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As a Triple Negative Breast Cancer survivor, Sharon turned her personal experience into a passion for advocacy and giving back to the community. When she received her diagnosis in May 2015, she remembers being in a state of shock and grief. She said, “You have to allow yourself time to breathe and grieve.”
The National Coalition for Cancer Survivorship (NCCS) conducts an annual State of Survivorship Survey, in partnership with Edge Research, to delve into the cancer patient and survivor journey. This study captures a range of perspectives to better understand how NCCS can support its mission to advocate for quality cancer care for all. The 2022 State […]
Advocate Spotlight January 2022 | Rebecca Esparza In August of 2001, 30-year-old Rebecca Esparza noticed her clothes weren’t fitting the way they should. Although she was an avid fan of step aerobics and running, her stomach seemed to be consistently bloated. By September, Rebecca felt the need to make an appointment with her gynecologist, even […]
Advocate Spotlight November 2021 | Stef Gayhart Stef Gayhart was building a life for herself and her son, when she was blindsided in August 2019 by a rare disease diagnosis: Stage 3 tongue cancer. At the time, Stef was a healthy 37-year-old working as a critical care nurse. She fought for her independence, and then […]
It is critical that cancer patients and their caregivers have access to paid time away from work when receiving treatment or caring for their loved one. Patients with serious health care needs and their caregivers suffer in multiple ways from a lack of paid leave. Patients’ treatment may suffer, and they may suffer economically. The […]
Loss of Patient Protections Would Raise Barriers to Health Insurance — Seventeen patient groups representing millions of Americans with pre-existing conditions filed an amicus curiae (“friend-of-the-court”) brief today in the U.S. Court of Appeals for the Fifth Circuit in the case Texas v. United States, citing the devastating impact patients would face should the court uphold the District Court ruling to invalidate the Affordable Care Act (ACA). […]
The Trump administration decided against opening a special enrollment period for Healthcare.gov, which would allow uninsured individuals to purchase plans outside of the open enrollment period. NCCS joined with 28 patient and consumer groups to urge the administration to implement a special enrollment period as the nation fights to protect its citizens from the COVID-19 virus. The Affordable Care Act does allow for people who have lost […]
Cancer survivors have expressed concerns and questions about COVID-19, the coronavirus, and how they may be at higher risk due to their cancer history. Here are some resources about COVID-19 generally, and its impact for cancer survivors specifically. NCCS is seeking answers from public health experts on the coronavirus and its impact on cancer patients and survivors. Please leave a comment […]
How Should Patients Be Protected From “Surprise” Medical Bills? The Latest: Democratic and Republican House staffers met with Speaker Pelosi’s office to try to protect patients from getting large “surprise” medical bills. There was no breakthrough, according to The Hill. The Issue: Patients can receive extremely high medical bills during emergency situations when they are taken to an out-of-network hospital, or from out-of-network providers, even […]
The Centers for Medicare & Medicaid Services (CMS) earlier today announced a guidance to state Medicaid programs that encourages states to create a block grant program for the portion of their Medicaid program expanded under the Affordable Care Act. The National Coalition for Cancer Survivorship (NCCS) opposes the CMS action to permit Medicaid block grants because of their potential negative impact on people with cancer. NCCS issued the statement below […]
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute