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Health Care Roundup: Cokie Roberts; Survivorship in the News; Junk Insurance Doesn’t Cover the Bills; Seeking Help and Encouragement; More

September 20, 2019/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Affordable Care Act, Health Care Coverage Health Care Roundup, NCCS News /by actualize

We aim to make the Health Care Roundup a concise, one-stop summary of what you need to know as we continue working together to make cancer care better for everyone.Your feedback is always welcome to make our content more useful to you. Please send comments to feedback@canceradvocacy.org.

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HEALTH CARE HIGHLIGHTS

Tennessee Unveils First Medicaid Block Grant Proposal

Tennessee became the first state in the country to release a plan proposing to block grant its Medicaid program. Currently, the federal government pays each state “a certain percentage of the cost of care for anyone eligible for health coverage.” If changed to a block grant program, the federal government would “instead pay a state a lump sum each year while freeing it from many of Medicaid’s rules, including who must be allowed into the program and what health care is covered.” This would almost surely lead to benefit reductions and potentially impact the care of cancer patients who are on Medicaid.

American Lung Association: Do NOT Use E-cigarettes

The use of e-cigarettes, especially by teens and young adults, and the health concerns associated with their use have gained considerable media attention. Public scrutiny intensified even more after reports that at least seven people have died from vaping-related illnesses. The federal government is reviewing its policies, and two states, Michigan and New York, already took action to remove e-cigarettes from stores.

While some adults use e-cigarettes to help quit smoking, the number of teens who use e-cigarettes has increased sharply. The American Lung Association (ALA) issued a strong statement: “E-cigarettes are not safe and can cause irreversible lung damage and lung disease. No one should use e-cigarettes or any other tobacco product.”

Remembering Cokie Roberts

The journalism and cancer communities are both deeply saddened this week by the passing of Cokie Roberts. A pioneer for women in journalism, she was also a staunch, outspoken advocate for cancer patients and survivorship issues. A longtime friend of NCCS, and a cancer survivor herself, her passion and dedication to improving the lives of cancer patients and their families will be missed. We offer our condolences to her family and to her colleagues at ABC News and National Public Radio.

View our tribute to Cokie and read more about her work with NCCS »

Cokie Roberts


CHART OF THE WEEK

NCCS Survivorship Survey: Cancer Survivors Share Their Top Concerns

NCCS and our partner patient advocacy organizations conducted a survivorship survey and promoted it to our constituents. We were thrilled that 1,380 cancer survivors responded and grateful to those of you who took the time to do so. They reported a mix of financial, emotional, and physical concerns when navigating their survivorship. Review the detailed results here »

Patients' top concerns are a mix of financial, physical, and emotional

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IMPORTANT READS

You’ve Survived Cancer. What Comes Next?

Wall Street Journal

Cancer survivor Laura Landro wrote this excellent piece highlighting how patients must navigate a multitude of physical and emotional survivorship issues. NCCS provided information for the piece, which mentions our survivorship survey results.

“When the treatment ends, the patients’ next journey is just beginning.”

Read More »

Health Insurance That Doesn’t Cover the Bills Has Flooded the Market Under Trump

Bloomberg

This detailed and heartbreaking article illustrates the perils of purchasing short-term health insurance plans. Often referred to as “junk” insurance, most of these plans do not provide the comprehensive coverage for people if they suddenly face significant health care needs.

The Diaz family thought they were buying comprehensive health coverage for a lower cost than their previous plan, which was ACA-compliant. After emergency bypass surgery, they were left with a $244,000 bill.

The article concludes by noting:

“The family switched to a comprehensive, ACA-compliant insurance policy in December 2017. With government subsidies, it costs less than they were paying for junk insurance.”

Read More »

NPR’s On Point – Life After Surviving Cancer: The Relief, Challenges And New Fears

National Public Radio (NPR)

Former NCI Office of Cancer Survivorship Director and current NCCS Board Member, Dr. Julia Rowland, was a guest on NPR’s program “On Point.” She joined the author of the WSJ article mentioned above, Laura Landro, to discuss the myriad of issues cancer survivors face. You can listen to this informative discussion and find links to more reading here.

The episode is also available from the “On Point” podcast, which you can find on your favorite podcast app.

Read More »

Seeking Help and Encouragement Takes Strength

CURE Today

NCCS Elevate Ambassador Doris Cardwell shares some of her experiences and advice as an inflammatory breast cancer survivor.

She writes, “If you are a survivor and need help dealing with all that you see, please hear me: I am a strong, independent, and sometimes sassy woman. I have walked through many difficult things in my life. Yet, it took me years to realize that seeking help takes more strength and courage than not.”

Read More »

Thousands of Poor Patients Face Lawsuits From Nonprofit Hospitals That Trap Them in Debt

ProPublica

Along with surprise medical bills gaining more scrutiny, so has the behavior of some hospitals for aggressively filing lawsuits against patients. It is this type of reporting that shines a spotlight on these practices and helps change behavior.

Read More »


Related Posts

https://canceradvocacy.org/blog/health-care-roundup-sept-6-2019/

https://canceradvocacy.org/blog/health-care-roundup-aug-16-2019/

Tags: aca update, affordable care act, Cancer Survivorship, Cokie Roberts, coping, health care roundup, junk insurance, research, short-term health plans, What Caught Our Eye
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Latest News

NCCS Urges President Biden and Congress to Support and Protect Medicaid

March 24, 2023
This week, NCCS joined with more than 30 patient advocacy organizations as part of the Partnership to Protect Coverage to urge President…
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NCCS Advocate Spotlight: Betsy Glosik, A Cancer Survivor's Journey Through Integrative Healing and Advocacy

Betsy Glosik: A Cancer Survivor’s Journey Towards Integrative Healing and Advocacy

March 8, 2023
For Betsy Glosik, the early 2000s brought one trauma after another. She lost her aunt to melanoma. Then, tragically she lost her 20-yr old daughter to a car accident. In 2003, after years of mentioning her concerns about a mole on her foot to her dermatologist, and repeatedly having her concerns dismissed, Betsy was diagnosed with melanoma...
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  • About
    • Our Mission
    • Our History
    • The 1986 Club
    • Our Team
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2022 State of Cancer Survivorship Survey
    • 2021 State of Cancer Survivorship Survey
    • 2020 State of Cancer Survivorship Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
    • What is Advocacy?
    • Cancer Policy and Advocacy Team (CPAT)
    • Survivorship Champions
    • Subscribe to NCCS Updates
    • Elevating Survivorship
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    • Tools For Care Providers
    • Order Our Resources
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    • Cancer Policy and Advocacy Team (CPAT) Virtual Symposium 2022
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute