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NCCS - National Coalition for Cancer Survivorship
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NCCS Telehealth Project

Project Background

The National Coalition for Cancer Survivorship (NCCS) Telehealth Project was developed to gain insights from participants regarding telehealth experience in oncology.

A diverse group of 29 participants, which included cancer patients or survivors, were recruited to participate in six focus groups, conducted in May and June 2020. A total of 31 providers also participated by providing feedback in August 2020 regarding areas of agreement or disagreement with patient responses.

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Project Executive Summary

A summary of the feedback from cancer patients and survivors, including the themes from focus groups, pros and cons for telehealth visits, barriers to telehealth, and planning for the future of telehealth visits.

View Executive Summary (PDF) »
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Patient Tip Sheet for Telehealth Visits (English and Spanish)

A resource for cancer patients and survivors providing advice for scheduling a telehealth visit, completing a technology check, preparing for the telehealth visit, ending the visit and identifying next steps, and providing feedback about the telehealth visit.

View Patient Tip Sheet (PDF) »   Español Patient Tip Sheet (PDF) »

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Cancer Patient Insights and Recommendations on Telehealth

A resource for oncology clinicians including top-line insights from cancer patients and survivors about their use of telehealth, patient views on the types of visits that are acceptable for telehealth, patient feedback, and recommendations for clinicians.

View Patient Insights Report (PDF) »

Patient Focus Group Feedback

Focus group participants reported a variety of pros and cons to telehealth visits, some of which are contradictory and reflect divergence of viewpoints. These pros and cons can help plan for post-pandemic telehealth services.

PROS

  • Safety during the pandemic, especially for immunocompromised individuals
  • Convenience and lower costs associated with travel and time away from work and family
  • Reduced barriers for patients with mobility limitations or cognitive deficits
  • Ability to record visits and include family/caregivers
  • Patients may be more comfortable and less anxious at home
  • Providers seem to have more time, fewer distractions

CONS

  • Technology barriers and anxiety using technology
  • Both patient and provider learning curves
  • Privacy concerns
  • Reduced feelings of connection and emotional support and increased isolation
  • Limited access to the cancer care team
  • Providers seem to have less time, more distractions

Provider Feedback

telehealth providerResponding providers reported feedback about their personal telehealth experiences, in which the majority suggested presenting patients the choice of telehealth visits or in-person visits.

Of the responding providers, approximately 50% offered a few telehealth visits before the pandemic, and all suggested to provide telehealth visits following the pandemic. They overwhelmingly noted that video-based telehealth visits are more effective than phone-based visits, despite technology challenges.

Of all factors presented to continue telehealth visits, the most important enabling factors include maintaining reimbursement equivalent to in-person visits, interstate practice, and prescribing controlled substances.

This project was completed in collaboration with Pfizer Oncology.

Resources

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Latest News

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NCCS, Cancer Groups Urge CMS to Withdraw Most Favored Nation (MFN) Medicare Part B Rule That Will Harm Patients and Reduce Access to Care

December 22, 2020
The National Coalition for Cancer Survivorship (NCCS) joined other member organizations…
Read more
https://canceradvocacy.org/wp-content/uploads/2017/10/HHS-Humphrey-bldg-1200.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2020-12-22 20:27:262021-01-04 21:38:15NCCS, Cancer Groups Urge CMS to Withdraw Most Favored Nation (MFN) Medicare Part B Rule That Will Harm Patients and Reduce Access to Care
NCCS Letter to HHS

NCCS Letter to HHS: Proposed Regulatory Review Rule Would Create Unnecessary Uncertainty for Patients

December 9, 2020
The National Coalition for Cancer Survivorship (NCCS) recently submitted comments…
Read more
https://canceradvocacy.org/wp-content/uploads/HHS-Humphrey-bldg-1200-1030x515-1.jpg 515 1030 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2020-12-09 17:30:502020-12-10 08:22:55NCCS Letter to HHS: Proposed Regulatory Review Rule Would Create Unnecessary Uncertainty for Patients
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NCCS Opposes Most Favored Nation (MFN) Rule: New Medicare Part B Drug Payment Model Will Harm Patients

December 3, 2020
The National Coalition for Cancer Survivorship (NCCS) opposes the Most Favored Nation…
Read more
https://canceradvocacy.org/wp-content/uploads/HHS-Humphrey-bldg-1200.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2020-12-03 21:26:462020-12-03 21:28:06NCCS Opposes Most Favored Nation (MFN) Rule: New Medicare Part B Drug Payment Model Will Harm Patients

Take Action

Stovall Award

The Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care is a unique opportunity for patients and survivors to recognize pioneers who are transforming the cancer care system.

Join CPAT

The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

Share Your Story

NCCS represents the millions of Americans who share a common experience – the survivorship experience – living with, through and beyond a cancer diagnosis.

STAY CONNECTED

Together we can improve cancer care for survivors! Sign up to be the first to know about cancer policy issues and ways to take action

  • About
    • Our Mission
    • Our History
    • Our Leadership
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2020 State of Cancer Survivorship Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
    • What is Advocacy?
    • Cancer Policy and Advocacy Team (CPAT)
    • Elevating Survivorship
    • Survivor Stories
    • Cancerversary
    • State Based Cancer Advocacy
  • Resources
    • Survivorship Checklist
    • Cancer Survival Toolbox
    • Telehealth
    • Publications
      • Talking With Your Doctor
      • Self Advocacy
      • Employment Rights
      • Remaining Hopeful
    • Taking Charge of Your Care
    • Care Planning for Cancer Survivors
    • Tools For Care Providers
    • COVID-19 Resources for Cancer Survivors
    • Order Our Resources
  • News
    • Cancer Convos Podcast
  • Events
    • Ellen L. Stovall Award
      • 2020 Stovall Awards
      • Honorees
      • Sponsors
      • Committees
      • Reception
      • Nominations
    • Cancer Policy Roundtable
      • Fall 2020 Cancer Policy Roundtable
      • Spring 2020 Cancer Policy Roundtable
    • Cancer Policy and Advocacy Team (CPAT) Symposium 2020
    • Webinars
  • Contact Us

National Coalition for Cancer Survivorship
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National Coalition for Cancer Survivorship, NCCS, Cancer Survival Toolbox, and related Logos are registered in the United States as trademarks of the National Coalition for Cancer Survivorship.

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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute