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Lainie Jones Comprehensive Cancer Survivorship Act (CCSA)
The Lainie Jones Comprehensive Cancer Survivorship Act (CCSA), is bipartisan legislation reintroduced in 2026 by Representatives Debbie Wasserman Schultz, Brian Fitzpatrick, Mark DeSaulnier, and Joe Wilson. This legislation addresses the entire continuum of care — from diagnosis to active treatment and post-treatment — to improve survivorship, treatment, and transition for all survivors.
The cancer journey does not end once active treatment ends, and survivors need lifelong support for their disease. To improve their quality of life and health outcomes, cancer survivors need resources to help monitor for these secondary cancers and late and long-term effects caused by their cancer treatment. Additionally, health care providers need resources to provide appropriate care for survivors throughout the entire continuum of care. The CCSA addresses the existing gaps in survivorship care and aims to improve quality of care and navigation of health care systems for survivors, their loved ones, and their health care providers.
The CCSA was first introduced in December 2022 and reintroduced in June 2023 during the 118th Congress as H.R. 4363 and S. 2213.
What Does the CCSA Do?
The bill includes the following priorities:
- Medicare Coverage of Care Planning & Coordination Services
- Stakeholder Meeting on Survivorship Transition Tools
- Alternative Payment Model for Quality Cancer Survivorship Care
- Cancer Survivor Employment Assistance Program
- Survivorship Progress Report
- Medicaid Coverage of Healthcare Transitions for Survivors of Childhood and Adolescent Cancer
- Medicaid Coverage of Cancer Fertility Services for Cancer Survivors
- Office of Cancer Survivorship
More details about the CCSA, and how you can tell your representatives to support it, are coming soon!
