Advocacy Opportunities

Ways to Get Involved

Welcome to NCCS’s Advocacy Opportunities page, your go-to resource for staying informed about the latest engagement opportunities in the cancer community. Whether you are a patient, survivor, caregiver, or advocate, there are many ways you can get involved and make a difference.

This page provides a list of upcoming events, webinars, conferences, and advocacy campaigns from NCCS and other leading cancer organizations. From policy initiatives and surveys to educational webinars, there are opportunities for everyone to get involved.

At NCCS, we are committed to providing resources and support to those who want to make a difference. Whether you are looking to volunteer your time, share your story, or advocate for change, we are here to help.

Browse our list of advocacy opportunities today and find your perfect way to get involved.

NCCS EVENTS

CPAT Symposium 2024

In-Person Symposium

Cancer Policy & Advocacy Team (CPAT) Symposium
June 26 – 28, 2024

Crystal City Marriott at Reagan National Airport
1999 Richmond Hwy, Arlington, VA 22202

The CPAT Symposium is an opportunity to network with other advocates, develop advocacy skills, and learn about cancer policy issues — all in support of NCCS’s mission of improving the quality of cancer care for everyone touched by cancer. Goals for symposium participants are as follows:

  • Develop an in-depth understanding of survivorship legislation and visit Capitol Hill to share your story with legislators and advocate for the legislation.
  • Learn about topics including palliative care, patient-doctor communication, and supporting caregivers.
  • Participate in advocate-led activities with medical students from the CUPID (Cancer in the Under-Privileged Indigent or Disadvantaged) program.
  • Network with other advocates and engage with the NCCS team.

Learn more.

COMMUNITY OPPORTUNITIES

The After Cancer – Breast Circle

Virtual Webinar

Tuesday, May 14th @6pm ET – they’re hosting a monthly online support group for breast cancer patients and survivors.

For the May Breast Circle, participants will come together and honor both National Mental Health Month and National Women’s Health Month by focusing on two important aspects of healthy survivorship: self-care and relaxation.

Link to register: https://l.bttr.to/Yj3yf

NCI: Office of Cancer Survivorship – Survivor Voices: The Vital Role of Survivors in Advancing Cancer Survivorship Research

Virtual Webinar

Tuesday, June 18, 2024
2:00 PM EST

Agenda

Join the NCI Office of Cancer Survivorship (OCS) for this OCS Director’s Series webinar on June 18. This event will feature a panel discussion, Survivor Voices: The Vital Role of Survivors in Advancing Cancer Survivorship Research.

Panel:

Phuong Gallagher
RATS Program Manager
Fight Colorectal Cancer

Colin Goodwin, PsyD
Psychosocial Service Coordinator
Oncology Department
Kaiser Permanente San Jose

Ameish Govindarajan, MD
Hospice and Palliative Medicine Fellow
Department of Medicine
Memorial Sloan Kettering Cancer Center

Montessa Lee, MS
Advocate
Lung Cancer Foundation of America

Intended Audience: The intended audience is researchers, advocates, clinicians, and policy makers interested in cancer survivorship.

OCS Events and Webinars Webpage: https://cancercontrol.cancer.gov/ocs/about/events

University of Virginia Comprehensive Cancer Center: Community-Based Health Equity Research Program – weSurvive Study

Research Study

The University of Virginia Comprehensive Cancer Center’s Community-Based Health Equity Research Program  is testing an innovative program to help rural cancer survivors improve their quality of life by helping them engage in healthful eating and activity habits.

Details: weSurvive is specifically designed for cancer survivors living in rural Appalachia regions or nearby counties. weSurvive was developed due to the disproportionate impact of cancer in rural Appalachia communities, as well as the limited access to evidence-based programs for cancer survivors in the region.

See the study flyer for further details. Scan the QR code or contact Kathleen Porter, PhD via email at kjporter@virginia.edu, or call (434) 235-1112 to learn more and join.

Staying Connected through Communication Survey

Paid Online Survey/Research

Paid online survey about communication experiences – for US residents only

Staying Connected through Communication Survey

The University of Washington SPEAC Lab is inviting individuals who have had a total laryngectomy to answer survey questions about their communication experiences. Participants are invited to nominate at least one family member, friend, or coworker to also answer survey questions. People with total laryngectomy and their family / friends / coworkers will complete SEPARATE surveys. Your participation will help healthcare providers support people with laryngectomy and the important people in their lives to stay connected through communication. This is an online survey study that will take about 30-45 minutes. We can also mail a paper survey if requested.

Each participant will be mailed a $25 check upon survey completion.

To participate, click here: https://redcap.link/stayingconnected
The person with the laryngectomy needs to start first and then nominate their family member / friend /coworker to participate.

For more information, visit: https://sites.uw.edu/speaclab/

For questions, please contact: speaclab@uw.edu

Poor Sleep During Treatment for Blood Cancer: NIH Study

Research Study

Are you receiving treatment for a blood cancer diagnosis and struggling with poor sleep? You may be eligible to participate in a NIH-funded study for blood cancer patients with poor sleep. Dr. Ruben Mesa and Dr. Jennifer Huberty of Mays Cancer Center at UT Health San Antonio are conducting a 20-week research study that aims to test a digital health wellness intervention among adult blood cancer patients that are currently undergoing treatment.

Participation involves:
• Completing online surveys
• Wearing a sleep device on index finger and tracking nightly sleep
• Providing 3 blood samples at a nearby lab
• Being randomized to use one of two wellness apps
• Using wellness app 10 minutes per day for 8 weeks

They are looking for US based adults with a blood cancer diagnosis to enroll in a 20 week remote study of an app based wellness intervention. Participants can earn up to $100 for completing all study related measures.

Learn more.

UCLA Come talk about your experience with heath insurance! Participants needed for a UCLA-funded research study to understand cancer survivors' experiences with health insurance. Findings will inform development of a video game aimed at helping cancer survivors navigate health insurance. Am I qualified? Are you currently between the ages of 18-46? Were you between the ages of 18-39 when you were told by a provider that you had cancer? Can you speak and understand English? ...If you answered yes to all of the above, you may be eligible to participate in our research study. How can I participate? Share your experience navigating health insurance during your cancer journey via a brief confidential Zoom focus group session Receive a $100 gift card for your participation For more information, please click here or contact: Jessica Obidike, MPH Research Coordinator: JObidike@mednet.ucla.edu Scheduling focus group sessions for Summer 2023 === Please respond quickly to reserve your spot! IRB#22-001904

UCLA: Health Insurance Experience Study

Research Study

Participants are needed for a UCLA-funded research study to understand cancer survivors’ experiences with Health Insurance. Interested in participating? Scan the QR code in the flyer or email JObidike@mednet.ucla.edu.

Have you completed cancer treatment, but still have trouble falling asleep or sleeping through the night? Learn about research studies at the Dana-Farber Cancer Institute for survivors with insomnia. Two sleep education programs are being tested. Studies are offered completely online. No medications are involved. Learn more on the back!
Sleep Treatment Education Program-YA For ages 20-39 Participation Includes: A single online session teaching survivors how to improve their sleep. Some participants will receive additional coaching sessions. Completing brief questionnaires online at several time points after the session. Sleep Treatment Education Program-1 For ages 40 and older Participation Includes: A single online session teaching survivors how to improve their sleep. Participants are randomized to behavioral education or relaxation education. Some participants are offered coaching sessions and an additional questionnaire. Completing brief online questionnaires at several time points after the session. (617)582-8260 STEP@dfci.harvard.edu STEPforsleep.com

Step for Sleep Research – National Cancer Institute Funded Studies

Research Study

STEP (Sleep Treatment Education Program) currently has two active insomnia studies.

Learn more about participating in these sleep treatment education programs here »

Baylor University — AYA Research Opportunity

Research Study

Baylor University is inviting individuals who are Adolescent and Young Adult (AYA) cancer survivors to participate in a research study about the care they received. This study is specifically for AYA patients who were diagnosed with cancer between the ages of 15 to 39 and are now 18 years of age or older. The questionnaire will take around 10 minutes to complete. Kindly use the provided questionnaire link below:

https://baylor.qualtrics.com/jfe/form/SV_9Hzz3LDmoWL3jGC

For more information, contact rebecca_munoz1@baylor.edu »

National Cancer Plan

Digital Toolkit

The National Cancer Institute’s (NCI) Nation Cancer Plan now has a Digital Toolkit for advocates and advocacy organizations that would like to show support for the National Cancer Plan.

Learn more and get involved here »

American Society of Clinical Oncology (ASCO)

Online Training

Would you like to learn more about American Society of Clinical Oncology (ASCO) cancer survivorship care guidelines? Look no further than the GW Cancer Center’s free, on-line training! It will introduce you to guidelines addressing chemotherapy-induced peripheral neuropathy management, fertility preservation, and osteoporosis management in adult survivors with nonmetastatic disease.

Sign up today »

Survey Opportunity — Providers and Adult Cancer Survivors

Survey Opportunity

The University of South Carolina invites you to participate in a study to better understand stakeholders knowledge related to cancer related fatigue. This study is for healthcare providers who treat those with cancer or adults with a current or previous diagnosis of cancer.  The survey will last approximately 5 minutes. Please use the appropriate survey link provided below:

Healthcare provider:

https://redcap.healthsciencessc.org/surveys/?s=EJ38EWJD3NTNXDL4

Adult with a current or previous cancer diagnosis:

https://redcap.healthsciencessc.org/surveys/?s=3YM7CJTK7PFFE4ET

Take Action

Link to: Survivorship Champions

Become a Survivorship Champion

Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.

Learn More and Join »
Link to: Cancer Policy and Advocacy Team (CPAT)

Join CPAT

The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

Learn More and Join »
Link to: Survivor Stories

Share Your Story

NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.

Share Your Story »

STAY CONNECTED

Together we can improve cancer care for survivors! Sign up to be the first to know about cancer policy issues and ways to take action

  • This field is for validation purposes and should be left unchanged.

Charity Navigator Four-Star Rating

National Coalition for Cancer Survivorship
8455 Colesville Road  |  Suite 930 | Silver Spring, MD 20910
info@canceradvocacy.org | (877) NCCS-YES
Privacy Policy  |  Terms and Conditions

Copyright © 1995-2024 by the National Coalition for Cancer Survivorship
National Coalition for Cancer Survivorship, NCCS, Cancer Survival Toolbox, and related Logos are registered in the United States as trademarks of the National Coalition for Cancer Survivorship.