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Advocate Spotlight: Brett Wilson Brett Wilson’s cancer experience started when she was just two years old. Her mother was concerned because she was sleeping a lot, so she took her to the doctor. Diagnosed with Acute Lymphoblastic Leukemia (ALL), her family was told she had little chance of survival. Her father remembered learning she wasn’t […]
The National Coalition for Cancer Survivorship (NCCS) conducts an annual State of Survivorship Survey, in partnership with Edge Research, to delve into the cancer patient and survivor journey. This study captures a range of perspectives to better understand how NCCS can support its mission to advocate for quality cancer care for all. NCCS worked with […]
Yesterday, the Centers for Medicare and Medicaid Services (CMS) announced that it will retain procedure codes for breast cancer reconstruction, after hearing feedback from NCCS and other patient advocates, patients, and health care professionals. NCCS asked CMS to retain the S codes for breast reconstruction, so that people in need of breast reconstruction have access […]
Woodrow “Woody” Brokenburr was diagnosed with cancer when he was 9 years old, after a biopsy revealed that the lump on his left thigh was osteosarcoma. In the 1960s, pediatric cancer care was challenging, even more so for Black children living in the racially segregated south, as access to quality care was limited. Effective chemotherapy […]
The National Coalition for Cancer Survivorship (NCCS) is proud to announce the participants of the 2023 – 2024 Elevating Survivorship program. After a competitive application process, NCCS selected 10 individuals from across the United States to serve as Elevate Ambassadors. The Elevate Ambassadors will receive mentorship, support, networking opportunities, and training to develop and execute a […]
NCCS is pleased to announce the 2023 winners of the Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care are Phuong Gallagher and Mary McCabe, RN, MA. They will be recognized at the 2023 Ellen L. Stovall Award Reception on Thursday, October 26, 2023. NCCS presents the Stovall Award annually to two recipients who […]
Sanna Ali is a dedicated Nurse Practitioner currently pursuing her PhD in Nursing at The George Washington University. Sanna started her nursing career as a registered nurse in an inpatient pediatric hematology oncology unit. She shares that working with childhood cancer patients had one of the most profound impacts on her life. “The experience was […]
STAT News recently published an op-ed by NCCS Board Vice Chair Lisa D. T. Rice on the threat to access of DIEP flap breast reconstruction surgery. In 1983, I flew home from college to be with my mother as she woke up from a mastectomy. She opted out of breast reconstruction, choosing to “go flat” […]
On Friday, Representatives Debbie Wasserman Schultz (D-FL-25), Brian Fitzpatrick (R-PA-1), and Mark DeSaulnier (D-CA-10) and Senators Amy Klobuchar (D-MN) and Ben Cardin (D-MD) reintroduced H.R. 4363/S.2213, the Comprehensive Cancer Survivorship Act (CCSA). This bipartisan legislation addresses the health of cancer survivors throughout the entire continuum of care – from diagnosis to active treatment and post-treatment […]
Diagnosed with a rare form of leukemia called acute promyelocytic leukemia (APL), Sarah Cohn’s cancer diagnosis at the age of 30 took her by surprise. Sarah had just started a new job when symptoms appeared. “For survivors, it seems like there is always one thing that happens that leads directly to their diagnosis, and then […]
Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute