Advocacy Opportunities

Ways to Get Involved

Welcome to NCCS’s Advocacy Opportunities page, your go-to resource for staying informed about the latest engagement opportunities in the cancer community. Whether you are a patient, survivor, caregiver, or advocate, there are many ways you can get involved and make a difference.

This page provides a list of upcoming events, webinars, conferences, and advocacy campaigns from NCCS and other leading cancer organizations. From policy initiatives and surveys to educational webinars, there are opportunities for everyone to get involved.

At NCCS, we are committed to providing resources and support to those who want to make a difference. Whether you are looking to volunteer your time, share your story, or advocate for change, we are here to help.

Browse our list of advocacy opportunities today and find your perfect way to get involved.

NCCS EVENTS

COMMUNITY OPPORTUNITIES

National Cancer Institute

Global Cancer Research & Control Seminar Series

Join National Cancer Institute Global Health on May 11 for their Global Cancer Research & Control Seminar Series, featuring Ramzi G. Salloum, Ph.D., Associate Professor of Health Outcomes & Biomedical Informatics at the University of Florida, and Rima Nakkash, Dr.P.H., Professor of Global and Community Health at the George Mason University College of Public Health, who will discuss lessons learned from tobacco control research in the Middle East and North Africa region.

Register: https://bit.ly/GCRCSS6. 

Triage Cancer Conference

Virtual Conference

Triage Cancer hosts a free conference series, providing valuable information about understanding your health insurance options, navigating employment, managing finances, and more.  In addition, professionals can earn free CE. Register to join them online on May 20.

Learn more: https://triagecancer.org/Conferences

Introduction to the NCI Surveillance, Epidemiology, and End Results (SEER) Program

Webinar

NCI’s Office of Advocacy Relations would like to invite you to the upcoming webinar, Introduction to the NCI Surveillance, Epidemiology, and End Results (SEER) Program, to be held May 25 from 1pm – 2pm ET.
NCI’s Surveillance, Epidemiology, and End Results (SEER) program provides information on cancer statistics that underpins efforts to reduce the cancer burden among the U.S. population. This presentation will cover the basics of SEER data, how it is collected, and a demo of how to use the SEER database.
The presenters for this webinar will be:
Annie Noone, PhD
Mathematical Statistician
Data Analytics Branch
NCI Surveillance Research Program
Nadia Howlader, PhD
Mathematical Statistician
Data Analytics Branch
NCI Surveillance Research Program
Join link:
https://cbiit.webex.com/cbiit/j.php?MTID=mb4ab0bc82380116bd085d329c8131abd
Webinar number:
2311 376 6190
Webinar password:
bY2Fb7fv8a$ (29232738 from phones and video systems)
Join by phone
1-650-479-3207 Call-in toll number (US/Canada)
Access code: 231 137 66190

AMPLIFY – Survivor Health

Lifestyle/Wellness Program, Research Study

AMPLIFY is a free 12-month program, based on the latest research in cancer survivors to help you lose weight and improve your health.

Through weekly, 15-minute, self-paced sessions, you will learn tips on how to eat, move, and reduce your stress, all from the comfort of your home.

Learn more: https://amplifymyhealth.org/welcome

Survey Opportunity — Providers and Adult Cancer Survivors

Survey Opportunity

The University of South Carolina invites you to participate in a study to better understand stakeholders knowledge related to cancer related fatigue. This study is for healthcare providers who treat those with cancer or adults with a current or previous diagnosis of cancer.  The survey will last approximately 5 minutes. Please use the appropriate survey link provided below:

Healthcare provider:

https://redcap.healthsciencessc.org/surveys/?s=EJ38EWJD3NTNXDL4

Adult with a current or previous cancer diagnosis:

https://redcap.healthsciencessc.org/surveys/?s=3YM7CJTK7PFFE4ET

Adler University — Couple and Family Therapy

Research Study

Growing up, did you have a sibling who was diagnosed with pediatric cancer? Do you ever wonder how this impacted your relationship with your sibling? How close are you with your sibling?  

For the 78% of us who grew up with siblings, this relationship can have a significant impact on our identity, development, and life experience.  Siblings of pediatric cancer patients experience unique consequences both positively and negatively by this diagnosis but too often their needs and concerns are unrecognized or inadvertently neglected during a time when they also need support.  If you were a well sibling to a child with cancer, researchers at Adler University want to hear about your sibling experience during this time.

If this sounds familiar to you and your experience as a sibling, you may qualify to participate in an exciting new research study: The Impact of Sibling Cancer Diagnosis on the Sibling Relationship

Learn more: https://adler.co1.qualtrics.com/jfe/form/SV_cT4VA2FdyPMATki

Paid Survey — Survivors Age 18 – 25

Survey Opportunity

The Psycho-Oncology Lab at Hunter College (CUNY) is seeking research participants for a paid survey study. Earn $15 for participation.

To see if you are eligible, complete the online screener here: https://tinyurl.com/SPICE-Phase2-Screener

Sexual Concerns of Cancer Survivors: Are We Closer to Addressing this Unmet Need?

NCI Webinar

Join the NCI Office of Cancer Survivorship (OCS) for this OCS Director’s Series webinar on June 13. Dr. Jennifer Reese will present Sexual Concerns of Cancer Survivors: Are We Closer to Addressing this Unmet Need? The intended audience is researchers, advocates, clinicians, and policymakers who have an interest in oncology, cancer survivorship, and sexual health.

Speaker
Jennifer B. Reese, PhD

Jennifer B. Reese, PhD
Associate Professor, Cancer Prevention and Control Program
Fox Chase Cancer Center

Register on the OCS Website »

National Cancer Survivors Day 2023

June 4 – Reno, NV

Celebrate National Cancer Survivor’s Day-June 4th with Cancer Community Clubhouse (CCC).

Register today for CCC’s National Cancer Survivors Day Celebration June 4th at the Reno-Sparks Convention Center: https://www.eventbrite.com/e/national-cancer-survivors-day-celebration-tickets-537829571727

NCCS Director of Public Policy Haley Smoot is the keynote speaker!

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The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

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NCCS represents the millions of Americans who share a common experience – the survivorship experience – living with, through and beyond a cancer diagnosis.

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