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NCCS - National Coalition for Cancer Survivorship
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114 SEARCH RESULTS FOR: Financial Toxicity

Sharon Rivera-Sanchez: Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

January 12, 2023/in Advocate Spotlight, NCCS News Access to Care, Clinical Trials, Disparities in Outcomes, Exercise and Rehabilitation, Financial Toxicity, Health Equity, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News /by NCCS Staff

As a Triple Negative Breast Cancer survivor, Sharon turned her personal experience into a passion for advocacy and giving back to the community. When she received her diagnosis in May 2015, she remembers being in a state of shock and grief. She said, “You have to allow yourself time to breathe and grieve.”

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https://canceradvocacy.org/wp-content/uploads/Advocate-Spotlight-Sharon-Rivera-Sanchez.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-01-12 15:24:442023-01-12 15:24:44Sharon Rivera-Sanchez: Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

NCCS Presents The State of Cancer Survivorship: 2022 Survey Results

October 28, 2022/in Cancer News, NCCS News Access to Care, Care Coordination, Care Planning, Clinical Guidelines, Clinical Trials, Disparities in Outcomes, Doctor-Patient Communication, Exercise and Rehabilitation, Financial Toxicity, Health Equity, Psychosocial Care, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News /by NCCS Staff

The National Coalition for Cancer Survivorship (NCCS) conducts an annual State of Survivorship Survey, in partnership with Edge Research, to delve into the cancer patient and survivor journey. This study captures a range of perspectives to better understand how NCCS can support its mission to advocate for quality cancer care for all. The 2022 State […]

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https://canceradvocacy.org/wp-content/uploads/Survey-2022-feat-img.jpg 628 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-10-28 13:03:532022-10-28 13:03:53NCCS Presents The State of Cancer Survivorship: 2022 Survey Results

NCCS Advocate Spotlight: Rebecca Esparza

January 5, 2022/in NCCS News Access to Care, Doctor-Patient Communication, Financial Toxicity, Health Care Coverage, Health Equity, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News /by NCCS Staff

Advocate Spotlight January 2022 | Rebecca Esparza In August of 2001, 30-year-old Rebecca Esparza noticed her clothes weren’t fitting the way they should. Although she was an avid fan of step aerobics and running, her stomach seemed to be consistently bloated. By September, Rebecca felt the need to make an appointment with her gynecologist, even […]

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https://canceradvocacy.org/wp-content/uploads/Rebecca-Esparza-advocate-spotlight.jpg 628 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-01-05 13:08:502022-01-05 13:08:50NCCS Advocate Spotlight: Rebecca Esparza

NCCS Advocate Spotlight: Stef Gayhart

November 3, 2021/in NCCS News Access to Care, Financial Toxicity, Health Care Coverage, Health Equity, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News /by NCCS Staff

Advocate Spotlight November 2021 | Stef Gayhart Stef Gayhart was building a life for herself and her son, when she was blindsided in August 2019 by a rare disease diagnosis: Stage 3 tongue cancer. At the time, Stef was a healthy 37-year-old working as a critical care nurse. She fought for her independence, and then […]

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https://canceradvocacy.org/wp-content/uploads/Stef-Gayhart-advocate-spotlight.jpg 475 907 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2021-11-03 10:43:192021-11-03 10:43:19NCCS Advocate Spotlight: Stef Gayhart

Why Cancer Patients and Caregivers Need Paid Leave

October 14, 2021/in Cancer News, NCCS News Access to Care, Disparities in Outcomes, Financial Toxicity, Health Equity Issue Statements, NCCS News /by NCCS Staff

It is critical that cancer patients and their caregivers have access to paid time away from work when receiving treatment or caring for their loved one. Patients with serious health care needs and their caregivers suffer in multiple ways from a lack of paid leave. Patients’ treatment may suffer, and they may suffer economically. The […]

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https://canceradvocacy.org/wp-content/uploads/caregiver.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2021-10-14 15:28:532021-10-14 15:42:21Why Cancer Patients and Caregivers Need Paid Leave

NCCS Joins Patient, Disability, and Health Care Organizations to Urge U.S. Supreme Court to Protect Medicaid and Rule Against Work Requirements

February 25, 2021/in Cancer News, NCCS News Access to Care, Affordable Care Act, Disparities in Outcomes, Financial Toxicity, Health Care Coverage, Health Equity, Pre-Existing Conditions Issue Statements, NCCS News /by NCCS Staff

Loss of Patient Protections Would Raise Barriers to Health Insurance — Seventeen patient groups representing millions of Americans with pre-existing conditions filed an amicus curiae (“friend-of-the-court”) brief today in the U.S. Court of Appeals for the Fifth Circuit in the case Texas v. United States, citing the devastating impact patients would face should the court uphold the District Court ruling to invalidate the Affordable Care Act (ACA). […]

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https://canceradvocacy.org/wp-content/uploads/2019/10/Canceradvocacy-org-default-image.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2021-02-25 17:48:242021-03-04 18:07:26NCCS Joins Patient, Disability, and Health Care Organizations to Urge U.S. Supreme Court to Protect Medicaid and Rule Against Work Requirements

NCCS Joins 28 Patient and Consumer Groups Urging the Administration to Implement a Special Enrollment Period for Healthcare.gov

April 1, 2020/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Affordable Care Act, COVID-19, Financial Toxicity, Health Equity, Pre-Existing Conditions, Quality Cancer Care NCCS News /by actualize

The Trump administration decided against opening a special enrollment period for Healthcare.gov, which would allow uninsured individuals to purchase plans outside of the open enrollment period. NCCS joined with 28 patient and consumer groups to urge the administration to implement a special enrollment period as the nation fights to protect its citizens from the COVID-19 virus. The Affordable Care Act does allow for people who have lost […]

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https://canceradvocacy.org/wp-content/uploads/2017/10/white-house.jpg 686 1030 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2020-04-01 15:44:222020-07-06 10:20:37NCCS Joins 28 Patient and Consumer Groups Urging the Administration to Implement a Special Enrollment Period for Healthcare.gov

Coronavirus and Cancer Resources for Survivors

March 20, 2020/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, COVID-19, Financial Toxicity, Health Care Coverage, Health Equity, Quality Cancer Care, Shared Decision-Making NCCS News /by actualize

Cancer survivors have expressed concerns and questions about COVID-19, the coronavirus, and how they may be at higher risk due to their cancer history. Here are some resources about COVID-19 generally, and its impact for cancer survivors specifically. NCCS is seeking answers from public health experts on the coronavirus and its impact on cancer patients and survivors. Please leave a comment […]

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https://canceradvocacy.org/wp-content/uploads/2020/03/Coronavirus-feat.jpg 600 1200 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2020-03-20 12:24:482020-07-06 09:54:22Coronavirus and Cancer Resources for Survivors

Health Care Roundup: “Surprise” Billing and ACA Updates; NCCS on Fear of Cancer Recurrence; Study on Long-Term Young Survivors; End-of-Life Care; More

February 21, 2020/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Financial Toxicity, Health Equity, Palliative Care, Pre-Existing Conditions, Quality Cancer Care Health Care Roundup, NCCS News /by actualize

How Should Patients Be Protected From “Surprise” Medical Bills? The Latest: Democratic and Republican House staffers met with Speaker Pelosi’s office to try to protect patients from getting large “surprise” medical bills. There was no breakthrough, according to The Hill. The Issue: Patients can receive extremely high medical bills during emergency situations when they are taken to an out-of-network hospital, or from out-of-network providers, even […]

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https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2020-02-21 15:17:102021-02-12 10:15:19Health Care Roundup: “Surprise” Billing and ACA Updates; NCCS on Fear of Cancer Recurrence; Study on Long-Term Young Survivors; End-of-Life Care; More

NCCS Expresses Opposition to CMS Healthy Adult Opportunity Guidance Permitting Medicaid Block Grants

January 30, 2020/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Affordable Care Act, Financial Toxicity, Health Care Coverage, Health Equity, Pre-Existing Conditions Issue Statements, NCCS News /by actualize

The Centers for Medicare & Medicaid Services (CMS) earlier today announced a guidance to state Medicaid programs that encourages states to create a block grant program for the portion of their Medicaid program expanded under the Affordable Care Act. The National Coalition for Cancer Survivorship (NCCS) opposes the CMS action to permit Medicaid block grants because of their potential negative impact on people with cancer. NCCS issued the statement below […]

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https://canceradvocacy.org/wp-content/uploads/2018/10/NCCS-Issue-Statement-HHS-CMS.jpg 600 1200 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2020-01-30 16:29:542020-12-01 13:47:04NCCS Expresses Opposition to CMS Healthy Adult Opportunity Guidance Permitting Medicaid Block Grants
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Latest News

NCCS Advocate Spotlight: Sharon Rivera Sanchez - Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

Sharon Rivera-Sanchez: Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

January 12, 2023
As a Triple Negative Breast Cancer survivor, Sharon turned her personal experience into a passion for advocacy and giving back to the community. When she received her diagnosis in May 2015, she remembers being in a state of shock and grief. She said, “You have to allow yourself time to breathe and grieve.”
Read more
https://canceradvocacy.org/wp-content/uploads/Advocate-Spotlight-Sharon-Rivera-Sanchez.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-01-12 15:24:442023-01-12 15:24:44Sharon Rivera-Sanchez: Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy
Rep. Debbie Wasserman Schultz introduces Comprehensive Cancer Survivorship Act at December 14, 2022 press conference.

NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act

December 14, 2022
Representative Debbie Wasserman Schultz (FL-23), a champion for cancer survivors and a survivor herself, held a press conference today…
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https://canceradvocacy.org/wp-content/uploads/CCSA-Blog-Featured-Image-1200-×-600-px-1.png 600 1200 Kara Kenan https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png Kara Kenan2022-12-14 16:03:462022-12-14 16:03:46NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act
Alique Topalian, PhD, MPH Advocate Spotlight

Alique Topalian: Childhood Cancer and the Frightening Realities of the Survivorship Journey

December 7, 2022
Alique was first diagnosed with Acute Myeloid Leukemia (AML) at the age of four. Her mother, Michele, knew something was wrong because “the light in her eyes was gone”. After being told by doctors that there was nothing wrong, her family was relentless until new blood work uncovered blast cells.
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https://canceradvocacy.org/wp-content/uploads/Alique-Topalian-Advocate-Spotlight.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-12-07 11:46:562022-12-07 11:48:28Alique Topalian: Childhood Cancer and the Frightening Realities of the Survivorship Journey

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  • About
    • Our Mission
    • Our History
    • The 1986 Club
    • Our Team
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2022 State of Cancer Survivorship Survey
    • 2021 State of Cancer Survivorship Survey
    • 2020 State of Cancer Survivorship Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
    • What is Advocacy?
    • Cancer Policy and Advocacy Team (CPAT)
    • Survivorship Champions
    • Subscribe to NCCS Updates
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute