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10 SEARCH RESULTS FOR: Advocate Spotlight

Betsy Glosik: A Cancer Survivor’s Journey Towards Integrative Healing and Advocacy

March 8, 2023/in Advocate Spotlight, NCCS News Integrative Oncology, Quality Cancer Care, Quality Measurement, Survivorship Care Advocate Spotlight, NCCS News /by NCCS Staff

For Betsy Glosik, the early 2000s brought one trauma after another. She lost her aunt to melanoma. Then, tragically she lost her 20-yr old daughter to a car accident. In 2003, after years of mentioning her concerns about a mole on her foot to her dermatologist, and repeatedly having her concerns dismissed, Betsy was diagnosed with melanoma…

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https://canceradvocacy.org/wp-content/uploads/Betsy-Glosik-Advocate-Spotlight-Blog-Banner.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-03-08 12:55:132023-03-08 12:55:13Betsy Glosik: A Cancer Survivor’s Journey Towards Integrative Healing and Advocacy

Erin Cummings’s Journey as a Long-Term Hodgkin’s Lymphoma Survivor

February 8, 2023/in Advocate Spotlight, NCCS News Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News /by NCCS Staff

Diagnosed with Hodgkin’s Lymphoma during her freshman year of high school at the age of 15, Erin Cummings recalls finding two lumps and not thinking much of them. “Cancer was the farthest thing from my mind,” she said. When her sister later noticed the lumps, Erin finally told her mom and found herself in the hospital […]

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https://canceradvocacy.org/wp-content/uploads/Erin-Cummings-Advocate-Spotlight-web.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-02-08 14:03:442023-02-08 14:03:44Erin Cummings’s Journey as a Long-Term Hodgkin’s Lymphoma Survivor

Sharon Rivera-Sanchez: Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

January 12, 2023/in Advocate Spotlight, NCCS News Access to Care, Clinical Trials, Disparities in Outcomes, Exercise and Rehabilitation, Financial Toxicity, Health Equity, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News /by NCCS Staff

As a Triple Negative Breast Cancer survivor, Sharon turned her personal experience into a passion for advocacy and giving back to the community. When she received her diagnosis in May 2015, she remembers being in a state of shock and grief. She said, “You have to allow yourself time to breathe and grieve.”

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https://canceradvocacy.org/wp-content/uploads/Advocate-Spotlight-Sharon-Rivera-Sanchez.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-01-12 15:24:442023-01-12 15:24:44Sharon Rivera-Sanchez: Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

Alique Topalian: Childhood Cancer and the Frightening Realities of the Survivorship Journey

December 7, 2022/in Advocate Spotlight, Cancer News, NCCS News Care Coordination, Care Planning, Doctor-Patient Communication, Psychosocial Care, Quality Cancer Care, Shared Decision-Making, Survivorship Care Advocate Spotlight, NCCS News /by NCCS Staff

Alique was first diagnosed with Acute Myeloid Leukemia (AML) at the age of four. Her mother, Michele, knew something was wrong because “the light in her eyes was gone”. After being told by doctors that there was nothing wrong, her family was relentless until new blood work uncovered blast cells.

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https://canceradvocacy.org/wp-content/uploads/Alique-Topalian-Advocate-Spotlight.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-12-07 11:46:562022-12-07 11:48:28Alique Topalian: Childhood Cancer and the Frightening Realities of the Survivorship Journey

Amanda Helms: Care Planning, Mental Health, and Palliative Care are Essential to Quality Cancer Care

November 1, 2022/in Advocate Spotlight, NCCS News Care Planning, COVID-19, Palliative Care, Psychosocial Care, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News /by NCCS Staff

Amanda Helms was enjoying a bubble bath while reading a book when she looked down and noticed a lump on the side of her breast in January of 2020. She had a bad feeling about it instantly, even though she had no family history or risk factors. She went to her family doctor who referred […]

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https://canceradvocacy.org/wp-content/uploads/Amanda-Helms-Advocate-Spotlight-webmc.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-11-01 13:57:522022-11-10 15:01:05Amanda Helms: Care Planning, Mental Health, and Palliative Care are Essential to Quality Cancer Care

Michael Holtz: Everyone Has a Place in the Advocacy Community

October 12, 2022/in Advocate Spotlight, NCCS News Access to Care, Care Coordination, Clinical Trials, COVID-19, Doctor-Patient Communication, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News /by NCCS Staff

“Everyone has a place in the advocacy continuum: Your lived experience is important.” Michael Holtz didn’t know that the “funky” digestive symptoms in December of 2011 would be the first signs of his cancer diagnosis. These rectal spasms would leave Michael rushing to the bathroom, and either nothing would happen or there would be a […]

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https://canceradvocacy.org/wp-content/uploads/Michael-Holtz-Advocate-Spotlight-feat.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-10-12 14:22:182022-10-13 10:14:11Michael Holtz: Everyone Has a Place in the Advocacy Community

Nicole C. Bullock: Faith, Family, and Friends Along the Path of Survivorship

September 6, 2022/in Advocate Spotlight, NCCS News Access to Care, Care Coordination, Clinical Trials, COVID-19, Disparities in Outcomes, Doctor-Patient Communication, Health Equity, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News /by NCCS Staff

As Nicole C. Bullock, a non-Hodgkin lymphoma survivor, watched the news of hospital lockdowns during the early stages of the COVID-19 pandemic, she couldn’t help but think of the cancer patients who faced the harsh reality that they would now have to receive treatment for their illness alone, without the support of family and friends. […]

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https://canceradvocacy.org/wp-content/uploads/Advocate-Spotlight-Nicole-Bullock-Sept-2022-web.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-09-06 16:55:422022-09-07 10:07:05Nicole C. Bullock: Faith, Family, and Friends Along the Path of Survivorship

Kara Kenan: Helping Others is the Greatest Reward of Advocacy

August 3, 2022/in Advocate Spotlight, NCCS News Care Coordination, Doctor-Patient Communication, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News /by NCCS Staff

“Nobody wins afraid of losing” rings true for Kara Kenan, a breast cancer survivor. It’s her favorite line from Chris Stapleton’s song, “Starting Over,” which, for her, is symbolic of overcoming the fear of a cancer diagnosis and coming out on the other side. Kara recognizes that winning looks different for every survivor. While it […]

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https://canceradvocacy.org/wp-content/uploads/Advocate-Spotlight-Kara-Kenan.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-08-03 12:20:482022-08-03 12:20:48Kara Kenan: Helping Others is the Greatest Reward of Advocacy

Bethany Ross: Advocating for Quality Cancer Care Through Storytelling

July 7, 2022/in Advocate Spotlight, NCCS News Care Coordination, Doctor-Patient Communication, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News /by NCCS Staff

Advocate Spotlight July 2022 – Bethany Ross Bethany Ross is a four-year neuroendocrine cancer survivor, or “cancer badass,” as she prefers to be called. She attended NCCS’s in-person Cancer Policy and Advocacy Team (CPAT) Symposium for the first time in June as a CPAT steering committee member. “It was amazing. I’ve been talking to these […]

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https://canceradvocacy.org/wp-content/uploads/Advocate-Spotlight-Bethany-Ross-web.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-07-07 16:53:522022-07-07 16:53:52Bethany Ross: Advocating for Quality Cancer Care Through Storytelling

Wenora Johnson: The Art of Caregiving: Connection and Kindness

June 1, 2022/in Advocate Spotlight, NCCS News Care Coordination, Doctor-Patient Communication, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News /by NCCS Staff

Advocate Spotlight June 2022 – Wenora Johnson “One of the most important lessons I’ve learned as a caregiver is that the smallest act of kindness means so much to a person who’s not able to do for themselves,” says Wenora Johnson, who has cared for her brother throughout his diagnosis and treatment for stage 4 […]

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https://canceradvocacy.org/wp-content/uploads/Advocate-Spotlight-Wenora-Johnson-wp-1200.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-06-01 13:00:282022-06-01 13:02:13Wenora Johnson: The Art of Caregiving: Connection and Kindness

Latest News

NCCS Advocates for Access to DIEP Flap Breast Reconstruction Surgery

March 10, 2023
The National Coalition for Cancer Survivorship recently joined the Community Breast Reconstruction Alliance (CBRA), a group of patient…
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https://canceradvocacy.org/wp-content/uploads/Diane-Heditsian-PBS-Newshour-DIEP-Flap.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-03-10 13:24:422023-03-10 13:28:53NCCS Advocates for Access to DIEP Flap Breast Reconstruction Surgery
NCCS Advocate Spotlight: Betsy Glosik, A Cancer Survivor's Journey Through Integrative Healing and Advocacy

Betsy Glosik: A Cancer Survivor’s Journey Towards Integrative Healing and Advocacy

March 8, 2023
For Betsy Glosik, the early 2000s brought one trauma after another. She lost her aunt to melanoma. Then, tragically she lost her 20-yr old daughter to a car accident. In 2003, after years of mentioning her concerns about a mole on her foot to her dermatologist, and repeatedly having her concerns dismissed, Betsy was diagnosed with melanoma...
Read more
https://canceradvocacy.org/wp-content/uploads/Betsy-Glosik-Advocate-Spotlight-Blog-Banner.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-03-08 12:55:132023-03-08 12:55:13Betsy Glosik: A Cancer Survivor’s Journey Towards Integrative Healing and Advocacy

Webinar – Implementing the ASCO Guidelines for Exercise, Nutrition, and Weight Management with Your Patients and Practice

March 3, 2023
The National Coalition for Cancer Survivorship (NCCS) hosted a Survivorship Champions webinar discussing the American Society for Clinical…
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https://canceradvocacy.org/wp-content/uploads/Implementing-ASCO-Guidelines-Webinar-Post-web.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-03-03 12:40:302023-03-03 12:42:40Webinar – Implementing the ASCO Guidelines for Exercise, Nutrition, and Weight Management with Your Patients and Practice

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  • About
    • Our Mission
    • Our History
    • The 1986 Club
    • Our Team
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2022 State of Cancer Survivorship Survey
    • 2021 State of Cancer Survivorship Survey
    • 2020 State of Cancer Survivorship Survey
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute