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2020 State of CancerSurvivorship
NCCS conducted the 2020 State of Cancer Survivorship Survey with a broad, national sample that mirrors the population of cancer survivors in the United States. We found consistent themes from the first NCCS survivorship survey in 2018, such as: cancer survivors face significant challenges both during and after treatment. While the cancer care team effectively addresses many of the physical effects of cancer treatment, survivors reported that their care team is not as helpful addressing other effects of their cancer, including fatigue, anxiety, and depression.
When we compare the national sample with patients who are connected to an advocacy organization, such as NCCS, we see differences in the level of empowerment and involvement in decision-making. The majority of patients in the national sample defer to their clinicians for decision-making about their care.
Educating and empowering patients is an important goal of NCCS, but at the same time, we must work toward a health care system that works for ALL patients, even if they are not able or interested in playing an active role in their care.
Want to share your survivorship journey? Are you, or someone you know, advocating for care? Share your story.
This program is supported by an educational grant from Bristol-Myers Squibb.
The Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care is a unique opportunity for patients and survivors to recognize pioneers who are transforming the cancer care system.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
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NCCS represents the millions of Americans who share a common experience – the survivorship experience – living with, through and beyond a cancer diagnosis.
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