The 2021 State of Survivorship Survey provides us an invaluable opportunity to delve into the cancer patient and survivor journey from a range of perspectives, and to better understand how the National Coalition for Cancer Survivorship (NCCS) can support our mission to advocate for quality care for all.
The research, conducted in partnership with Edge Research in the spring of 2021, helps NCCS build on and track findings from the previous year to better understand the differences in patient and survivor attitudes, experiences, and needs. The survey was conducted through 16 in-depth interviews and a nationwide survey of 1,604 patients and survivors, 500 of whom have a connection to NCCS.
Survey respondents represent a wide range of stages of diagnosis, demographics, socioeconomic levels, and available support systems, using quotas to make sure the sample was representative of cancer patients nationally by age, gender, race/ethnicity, and region. NCCS-connected respondents had higher expectations in their assessments of quality care, were more likely to feel empowered to be active in their care, and were better able to find a range of support systems.
The 2021 State of Survivorship Survey demonstrates that when patients receive coordinated and quality care from their health care team, have excellent support, and have financial resources or assistance to alleviate worry about medical costs, they are more likely to have positive experiences and outcomes.