Anyone who has been touched by cancer knows that life after a diagnosis is never the same.
Survivors face many challenges, and our health care system simply isn’t geared to help people live well after the treatments are completed.
Elevating Survivorship is a patient-led initiative to improve survivorship care in the United States. Through Elevate, NCCS highlights gaps in survivorship care, improves survivorship care at the local level, and educates audiences about the need for survivorship care.
What Can You Do?
I wish that my health care team would address survivorship issues and long-term effects of my cancer diagnosis. At this point I am just told to call if there are any changes in the way that I feel, this leaves me feeling uneasy and uncertain about the future of my health. -Survey Respondent
Elevate Leads the Way for a Better Cancer Survivorship Experience For Survivors, Led by Survivors
Survivors’ Needs Are Unique
Nearly 17 million Americans are cancer survivors — many living with long-term physical and emotional side effects from their diagnosis, treatment, and experience. Their cancer survivorship journeys are as unique as they are — including their individual needs for quality care.
Yet, sometimes cancer survivors’ needs aren’t always available or even considered. And the care that IS available is oftentimes developed by those who don’t always know what survivors’ needs are.
That’s why NCCS developed Elevating Survivorship (also known as Elevate), a patient- and advocate-led initiative to raise awareness about survivors’ unique needs and strategies improve care at the local level. Who better to help shape opportunities, improvements, and needs for survivors than survivors themselves?
Empowering Survivors to Make a Difference in Their Communities NCCS selects patient leaders using an application process to become Elevate Ambassadors. NCCS provides training, support, and networking opportunities to help Ambassadors develop and execute a plan of action for a new project idea to improve survivorship care in their community — whether at a hospital, oncology practice, community-based organization, or virtual community. There is a time commitment for this program, which also includes an in-person training in Washington, DC, for which NCCS will cover travel costs. We ask that all Ambassadors be members of our Cancer Policy and Advocacy Team (CPAT). Sign-up here if you aren’t already a member. Learn More About the Elevate Ambassador Program
Equipping Survivors to Be a Spokesperson for Cancer Care Advocacy NCCS developed a Survivorship 101 presentation template for speakers to use to educate community members about cancer survivorship and the post-treatment needs of cancer survivors. Speakers can customize the presentation to include their own experience and to reflect the audience, which could include support groups, provider groups, or other community-based organizations. NCCS chooses speakers for this program. If you’re interested in learning more, please contact us at email@example.com.
Bookmark this page for more updates and ways we can Elevate Survivorship. Suggestions or questions? Contact us firstname.lastname@example.org.
Grant funding for Elevating Survivorship provided by: Bristol-Myers Squibb, Janssen Oncology, Pharmacyclics, Eisai and Takeda Oncology.
The Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care is a unique opportunity for patients and survivors to recognize pioneers who are transforming the cancer care system.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
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NCCS represents the millions of Americans who share a common experience – the survivorship experience – living with, through and beyond a cancer diagnosis.
Together we can improve cancer care for survivors! Sign up to be the first to know about cancer policy issues and ways to take action