Running: Fuel for My Body and Soul After Cancer
Being diagnosed with cancer stinks. It is a traumatic experience that will ripple through your life for years to come. For me it was no different. I was diagnosed with endometrial cancer at 31 and underwent treatment for a year, which included high doses of steroids. After almost two years of remission my cancer returned and had begun to spread to my uterus. My oncologist advised me that a hysterectomy was needed and within a few weeks […]
Moving Through and Beyond Stage IV Colorectal Cancer
By Stacy Hurt, MHA, MBA. “But I’m an athlete and a non-smoker. I do everything right!” Those were my first words to the gastroenterologist who told me that the 11cm tumor in my rectum was “most likely cancer.” You would’ve thought I’d learned the whole “life isn’t fair” lesson when my son, now 13 years old, was diagnosed with a rare genetic chromosomal disorder that rendered him without the ability to walk, talk, or care for himself in any way. […]
Health Care Roundup: House Passes Health Care Bill; Celebrating a Cancerversary; Palliative Care; Cutting Racial Disparities; More
The biggest health care bill of this session made it out of the House and is headed to the Senate, after a party-line vote late Thursday. The bill contains proposals to lower prescription drug prices and to help shore up the Affordable Care Act (ACA), making it politically tricky. It is unlikely that the bill will pass a Republican-controlled Senate. As Politico reports, “The move is likely to force most Republicans to sink the package and go on record […]
Cancer at 30: Reflections on Post-Traumatic Growth
“Dig deep within yourself, for there is a fountain of goodness ever ready to flow if you will keep digging.” —Marcus Aurelius | In December of 2015, I was in the prime of my life. I was thirty years old, recently married, and had just launched a new business. Like most young people, I didn’t expect to get sick. I exercised regularly, ate reasonably well, and otherwise tried to take care of myself. On December 19th, I went to the doctor. I had a small lump. I assumed […]
Finding Healing Hope – By Wendy S. Harpham, MD
Let’s discuss “hope.” After a cancer diagnosis, few topics are mentioned more…and discussed less. That’s a problem because what you hope for may mean the difference between enjoying life or feeling miserable. Maybe even between life and death. So how do you find hope? Not just any hope, but healing hope, namely hope that helps you get good care and live as fully as possible. Hope that helps you live your best life. The good news is there’s […]
Health Care Roundup: Kaiser Health Insurance Survey; House Holds Medicare-for-All Hearing; CBO Analysis of Health Subsidies; More
Kaiser/LA Times Health Insurance Survey – Kaiser Family Foundation and the Los Angeles Times released results of a poll of people with employer-based health insurance and found that overall, most people with employer coverage feel generally satisfied with their insurance, but those with high deductibles or chronic conditions report facing affordability challenges. Those individuals with higher deductibles were more likely to skip or postpone […]
Diagnosed with Cancer? Consider Living Life Like a Professional Cyclist
Guest Post by Mark Corroto — I recommend those diagnosed with cancer consider living life as if they are a professional cyclist. Ok, not racing 100 miles and climbing 10,000 feet of elevation, but attending to their minds and bodies as if preparing for the Amgen Tour of California. Cyclists look for every edge they can proffer to defeat opponents. For example, World Champion Peter Sagan is said to get 9 hours of sleep a night, and many […]
Health Care Roundup: Health Care Proposals Compared; ‘Surprise Billing’ Under Scrutiny; How Cancer Disrupts Young Adults’ Lives; Medicare Part D; More
Comparing Health Care Proposals – As Medicare-for-all and other public health care proposals continue to be released by Members of Congress, Kaiser Family Foundation created a great interactive summary which they update regularly to compare these plans. Most recently, Senator and presidential candidate Bernie Sanders introduced his Medicare-for-all bill in the Senate. | Surprise Billing – Surprise medical billing has been getting a lot of attention […]
Health Care Roundup: NCCS Joins Court Brief in ACA Suit; Challenges of Care Coordination; A Stage 4 Survivor on Living in the Present; More
NCCS Joins Amicus Brief in ACA Lawsuit — On April 1, seventeen patient groups, including NCCS, filed an amicus curiae (“friend-of-the-court”) brief in the U.S. Court of Appeals for the Fifth Circuit in the case Texas v. United States. The brief cited the devastating impact patients would face should the court uphold the district court ruling to invalidate the Affordable Care Act (ACA). The patient groups argue the law was intended to help protect patients with pre-existing […]
17 Patient Groups Urge Appeals Court to Uphold Health Care Law
Loss of Patient Protections Would Raise Barriers to Health Insurance — Seventeen patient groups representing millions of Americans with pre-existing conditions filed an amicus curiae (“friend-of-the-court”) brief today in the U.S. Court of Appeals for the Fifth Circuit in the case Texas v. United States, citing the devastating impact patients would face should the court uphold the District Court ruling to invalidate the Affordable Care Act (ACA). […]
Health Care Roundup: Justice Dept Changes ACA Position; Medicaid Work Requirements Struck Down; Caregivers’ Costs; End-of-Life Conversations; More
There was a steady stream of health care news this past week, including court rulings regarding Medicaid work requirements and association health plans, as well as a major shift in the administration’s position on the Affordable Care Act (ACA) lawsuit. Democrats introduced new legislation to strengthen the ACA on its 9-year anniversary. Here’s what you need to know about these developments: The Justice Department announced that the Trump […]
Health Care Roundup: Kansas Moves Medicaid Expansion; CDC Study: How Patients Reduce Their Drug Costs; Where EHRs Went Wrong; More
Kansas House Sends Medicaid Expansion to Senate – This week, Kansas is one step closer to expanding Medicaid in the state, after lawmakers passed a bill in the House that would add coverage for an estimated 150,000 Kansans. The expansion bill will head to the Senate where the outcome is unknown. From the Wichita Eagle: “The plan expands eligibility for medical assistance to all adults who are under 65 and make less than 133 percent […]
Health Care Roundup: White House Proposes Health Care Cuts; NCI’s Sharpless to Head FDA; Care Planning; Patient Safety; More
White House Releases FY 2020 Budget – Earlier this week, the White House released the President’s Budget. This year’s budget proposes to repeal and replace the Affordable Care Act (ACA) and cap Medicaid, and cuts federal health spending by $659 billion over 10 years. The budget also proposes shaving $818 billion from projected spending on Medicare over 10 years and cutting nearly $1.5 trillion from projected spending on Medicaid. […]
Health Care Roundup: FDA’s Gottlieb Steps Down; Hearings on High Costs; Coping with Cancer’s Aftermath; Why Insurers Deny Claims; More
FDA Commissioner Gottlieb Announces Resignation — On Tuesday, Dr. Scott Gottlieb, commissioner of the Food and Drug Administration, announced that he would be resigning in the next month. Two focus areas during Commissioner Gottlieb’s tenure at the FDA include curbing vaping and making generic drugs more accessible. Dr. Gottlieb says he is stepping down from his role in order to spend more time with his family. Congress Holds […]
NCCS Concerned That Proposed ACA Rule Changes Could Raise Costs for Patients and Disrupt Treatment
NCCS and member organizations of the Cancer Leadership Council (CLC) submitted comments to the HHS in response to the agency’s Notice of Benefits and Payment Parameters for 2020. The Notice contains rules and provisions that will apply to the individual market (the Affordable Care Act marketplace), and small group health insurance markets. The letter states NCCS’ concerns about specific provisions that may threaten cancer patients’ access […]
Health Care Roundup: Senate Hearing w/Pharma CEOs; Medicare for All Introduced; Logistical Toxicity; FDA Warns About Robotic Surgical Devices; More
Senate Finance Hearing on Drug Pricing — The Senate Finance Committee held a hearing this week on drug pricing, and Senators questioned seven CEOs from top pharmaceutical companies. While Senators of both parties asked tough questions about pricing practices and price increases, some experts suggested that the hearing was tamer than expected. In the Washington Post, Paige Cunningham wrote, “In the hearing on drug prices […]
Health Care Roundup: Health Care Spending; Survivorship Care Delivery; Metastatic BC at NY Fashion Week; Susan Gubar on Financial Toxicity; More
This week, the Centers for Medicare and Medicaid Services (CMS) published new health care spending projections for the United States. Unsurprisingly, Medicare spending growth is projected to outpace that of other payers in the coming decade due to enrollment growth and higher use of services. See a breakdown of the projections here. On Wednesday, six hospital groups laid out an eight-point plan for dealing with surprise medical billing, […]
Introducing PatientTrueTalk.com – A Way for Advocates to Directly Help the Newly Diagnosed
Patient True Talk is the only patient-to-patient registry where patients and/or their caregivers can create profiles with as much information as they feel comfortable sharing, and find matching profiles based on algorithms created by some of the country’s top clinical oncologists. Patients/caregivers can also search along their diagnosis/treatment parameters, refining their search based on the results provided. They can then send secure messages […]
Health Care Roundup: New Health Care Bills; NCCS Co-Founder Susie Leigh on Life After Cancer; Oncology Care Model; Racial Disparities; More
Health Care Bills Discussed, ACA Lawsuit News – A group of Democratic lawmakers this week introduced legislation that would allow for a “Medicare Buy-In,” meaning Americans at age 50 could buy into the program for their health care coverage. Spearheaded by Sen. Debbie Stabenow (MI-D) and Rep. Brian Higgins (NY-26), the legislators say the main goal is to promote more affordable coverage. Hearings on the ACA and drug pricing continued this […]
Health Care Roundup: Drug Pricing; Cancer Deaths Rise Globally; Health Care Champion John Dingell Remembered; Treatment at Home; “Survivor” Debate
Drug Pricing at SOTU; House Health Care Hearing — At the State of the Union address, President Trump stated that two of his administration’s health care priorities are to protect individuals with pre-existing conditions and lower drug prices. The address did not specify how to achieve those goals. NCCS commented on several drug pricing proposals released previously by the administration, with a specific focus on what the proposals would mean for patients. […]
Health Care Roundup: More Drug Pricing News; Clinical Trial Challenges; Trump Promises Action on Surprise Billing; Fake Cancer Cures; More
This week, the House and Senate held several hearings related to health care, including a House Ways and Means Committee hearing titled “Protecting Americans with Pre-Existing Conditions.” The hearing illustrated the stark difference between the two parties’ health care goals. There were also dueling drug pricing hearings this week, one from the House Committee on Oversight and Reform titled, “Examining the Actions of Drug Companies […]
NCCS and Cancer Leadership Council Highlight Potential Harm to Patients of Proposed Medicare Part D Changes
The Department of Health and Human Services (HHS) released recently a proposed rule to change Medicare Part D’s protected classes drug coverage. In response, NCCS joined with other patient and provider groups of the Cancer Leadership Council (CLC) to comment on how these proposed changes could impact patients. The proposed rule would give Medicare plans the option to limit coverage of drugs in six categories, including cancer drugs. […]
Health Care Roundup: Gov’t Shutdown Affects FDA; Health Care Hearings; Insomnia & Cancer; “When Cancer Meets the Internet;” More
Gov’t Shutdown Affects FDA; Congressional Hearings on Health Care Scheduled – The government shutdown is now the longest in U.S. history. This week, NCCS joined 46 groups in a letter to Congress and President Trump highlighting the impact the shutdown is having on the FDA’s work on behalf of patients. The groups stated that, “…we fear that this continued shutdown not only puts the current health and safety of Americans at risk, but […]
NCCS Joins Letter Highlighting Impact of Gov’t Shutdown on FDA’s Work on Behalf of Patients
The National Coalition for Cancer Survivorship (NCCS) joined with 46 other patient and provider organizations to call attention to the impact the government shutdown is having on the work of the Food and Drug Administration (FDA). “On behalf of patients across this country, we are greatly concerned that the agency is currently not fully funded, and thousands of vital FDA employees are not working or able to operate at full capacity. […]
NCCS Health Care Roundup: Opposing Medicare Part D Changes; Medicare-for-All Comparisons; Cancer Patients Suicide Risk Study; More
Protecting Medicare Part D’s Protected Classes and Congressional Updates — This week, NCCS joined the American Cancer Society Cancer Action Network in a campaign against proposed Medicare Part D changes. More than 50 groups joined the campaign in opposition to the administration’s proposal to change Medicare Part D’s protected classes drug coverage, which would give Medicare plans the option to limit coverage of drugs in six categories, […]
NCCS Webinar Video: “The Outlook for Health Care in the New Congress”
Health care was the number one issue for a majority of voters in the 2018 midterm elections. With the House majority changing hands and a split Congress, in this webinar we discuss election implications on health care and what to expect in the new Congress. We also provide an overview of how you can connect with new and returning Members of Congress to help them better […]
House Votes to Intervene in ACA Lawsuit; Drug Pricing News; Colon Cancer Rates Rising in Young Adults; More
This week, the House of Representatives voted to formally intervene in Texas v. United States, the lawsuit seeking to invalidate the Affordable Care Act (ACA). With support from three Republican members, it passed by a vote of 235-192. The resolution now heads to the Senate where Republican leaders will likely not bring it up for a vote. This vote follows passage of last week’s provision authorizing the House legal counsel to defend the law. […]
Remembering Richard Payne, MD
With great sadness, we mourn the passing of former NCCS Board Chair Richard Payne, MD, on January 4. Dr. Payne was a member of the NCCS Board of Directors from 2005 to 2012; he served as Board Chair from 2010 to 2011. Thoughtful, deliberative, and soft spoken, Dr. Payne was a valued and collaborative leader of NCCS. A lover of books and golf, he was always attentive and generous to his extended family, both personal and professional. […]
NCCS Applauds House Vote on Behalf of Patients to Defend the ACA and Its Pre-Existing Condition Protections
Today, the House of Representatives voted to formally intervene in Texas v. United States, the lawsuit seeking to invalidate the Affordable Care Act (ACA). The resolution passed the House by a vote of 235-192, with three Republican members voting in support. The resolution now heads to the Senate where Republican leaders will likely not bring it up for a vote. “The Supreme Court ruled repeatedly that the Affordable Care Act (ACA) is constitutional […]
NCCS Letter to CMS Highlights Concerns About Proposed Medicare Part B Reforms
On December 31st, NCCS submitted our final comment letter of the year to the Centers for Medicare and Medicaid Services regarding the advance notice of proposed rulemaking for the Medicare Part B drug program.
In the letter, we outlined concerns that this proposal could have on Medicare beneficiaries such as impacts on patient access to innovative therapies, as well as concerns regarding the enormous scope of the test. NCCS suggested […]
Remembering Jennifer Friar Groves
By CEO Shelley Fuld Nasso — I’d like to share the story of my dear friend, Jennifer Friar Groves, who died earlier this month at the age of 32 from metastatic breast cancer. She gave me her permission to share her story, and in fact, she desperately wanted her story to be shared. Jennifer was diagnosed with breast cancer in April 2016 at the age of 29. She lived in Booneville, Mississippi, in northern Mississippi near Tupelo. She was too young for regular […]
NCCS “Not Persuaded” Drug Pricing in DTC Ads Will Improve Doctor-Patient Communication
Earlier this year, the Centers for Medicare and Medicaid Services (CMS) issued a proposed rule that would require information about drug costs be included in direct-to-consumer (DTC) advertisements of prescription drugs and biological products. NCCS issued a statement regarding the proposal, saying, “While we understand […]
NCCS Statement on District Court Ruling Affordable Care Act Unconstitutional
Silver Spring, M.D. – The National Coalition for Cancer Survivorship (NCCS), a national organization representing survivors of all forms of cancer, released the following statement after the federal district court in the Northern District of Texas declared the Affordable Care Act unconstitutional. “The court’s decision declaring the Affordable Care Act (ACA) unconstitutional puts millions of […]
Remembering Kathryn West
Last weekend, the patient advocacy community lost a fierce advocate, leader, and innovator in raising awareness of the issues cancer survivors experience. Kathryn West, oncology nurse and fierce advocate for cancer patients, died of cancer herself in Los Angeles last Sunday. NCCS first met Kathryn through her role as Advocacy Director for Amgen. Her vision to increase awareness of resources for people affected by cancer led her to champion the […]
NCCS Health Care Roundup: Gov’t Shutdown Threat; NCCS Webinar; Analysis of 8 Democratic Universal Health Care Plans; More
After days of tense negotiations, the House and Senate left town Thursday with no plan to avoid a partial government shutdown. The House will return December 19, leaving only 72 hours for both parties to reach an agreement before a shutdown goes into effect at midnight on December 21. Most of the tension surrounding the potential shutdown surrounds funding for President Trump’s border wall. This week, NCCS hosted a post-election webinar […]
Health Care Roundup: NCCS Meets with Senate Offices Re CMS Waivers; Poor Hospital Quality; Married vs. Single May Impact Cancer Treatment; More
NCCS Meets with Senate Offices to Share Serious Concerns Regarding New CMS Waiver Guidance — This week, NCCS and other organizations in the Cancer Leadership Council participated in meetings with Senate offices to discuss the Centers for Medicare and Medicaid Services’ (CMS) recent waiver guidance. This guidance would permit states to pursue waivers that would undermine the Affordable Care Act (ACA) and its patient protections. […]
Health Care Roundup: CMS Issues New Waiver Options to States to Undermine ACA; Open Enrollment Numbers Still Lag; Role of AI in Health Care; More
CMS Issues New Waiver Options to Undermine the Affordable Care Act — This week, the Centers for Medicare and Medicaid Services (CMS) released four new waiver concepts that would allow states to pursue alternatives to the ACA. This announcement follows recent CMS guidance that outlined broad authority to the states to design their health care systems through a waiver of key ACA requirements and provides states with more specific […]
NCCS Strongly Objects to New CMS Waiver Options That Seek to Further Undermine the ACA
NCCS issued the following statement regarding today’s announcement by the Trump administration outlining options states can pursue to circumvent the Affordable Care Act (ACA). Today’s announcement of these policy options follows previous Centers for Medicare and Medicaid Services (CMS) guidance that outlined broad authority to the states to design their health care systems through a “waiver” of key ACA requirements and provides states […]
NCCS Presents 3rd Annual Ellen L. Stovall Award to Gay Crawford and Dr. Norman Coleman, Their 40+ Year Careers Focused on Improving Patient-Centered Cancer Care
NCCS hosted the 3rd annual Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care reception. Named for former NCCS CEO, Ellen Stovall, who died in 2016 due to complications from three cancer treatments, the award seeks to highlight those who continue Ellen’s work of transforming cancer care to further incorporate patients’ goals, needs, and values. This year’s honorees are Gay Crawford, founding director of Cancer CAREpoint, and Dr. Norman Coleman, senior investigator at the National Cancer Institute. […]
Health Care Roundup: With the Midterms Behind Us, What’s Next For Health Care?
What the Midterm Elections Mean for Health Care — Technically, the midterm elections are behind us. However, with nearly 60 new Representatives ready to join Congress, NCCS continues to analyze the results and identify what opportunities and challenges may lie ahead for cancer care. To start, with the House now in Democratic control, the threat of legislative repeal of the Affordable Care Act (ACA) is likely off the table after two years […]
Health Care Roundup: ACA Open Enrollment News; Head and Neck Survivor Mental Health Study; Fear of Recurrence Webinar; More
Open Enrollment for ACA Now Underway — Open enrollment for 2019 ACA plans began yesterday and will run through December 15, 2018. Despite numerous attempts to repeal the ACA in 2017 and an ongoing court case in Texas, the ACA continues ahead, business as usual, for the most part. Many Americans will qualify for financial help that lowers their monthly premiums to between $50 and $100. Tara Siegel Bernard reports in the New York Times […]
NCCS Webinar Video: “Understanding Fear of Cancer Recurrence”
Those with a cancer experience are all too familiar with the anxiety that many experience wondering and waiting if and how cancer may return. New research is helping shed more light on what exactly “fear of cancer recurrence” means as a measurable patient outcome, psychological and emotional factors that may increase or decrease it, and […]
Health Care Roundup: New Medicare Drug Pricing Proposal; New ACA Waiver Guidance; High Price of Precision Medicine; Midterms; More
A Week of Proposals and New Regulations – This week, there were several regulations and proposals announced by the Trump Administration that would impact health care in the U.S. The announcement that made the biggest splash was revealed yesterday and would require drugs administered by physicians and paid for by Medicare, known as Part B drugs, to be priced based on the prices paid in other advanced industrial nations. The proposal […]
Patient and Consumer Groups Urge Federal Court to Issue Preliminary Injunction Against Short-Term Insurance Rule
U.S. District Court Judge Richard J. Leon is expected to hear oral arguments today in Washington, D.C., from groups challenging a rule implementing changes to short-term, limited-duration (STLD) insurance plans. The hearing in the case Association for Community Affiliated Plans v. United States Department of Treasury will allow the plaintiffs to explain the devastating impact patients could face under the rule if bare-bones plans that do not comply […]
Coalition, Including NCCS, Urges CMS to Withdraw Guidance Threatening Millions of Americans Who Have Pre-Existing Conditions
More than 25 patient and consumer groups representing millions of people nationwide with pre-existing health conditions issued the following statement in response to administration guidance issued on October 22nd that gives states greater ability to skirt patient protections included in the Affordable Care Act: “The guidance issued by the Administration gives states free reign to undermine critical protections for millions of Americans living with pre-existing conditions […]
NCCS Concerned About New CMS Guidance on 1332 Waiver Process
The National Coalition for Cancer Survivorship (NCCS) is extremely concerned by the Centers for Medicare and Medicaid Services’ (CMS) new guidance document that significantly alters the standards that states must meet in order to be granted a waiver from certain Affordable Care Act (ACA) requirements. The Trump administration would permit states to revise the rules of their health insurance markets significantly, including to authorize […]
NCCS Expresses Reservations Regarding Effectiveness and Impact of New CMS Drug Pricing Proposal
A focus of the National Coalition for Cancer Survivorship (NCCS) since it was founded over thirty years ago continues to be empowering patients to make informed decisions, and this includes transparency about the cost of health care. The Centers for Medicare & Medicaid Services (CMS) recently proposed that list prices be included in direct-to-consumer (DTC) television advertisements of drugs that are reimbursed by Medicare and Medicaid. […]
Health Care Roundup: Drug Pricing in TV Ads; Even with Insurance, Serious Illness Can Mean Financial Distress; Fertility in Young Survivors; More
HHS Proposes Rule Requiring Drug Pricing in TV Ads – On Monday, Department of Health and Human Services (HHS) Secretary Alex Azar announced that HHS introduced a proposed rule to require direct-to-consumer television advertisements for prescription drugs include pricing information. According to the proposed rule, drugs paid for by Medicare or Medicaid must include the list price of the drug if it costs more than $35 for a month’s supply […]
Health Care Roundup: Patient Orgs Push Back on ‘Junk Insurance’; Rx ‘Gag Clause’ Bans; What Survivors Wish Others Understand; ACA Premiums; More
NCCS & Patient Orgs Push Back on Short-term Plans — Recently, the Centers for Medicare and Medicaid Services (CMS) announced it would allow insurers to offer expanded short-term, limited duration plans, known as “junk insurance.” This action led NCCS to join several other national organizations in filing an amicus curiae brief in support of a lawsuit that challenges the regulation authorizing short-term health insurance plans. The amicus brief […]
NCCS Joins 11 Organizations in Filing Amicus Curiae Brief Supporting Lawsuit Challenging Short-Term Health Plans
The National Coalition for Cancer Survivorship (NCCS) joined 11 other patient groups in filing an amicus curiae (or “friend of the court”) brief in support of the lawsuit that challenges the regulation authorizing short-term health insurance plans. The amicus curiae brief explains to the court the potentially devastating impact of short-term health insurance plans on people with cancer and other Americans with serious and chronic diseases. […]
Health Care Roundup: Medicare ‘Step Therapy’ Concerns; Alternative Cancer Treatment Risks; Immunotherapy Scientists Win Nobel Prize; More
HEALTH CARE HIGHLIGHT – NCCS Submits Concerns to HHS Regarding New “Step Therapy” Plan – NCCS joined with other cancer organizations of the Cancer Leadership Council (CLC) in a letter to the Department of Health and Human Services (HHS) and the Centers for Medicare and Medicaid Services (CMS) regarding the new plan announced on August 7 that gives Medicare Advantage plans the option of applying step therapy for […]
NCCS Joins with Cancer Leadership Council to Outline Concerns Regarding New “Step Therapy” Plan
NCCS joined with other cancer organizations of the Cancer Leadership Council (CLC) in a letter to the Department of Health and Human Services (HHS) and the Centers for Medicare and Medicaid Services (CMS) regarding the new plan announced on August 7 that gives Medicare Advantage plans the option of applying step therapy for physician-administered and other Part B drugs. The letter outlines several concerns regarding the application of step therapy […]
NCCS Congratulates Nobel Prize in Medicine Winners for Cancer Immunotherapy Research
Silver Spring, MD – The National Coalition for Cancer Survivorship (NCCS) issued the following statement after the announcement of this year’s winners for the Nobel Prize in Medicine, James P. Allison and Tasuku Honjo, whose research into the human immune system led to immunotherapy cancer drugs. “The National Coalition for Cancer Survivorship (NCCS) congratulates Dr. James Allison and Dr. Tasuku Honjo for their breakthrough research […]
Health Care Roundup: NCCS on Proposed OPPS Changes; Bipartisan Proposal to End ‘Surprise Billing’; Medicaid Work Req’s; Financial Toxicity Survey; More
HEALTH CARE HIGHLIGHTS—NCCS submitted a letter to the Centers for Medicare and Medicaid Services (CMS) on the proposed update to the hospital outpatient prospective payment system, known as OPPS, for calendar year 2019. In the letter, NCCS addressed the proposed “site neutral” payments, which would reduce patient cost-sharing but could have other unintended consequences for patient access. NCCS also commented on […]
NCCS Submits Recommendations to CMS Regarding Proposed Changes to Hospital Outpatient Prospective Payment System (OPPS)
NCCS submitted a letter to the Centers for Medicare and Medicaid Services (CMS) on the proposed update to the hospital outpatient prospective payment system, known as OPPS, for calendar year 2019. In the letter, NCCS outlines support for a change in payment for clinical services that are provided at off-campus provider-based departments that will reduce cost-sharing for patients for clinic visits. Additionally, CMS included a “request for information” […]
NCCS Joins Cancer Leadership Council Recommendations to FDA Regarding the Biosimilar Action Plan
NCCS joined with other organizations of the Cancer Leadership Council (CLC) in commenting on the FDA Biosimilar Action Plan (BAP). The comment letter commended the FDA for the development of a plan that balances both innovation and competition. The letter stated that these products provide significant benefits to cancer patients, but that they also come at a significant expense to patients and the health care system. […]
Health Care Roundup: ‘Misleading’ Pre-Existing Conditions Bill; Clinical Trials Lack Black Patients; ‘Cancer Coaching’ Ethics; Young Adult Cancer Advocates
NCCS and 30+ Patient Orgs Raise Concerns Over Senate Pre-Ex Bill — This week, NCCS and more than 30 other patient advocacy organizations submitted a letter to Senator Tillis (R-NC) detailing why his bill does not go far enough in protecting pre-existing conditions despite his intentions. The bill title, “Ensuring Coverage for Patients with Pre-Existing Conditions Act” (S.3388), is misleading and, if passed, would not provide adequate coverage […]
NCCS Raises Concerns Over Impact on Patients of Medicare Physician Fee Schedule Revisions
NCCS submitted comments to the Centers for Medicare and Medicaid Services (CMS) on the Medicare physician fee schedule revisions proposed for calendar year 2019 and proposed revisions in the Quality Payment Program. In our comments, NCCS addressed proposed changes to evaluation and management services, which are provided in the office or outpatient setting and are a critical element of cancer care. CMS proposed creating a […]
Health Care Roundup: Maryland, Advocacy Groups File Suits to Protect ACA; Emergency Resources for Survivors; False Hope in Precision Medicine; More
This week, the US Census Bureau released health insurance coverage estimates for 2017. Between 2016 and 2017, the overall uninsured rate did not change significantly, but 14 states experienced an increase in the number of uninsured individuals, due to poverty status or whether the state expanded Medicaid. While coverage numbers dropped in many states, the Trump Administration continues to cut ACA navigator funding, which […]
Health Care Roundup: Texas Court Hears ACA Lawsuit; House, Senate Advance Pharmacy “Gag Clause” Bans; Long-Distance Caregiving; and More
In order to bring you the latest cancer-related health care policy and news, we at NCCS combined our ACA Updates and What Caught Our Eye (WCOE) content into a weekly email and blog post. We aim to make this a concise, one-stop summary of what you need to know as we continue working together to make cancer care better […]
