National Coalition for Cancer Survivorship - State of Survivorship Survey
National Coalition for Cancer Survivorship - State of Survivorship Survey

The State of Cancer Survivorship

The National Coalition for Cancer Survivorship (NCCS) conducts an annual State of Survivorship Survey, in partnership with Edge Research, to delve into the cancer patient and survivor journey. This study captures a range of perspectives to better understand how NCCS can support its mission to advocate for quality cancer care for all. New this year, we’ve added a companion survey for caregivers.

Hear the 2023 Survivorship Survey Results!

State of Survivorship Survey: 2023 Results Briefing
October 3

NCCS worked with Edge Research to conduct our fifth nationwide survey of cancer survivors. The 2023 survey explores the cancer survivor journey to understand better how we can support our mission to advocate for quality cancer care for all. New this year, we surveyed more than 500 caregivers to understand their perspectives.

Hear the results of the 2023 survey: Watch Video.

We share how caregivers align with and differ from patients regarding decision-making and satisfaction with cancer care. Additionally, our 2023 survey includes new questions about survivor and caregiver employment challenges after a cancer diagnosis. NCCS CEO Shelley Fuld Nasso and Edge Research Principal Pam Loeb present the survey findings.

Survey Reports

2023

Thumbnail of State of Survivorship Survey: 2023 Report Cover by NCCS
The 2023 Survey explored the caregiver experience for the first time, and features new data on the effect of cancer treatment on employment.

2022

The 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.

2021

2021 Survivorship Survey report thumbnail
The 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.

2020

2020 Survivorship Survey Report cover
In the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.

Data Requests

The National Coalition for Cancer Survivorship (NCCS) accepts requests from researchers and advocacy organizations wanting to use the State of Survivorship data set to support their research and practice for the purpose of improving quality of care for those touched by cancer.

Submit a Request »

Program Supporters

GRAIL, Pfizer | Bristol Myers Squibb, Genmab | Astellas, Gilead | Eisai, Exelixis