ve thought I’d learned the whole “life isn’t fair” lesson when my son, now 13 years old, was diagnosed with a rare genetic chromosomal disorder that rendered him without the ability to walk, talk, or care for himself in any way. […]
Health Care Roundup: House Passes Health Care Bill; Celebrating a Cancerversary; Palliative Care; Cutting Racial Disparities; More
The biggest health care bill of this session made it out of the House and is headed to the Senate, after a party-line vote late Thursday. The bill contains proposals to lower prescription drug prices and to help shore up the Affordable Care Act (ACA), making it politically tricky. It is unlikely that the bill will pass a Republican-controlled Senate. As Politico reports, “The move is likely to force most Republicans to sink the package and go on record […]
Cancer at 30: Reflections on Post-Traumatic Growth
“Dig deep within yourself, for there is a fountain of goodness ever ready to flow if you will keep digging.” —Marcus Aurelius | In December of 2015, I was in the prime of my life. I was thirty years old, recently married, and had just launched a new business. Like most young people, I didn’t expect to get sick. I exercised regularly, ate reasonably well, and otherwise tried to take care of myself. On December 19th, I went to the doctor. I had a small lump. I assumed […]
Finding Healing Hope – By Wendy S. Harpham, MD
Let’s discuss “hope.” After a cancer diagnosis, few topics are mentioned more…and discussed less. That’s a problem because what you hope for may mean the difference between enjoying life or feeling miserable. Maybe even between life and death. So how do you find hope? Not just any hope, but healing hope, namely hope that helps you get good care and live as fully as possible. Hope that helps you live your best life. The good news is there’s […]
Health Care Roundup: Kaiser Health Insurance Survey; House Holds Medicare-for-All Hearing; CBO Analysis of Health Subsidies; More
Kaiser/LA Times Health Insurance Survey – Kaiser Family Foundation and the Los Angeles Times released results of a poll of people with employer-based health insurance and found that overall, most people with employer coverage feel generally satisfied with their insurance, but those with high deductibles or chronic conditions report facing affordability challenges. Those individuals with higher deductibles were more likely to skip or postpone […]
Diagnosed with Cancer? Consider Living Life Like a Professional Cyclist
Guest Post by Mark Corroto — I recommend those diagnosed with cancer consider living life as if they are a professional cyclist. Ok, not racing 100 miles and climbing 10,000 feet of elevation, but attending to their minds and bodies as if preparing for the Amgen Tour of California. Cyclists look for every edge they can proffer to defeat opponents. For example, World Champion Peter Sagan is said to get 9 hours of sleep a night, and many […]
Health Care Roundup: Health Care Proposals Compared; ‘Surprise Billing’ Under Scrutiny; How Cancer Disrupts Young Adults’ Lives; Medicare Part D; More
Comparing Health Care Proposals – As Medicare-for-all and other public health care proposals continue to be released by Members of Congress, Kaiser Family Foundation created a great interactive summary which they update regularly to compare these plans. Most recently, Senator and presidential candidate Bernie Sanders introduced his Medicare-for-all bill in the Senate. | Surprise Billing – Surprise medical billing has been getting a lot of attention […]
Health Care Roundup: NCCS Joins Court Brief in ACA Suit; Challenges of Care Coordination; A Stage 4 Survivor on Living in the Present; More
NCCS Joins Amicus Brief in ACA Lawsuit — On April 1, seventeen patient groups, including NCCS, filed an amicus curiae (“friend-of-the-court”) brief in the U.S. Court of Appeals for the Fifth Circuit in the case Texas v. United States. The brief cited the devastating impact patients would face should the court uphold the district court ruling to invalidate the Affordable Care Act (ACA). The patient groups argue the law was intended to help protect patients with pre-existing […]
17 Patient Groups Urge Appeals Court to Uphold Health Care Law
Loss of Patient Protections Would Raise Barriers to Health Insurance — Seventeen patient groups representing millions of Americans with pre-existing conditions filed an amicus curiae (“friend-of-the-court”) brief today in the U.S. Court of Appeals for the Fifth Circuit in the case Texas v. United States, citing the devastating impact patients would face should the court uphold the District Court ruling to invalidate the Affordable Care Act (ACA). […]
Health Care Roundup: Justice Dept Changes ACA Position; Medicaid Work Requirements Struck Down; Caregivers’ Costs; End-of-Life Conversations; More
There was a steady stream of health care news this past week, including court rulings regarding Medicaid work requirements and association health plans, as well as a major shift in the administration’s position on the Affordable Care Act (ACA) lawsuit. Democrats introduced new legislation to strengthen the ACA on its 9-year anniversary. Here’s what you need to know about these developments: The Justice Department announced that the Trump […]
Health Care Roundup: Kansas Moves Medicaid Expansion; CDC Study: How Patients Reduce Their Drug Costs; Where EHRs Went Wrong; More
Kansas House Sends Medicaid Expansion to Senate – This week, Kansas is one step closer to expanding Medicaid in the state, after lawmakers passed a bill in the House that would add coverage for an estimated 150,000 Kansans. The expansion bill will head to the Senate where the outcome is unknown. From the Wichita Eagle: “The plan expands eligibility for medical assistance to all adults who are under 65 and make less than 133 percent […]
Health Care Roundup: White House Proposes Health Care Cuts; NCI’s Sharpless to Head FDA; Care Planning; Patient Safety; More
White House Releases FY 2020 Budget – Earlier this week, the White House released the President’s Budget. This year’s budget proposes to repeal and replace the Affordable Care Act (ACA) and cap Medicaid, and cuts federal health spending by $659 billion over 10 years. The budget also proposes shaving $818 billion from projected spending on Medicare over 10 years and cutting nearly $1.5 trillion from projected spending on Medicaid. […]
Health Care Roundup: FDA’s Gottlieb Steps Down; Hearings on High Costs; Coping with Cancer’s Aftermath; Why Insurers Deny Claims; More
FDA Commissioner Gottlieb Announces Resignation — On Tuesday, Dr. Scott Gottlieb, commissioner of the Food and Drug Administration, announced that he would be resigning in the next month. Two focus areas during Commissioner Gottlieb’s tenure at the FDA include curbing vaping and making generic drugs more accessible. Dr. Gottlieb says he is stepping down from his role in order to spend more time with his family. Congress Holds […]
NCCS Concerned That Proposed ACA Rule Changes Could Raise Costs for Patients and Disrupt Treatment
NCCS and member organizations of the Cancer Leadership Council (CLC) submitted comments to the HHS in response to the agency’s Notice of Benefits and Payment Parameters for 2020. The Notice contains rules and provisions that will apply to the individual market (the Affordable Care Act marketplace), and small group health insurance markets. The letter states NCCS’ concerns about specific provisions that may threaten cancer patients’ access […]
Health Care Roundup: Senate Hearing w/Pharma CEOs; Medicare for All Introduced; Logistical Toxicity; FDA Warns About Robotic Surgical Devices; More
Senate Finance Hearing on Drug Pricing — The Senate Finance Committee held a hearing this week on drug pricing, and Senators questioned seven CEOs from top pharmaceutical companies. While Senators of both parties asked tough questions about pricing practices and price increases, some experts suggested that the hearing was tamer than expected. In the Washington Post, Paige Cunningham wrote, “In the hearing on drug prices […]
Health Care Roundup: Health Care Spending; Survivorship Care Delivery; Metastatic BC at NY Fashion Week; Susan Gubar on Financial Toxicity; More
This week, the Centers for Medicare and Medicaid Services (CMS) published new health care spending projections for the United States. Unsurprisingly, Medicare spending growth is projected to outpace that of other payers in the coming decade due to enrollment growth and higher use of services. See a breakdown of the projections here. On Wednesday, six hospital groups laid out an eight-point plan for dealing with surprise medical billing, […]
Introducing PatientTrueTalk.com – A Way for Advocates to Directly Help the Newly Diagnosed
Patient True Talk is the only patient-to-patient registry where patients and/or their caregivers can create profiles with as much information as they feel comfortable sharing, and find matching profiles based on algorithms created by some of the country’s top clinical oncologists. Patients/caregivers can also search along their diagnosis/treatment parameters, refining their search based on the results provided. They can then send secure messages […]
Health Care Roundup: New Health Care Bills; NCCS Co-Founder Susie Leigh on Life After Cancer; Oncology Care Model; Racial Disparities; More
Health Care Bills Discussed, ACA Lawsuit News – A group of Democratic lawmakers this week introduced legislation that would allow for a “Medicare Buy-In,” meaning Americans at age 50 could buy into the program for their health care coverage. Spearheaded by Sen. Debbie Stabenow (MI-D) and Rep. Brian Higgins (NY-26), the legislators say the main goal is to promote more affordable coverage. Hearings on the ACA and drug pricing continued this […]
Health Care Roundup: Drug Pricing; Cancer Deaths Rise Globally; Health Care Champion John Dingell Remembered; Treatment at Home; “Survivor” Debate
Drug Pricing at SOTU; House Health Care Hearing — At the State of the Union address, President Trump stated that two of his administration’s health care priorities are to protect individuals with pre-existing conditions and lower drug prices. The address did not specify how to achieve those goals. NCCS commented on several drug pricing proposals released previously by the administration, with a specific focus on what the proposals would mean for patients. […]
Health Care Roundup: More Drug Pricing News; Clinical Trial Challenges; Trump Promises Action on Surprise Billing; Fake Cancer Cures; More
This week, the House and Senate held several hearings related to health care, including a House Ways and Means Committee hearing titled “Protecting Americans with Pre-Existing Conditions.” The hearing illustrated the stark difference between the two parties’ health care goals. There were also dueling drug pricing hearings this week, one from the House Committee on Oversight and Reform titled, “Examining the Actions of Drug Companies […]
NCCS and Cancer Leadership Council Highlight Potential Harm to Patients of Proposed Medicare Part D Changes
The Department of Health and Human Services (HHS) released recently a proposed rule to change Medicare Part D’s protected classes drug coverage. In response, NCCS joined with other patient and provider groups of the Cancer Leadership Council (CLC) to comment on how these proposed changes could impact patients. The proposed rule would give Medicare plans the option to limit coverage of drugs in six categories, including cancer drugs. […]
Health Care Roundup: Gov’t Shutdown Affects FDA; Health Care Hearings; Insomnia & Cancer; “When Cancer Meets the Internet;” More
Gov’t Shutdown Affects FDA; Congressional Hearings on Health Care Scheduled – The government shutdown is now the longest in U.S. history. This week, NCCS joined 46 groups in a letter to Congress and President Trump highlighting the impact the shutdown is having on the FDA’s work on behalf of patients. The groups stated that, “…we fear that this continued shutdown not only puts the current health and safety of Americans at risk, but […]
NCCS Joins Letter Highlighting Impact of Gov’t Shutdown on FDA’s Work on Behalf of Patients
The National Coalition for Cancer Survivorship (NCCS) joined with 46 other patient and provider organizations to call attention to the impact the government shutdown is having on the work of the Food and Drug Administration (FDA). “On behalf of patients across this country, we are greatly concerned that the agency is currently not fully funded, and thousands of vital FDA employees are not working or able to operate at full capacity. […]
NCCS Health Care Roundup: Opposing Medicare Part D Changes; Medicare-for-All Comparisons; Cancer Patients Suicide Risk Study; More
Protecting Medicare Part D’s Protected Classes and Congressional Updates — This week, NCCS joined the American Cancer Society Cancer Action Network in a campaign against proposed Medicare Part D changes. More than 50 groups joined the campaign in opposition to the administration’s proposal to change Medicare Part D’s protected classes drug coverage, which would give Medicare plans the option to limit coverage of drugs in six categories, […]
NCCS Webinar Video: “The Outlook for Health Care in the New Congress”
Health care was the number one issue for a majority of voters in the 2018 midterm elections. With the House majority changing hands and a split Congress, in this webinar we discuss election implications on health care and what to expect in the new Congress. We also provide an overview of how you can connect with new and returning Members of Congress to help them better […]
House Votes to Intervene in ACA Lawsuit; Drug Pricing News; Colon Cancer Rates Rising in Young Adults; More
This week, the House of Representatives voted to formally intervene in Texas v. United States, the lawsuit seeking to invalidate the Affordable Care Act (ACA). With support from three Republican members, it passed by a vote of 235-192. The resolution now heads to the Senate where Republican leaders will likely not bring it up for a vote. This vote follows passage of last week’s provision authorizing the House legal counsel to defend the law. […]
Remembering Richard Payne, MD
With great sadness, we mourn the passing of former NCCS Board Chair Richard Payne, MD, on January 4. Dr. Payne was a member of the NCCS Board of Directors from 2005 to 2012; he served as Board Chair from 2010 to 2011. Thoughtful, deliberative, and soft spoken, Dr. Payne was a valued and collaborative leader of NCCS. A lover of books and golf, he was always attentive and generous to his extended family, both personal and professional. […]
NCCS Applauds House Vote on Behalf of Patients to Defend the ACA and Its Pre-Existing Condition Protections
Today, the House of Representatives voted to formally intervene in Texas v. United States, the lawsuit seeking to invalidate the Affordable Care Act (ACA). The resolution passed the House by a vote of 235-192, with three Republican members voting in support. The resolution now heads to the Senate where Republican leaders will likely not bring it up for a vote. “The Supreme Court ruled repeatedly that the Affordable Care Act (ACA) is constitutional […]
NCCS Letter to CMS Highlights Concerns About Proposed Medicare Part B Reforms
On December 31st, NCCS submitted our final comment letter of the year to the Centers for Medicare and Medicaid Services regarding the advance notice of proposed rulemaking for the Medicare Part B drug program.
In the letter, we outlined concerns that this proposal could have on Medicare beneficiaries such as impacts on patient access to innovative therapies, as well as concerns regarding the enormous scope of the test. NCCS suggested […]
Remembering Jennifer Friar Groves
By CEO Shelley Fuld Nasso — I’d like to share the story of my dear friend, Jennifer Friar Groves, who died earlier this month at the age of 32 from metastatic breast cancer. She gave me her permission to share her story, and in fact, she desperately wanted her story to be shared. Jennifer was diagnosed with breast cancer in April 2016 at the age of 29. She lived in Booneville, Mississippi, in northern Mississippi near Tupelo. She was too young for regular […]
NCCS “Not Persuaded” Drug Pricing in DTC Ads Will Improve Doctor-Patient Communication
Earlier this year, the Centers for Medicare and Medicaid Services (CMS) issued a proposed rule that would require information about drug costs be included in direct-to-consumer (DTC) advertisements of prescription drugs and biological products. NCCS issued a statement regarding the proposal, saying, “While we understand […]
NCCS Statement on District Court Ruling Affordable Care Act Unconstitutional
Silver Spring, M.D. – The National Coalition for Cancer Survivorship (NCCS), a national organization representing survivors of all forms of cancer, released the following statement after the federal district court in the Northern District of Texas declared the Affordable Care Act unconstitutional. “The court’s decision declaring the Affordable Care Act (ACA) unconstitutional puts millions of […]
Remembering Kathryn West
Last weekend, the patient advocacy community lost a fierce advocate, leader, and innovator in raising awareness of the issues cancer survivors experience. Kathryn West, oncology nurse and fierce advocate for cancer patients, died of cancer herself in Los Angeles last Sunday. NCCS first met Kathryn through her role as Advocacy Director for Amgen. Her vision to increase awareness of resources for people affected by cancer led her to champion the […]
NCCS Health Care Roundup: Gov’t Shutdown Threat; NCCS Webinar; Analysis of 8 Democratic Universal Health Care Plans; More
After days of tense negotiations, the House and Senate left town Thursday with no plan to avoid a partial government shutdown. The House will return December 19, leaving only 72 hours for both parties to reach an agreement before a shutdown goes into effect at midnight on December 21. Most of the tension surrounding the potential shutdown surrounds funding for President Trump’s border wall. This week, NCCS hosted a post-election webinar […]
Health Care Roundup: NCCS Meets with Senate Offices Re CMS Waivers; Poor Hospital Quality; Married vs. Single May Impact Cancer Treatment; More
NCCS Meets with Senate Offices to Share Serious Concerns Regarding New CMS Waiver Guidance — This week, NCCS and other organizations in the Cancer Leadership Council participated in meetings with Senate offices to discuss the Centers for Medicare and Medicaid Services’ (CMS) recent waiver guidance. This guidance would permit states to pursue waivers that would undermine the Affordable Care Act (ACA) and its patient protections. […]
Health Care Roundup: CMS Issues New Waiver Options to States to Undermine ACA; Open Enrollment Numbers Still Lag; Role of AI in Health Care; More
CMS Issues New Waiver Options to Undermine the Affordable Care Act — This week, the Centers for Medicare and Medicaid Services (CMS) released four new waiver concepts that would allow states to pursue alternatives to the ACA. This announcement follows recent CMS guidance that outlined broad authority to the states to design their health care systems through a waiver of key ACA requirements and provides states with more specific […]
NCCS Strongly Objects to New CMS Waiver Options That Seek to Further Undermine the ACA
NCCS issued the following statement regarding today’s announcement by the Trump administration outlining options states can pursue to circumvent the Affordable Care Act (ACA). Today’s announcement of these policy options follows previous Centers for Medicare and Medicaid Services (CMS) guidance that outlined broad authority to the states to design their health care systems through a “waiver” of key ACA requirements and provides states […]
NCCS Presents 3rd Annual Ellen L. Stovall Award to Gay Crawford and Dr. Norman Coleman, Their 40+ Year Careers Focused on Improving Patient-Centered Cancer Care
NCCS hosted the 3rd annual Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care reception. Named for former NCCS CEO, Ellen Stovall, who died in 2016 due to complications from three cancer treatments, the award seeks to highlight those who continue Ellen’s work of transforming cancer care to further incorporate patients’ goals, needs, and values. This year’s honorees are Gay Crawford, founding director of Cancer CAREpoint, and Dr. Norman Coleman, senior investigator at the National Cancer Institute. […]
Health Care Roundup: With the Midterms Behind Us, What’s Next For Health Care?
What the Midterm Elections Mean for Health Care — Technically, the midterm elections are behind us. However, with nearly 60 new Representatives ready to join Congress, NCCS continues to analyze the results and identify what opportunities and challenges may lie ahead for cancer care. To start, with the House now in Democratic control, the threat of legislative repeal of the Affordable Care Act (ACA) is likely off the table after two years […]
