Events
Upcoming Events
Recent Webinars
Webinar: Family Building and Cancer
December 5, 2024
The National Coalition for Cancer Survivorship (NCCS) presented the webinar “Family Building and Cancer,” for an audience of health care professionals, cancer survivors, and caregivers alike. Being diagnosed with cancer at a young age could mean your future fertility is at risk. During this educational webinar for cancer patients and their care teams, we discussed what young cancer patients need to know about fertility preservation and building a family in survivorship, including non-traditional methods like adoption, surrogacy, and embryo donation.
Dr. Elizabeth Constance, a reproductive endocrinologist, presented information about fertility preservation and how to build a family in survivorship through assisted reproductive technology and more. Megan Scherer, co-founder and executive director of Worth the Wait, a charity supporting young adult cancer survivors, discussed financial and psychosocial resources and provide the basics on adoption and surrogacy for cancer survivors.
Webinar: The Promise and Challenges of Multi-Cancer Early Detection Tools (MCED)
November 5, 2024
NCCS hosted an insightful webinar discussion exploring the groundbreaking field of multi-cancer early detection (MCED) tools. As advancements in technology and biology open new avenues for cancer screening, the potential to detect multiple cancer types at earlier stages is both promising and complex.
In this conversation, Dr. Otis Brawley brings his extensive experience in oncology, epidemiology, and public health to help us understand the current research questions related to multi-cancer screening, how MCED tools may fit into the broader picture of screening, and clinical implications of early detection strategies. Stacey Tinianov, MPH, a cancer survivor and passionate patient advocate who serves as Executive Director of Advocates for Collaborative Education, shares the cancer survivor perspective on how these tests will impact reducing cancer risk.
The webinar begins with a description of what an MCED is, what what it is not (see slide below), followed by a lively conversation between the speakers moderated by NCCS CEO Shelley Fuld Nasso.
Whether you’re a health care professional or researcher, this webinar will equip you with the knowledge to navigate the evolving landscape of cancer detection. Join us in this critical conversation about the future of cancer care.
NCCS Presents The State of Cancer Survivorship: 2024 Survey Results
Hear the results of NCCS’s annual State of Survivorship Survey, a nationwide panel of cancer survivors and caregivers. With more than 2,100 participants, this report examines key areas such as treatment decision-making, post-treatment care, clinical trial participation, side effects, and financial burdens.
On October 30, NCCS hosted a web briefing to present the findings from the 2024 survey. Pam Loeb, Principal of Edge Research, and Shelley Fuld Nasso discussed the results in detail and took questions from an audience of survivors, health care professionals, researchers, and more. In the presentation, they highlight both the alignment and differences between caregivers and patients in their decision-making and satisfaction with cancer care. Our 2024 survey also introduced new questions, exploring reasons for participating — or choosing not to participate — in clinical trials, seeking second opinions, and experiences with survivorship care plans, among other topics.
Compassion in Oncology: A Powerful Antidote to a Patient’s Negative Emotions and a Confidence Builder
March 14, 2024
NCCS presents a webinar featuring Dr. Michael Crain and Claudio Pannunzio from The Patient is U. Their presentation explores the concept of “Empathy + Action = Compassion” and shares the benefits of compassionate care.
Compassionate care engenders three key meaningful results:
- Improving patient outcomes and satisfaction.
- Decreasing health care costs.
- Reducing workplace burnout.
Cancer patients who educate themselves about their condition, medical intervention options, and potential outcomes are able to ask informed questions and make better decisions. Open communication and mutual respect between patient and caregiver foster a compassionate health care relationship. Care is at the heart of compassionate health care. It embodies the emotional connection, personalized attention, and holistic approach that are essential for creating a healing and supportive health care experience for patients.
At the conclusion of this webinar, participants will know that compassion is the driving force behind every interaction and decision in compassionate health care.
Managing Function and Quality of Life of Head and Neck Cancer Survivors
February 14
The treatment of head and neck cancer (HNC) often involves surgery, radiation, and chemotherapy. This treatment is critical for controlling or curing head and neck cancer. Though necessary, these treatments, particularly radiation therapy, can cause fibrosis (hardening) of the tissues, neck and face. This is known as radiation fibrosis. Radiation fibrosis can be painful and result in loss of neck movement, inability to open the mouth, trouble speaking, trouble swallowing, shoulder problems, swelling (known as lymphedema), and many other issues.
In this session, Dr. Michael Stubblefield of the Kessler Institute for Rehabilitation is joined by Speech Language Pathologist Brittany Boynton and Occupational Therapist Jennifer Maximos Hrdina, all of whom specialize in cancer rehabilitation. The team discusses how to know if you have radiation fibrosis, how medical professionals evaluate it, and importantly, how to treat it. NCCS CEO Shelley Fuld Nasso moderates a Q&A with the speakers after the presentation.
The goal of this session is to help you or your loved one with radiation fibrosis have the knowledge and tools to lead their best life.
Making the Mouth-Body Connection in Cancer Care
January 31, 2024
NCCS presents a Survivorship Champions webinar about oral care — an aspect of cancer treatment that is often overlooked. Oral side effects and untreated dental diseases can cause added pain, financial hardships, psychological distress, and a diminished quality of life for those being treated for cancer. Oral effects can also lead to complications or delays of therapies, which can compromise treatment outcomes. Oral changes may have a continued negative impact post-treatment.
In this webinar, Jill Meyer-Lippert, RDH, a longtime dental hygienist and founder of Side Effect Support, discusses the current evidence of oral-systemic links with various types of cancer and success stories of hospital-based oral health programs.
This presentation reviews potential oral side effects associated with various cancer treatments, as well as ways to prevent, delay, or reduce these complications by focusing on prevention and patient education. A focus on oral hygiene modifications and product recommendations will help us to empower our patients to make surprisingly simple changes to reduce their risks. We will discuss ways for the medical and dental teams to work together to provide optimal patient care.
After this course, participants will be able to:
- Identify oral-systemic links with various types of cancer.
- Describe oral side effects of cancer treatments and how they may affect quality of life and mortality.
- Discuss preventive strategies to avoid and manage short-term and long-term oral side effects.
- Develop strategies for the medical team and dental team to work together to improve patient care.
NCCS Cancer Policy Roundtable Highlights
January 17, 2024
During our Fall Cancer Policy Roundtable in November 2023, NCCS hosted a compelling series of panels and guest speakers, discussing important issues in quality cancer survivorship care. As many of our CPAT members across the country were unable to join this in-person event, we wanted to provide highlights from the roundtable on two of the topics discussed: Medicare Advantage and the drug pricing provisions in the Inflation Reduction Act (IRA).
This 60-minute webinar consists of two sessions. In the first session, Dr. Tricia Neuman of KFF addresses the benefits and trade-offs of Medicare Advantage plans — which now cover more than half of Medicare beneficiaries — as well as ways the program could be improved to better serve cancer survivors. The second session features Kirsten Axelsen of DLA Piper and Dr. Mariana Socal of Johns Hopkins University, who discuss implementation of the IRA, including anticipated benefits for patients, as well as the possible implications for pharmaceutical research and development. NCCS CEO Shelley Fuld Nasso moderates the discussions and asks questions from the webinar audience.
Reconnecting to Life After Cancer: Permission to Feel
December 5, 2023
NCCS presents “Reconnecting to Life After Cancer: Permission to Feel,” a webinar featuring Kathy Washburn, a certified holistic cancer coach and cancer survivor.
In this webinar you will learn about the evolutionary function of both positive and negative emotions, understand that emotions offer data, and begin to practice awareness to empower you to respond — instead of react — to life.
As humans, we experience a constant inner stream of thoughts and feelings that serve a purpose — gauge safety and danger and set off reactions to both. Positive and negative emotions are not good or bad. They offer us unique data that we can learn to use in order to live with more ease and joy. Many of us learned to suppress our feelings, needs, and desires in service to others as a way that, at one time in our life, kept us safe, allowed us to cope with our surroundings. As we move through life, these old coping ways become maladaptive. Repression as a behavioral pattern is one of many factors in cancer risk and cancer recovery. Chronically suppressing needs and feelings to accommodate others weakens our immune system leaving us vulnerable to dis-ease.
Note: This webinar is life coaching, not therapy, and may not be appropriate for those experiencing significant and persistent emotional challenges.
Survivorship at Atrium Health Wake Forest Baptist Comprehensive Cancer Center: Creating a Practical Workflow
May 4, 2023
The National Coalition for Cancer Survivorship (NCCS) hosted a Survivorship Champions webinar about survivorship care implementation, “Survivorship at Atrium Health Wake Forest Baptist Comprehensive Cancer Center: Creating a Practical Workflow.” In this webinar, Dr. Stacy Wentworth and Jill Hyson, MSN, NP-C discuss survivorship care as a critical component of a patient’s cancer journey.
The presenters review the NCCN guidelines and the different models of survivorship care, including medical monitoring versus survivorship care. They also provide an overview of the Survivorship Program at Atrium Wake Forest Baptist Health Comprehensive Cancer Center. Jill Hyson, NP presents a case study on the Lung Cancer Survivorship Pathways and discusses the patient and provider workflow, best practices for managing moderate and severe distress, and referrals and orders.
This webinar is designed for health care and oncology professionals seeking to improve their knowledge and skills in survivorship care. Watch below and learn practical strategies for providing quality survivorship care to your patients.
Amplifying Your Message: Advocating Through Traditional Media Channels
April 18, 2023
While social media is an important tool for amplifying cancer advocacy messages, traditional media outlets like newspapers, television, and radio, and their digital counterparts, are still relevant and can help raise awareness and put pressure on decision makers.
Drawing on his experience as a regional media advocacy director for the nation’s largest cancer nonprofit organization, as well as his current work as a volunteer for several organizations, Michael will share examples and best practices for working with and building relationships with the media.
In this webinar, you will learn how to make initial pitches to members of the media, get tips and tricks for getting coverage of events, and how to be prepared to share your story. Michael will also offer advice on the dos and do nots of media interviews and discuss the power of letters to the editor and op/eds for “giving legs” to advocates’ messages.
While this webinar will focus on amplifying the message of the survivorship legislation that we will advocate for at the CPAT Symposium, the information shared will benefit advocates who support any organization and their individual cancer journeys. Don’t miss out on this valuable opportunity to learn from an expert in the field and take your cancer advocacy efforts to the next level.
Survivorship Champions Webinar – Strategies for Success: Implementing the ASCO Exercise, Nutrition, and Weight Management Guidelines with Your Patients and Practice
March 1, 2023
NCCS hosted a Survivorship Champions webinar discussing the American Society for Clinical Oncology’s (ASCO) Guidelines for Exercise, Nutrition, and Weight Management and how to best implement them in a clinical setting.
Sami Mansfield, founder of Cancer Wellness for Life, and Wendy Demark-Wahnefried, PhD, RD, a professor of nutrition sciences at the University of Alabama at Birmingham lead the discussion, presenting strategies for health care professionals to improve wellness for patients with a history of cancer. Their presentation reviews the ASCO Guidelines for Exercise, Nutrition & Weight Management as well as the key components of wellness.
Ms. Mansfield and Dr. Demark-Wahnefried also discuss:
- Strategies for communicating with your patients.
- Implementing guidelines into clinical care, including case studies & quality improvement project ideas.
- Making a toolkit for your program.
CPAT Webinar: How to Lead a Heart Healthy Life
February 14, 2023
In this webinar hosted by NCCS, Cardiologist Dr. Norrisa Haynes of Yale University presents the basics of heart disease, including risk factors and the interplay between heart disease and cancer. Heart disease is still the leading cause of death worldwide, despite medical advancements, and can result from risk factors like high blood pressure, high cholesterol, diabetes, and obesity.
Dr. Haynes discusses cardiotoxicity, a common side effect of chemotherapy and radiation treatments that can result in heart disease. To manage cardiovascular risk factors, she suggests adopting heart-healthy lifestyle modifications, such as healthy eating, fitness, sleep, and blood pressure management.
The presentation also discusses disparities in cardiovascular mortality and access to health care. Individuals can reduce their risk of heart disease and improve their overall health and well-being by adopting heart-healthy lifestyle modifications and staying proactive in managing their heart health.
NCCS Presents The State of Cancer Survivorship: 2022 Survey Results
October 26, 2022
The National Coalition for Cancer Survivorship (NCCS) conducts an annual State of Survivorship Survey, in partnership with Edge Research, to delve into the cancer patient and survivor journey. This study captures a range of perspectives to better understand how NCCS can support its mission to advocate for quality cancer care for all.
The 2022 State of Survivorship Survey delves deeper into the cancer journey, measuring satisfaction across different points, including screening and diagnosis, treatment and care, and post-treatment care. Among other key findings, this year’s results reflect alarming misdiagnosis rates particularly in underserved groups and young adults, survivors reporting symptoms long after treatment, and disparities in the equity of and access to quality cancer care disproportionately affecting people of color, young adults, women, and individuals with metastatic cancer. Additionally, the number of respondents who experienced physical, emotional, and financial issues has increased significantly, especially when it comes to financial concerns.
NCCS hosted a web briefing to present the findings from the 2022 survey. Pam Loeb, Principal of Edge Research, and Shelley Fuld Nasso discussed the results in detail and took questions from an audience of survivors, health care professionals, researchers, and more.
Exercise Is Medicine in Oncology: Implementation Based on Solid Evidence
October 12, 2022
Exercise Is Medicine in Oncology: Implementation Based on Solid Evidence
NCCS hosted a webinar featuring Kathryn Schmitz, PhD, MPH, a leading researcher in exercise oncology at the University of Pittsburgh Medical Center. Dr. Schmitz’s research focuses on people living with and beyond cancer and investigates the role exercise in improving physiologic and psychosocial outcomes including symptoms, treatment tolerance, and other chronic diseases. Dr. Schmitz is also the author of Moving Through Cancer, an exercise and strength-training program for cancer survivors.
In this webinar, Dr. Schmitz presents the evidence base for exercise during and after cancer treatment, reviews the current published exercise guidelines from ACS, SCSM, and ASCO, and discusses “what good looks like” in the practice of exercise oncology.
“Most oncology professionals know exercise would be good for their patients,” says Dr. Schmitz. “Most do not prescribe it, perhaps because they do not know HOW. This talk will demonstrate HOW the practice of exercise oncology takes place across dozens of locations in the United States.”
Beyond the Checkbox: Delivering Meaningful Cancer Survivorship Care in a Community Setting
May 18, 2022
Dr. Crystal Labbato joined NCCS to deliver a presentation about providing an effective model of cancer survivorship care in a community setting. Dr. Labbato is the Survivorship Program Coordinator for Baptist Health Louisville and LaGrange hospitals in Kentucky.
In this webinar, Dr. Labbato reviews the evolving standards for survivorship care and highlights the importance of care planning services that go beyond simply giving a patient a paper document. They walk through the model of care that inform their work as a survivorship practitioner, and how they are able to tailor services to best meet the needs of cancer survivors in their community. Dr. Labbato presents two clinical cases that showcase survivorship needs, care timeline and supportive services the clinic utilizes to provide quality care. Dr. Labbato also discusses the clinic’s in-depth functional assessment for older adult survivors that identifies the patient’s needs, and how the clinic normalizes discussions on end-of-life care planning.
Survivorship Needs for Individuals Living with Advanced and Metastatic Cancer
May 4, 2022
This webinar will provide an overview of the National Cancer Institute’s recent efforts to understand and address the survivorship needs of the growing population of survivors living with advanced and metastatic cancers. Bethany Ross, NCCS Cancer Policy and Advocacy Team (CPAT) Steering Committee Member and Advocate will join the discussion. Bethany was diagnosed with Stage IV neuroendocrine cancer at age 30 in August of 2018.
Learn about state of the science and the research gaps focused on survivorship needs. Dr. Mollica will share NCI’s next steps in conducting research that supports those living with advanced and metastatic cancers.
A Nurse-Led Care Model to Improve Access to Rural Survivorship Care
March 23, 2022
Pam DeGuzman, PhD, RN, will discuss the development and evaluation of Comprehensive Assistance: Rural Interventions, Nursing and Guidance (CARING), a nurse-led intervention aimed at reducing disparities in quality of life for rural cancer survivors.
During active treatment, rural survivors may forgo supportive care interventions to prioritize and consolidate medical visits into one day, with the goal of minimizing travel (called “appointment stacking”). CARING connects rural survivors with an oncology-specialized registered nurse several weeks after the completion of active treatment, to exclusively focus on lingering supportive care needs.
COVID-19 and Cancer: Otis Brawley, MD on the Current State of the Pandemic
Tuesday, March 15, 2022
Otis Brawley, MD, a globally-recognized expert in cancer prevention and control, joins NCCS CEO Shelley Fuld Nasso to discuss the current state of the COVID-19 pandemic and what relaxed public health measures mean for immunocompromised individuals. He will answer questions from CPAT members about how cancer survivors can best protect themselves.
