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NCCS - National Coalition for Cancer Survivorship
  • About
        • About Us

        • NCCS is the oldest cancer survivor-led non-profit organization in America. We advocate for quality cancer care for all touched by cancer.

        • About NCCS

        • Our Mission
        • What is Advocacy?Learn about the different types of cancer advocacy, from personal advocacy to public interest advocacy.
        • Our HistoryRead how NCCS’s leaders coined the term “cancer survivor,” and established the nation’s first survivor-led non-profit organization.
        • Our Team
        • Financial Information
        • Employment
        • Contact Us
        • Support Our Mission

        • Make A GiftSupport our mission of quality cancer care for all with a gift to NCCS.
        • The 1986 ClubMake a monthly commitment to support NCCS, empower cancer survivors, and advance public policy.
        • Ways to GiveLearn about other ways you can contribute to NCCS such as planned giving, employer matches, shopping online, and more.
        • Partnerships
  • News
    • NCCS News
    • Advocate SpotlightEach month, NCCS highlights a cancer survivorship advocate, sharing their story and the work they do in their communities.
    • Policy CommentsRead NCCS’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
    • Issue StatementsRead NCCS statements on pressing issues and developments in Washington affecting cancer survivors and their families.
  • Policy
        • Policy

        • Public policy is government action, in the form of legislation, regulation, funding, and other actions. Public policy affects people with cancer and the cancer care system in many ways.

        • Our Policy Priorities

        • Quality Cancer CareQuality cancer care is essential for patients. Learn how NCCS and others define quality.
        • Access to CareNCCS believes cancer care and clinical trials should be affordable and accessible to everyone.
        • Health EquityThe cancer experience is not the same for everyone. NCCS works on policy efforts to reduce disparities in outcomes.
        • Current Issues

        • Comprehensive Cancer Survivorship Act (CCSA)The CCSA is a large comprehensive bill introduced in Congress that aims to improve quality of care in all stages of a diagnosis.
        • Cancer Care Planning and Communications Act (CCPCA)CCPCA is a bill that would provide a billable Medicare service code for cancer care planning.
        • DIEP Flap AccessNCCS advocates for protection of access to DIEP Flap Breast Reconstruction Surgery for all breast cancer survivors.
        • Policy CommentsRead NCCS’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
        • Issue StatementsRead NCCS statements on pressing issues and developments in Washington affecting cancer survivors and their families.
        • Quality Measurement Research
  • Get Involved
        • Get Involved

        • Whether you’re new to cancer advocacy or already have experience as an advocate, there are numerous ways you can get involved with NCCS.

        • Join NCCS

        • Cancer Policy and Advocacy Team (CPAT)CPAT is a program for survivors and caregivers to learn about pressing issues that affect quality cancer care, in order to be engaged as advocates in public policy.
        • Elevating SurvivorshipA patient-led initiative — NCCS mentors advocates (Elevate Ambassadors) to fill vital gaps in survivorship care in their community.
        • Survivorship ChampionsAn NCCS program for clinicians and researchers who are interested in improving care for cancer survivors.
        • Advocacy OpportunitiesThis page provides a list of upcoming events, webinars, conferences, and advocacy campaigns from NCCS and other leading cancer organizations.
        • Connect with Us

        • Subscribe to NCCS Updates
        • Follow NCCS on Social Media
        • Survivor Stories
        • Cancerversary
        • Support NCCS

        • Make A Gift
        • Ways to Give
        • The 1986 Club
  • Survivorship Survey
        • State of Cancer Survivorship

        • NCCS conducts an annual State of Survivorship Survey, in partnership with Edge Research, to delve into the cancer patient and survivor journey. This study captures a range of perspectives to better understand how NCCS can support its mission to advocate for quality cancer care for all.

        • Reports by Year

        • 2023 Survey ReportThe 2023 Survey explored the caregiver experience for the first time, and features new data on the effect of cancer treatment on employment.
        • 2022 Survey ReportThe 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.
        • 2021 Survey ReportThe 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.
        • 2020 Survey ReportIn the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.
  • Survivorship Checklist
        • Cancer Survivorship Checklist

        • The Cancer Survivorship Checklist is designed to be a simple, straightforward tool patients and caregivers can use as a guide for information critical to their care wherever they are on the cancer care continuum.

        • Start Your Cancer Survivorship Checklist
        • Survivorship Checklist Guide for Clinicians
        • Resources for Cancer Survivors

        • Survivorship ResourcesA collection of resources that provide information about navigating the cancer journey.
        • Cancer RehabilitationA supportive health care service that helps improve a person’s functioning during and after cancer treatment.
        • Integrative OncologyA field that combines traditional cancer treatments with therapies that support a person’s natural healing ability.
  • Resources
        • Resources

        • NCCS provides a wide variety of resources for both patients and caregivers.

        • Resources for Survivors and Caregivers

        • Cancer Survival ToolboxA free, award-winning audio program created by leading cancer organizations to help people better meet & understand the challenges of their illness.
        • Telehealth
        • Care Planning for Cancer Survivors
        • Remaining Hopeful
        • Self Advocacy
        • Talking With Your Doctor
        • Taking Charge of Your Care
        • Order Our Resources
        • Resources for Health Care Professionals

        • Tools For Care Providers
        • Telehealth Project
        • Survivorship Champions Webinars
        • Survivorship Checklist Guide for Clinicians
  • Events
    • Ellen L. Stovall Award
      • 2023 Winners
      • Awardees
      • Reception and Sponsorship
      • Committees
      • Nominations
    • Cancer Policy Roundtable (CPR)
      • Spring 2023 CPR
      • Fall 2022 CPR
      • Spring 2022 CPR
    • 2023 Survivorship Survey
    • Webinars
  • 0

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Advocate Spotlight: Mary Glen, with photo of Mary.

The Not-So-Good Cancer: Mary Glen’s Inspiring Advocacy Journey

November 8, 2023/in Advocate Spotlight, NCCS News Doctor-Patient Communication, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News

Advocate Spotlight: Mary Glen Mary Glen was serving as an active-duty Army officer, deployed to South Korea in August 2020. Just 24 years old, Mary recalls feeling fatigued, experiencing bouts of depression, hair loss, and brittle nails, but her symptoms were initially attributed to the stress of deployment. “In the Army, the doctor who deploys […]

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https://canceradvocacy.org/wp-content/uploads/Mary-Glen-Advocate-Spotlight-Blog-Banner.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-11-08 11:55:412023-11-08 11:55:41The Not-So-Good Cancer: Mary Glen’s Inspiring Advocacy Journey
Mary McCabe and Phuong Gallagher, Stovall Award winners, with NCCS CEO Shelley Fuld Nasso

NCCS Presents 8th Annual Ellen L. Stovall Awards to Phuong Gallagher and Mary McCabe, RN for Their Innovation and Dedication to Cancer Survivors

October 30, 2023/in Cancer News, NCCS News Access to Care, Quality Cancer Care, Survivorship Care NCCS News

FOR IMMEDIATE RELEASE  October 30, 2023 Washington, D.C. – The National Coalition for Cancer Survivorship (NCCS) presented the 8th annual Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care to Mary McCabe, RN, MA and Phuong Gallagher on October 26, 2023.  Named for former NCCS CEO, Ellen Stovall, who died in 2016 from long-term […]

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https://canceradvocacy.org/wp-content/uploads/Mary-McCabe-Shelley-Fuld-Nasso-Phuong-Gallagher-Stovall-Awards-2023-web.jpg 628 1200 Kara Kenan https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png Kara Kenan2023-10-30 09:31:232023-10-30 12:35:48NCCS Presents 8th Annual Ellen L. Stovall Awards to Phuong Gallagher and Mary McCabe, RN for Their Innovation and Dedication to Cancer Survivors
picture of National Institutes of Health building in Bethesda, MD

NCCS, Cancer Leadership Council Express Strong Support for NIH Director Nominee Monica Bertagnolli

October 18, 2023/in NCCS News Quality Cancer Care Issue Statements, NCCS News

The National Coalition for Cancer Survivorship (NCCS) strongly supports the nomination of Dr. Monica Bertagnolli to be the Director of the National Institutes of Health (NIH). A surgical oncologist, researcher, and cancer survivor, Dr. Bertagnolli has served as Director of the National Cancer Institute (NCI) since 2022. NCCS joined other member organizations of the Cancer […]

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https://canceradvocacy.org/wp-content/uploads/National-Institutes-of-Health-NIH-1200px.jpg 628 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-10-18 11:54:422023-10-18 11:57:58NCCS, Cancer Leadership Council Express Strong Support for NIH Director Nominee Monica Bertagnolli
NCCS Advocate Spotlight: Marlena Murphy Finds Meaning in the Challenges

The Path to Purpose: Marlena Murphy Finds Meaning in the Challenges

October 11, 2023/in Advocate Spotlight, NCCS News Financial Toxicity, Health Equity, Psychosocial Care, Quality Cancer Care, Shared Decision-Making, Survivorship Care Advocate Spotlight

Advocate Spotlight: Marlena Murphy Marlena Murphy’s cancer journey began when she discovered a lump in her left breast during her monthly self-check in May 2018. It was a moment that would change her life forever. Marlena contacted her primary care physician and was immediately scheduled for a diagnostic mammogram. Ultrasound imaging and a biopsy followed, […]

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https://canceradvocacy.org/wp-content/uploads/Marlena-Murphy-Advocate-Spotlight-Blog-Banner.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-10-11 13:57:512023-10-13 14:33:15The Path to Purpose: Marlena Murphy Finds Meaning in the Challenges

NCCS Presents The State of Cancer Survivorship: 2023 Survey Results

October 5, 2023/in NCCS News Access to Care, Care Coordination, Care Planning, Disparities in Outcomes, Doctor-Patient Communication, Drug Pricing, Health Equity, Integrative Oncology, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News

The National Coalition for Cancer Survivorship (NCCS) conducts an annual State of Survivorship Survey, in partnership with Edge Research, to explore the cancer survivor journey. This study captures a range of perspectives to better understand how NCCS can support its mission to advocate for quality cancer care for everyone touched by cancer. The research was […]

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https://canceradvocacy.org/wp-content/uploads/Survey-Results-Briefing-2023-Screenshot.jpg 960 1920 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-10-05 16:16:552023-10-05 16:16:55NCCS Presents The State of Cancer Survivorship: 2023 Survey Results

Brett Wilson – Navigating Childhood Cancer and Finding Purpose in Advocacy

September 13, 2023/in Advocate Spotlight, NCCS News Access to Care, Care Planning, Disparities in Outcomes, Health Equity, Psychosocial Care, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News

Advocate Spotlight: Brett Wilson Brett Wilson’s cancer experience started when she was just two years old. Her mother was concerned because she was sleeping a lot, so she took her to the doctor. Diagnosed with Acute Lymphoblastic Leukemia (ALL), her family was told she had little chance of survival. Her father remembered learning she wasn’t […]

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https://canceradvocacy.org/wp-content/uploads/Brett-Wilson-Advocate-Spotlight-Blog-Banner.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-09-13 13:55:422023-09-13 14:29:44Brett Wilson – Navigating Childhood Cancer and Finding Purpose in Advocacy
HHS Humphrey bldg 1200

NCCS Submits Comments on 2024 Medicare Physician Fee Schedule Proposed Rule

September 11, 2023/in CMS, NCCS News, Policy Comments Care Planning, Health Equity, Payment Reform, Quality Cancer Care Policy Comments

NCCS submitted a letter to the Centers for Medicare and Medicaid Services (CMS), offering comments on the Medicare physician fee schedule proposed rule for calendar year 2024. NCCS also joined members of the Cancer Leadership Council (CLC) in submitting additional comments in a separate letter. In the letters, NCCS expressed strong support for the proposals […]

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https://canceradvocacy.org/wp-content/uploads/2017/10/HHS-Humphrey-bldg-1200.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-09-11 15:19:292023-11-06 10:34:33NCCS Submits Comments on 2024 Medicare Physician Fee Schedule Proposed Rule

Registration Open: 2023 State of Survivorship Survey Results Briefing | October 3

September 7, 2023/in NCCS News Access to Care, Health Equity, Quality Cancer Care NCCS News

The National Coalition for Cancer Survivorship (NCCS) conducts an annual State of Survivorship Survey, in partnership with Edge Research, to delve into the cancer patient and survivor journey. This study captures a range of perspectives to better understand how NCCS can support its mission to advocate for quality cancer care for all. NCCS worked with […]

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https://canceradvocacy.org/wp-content/uploads/Survey-2023-briefing-mc-1200px-2-1.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-09-07 11:00:202023-10-11 13:39:07Registration Open: 2023 State of Survivorship Survey Results Briefing | October 3
We did it! DIEP Flap Codes Saved

CMS Announces It Will Retain Breast Reconstruction Codes, A Reversal That Protects Patient Access to DIEP Flap Surgery

August 22, 2023/in CMS, NCCS News, Policy Comments Access to Care, DIEP Flap Reconstruction Surgery Access, Health Care Coverage, Quality Cancer Care NCCS News, Policy Comments

Yesterday, the Centers for Medicare and Medicaid Services (CMS) announced that it will retain procedure codes for breast cancer reconstruction, after hearing feedback from NCCS and other patient advocates, patients, and health care professionals. NCCS asked CMS to retain the S codes for breast reconstruction, so that people in need of breast reconstruction have access […]

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https://canceradvocacy.org/wp-content/uploads/DIEP-Flap-Reconstruction-CMS-Codes.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-08-22 14:26:202023-10-13 16:40:12CMS Announces It Will Retain Breast Reconstruction Codes, A Reversal That Protects Patient Access to DIEP Flap Surgery
Woody Brokenburr Advocate Spotlight

Championing Survivorship: Woody Brokenburr’s Lifelong Dedication to Cancer Advocacy

August 9, 2023/in Advocate Spotlight, Cancer News, NCCS News Care Coordination, Care Planning, Doctor-Patient Communication, Quality Cancer Care, Shared Decision-Making Advocate Spotlight, NCCS News

Woodrow “Woody” Brokenburr was diagnosed with cancer when he was 9 years old, after a biopsy revealed that the lump on his left thigh was osteosarcoma. In the 1960s, pediatric cancer care was challenging, even more so for Black children living in the racially segregated south, as access to quality care was limited. Effective chemotherapy […]

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https://canceradvocacy.org/wp-content/uploads/Woody-Brokenburr-Advocate-Spotlight-Blog-Banner.png 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-08-09 12:13:302023-09-13 15:18:49Championing Survivorship: Woody Brokenburr’s Lifelong Dedication to Cancer Advocacy
NCCS Announces New Elevate Ambassadors

NCCS Announces New Elevate Ambassadors Selected to Improve Survivorship In Their Communities

July 27, 2023/in NCCS News Disparities in Outcomes, Health Equity, Quality Cancer Care, Survivorship Care NCCS News

The National Coalition for Cancer Survivorship (NCCS) is proud to announce the participants of the 2023 – 2024 Elevating Survivorship program. After a competitive application process, NCCS selected 10 individuals from across the United States to serve as Elevate Ambassadors. The Elevate Ambassadors will receive mentorship, support, networking opportunities, and training to develop and execute a […]

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https://canceradvocacy.org/wp-content/uploads/Elevate-Ambassadors-2023-Announcement-Blog.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-07-27 10:55:572023-08-07 16:01:56NCCS Announces New Elevate Ambassadors Selected to Improve Survivorship In Their Communities
Graphic reading "2023 Ellen L. Stovall Award Winners | Patient Advocate Award: Phuong Gallagher | Health Care Professional Award: Mary S. McCabe, RN, MA | Ellen L. Stovall Award for Innovation in Patient Centered Cancer Care

NCCS to Recognize Phuong Gallagher and Mary McCabe, RN, with 2023 Ellen L. Stovall Award

July 19, 2023/in NCCS News Access to Care, Clinical Guidelines, Clinical Trials, Doctor-Patient Communication, Health Equity, Psychosocial Care, Quality Cancer Care, Quality Measurement, Survivorship Care NCCS News

NCCS is pleased to announce the 2023 winners of the Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care are Phuong Gallagher and Mary McCabe, RN, MA. They will be recognized at the 2023 Ellen L. Stovall Award Reception on Thursday, October 26, 2023. NCCS presents the Stovall Award annually to two recipients who […]

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https://canceradvocacy.org/wp-content/uploads/2023-Ellen-L.-Stovall-Award-Winners-1200px.png 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-07-19 15:45:562023-07-19 16:25:30NCCS to Recognize Phuong Gallagher and Mary McCabe, RN, with 2023 Ellen L. Stovall Award
NCCS Advocate Spotlight: Sanna Ali, MSN, CRNP

Championing Survivorship: Nurse Practitioner Sanna Ali’s Dedication to a Career in Cancer Survivorship

July 12, 2023/in Advocate Spotlight, Cancer News, NCCS News Care Coordination, Care Planning, Doctor-Patient Communication, Quality Cancer Care, Shared Decision-Making Advocate Spotlight, NCCS News

Sanna Ali is a dedicated Nurse Practitioner currently pursuing her PhD in Nursing at The George Washington University. Sanna started her nursing career as a registered nurse in an inpatient pediatric hematology oncology unit. She shares that working with childhood cancer patients had one of the most profound impacts on her life. “The experience was […]

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https://canceradvocacy.org/wp-content/uploads/Sanna-Ali-Advocate-Spotlight-Web-feat.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-07-12 13:28:512023-07-12 13:30:46Championing Survivorship: Nurse Practitioner Sanna Ali’s Dedication to a Career in Cancer Survivorship
Lisa Rice blog post

NCCS Board Member in STAT News Op-Ed: CMS must protect access to the ‘gold standard of breast reconstruction’

June 30, 2023/in NCCS News Access to Care, DIEP Flap Reconstruction Surgery Access, Health Care Coverage NCCS News

STAT News recently published an op-ed by NCCS Board Vice Chair Lisa D. T. Rice on the threat to access of DIEP flap breast reconstruction surgery. In 1983, I flew home from college to be with my mother as she woke up from a mastectomy. She opted out of breast reconstruction, choosing to “go flat” […]

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https://canceradvocacy.org/wp-content/uploads/Lisa-Rice-DIEP-Flap-post.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-06-30 10:38:532023-10-13 16:40:22NCCS Board Member in STAT News Op-Ed: CMS must protect access to the ‘gold standard of breast reconstruction’
CCSA Re-Introduced

NCCS Applauds the Re-Introduction of the Comprehensive Cancer Survivorship Act (CCSA)

June 23, 2023/in NCCS News Access to Care, Care Coordination, Care Planning, Disparities in Outcomes, Doctor-Patient Communication, Exercise and Rehabilitation, Financial Toxicity, Health Equity, Integrative Oncology, Payment Reform, Quality Cancer Care, Quality Measurement NCCS News

On Friday, Representatives Debbie Wasserman Schultz (D-FL-25), Brian Fitzpatrick (R-PA-1), and Mark DeSaulnier (D-CA-10) and Senators Amy Klobuchar (D-MN) and Ben Cardin (D-MD) reintroduced H.R. 4363/S.2213, the Comprehensive Cancer Survivorship Act (CCSA). This bipartisan legislation addresses the health of cancer survivors throughout the entire continuum of care – from diagnosis to active treatment and post-treatment […]

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https://canceradvocacy.org/wp-content/uploads/CCSA-Re-Introduced.png 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-06-23 13:39:552023-06-28 09:47:26NCCS Applauds the Re-Introduction of the Comprehensive Cancer Survivorship Act (CCSA)
Sarah Cohn advocate spotlight

Arsenic and Advocacy: Sarah Cohn’s Experience with Rare Leukemia Spurs Action

June 14, 2023/in Advocate Spotlight, NCCS News Doctor-Patient Communication, Quality Cancer Care, Shared Decision-Making, Survivorship Care Advocate Spotlight

Diagnosed with a rare form of leukemia called acute promyelocytic leukemia (APL), Sarah Cohn’s cancer diagnosis at the age of 30 took her by surprise. Sarah had just started a new job when symptoms appeared. “For survivors, it seems like there is always one thing that happens that leads directly to their diagnosis, and then […]

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https://canceradvocacy.org/wp-content/uploads/Sarah-Cohn-Advocate-Spotlight-Blog-Banner.png 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-06-14 13:41:082023-06-14 18:24:18Arsenic and Advocacy: Sarah Cohn’s Experience with Rare Leukemia Spurs Action
NCCS Letter to HHS

NCCS Urges CMS to Preserve Access to DIEP Flap Breast Reconstruction

June 1, 2023/in CMS, NCCS News, Policy Comments Access to Care, DIEP Flap Reconstruction Surgery Access, Drug Pricing, Health Care Coverage NCCS News, Policy Comments

Today, the Centers for Medicare and Medicaid Services (CMS) hosted a public meeting, in which they sought input on its decision to sunset the S code for deep inferior epigastric perforator (DIEP) flap reconstruction. NCCS has engaged in advocacy, along with other patient advocacy organizations and health care providers, to encourage CMS to reinstate the codes. The decision to end […]

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https://canceradvocacy.org/wp-content/uploads/HHS-Humphrey-bldg-1200-1030x515-1.jpg 515 1030 Kara Kenan https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png Kara Kenan2023-06-01 16:53:292023-10-13 16:40:32NCCS Urges CMS to Preserve Access to DIEP Flap Breast Reconstruction
Atrium Health Wake Forest Baptist update POST

Webinar – Survivorship at Atrium Health Wake Forest Baptist Comprehensive Cancer Center: Creating a Practical Workflow

May 12, 2023/in NCCS News Care Coordination, Care Planning, Clinical Guidelines, Doctor-Patient Communication, Exercise and Rehabilitation, Integrative Oncology, Palliative Care, Psychosocial Care, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News

The National Coalition for Cancer Survivorship (NCCS) hosted a Survivorship Champions webinar about survivorship care implementation, “Survivorship at Atrium Health Wake Forest Baptist Comprehensive Cancer Center: Creating a Practical Workflow.” In this webinar, Dr. Stacy Wentworth and Jill Hyson, MSN, NP-C discuss survivorship care as a critical component of a patient’s cancer journey. The presenters […]

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https://canceradvocacy.org/wp-content/uploads/Atrium-Health-Wake-Forest-Baptist-update-POST.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-05-12 12:42:192023-08-21 14:52:16Webinar – Survivorship at Atrium Health Wake Forest Baptist Comprehensive Cancer Center: Creating a Practical Workflow
Sandra Finestone Advocate Spotlight Blog Banner

Sandra Finestone, PsyD: Be Bold and Don’t Hesitate – A 30-year Survivor’s Advice on Advocacy

May 8, 2023/in Advocate Spotlight, NCCS News Psychosocial Care, Quality Cancer Care, Shared Decision-Making Advocate Spotlight, NCCS News

Advocate Spotlight: Sandra Finestone, PsyD A cancer diagnosis can be overwhelming and life-changing, but for Sandra Finestone, it ignited a passion for advocacy that has lasted for more than 30 years. Sandra’s journey as a breast cancer survivor began in her late thirties when she discovered a lump in her breast during a routine check-up. […]

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https://canceradvocacy.org/wp-content/uploads/Sandra-Finestone-Advocate-Spotlight-Blog-Banner.png 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-05-08 13:42:472023-05-11 10:49:23Sandra Finestone, PsyD: Be Bold and Don’t Hesitate – A 30-year Survivor’s Advice on Advocacy
Blog Webpage Banner

Accessing COVID-19 Resources After the Public Health Emergency Ends

May 4, 2023/in HHS, NCCS News Access to Care, COVID-19, Health Care Coverage, Quality Cancer Care Issue Statements, NCCS News

The COVID-19 public health emergency (PHE), which has been in effect since early 2020, will end on May 11, 2023. The federal government may continue to distribute free COVID-19 tests from its supply of purchased COVID-19 treatments, tests, and vaccines through the United States Postal Service, states, and other community partners. While this supply remains, […]

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https://canceradvocacy.org/wp-content/uploads/Blog-Webpage-Banner-3.png 600 1200 Kara Kenan https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png Kara Kenan2023-05-04 17:52:452023-05-04 17:52:45Accessing COVID-19 Resources After the Public Health Emergency Ends
DIEP Flap Blog Webpage Banner

NCCS Urges Insurance Companies to Preserve Access to DIEP Flap Breast Reconstruction

April 28, 2023/in NCCS News Access to Care, DIEP Flap Reconstruction Surgery Access, Health Care Coverage, Quality Cancer Care Issue Statements, NCCS News

This week, NCCS joined other patient advocacy organizations and medical professional societies in submitting a letter to the CEOs of major insurance companies, expressing concerns with recent insurance coverage policy changes that have limited access to DIEP flap breast reconstruction surgery. Specifically, the letter asks these insurance companies to engage with individuals who have received […]

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https://canceradvocacy.org/wp-content/uploads/DIEP-Flap-Blog-Webpage-Banner.png 600 1200 Kara Kenan https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png Kara Kenan2023-04-28 13:31:192023-10-13 16:40:41NCCS Urges Insurance Companies to Preserve Access to DIEP Flap Breast Reconstruction
CPAT Webinar: Amplifying Your Message: Advocating Through Traditional Media Channels webinar flyer

Webinar – Amplifying Your Message: Advocating Through Traditional Media Channels

April 21, 2023/in NCCS News Quality Cancer Care NCCS News

NCCS hosted a CPAT webinar on leveraging traditional media for cancer advocacy with public relations and marketing expert Michael Holtz. While social media is an important tool for amplifying cancer advocacy messages, traditional media outlets like newspapers, television, and radio, and their digital counterparts, are still relevant and can help raise awareness and put pressure […]

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https://canceradvocacy.org/wp-content/uploads/Michael-Holtz-CPAT-Webinar-Media-Training-Post-web.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-04-21 15:40:052023-04-21 15:40:05Webinar – Amplifying Your Message: Advocating Through Traditional Media Channels
NCCS Letter to HHS

NCCS and Cancer Leadership Council Issue Comments on Implementation of Medicare Drug Price Negotiation Program

April 20, 2023/in CMS, NCCS News, Policy Comments Access to Care, Drug Pricing, Health Care Coverage NCCS News, Policy Comments

NCCS joined with other member organizations of the Cancer Leadership Council (CLC) in a letter to the Centers for Medicare and Medicaid Services (CMS) to comment on the Initial Memorandum for Implementation of the Medicare Drug Price Negotiation Program. In the letter, NCCS and 10 other cancer organizations — representing cancer patients, health care professionals, […]

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https://canceradvocacy.org/wp-content/uploads/HHS-Humphrey-bldg-1200-1030x515-1.jpg 515 1030 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-04-20 14:07:182023-04-20 14:07:18NCCS and Cancer Leadership Council Issue Comments on Implementation of Medicare Drug Price Negotiation Program
Lisa Rice Blog Banner

Lisa Rice – My Breast Cancer Journey: Many Lessons Learned and More in Store

April 20, 2023/in Advocate Spotlight, NCCS News DIEP Flap Reconstruction Surgery Access, Disparities in Outcomes, Health Equity, Quality Cancer Care, Shared Decision-Making Advocate Spotlight, NCCS News

During my final semester of college, a life-changing call came. My mother was in the hospital, waiting for results of a biopsy of a tumor she’d found in her breast. My father told me that she’d already decided, if the tumor was malignant, she would proceed with a radical mastectomy […]

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Ruth Travis Advocate Spotlight

Ruth Travis: Cancer Is Not a Death Sentence. It’s a License to Live.

April 6, 2023/in Advocate Spotlight, NCCS News Disparities in Outcomes, Health Equity Advocate Spotlight, NCCS News

Ruth Travis knows the power of early detection. She started getting regular mammograms when she was 40 years old. After 22 years, the annual process was nothing new. In 2007, Ruth arrived for her annual screening mammogram […]

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NCCS Letter to HHS

NCCS Joins With Patient Advocates and Health Care Professionals to Call on CMS to Ensure Access to DIEP Flap Breast Reconstruction

April 3, 2023/in CMS, Policy Comments Access to Care, Affordable Care Act, DIEP Flap Reconstruction Surgery Access, Health Care Coverage, Quality Cancer Care Policy Comments

WASHINGTON, DC, April 3, 2023 – Advocates for individuals in need of breast reconstruction surgery delivered a letter and petition to the Centers for Medicare and Medicaid Services (CMS) today, urging them to reinstate a procedure code that is essential for access to deep inferior epigastric perforator (DIEP) flap breast reconstruction surgery. More than 4,600 […]

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Medicaid Protect Letter Congress Blog

NCCS Urges President Biden and Congress to Support and Protect Medicaid

March 24, 2023/in NCCS News Access to Care, Affordable Care Act, Health Care Coverage Issue Statements, NCCS News

This week, NCCS joined with more than 30 patient advocacy organizations as part of the Partnership to Protect Coverage to urge President Biden and Congress to support and protect the Medicaid program during any upcoming fiscal discussions. The letter calls on the White House and Congress to reject changes to Medicaid’s current financing structure and […]

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Diane Heditsian PBS Newshour DIEP Flap

NCCS Advocates for Access to DIEP Flap Breast Reconstruction Surgery

March 10, 2023/in NCCS News Access to Care, DIEP Flap Reconstruction Surgery Access, Health Care Coverage Issue Statements, NCCS News

The National Coalition for Cancer Survivorship recently joined the Community Breast Reconstruction Alliance (CBRA), a group of patient advocacy organizations and health care providers who are working together to advocate for access to deep inferior epigastric perforator (DIEP) flap breast reconstruction surgery. Patient education regarding breast reconstruction includes a review of options, including breast reconstruction […]

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NCCS Advocate Spotlight: Betsy Glosik, A Cancer Survivor's Journey Through Integrative Healing and Advocacy

Betsy Glosik: A Cancer Survivor’s Journey Towards Integrative Healing and Advocacy

March 8, 2023/in Advocate Spotlight, NCCS News Integrative Oncology, Quality Cancer Care, Quality Measurement, Survivorship Care Advocate Spotlight, NCCS News

For Betsy Glosik, the early 2000s brought one trauma after another. She lost her aunt to melanoma. Then, tragically she lost her 20-yr old daughter to a car accident. In 2003, after years of mentioning her concerns about a mole on her foot to her dermatologist, and repeatedly having her concerns dismissed, Betsy was diagnosed with melanoma…

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Implementing-ASCO-Guidelines-Webinar-Post-web

Webinar – Implementing the ASCO Guidelines for Exercise, Nutrition, and Weight Management with Your Patients and Practice

March 3, 2023/in NCCS News Care Coordination, Clinical Guidelines, Doctor-Patient Communication, Exercise and Rehabilitation, Quality Cancer Care, Survivorship Care NCCS News

The National Coalition for Cancer Survivorship (NCCS) hosted a Survivorship Champions webinar discussing the American Society for Clinical Oncology’s (ASCO) Guidelines for Exercise, Nutrition, and Weight Management and how to best implement them in a clinical setting. Sami Mansfield, founder of Cancer Wellness for Life, and Wendy Demark-Wahnefried, PhD, RD, a professor of nutrition sciences […]

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Norrisa Haynes, MD How to Lead a Heart Healthy Life Webinar

Webinar – How to Lead a Heart Healthy Life – Norrisa Haynes, MD

February 17, 2023/in NCCS News Exercise and Rehabilitation, Quality Cancer Care, Survivorship Care NCCS News

In this webinar hosted by NCCS, Cardiologist Dr. Norrisa Haynes of Yale University presents the basics of heart disease, including risk factors and the interplay between heart disease and cancer. Heart disease is still the leading cause of death worldwide, despite medical advancements, and can result from risk factors like high blood pressure, high cholesterol, […]

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Advocate Spotlight: Erin Cummings - Heart of a Survivor - Erin Cummings' Journey as a Long-Term Hodgkin's Lymphoma Survivor

Erin Cummings’s Journey as a Long-Term Hodgkin’s Lymphoma Survivor

February 8, 2023/in Advocate Spotlight, NCCS News Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News

Diagnosed with Hodgkin’s Lymphoma during her freshman year of high school at the age of 15, Erin Cummings recalls finding two lumps and not thinking much of them. “Cancer was the farthest thing from my mind,” she said. When her sister later noticed the lumps, Erin finally told her mom and found herself in the hospital […]

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NCCS Advocate Spotlight: Sharon Rivera Sanchez - Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

Sharon Rivera-Sanchez: Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

January 12, 2023/in Advocate Spotlight, NCCS News Access to Care, Clinical Trials, Disparities in Outcomes, Exercise and Rehabilitation, Financial Toxicity, Health Equity, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News

As a Triple Negative Breast Cancer survivor, Sharon turned her personal experience into a passion for advocacy and giving back to the community. When she received her diagnosis in May 2015, she remembers being in a state of shock and grief. She said, “You have to allow yourself time to breathe and grieve.”

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Rep. Debbie Wasserman Schultz introduces Comprehensive Cancer Survivorship Act at December 14, 2022 press conference.

NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act

December 14, 2022/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Care Coordination, Care Planning, Doctor-Patient Communication, Payment Reform, Quality Cancer Care NCCS News

Representative Debbie Wasserman Schultz (FL-23), a champion for cancer survivors and a survivor herself, held a press conference today to introduce the Comprehensive Cancer Survivorship Act (CCSA), new comprehensive survivorship legislation that will directly benefit cancer survivors. She was joined by Senators Ben Cardin (D-MD) and Amy Klobuchar (D-MN), who will lead the legislation in […]

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Alique Topalian, PhD, MPH Advocate Spotlight

Alique Topalian: Childhood Cancer and the Frightening Realities of the Survivorship Journey

December 7, 2022/in Advocate Spotlight, Cancer News, NCCS News Care Coordination, Care Planning, Doctor-Patient Communication, Psychosocial Care, Quality Cancer Care, Shared Decision-Making, Survivorship Care Advocate Spotlight, NCCS News

Alique was first diagnosed with Acute Myeloid Leukemia (AML) at the age of four. Her mother, Michele, knew something was wrong because “the light in her eyes was gone”. After being told by doctors that there was nothing wrong, her family was relentless until new blood work uncovered blast cells.

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US Capitol Building Winter

NCCS Joins Cancer Leadership Council in Urging Congress to Include Priorities in Year-End Package

December 1, 2022/in Cancer News, Cancer Policy Blog, Congress, NCCS News, Policy Comments Access to Care, Clinical Trials, COVID-19, Health Equity, Payment Reform, Quality Cancer Care, Survivorship Care Issue Statements, NCCS News, Policy Comments

NCCS joined with other member organizations of the Cancer Leadership Council (CLC) in a letter urging Congress to include several key provisions in an end-of-year legislative package. In the letter, NCCS and 14 other cancer organizations, representing cancer patients, health care professionals, researchers, and caregivers, stressed that action on these issues would enhance cancer patients’ […]

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Shelley Fuld Nasso, Patti Ganz, and Alicia Staley

NCCS Presents 7th Annual Ellen L. Stovall Award to Patricia Ganz, MD, and Alicia Staley for their Dedication to Improving Cancer Care

November 17, 2022/in Uncategorized Quality Cancer Care NCCS News

The National Coalition for Cancer Survivorship hosted the 7th annual Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care Awards Reception on November 16, 2022 in Washington, DC. NCCS proudly presented the 2022 Stovall Awards to two remarkable champions for patient-centered cancer in the cancer community: Patricia Ganz, MD, and Alicia Staley. Laurie Isenberg, […]

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Amanda Helms Advocate Spotlight

Amanda Helms: Care Planning, Mental Health, and Palliative Care are Essential to Quality Cancer Care

November 1, 2022/in Advocate Spotlight, NCCS News Care Planning, COVID-19, Palliative Care, Psychosocial Care, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News

Amanda Helms was enjoying a bubble bath while reading a book when she looked down and noticed a lump on the side of her breast in January of 2020. She had a bad feeling about it instantly, even though she had no family history or risk factors. She went to her family doctor who referred […]

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Survey-2022-feat-im

NCCS Presents The State of Cancer Survivorship: 2022 Survey Results

October 28, 2022/in Cancer News, NCCS News Access to Care, Care Coordination, Care Planning, Clinical Guidelines, Clinical Trials, Disparities in Outcomes, Doctor-Patient Communication, Exercise and Rehabilitation, Financial Toxicity, Health Equity, Psychosocial Care, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News

The National Coalition for Cancer Survivorship (NCCS) conducts an annual State of Survivorship Survey, in partnership with Edge Research, to delve into the cancer patient and survivor journey. This study captures a range of perspectives to better understand how NCCS can support its mission to advocate for quality cancer care for all. The 2022 State […]

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Lori Wilson, MD, FACS

NCCS Mourns the Loss of Lori Wilson, MD, FACS

October 21, 2022/in Uncategorized Disparities in Outcomes, Doctor-Patient Communication, Health Equity, Quality Cancer Care, Survivorship Care NCCS News

The NCCS community is mourning the loss of Lori Wilson, MD, FACS. Dr. Wilson was a skilled oncology surgeon, a passionate educator, and a dedicated mother. She was also living with metastatic breast cancer and was a voice for cultural humility in healthcare. She weaved her lived experience into her professional life to give hope […]

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SChamps Webinar 2022-10-12 Exercise is Medicine featpost

Webinar – Exercise Is Medicine in Oncology: Implementation Based on Solid Evidence

October 13, 2022/in NCCS News Exercise and Rehabilitation, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News

NCCS hosted a webinar featuring Kathryn Schmitz, PhD, MPH, a leading researcher in exercise oncology at the University of Pittsburgh Medical Center. Dr. Schmitz’s research focuses on people living with and beyond cancer and investigates the role exercise in improving physiologic and psychosocial outcomes including symptoms, treatment tolerance, and other chronic diseases. Dr. Schmitz is […]

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NCCS Advocate Spotlight: Michael Holtz - Everyone Has a Place in the Advocacy Community

Michael Holtz: Everyone Has a Place in the Advocacy Community

October 12, 2022/in Advocate Spotlight, NCCS News Access to Care, Care Coordination, Clinical Trials, COVID-19, Doctor-Patient Communication, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News

“Everyone has a place in the advocacy continuum: Your lived experience is important.” Michael Holtz didn’t know that the “funky” digestive symptoms in December of 2011 would be the first signs of his cancer diagnosis. These rectal spasms would leave Michael rushing to the bathroom, and either nothing would happen or there would be a […]

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Nicole C. Bullock advocate spotlight

Nicole C. Bullock: Faith, Family, and Friends Along the Path of Survivorship

September 6, 2022/in Advocate Spotlight, NCCS News Access to Care, Care Coordination, Clinical Trials, COVID-19, Disparities in Outcomes, Doctor-Patient Communication, Health Equity, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News

As Nicole C. Bullock, a non-Hodgkin lymphoma survivor, watched the news of hospital lockdowns during the early stages of the COVID-19 pandemic, she couldn’t help but think of the cancer patients who faced the harsh reality that they would now have to receive treatment for their illness alone, without the support of family and friends. […]

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2022 Stovall Award Winners Patricia Ganz, MD and Alicia Staley

NCCS to Recognize Patricia Ganz, MD and Alicia Staley with 2022 Ellen L. Stovall Award

August 30, 2022/in NCCS News Access to Care, Clinical Guidelines, Clinical Trials, Doctor-Patient Communication, Health Equity, Psychosocial Care, Quality Cancer Care, Quality Measurement, Survivorship Care NCCS News

NCCS is pleased to announce the 2022 winners of the Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care are Patricia A. Ganz, MD, and Alicia Staley. They will be recognized at the 2022 Ellen L. Stovall Award Reception on Wednesday, November 16. NCCS presents the Stovall Award annually to two recipients who have […]

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Kara Kenan Advocate Spotlight

Kara Kenan: Helping Others is the Greatest Reward of Advocacy

August 3, 2022/in Advocate Spotlight, NCCS News Care Coordination, Doctor-Patient Communication, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News

“Nobody wins afraid of losing” rings true for Kara Kenan, a breast cancer survivor. It’s her favorite line from Chris Stapleton’s song, “Starting Over,” which, for her, is symbolic of overcoming the fear of a cancer diagnosis and coming out on the other side. Kara recognizes that winning looks different for every survivor. While it […]

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Care and Career Support From Health Systems to Employers Webinar

Webinar – Care and Career Support: From Health Systems to Employers

August 3, 2022/in NCCS News Quality Cancer Care, Shared Decision-Making NCCS News

NCCS hosted a webinar about the unique demands of caregiving in cancer and strategies that employers and health systems might engage to support caregivers. Webinar Speakers Margaret L. Longacre, PhD, Associate Professor and Chair of Public Health, Arcadia University Michele Cygan, Director of Compensation and Benefits, Arcadia University Christina Sisti, DPS, MPH, MS, NCCS CPAT […]

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Bethany Ross

Bethany Ross: Advocating for Quality Cancer Care Through Storytelling

July 7, 2022/in Advocate Spotlight, NCCS News Care Coordination, Doctor-Patient Communication, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News

Advocate Spotlight July 2022 – Bethany Ross Bethany Ross is a four-year neuroendocrine cancer survivor, or “cancer badass,” as she prefers to be called. She attended NCCS’s in-person Cancer Policy and Advocacy Team (CPAT) Symposium for the first time in June as a CPAT steering committee member. “It was amazing. I’ve been talking to these […]

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Supreme Court of the United States

NCCS Reacts to Dobbs v. Jackson Women’s Health Organization Decision and Potential Impact on Access to Quality Cancer Care

July 1, 2022/in NCCS News Access to Care, Doctor-Patient Communication, Health Care Coverage, Quality Cancer Care, Shared Decision-Making Issue Statements, NCCS News

Last week, the US Supreme Court issued a ruling that overturned Roe v. Wade, thus eliminating the constitutional right to abortion. In response to the Dobbs v. Jackson Women’s Health Organization decision, various patient advocacy organizations, cancer centers, and professional societies issued statements expressing concerns for the future of cancer care. Read NCCS’s statement below. […]

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Advocate Spotlight Wenora Johnson

Wenora Johnson: The Art of Caregiving: Connection and Kindness

June 1, 2022/in Advocate Spotlight, NCCS News Care Coordination, Doctor-Patient Communication, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News

Advocate Spotlight June 2022 – Wenora Johnson “One of the most important lessons I’ve learned as a caregiver is that the smallest act of kindness means so much to a person who’s not able to do for themselves,” says Wenora Johnson, who has cared for her brother throughout his diagnosis and treatment for stage 4 […]

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Beyond the Checkbox: Cancer Survivorship Care Delivery in the Community - Dr. Crystal Labbato

Webinar – Beyond the Checkbox: Delivering Meaningful Cancer Survivorship Care in a Community Setting

May 20, 2022/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Care Coordination, Care Planning, Clinical Guidelines, Doctor-Patient Communication, Palliative Care, Psychosocial Care, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News

Dr. Crystal Labbato joined NCCS to deliver a presentation about providing an effective model of cancer survivorship care in a community setting. Dr. Labbato is the Survivorship Program Coordinator for Baptist Health Louisville and LaGrange hospitals in Kentucky. Nearly 17 years since the Institute of Medicine released their landmark report, “From Cancer Patient to Cancer […]

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Michelle Mollica PhD Webinar Survivorship Needs for People with Metastatic and Advanced Cancers

Webinar: Survivorship Needs for People Living with Advanced and Metastatic Cancers

May 6, 2022/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Care Coordination, Care Planning, Disparities in Outcomes, Doctor-Patient Communication, Health Care Coverage, Health Equity, Psychosocial Care, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News

Dr. Michelle Mollica, Senior Advisor at the National Cancer Institute’s (NCI) Office of Cancer Survivorship, joined NCCS to discuss NCI’s recent efforts focused on understanding and addressing the survivorship needs for the growing population of survivors who are living with advanced and metastatic cancers. Bethany Ross, CPAT Steering Committee Member and Advocate, also participated in […]

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Erin McGee Ferrell: The Art of Cancer Advocacy

May 5, 2022/in NCCS News Care Coordination, Doctor-Patient Communication, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News

Advocate Spotlight May 2022 – Erin McGee Ferrell Erin McGee Ferrell’s cancer was discovered during a traditional ceremony in a small Ecuadorian town along the Amazon River. She’d been traveling as an independent artist for five weeks, researching natural paints and pigments from Amazonian plants and minerals. Although she felt fine throughout her travels, a […]

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Elevate Ambassadors 2022 Announced

NCCS Announces New Elevate Ambassadors Selected to Improve Local Survivorship Care

April 28, 2022/in NCCS News Disparities in Outcomes, Health Equity, Quality Cancer Care, Survivorship Care NCCS News

The National Coalition for Cancer Survivorship (NCCS) is proud to announce the participants of the 2022 – 2023 Elevating Survivorship program. After a competitive application process, NCCS selected 11 individuals from across the United States to serve as Elevate Ambassadors. The Elevate Ambassadors will receive support, mentorship, networking opportunities, and training from NCCS to help them […]

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https://canceradvocacy.org/wp-content/uploads/Elevate-Ambassadors-2022-Announcement-1200×600px.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-04-28 13:47:442022-05-04 14:04:44NCCS Announces New Elevate Ambassadors Selected to Improve Local Survivorship Care
Brad Power cancer advocacy innovation

Brad Power: The Power of Innovation in Cancer Advocacy

April 6, 2022/in NCCS News Care Coordination, Care Planning, Doctor-Patient Communication, Quality Cancer Care, Shared Decision-Making, Survivorship Care Advocate Spotlight, NCCS News

Advocate Spotlight April 2022 – Brad Power Brad Power was a process innovation researcher and consultant with more than 35 years of experience, as well as an author of more than 75 articles for the Harvard Business Review, when he was diagnosed with lymphoma in 2018. After successfully completing a standard course of chemotherapy, he has […]

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https://canceradvocacy.org/wp-content/uploads/Advocate-Spotlight-Brad-Power-2022-Apr.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-04-06 13:33:212022-05-04 14:04:35Brad Power: The Power of Innovation in Cancer Advocacy

Webinar: A Nurse-Led Care Model to Improve Access to Rural Cancer Survivorship Care

March 25, 2022/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Care Coordination, Care Planning, Disparities in Outcomes, Doctor-Patient Communication, Health Care Coverage, Health Equity, Psychosocial Care, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News

Pam DeGuzman, PhD, RN, joined NCCS to discuss the development and evaluation of Comprehensive Assistance: Rural Interventions, Nursing and Guidance (CARING), a nurse-led intervention aimed at reducing disparities in quality of life for rural cancer survivors. During active treatment, rural survivors may forgo supportive care interventions to prioritize and consolidate medical visits into one day, […]

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https://canceradvocacy.org/wp-content/uploads/CARING-Webinar-post-event.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-03-25 14:38:512022-08-02 04:54:49Webinar: A Nurse-Led Care Model to Improve Access to Rural Cancer Survivorship Care

COVID-19 and Cancer: Otis Brawley, MD on the Future of the Pandemic

March 17, 2022/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, COVID-19, Palliative Care, Quality Cancer Care, Shared Decision-Making NCCS News

Last week, NCCS hosted a conversation with cancer control expert and epidemiologist Otis Brawley, MD. NCCS CEO Shelley Fuld Nasso moderated the discussion. “We knew exactly who we wanted to be our first guest speaker in this series. Dr. Otis Brawley is a Bloomberg Distinguished Professor at Johns Hopkins University, an oncologist and an epidemiologist. […]

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https://canceradvocacy.org/wp-content/uploads/COVID-19-Dr.-Brawley-2022-03-15-feat.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-03-17 16:37:442022-03-18 12:05:54COVID-19 and Cancer: Otis Brawley, MD on the Future of the Pandemic

Jean Di Carlo-Wagner: Don’t be Embarrassed to Death

March 2, 2022/in NCCS News Access to Care, Care Coordination, Care Planning, Health Care Coverage, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News

In March of 2003, Jean Di Carlo-Wagner listened to a public service announcement by Katie Couric, in which she discussed the symptoms of colon cancer. It was then that Jean knew she had cancer. After two years of bowel changes, fatigue, reflux, pain in her gut, weight changes, night sweats, and bloating, Jean’s doctor ordered […]

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https://canceradvocacy.org/wp-content/uploads/Jean-Di-Carlo-Wagner-feat-img.jpg 628 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-03-02 15:09:582022-03-03 10:59:34Jean Di Carlo-Wagner: Don’t be Embarrassed to Death
white house winter

NCCS Joins Groups in Urging Reinstatement of Emergency Paid Sick and Family Leave in Supplemental COVID-19 Relief Package

February 4, 2022/in Cancer News, Cancer Policy Blog, NCCS News, Policy Comments, White House Access to Care, Care Planning, COVID-19, Quality Cancer Care, Survivorship Care Issue Statements, NCCS News, Policy Comments

NCCS has advocated for the inclusion of paid family and medical leave in the Build Back Better Act and will continue to elevate this policy as a priority for cancer survivors and their families. Recently, NCCS joined with other patient and caregiver organizations to send a letter urging the Biden Administration to reinstate emergency paid […]

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https://canceradvocacy.org/wp-content/uploads/stock-winter-white-house.jpg 628 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-02-04 11:26:562022-02-10 11:37:26NCCS Joins Groups in Urging Reinstatement of Emergency Paid Sick and Family Leave in Supplemental COVID-19 Relief Package
Moonshot Logo Wide

NCCS Applauds Biden Administration’s Renewed Cancer Moonshot Initiative

February 3, 2022/in Cancer News, NCCS News Access to Care, Disparities in Outcomes, Health Care Coverage, Health Equity, Psychosocial Care, Quality Cancer Care, Survivorship Care Issue Statements, NCCS News

The Biden-Harris Administration announced they are relaunching the Cancer Moonshot initiative. As Vice President, Biden launched Cancer Moonshot in 2016 with the goal of advancing progress against cancer. As announced yesterday, the revived initiative builds upon previous commitments and adds the new goals of reducing cancer deaths by 50% over 25 years and improving the […]

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https://canceradvocacy.org/wp-content/uploads/2016/09/Moonshot-Logo-Wide.png 600 1199 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-02-03 14:04:042022-02-03 14:04:04NCCS Applauds Biden Administration’s Renewed Cancer Moonshot Initiative
Roberta Albany

Roberta Albany: On a Mission to Educate the Black and Brown Cancer Communities

February 2, 2022/in NCCS News Access to Care, Disparities in Outcomes, Doctor-Patient Communication, Health Care Coverage, Health Equity, Quality Cancer Care, Shared Decision-Making, Survivorship Care Advocate Spotlight, NCCS News

“I’m beautiful. I’m blessed, I’m loved, and I’m strong. I’m grateful. I’m victorious. I am a warrior. I am a survivor – but, more importantly, I am enough in Jesus’ name. Amen,” Roberta Albany says when she’s feeling down, depressed, or not like her confident self before her breast cancer diagnosis. Roberta describes the nine […]

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https://canceradvocacy.org/wp-content/uploads/Advocate-Spotlight-Roberta-Albany.jpg 628 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-02-02 12:13:042022-02-02 12:13:04Roberta Albany: On a Mission to Educate the Black and Brown Cancer Communities
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Related News

Advocate Spotlight: Mary Glen, with photo of Mary.

The Not-So-Good Cancer: Mary Glen’s Inspiring Advocacy Journey

November 8, 2023
Advocate Spotlight: Mary Glen Mary Glen was serving as an active-duty Army officer, deployed to South Korea in August 2020. Just…
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https://canceradvocacy.org/wp-content/uploads/Mary-Glen-Advocate-Spotlight-Blog-Banner.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-11-08 11:55:412023-11-08 11:55:41The Not-So-Good Cancer: Mary Glen’s Inspiring Advocacy Journey
Mary McCabe and Phuong Gallagher, Stovall Award winners, with NCCS CEO Shelley Fuld Nasso

NCCS Presents 8th Annual Ellen L. Stovall Awards to Phuong Gallagher and Mary McCabe, RN for Their Innovation and Dedication to Cancer Survivors

October 30, 2023
FOR IMMEDIATE RELEASE  October 30, 2023 Washington, D.C. – The National Coalition for Cancer Survivorship (NCCS) presented the…
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https://canceradvocacy.org/wp-content/uploads/Mary-McCabe-Shelley-Fuld-Nasso-Phuong-Gallagher-Stovall-Awards-2023-web.jpg 628 1200 Kara Kenan https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png Kara Kenan2023-10-30 09:31:232023-10-30 12:35:48NCCS Presents 8th Annual Ellen L. Stovall Awards to Phuong Gallagher and Mary McCabe, RN for Their Innovation and Dedication to Cancer Survivors
picture of National Institutes of Health building in Bethesda, MD

NCCS, Cancer Leadership Council Express Strong Support for NIH Director Nominee Monica Bertagnolli

October 18, 2023
The National Coalition for Cancer Survivorship (NCCS) strongly supports the nomination of Dr. Monica Bertagnolli to be the Director…
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https://canceradvocacy.org/wp-content/uploads/National-Institutes-of-Health-NIH-1200px.jpg 628 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-10-18 11:54:422023-10-18 11:57:58NCCS, Cancer Leadership Council Express Strong Support for NIH Director Nominee Monica Bertagnolli

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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute