Our mission is to advocate for quality cancer care for all people touched by cancer, but what exactly is “quality cancer care,” and why is it essential for patients and the health care system? The National Academy of Medicine (formerly Institute of Medicine) and others have worked to define quality cancer care. NCCS has represented patient perspectives in these efforts and played a leadership role in building the evidence base for quality cancer care.
NCCS believes that cancer patients should have access to:
Care that adheres to evidence-based guidelines;
Comprehensive cancer care that assures treatment of the symptoms and side effects of cancer and cancer treatment;
Coordinated care with strong communication among all providers and the patient;
A written care plan detailing all elements of cancer care;
Care in a clinical trial, if it represents a potential treatment option;
Shared decision-making, including honest discussion about prognosis, the intent of therapy and the patient’s values and preferences regarding care;
Support for psychosocial needs;
Palliative care throughout the course of treatment, from diagnosis through end of life;
End-of-life care, including but not limited to hospice care;
Post-treatment survivorship care, including a survivorship care plan with a treatment summary and personalized recommendations for monitoring and follow-up care.
Robust health information systems that support and improve all other aspects of quality cancer care.
Ensuring quality cancer care is complex, and there are many areas for improvement and policy action. An important gap is in treatment decision-making and coordination of the multiple facets of cancer care. To address this gap, NCCS advocates to ensure that every cancer patient has access to cancer care planning and coordination. These services provide cancer patients information to make informed decisions about treatments, encourage collaboration among the multi-disciplinary cancer care providers, and facilitate transitions from active treatment to survivorship.
https://canceradvocacy.org/wp-content/uploads/2017/10/HHS-Humphrey-bldg-1200.jpg6001200NCCS Staffhttps://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.pngNCCS Staff2020-12-22 20:27:262021-01-04 21:38:15NCCS, Cancer Groups Urge CMS to Withdraw Most Favored Nation (MFN) Medicare Part B Rule That Will Harm Patients and Reduce Access to Care
https://canceradvocacy.org/wp-content/uploads/HHS-Humphrey-bldg-1200-1030x515-1.jpg5151030NCCS Staffhttps://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.pngNCCS Staff2020-12-09 17:30:502020-12-10 08:22:55NCCS Letter to HHS: Proposed Regulatory Review Rule Would Create Unnecessary Uncertainty for Patients
https://canceradvocacy.org/wp-content/uploads/HHS-Humphrey-bldg-1200.jpg6001200NCCS Staffhttps://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.pngNCCS Staff2020-12-03 21:26:462020-12-03 21:28:06NCCS Opposes Most Favored Nation (MFN) Rule: New Medicare Part B Drug Payment Model Will Harm Patients
https://canceradvocacy.org/wp-content/uploads/Stovall-Award-2020-feat2.jpg6351200NCCS Staffhttps://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.pngNCCS Staff2020-11-19 01:07:452020-12-04 19:08:17NCCS Presents 5th Annual Ellen L. Stovall Award to Julia H. Rowland, PhD and Thomas J. Smith, MD for Their Innovation and Dedication to Cancer Survivors
https://canceradvocacy.org/wp-content/uploads/Centers-for-Medicare-Medicaid-Services.jpg5151030NCCS Staffhttps://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.pngNCCS Staff2020-10-06 13:13:462020-10-23 14:46:00NCCS and Cancer Groups Make Recommendations to CMS Regarding Proposed 2021 Hospital Outpatient Prospective Payment System (OPPS)
https://canceradvocacy.org/wp-content/uploads/2019/10/Canceradvocacy-org-default-image.jpg6001200NCCS Staffhttps://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.pngNCCS Staff2020-09-18 15:25:402020-09-18 15:25:40NCCS and Cancer Groups Urge National Academy of Medicine to Include Cancer Patients in Phase IB COVID-19 Vaccine Allocation
https://canceradvocacy.org/wp-content/uploads/2017/10/Stovall-Award-sq-Logo-Bl-Ribbon.png500500NCCS Staffhttps://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.pngNCCS Staff2020-09-14 16:35:402020-11-05 10:34:35NCCS to Recognize Julia H. Rowland, PhD and Tom Smith, MD with 2020 Ellen L. Stovall Award
The Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care is a unique opportunity for patients and survivors to recognize pioneers who are transforming the cancer care system.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
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NCCS represents the millions of Americans who share a common experience – the survivorship experience – living with, through and beyond a cancer diagnosis.
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