Cancer Nation Survivorship Survey
The Cancer Nation Survivorship Survey, conducted in partnership with Edge Research, uncovers the realities of cancer care from the perspective of patients, survivors, caregivers, and health care professionals. We do this to ensure that policies and practices truly meet the needs of those living with, through, and beyond cancer. This research is driving improvements in whole person cancer care, survivorship care plans, and financial protections.
Take the 2026 Survivorship Survey!
Have you ever been diagnosed with cancer?
If so, you may be eligible to take the 2026 Cancer Nation Survivorship Survey.
At Cancer Nation, we believe survivorship is not just about how long we live, but how well we live. The care survivors receive depends on whether our voices are heard—and every one of our stories matters.
Help shape the future of survivorship care! Your responses will guide our advocacy efforts, ensuring we address the most pressing needs of survivors.
- This survey is for research purposes only and your opinions will help inform Cancer Nation’s future work.
- Responses are strictly confidential. The information you provide will only be viewed together with the responses of others. Your information will never be sold to a third party.
Survivorship Survey: Clinician Perspective
Read the findings from our survey of primary care physicians and oncologists.
Cancer Nation’s Survivorship Survey has tracked the experiences of survivors and caregivers navigating cancer care since 2019. This year, we wanted to hear the other side of the story: what clinicians see as the barriers to delivering coordinated, whole-person care. The findings reveal a system where care coordination is fragmented, survivorship planning lags behind every other phase of the cancer care continuum, and post-treatment care still has no clear owner.
Read the full findings and find out what they mean for policy, practice, and the 18 million+ people living with, through, and beyond cancer.
Survivosrhip Survey Reports
Clinician Perspective
This survey explores what clinicians see as the barriers to delivering coordinated care, revealing a fragmented system where survivorship care lags behind other phases of care.
2025
Our 2025 survey revealed erosion in trust and satisfaction in care, deepening financial and mental health burdens, and continued underuse of Survivorship Care Plans.
2024
Our 2024 survey contained new questions exploring clinical trial participation, seeking second opinions, and experiences with survivorship care plans, among other topics.
2023
The 2023 Survey explored the caregiver experience for the first time. It also features new data on integrative oncology, and the effect of cancer treatment on employment.
2022
The 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.
2021
The 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.
2020
In the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.
2019
In our initial survey, we found that financial impacts of treatment topped patient’s list of concerns. We also explored side effects of treatment and gaps in survivorship care.
News and Citations
More Americans survive cancer. But the psychological impacts can persist for years
Natalie Krebs
BMC Health Services Research, July 2022
Potential inequities in availability of care from breast care nurses: a qualitative study reporting the experiences and perspectives of women with metastatic breast cancer in Australia
Andrea L. Smith, Frances Boyle, and Sophie Lewis
A Closer Look at the 2024 NCCS State of Survivorship Survey
Peggy Eastman
Healio.com (HemOnc Today), January 2025
Survey of cancer survivors reveals low rates of second opinions, primary care follow-up
Jennifer Byrne
Nature Reviews Clinical Oncology, May 2023
Mitigating long-term and delayed adverse events associated with cancer treatment
M.B. Lustberg, N.M. Kuderer, A. Desai, et al
American Family Physician, 2023
Editorial: Improving Communication and Support in Cancer Care
Elisabeth Kuper, MD
Benefits of Exercise During and After Cancer Treatment
Nancy Litterman Howe, PhD(c)
A Qualitative Study of the Impact of the COVID-19 Pandemic on Metastatic Breast Cancer Care
Joshua Woods, BA, Shekinah NC Elmore, MD, MPH, Lesley Glenn, BS, et al
BMC Health Services Research, July 2022
Potential inequities in availability of care from breast care nurses: a qualitative study reporting the experiences and perspectives of women with metastatic breast cancer in Australia
Andrea L. Smith, Frances Boyle, and Sophie Lewis
Data Requests
Cancer Nation accepts requests from researchers and advocacy organizations wanting to use the Survivorship Survey data set to support their research and practice for the purpose of improving quality of care for those touched by cancer.
2026 Survivorship Survey Supporters
