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Health Care Roundup: New Health Care Bills; NCCS Co-Founder Susie Leigh on Life After Cancer; Oncology Care Model; Racial Disparities; More

February 15, 2019/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Care Planning, Drug Pricing, Financial Toxicity, Health Care Coverage, Health Equity, Quality Cancer Care Health Care Roundup, NCCS News /by actualize
In order to bring you the latest cancer-related health care policy and news, we at NCCS combined our ACA Updates and What Caught Our Eye (WCOE) content into a weekly email and blog post. We aim to make this a concise, one-stop summary of what you need to know as we continue working together to make cancer care better for everyone.Your feedback is always welcome to make our content more useful to you. Please send comments to feedback@canceradvocacy.org.

Subscribe to our email list and receive these updates in your email box each week »


HEALTH CARE HIGHLIGHTS

Health Care Bills Discussed, ACA Lawsuit News

A group of Democratic lawmakers this week introduced legislation that would allow for a “Medicare Buy-In,” meaning Americans at age 50 could buy into the program for their health care coverage. Spearheaded by Sen. Debbie Stabenow (MI-D) and Rep. Brian Higgins (NY-26), the legislators say the main goal is to promote more affordable coverage.

Hearings on the ACA and drug pricing continued this week, as the House Energy and Commerce Committee held a hearing titled, “Strengthening Our Health Care System: Legislation to Reverse ACA Sabotage and Ensure Pre-existing Conditions Protections.” The hearing was centered around a series of bills that would address actions by the Trump administration to weaken the ACA’s markets and patient protections.

An important update in the Texas v. United States ACA lawsuit was announced on Valentine’s Day. Four additional states—Colorado, Iowa, Michigan, and Nevada—were granted their request to intervene in the lawsuit. The Fifth Circuit also denied a request for an expedited schedule. NCCS will continue to monitor and report on this important case.


CHART OF THE WEEK

The Out-of-Pocket Cost Burden for Specialty Drugs in Medicare Part D in 2019

Kaiser Family Foundation

While Congress takes a closer look at rising drug costs and considers options to reduce drug prices, the administration is releasing policy proposals that seek to do the same. One thing is certain: Out-of-pocket spending for prescription drugs, especially for cancer, are enormous.

Medicare Part D Enrollees Can Face High Out-Of-Pocket Costs for Specialty Tier Drugs
Chart and Data Source: Kaiser Family Foundation

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IMPORTANT READS

Life after cancer: More survivors living longer, facing new health challenges

USA Today

In this USA Today feature, NCCS co-founder Susie Leigh shares her experience with being diagnosed with cancer at 24. Since that diagnosis, she’s had breast, bladder and lung cancer, and developed congestive heart failure. Susie discusses how this impacted her life, the founding of the National Coalition for Cancer Survivorship, and the importance of furthering the understanding of survivorship issues throughout the cancer community.

Read More »

What Is The Oncology Care Model, And Why Is The Evaluation Important?

Health Affairs

You may or may not have already heard of the Oncology Care Model (OCM). Either way, there’s a good chance it could become the future of how cancer care is delivered and important to understand the basics of the program. Organized by the Center for Medicare and Medicaid Innovation (CMMI), the goal is to “improve care coordination, appropriateness, and access for beneficiaries undergoing chemotherapy, while reducing total costs.”

This article is a good summary of what the OCM is, what it hopes to achieve, where it excels, and some of its shortcomings.

Read More »

Opinion: How to fight the financial toxicity of cancer treatment

MarketWatch

We all understand the devastating financial impact a cancer diagnosis has on patients and their families. Recently referred to as financial toxicity, this article discusses it in-depth and offers some advice for patients and providers to help reduce this burden.

Read More »

Racial Disparities in Cancer are Narrowing

National Public Radio (NPR)

A recent analysis by the American Cancer Society found that the gap in racial disparities in cancer are narrowing, with four major cancers declining more among blacks than among whites. Still, African-Americans bear a disproportionate share of the cancer burden in the U.S. and experience the lowest survival rates of any racial or ethnic group.

Read More »


Related Posts

https://canceradvocacy.org/blog/health-care-roundup-feb-8-2019/

https://canceradvocacy.org/blog/health-care-roundup-feb-1-2019/

Tags: aca update, affordable care act, cancer care, Cancer Survivorship, care planning, Congress, drug pricing, financial issues, health care roundup, Medicare, Susan Leigh, What Caught Our Eye
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Latest News

NCCS Advocate Spotlight: Sharon Rivera Sanchez - Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

Sharon Rivera-Sanchez: Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

January 12, 2023
As a Triple Negative Breast Cancer survivor, Sharon turned her personal experience into a passion for advocacy and giving back to the community. When she received her diagnosis in May 2015, she remembers being in a state of shock and grief. She said, “You have to allow yourself time to breathe and grieve.”
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Rep. Debbie Wasserman Schultz introduces Comprehensive Cancer Survivorship Act at December 14, 2022 press conference.

NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act

December 14, 2022
Representative Debbie Wasserman Schultz (FL-23), a champion for cancer survivors and a survivor herself, held a press conference today…
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https://canceradvocacy.org/wp-content/uploads/CCSA-Blog-Featured-Image-1200-×-600-px-1.png 600 1200 Kara Kenan https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png Kara Kenan2022-12-14 16:03:462022-12-14 16:03:46NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act
Alique Topalian, PhD, MPH Advocate Spotlight

Alique Topalian: Childhood Cancer and the Frightening Realities of the Survivorship Journey

December 7, 2022
Alique was first diagnosed with Acute Myeloid Leukemia (AML) at the age of four. Her mother, Michele, knew something was wrong because “the light in her eyes was gone”. After being told by doctors that there was nothing wrong, her family was relentless until new blood work uncovered blast cells.
Read more
https://canceradvocacy.org/wp-content/uploads/Alique-Topalian-Advocate-Spotlight.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-12-07 11:46:562022-12-07 11:48:28Alique Topalian: Childhood Cancer and the Frightening Realities of the Survivorship Journey

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  • About
    • Our Mission
    • Our History
    • The 1986 Club
    • Our Team
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2022 State of Cancer Survivorship Survey
    • 2021 State of Cancer Survivorship Survey
    • 2020 State of Cancer Survivorship Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
    • What is Advocacy?
    • Cancer Policy and Advocacy Team (CPAT)
    • Survivorship Champions
    • Subscribe to NCCS Updates
    • Elevating Survivorship
    • Survivor Stories
    • Cancerversary
    • State-Based Cancer Advocacy
  • Resources
    • COVID-19 Resources for Cancer Survivors
    • Survivorship Checklist
    • Cancer Survival Toolbox
    • Telehealth
    • Publications
      • Talking With Your Doctor
      • Self Advocacy
      • Employment Rights
      • Remaining Hopeful
    • Cancer Convos Podcast
    • Taking Charge of Your Care
    • Care Planning for Cancer Survivors
    • Tools For Care Providers
    • Order Our Resources
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  • Contact Us

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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute