NCCS represents the millions of Americans who live with, through and beyond a cancer diagnosis. But the cancer experience is not the same for everyone. Gains in cancer survival due to advances in treatment and screening are not shared by all who are diagnosed with cancer.
Outcomes vary significantly based on a number of factors, including race/ethnicity, socioeconomic status, health insurance status, and geographic location. According to researchers from the American Cancer Society, a quarter of the approximately 600,000 annual cancer deaths in the United States could be prevented if everyone had access to the same prevention, screening, and treatment.
NCCS works on policy efforts to address health equity and reducing disparities in outcomes. The problem of health equity is complex, as some of the factors that lead to inequity are deeply rooted in social determinants of health and systemic and institutional barriers. Many of the policies that would improve access to care would contribute to reducing disparities. The Affordable Care Act (ACA), including its expansion of Medicaid, has reduced disparities in access to care and mortality rates, compared to states that chose not to expand Medicaid.
“Historically, racial/ethnic minorities, the poor, and the uninsured are less likely to receive evidence‐based cancer prevention and screening, and they are more likely to be diagnosed with advanced disease. Racial/ethnic minorities, the poor, and the uninsured are less likely to receive effective cancer treatment and have poorer survival after diagnosis. A substantial proportion of insured Americans are underinsured, and their access to high‐quality care is also limited. These underinsured populations are also less likely to receive evidence‐based preventive care and, when diagnosed with cancer, they are less likely to receive optimal care, including cancer surgery, radiation therapy, and systemic therapies, and they have poorer survival after a cancer diagnosis. Although some disparities in cancer care by race are decreasing, disparities by socioeconomic status and state of residence are increasing.”Yabroff, K Robin et al. “Minimizing the burden of cancer in the United States: Goals for a high-performing health care system.” CA: a cancer journal for clinicians vol. 69,3 (2019): 166-183. doi:10.3322/caac.21556
https://canceradvocacy.org/wp-content/uploads/aesthetic-flat-closure-feat-img-500x500-1.jpg500500actualizehttps://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.pngactualize2020-09-10 11:48:052020-12-01 10:47:33Advocating for Women Who Choose to Go Flat After Mastectomy
https://canceradvocacy.org/wp-content/uploads/2018/09/Capitol-wide-800px.jpg400800actualizehttps://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.pngactualize2020-09-10 11:35:492020-11-23 08:35:26Advocacy Alert: Tell Congress to Expand Paid Leave Eligibility to Cancer Survivors
https://canceradvocacy.org/wp-content/uploads/Kathy-LaTour-1-1.jpg5151030actualizehttps://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.pngactualize2020-09-10 11:28:572020-12-01 10:37:23NCCS Mourns Former Board Member Kathy LaTour
The Trump administration decided against opening a special enrollment period for Healthcare.gov, which would allow uninsured individuals to purchase plans outside of the open enrollment period. NCCS joined with 28 patient and consumer groups to urge the administration to implement a special enrollment period as the nation fights to protect its citizens from the COVID-19 virus. The Affordable Care Act does allow for people who have lost [...]
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Cancer survivors have expressed concerns and questions about COVID-19, the coronavirus, and how they may be at higher risk due to their cancer history. Here are some resources about COVID-19 generally, and its impact for cancer survivors specifically. NCCS is seeking answers from public health experts on the coronavirus and its impact on cancer patients and survivors. Please leave a comment [...]
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How Should Patients Be Protected From “Surprise” Medical Bills? The Latest: Democratic and Republican House staffers met with Speaker Pelosi’s office to try to protect patients from getting large “surprise” medical bills. There was no breakthrough, according to The Hill. The Issue: Patients can receive extremely high medical bills during emergency situations when they are taken to an out-of-network hospital, or from out-of-network providers, even [...]
https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png250250actualizehttps://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.pngactualize2020-02-21 15:17:102020-10-21 08:41:45Health Care Roundup: “Surprise” Billing and ACA Updates; NCCS on Fear of Cancer Recurrence; Study on Long-Term Young Survivors; End-of-Life Care; More
The Centers for Medicare & Medicaid Services (CMS) earlier today announced a guidance to state Medicaid programs that encourages states to create a block grant program for the portion of their Medicaid program expanded under the Affordable Care Act. The National Coalition for Cancer Survivorship (NCCS) opposes the CMS action to permit Medicaid block grants because of their potential negative impact on people with cancer. NCCS issued the statement below [...]
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The Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care is a unique opportunity for patients and survivors to recognize pioneers who are transforming the cancer care system.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
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NCCS represents the millions of Americans who share a common experience – the survivorship experience – living with, through and beyond a cancer diagnosis.
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