Health Care Roundup: ACA Open Enrollment News; Head and Neck Survivor Mental Health Study; Fear of Recurrence Webinar; More
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Health Care Coverage, Pre-Existing Conditions, Quality Cancer Care, Survivorship Care Health Care Roundup, NCCS NewsOpen Enrollment for ACA Now Underway — Open enrollment for 2019 ACA plans began yesterday and will run through December 15, 2018. Despite numerous attempts to repeal the ACA in 2017 and an ongoing court case in Texas, the ACA continues ahead, business as usual, for the most part. Many Americans will qualify for financial help that lowers their monthly premiums to between $50 and $100. Tara Siegel Bernard reports in the New York Times […]
NCCS Webinar Video: “Understanding Fear of Cancer Recurrence”
/in Cancer News, Cancer Policy Blog, NCCS News, NCCS Webinars Care Planning, Quality Cancer Care, Survivorship Care NCCS News, WebinarsThose with a cancer experience are all too familiar with the anxiety that many experience wondering and waiting if and how cancer may return. New research is helping shed more light on what exactly “fear of cancer recurrence” means as a measurable patient outcome, psychological and emotional factors that may increase or decrease it, and […]
Health Care Roundup: New Medicare Drug Pricing Proposal; New ACA Waiver Guidance; High Price of Precision Medicine; Midterms; More
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Drug Pricing, Health Care Coverage, Pre-Existing Conditions Health Care Roundup, NCCS NewsA Week of Proposals and New Regulations – This week, there were several regulations and proposals announced by the Trump Administration that would impact health care in the U.S. The announcement that made the biggest splash was revealed yesterday and would require drugs administered by physicians and paid for by Medicare, known as Part B drugs, to be priced based on the prices paid in other advanced industrial nations. The proposal […]
Patient and Consumer Groups Urge Federal Court to Issue Preliminary Injunction Against Short-Term Insurance Rule
/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Affordable Care Act, Financial Toxicity, Health Care Coverage, Health Equity, Pre-Existing Conditions NCCS NewsU.S. District Court Judge Richard J. Leon is expected to hear oral arguments today in Washington, D.C., from groups challenging a rule implementing changes to short-term, limited-duration (STLD) insurance plans. The hearing in the case Association for Community Affiliated Plans v. United States Department of Treasury will allow the plaintiffs to explain the devastating impact patients could face under the rule if bare-bones plans that do not comply […]
Coalition, Including NCCS, Urges CMS to Withdraw Guidance Threatening Millions of Americans Who Have Pre-Existing Conditions
/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Affordable Care Act, Health Care Coverage, Pre-Existing Conditions NCCS NewsMore than 25 patient and consumer groups representing millions of people nationwide with pre-existing health conditions issued the following statement in response to administration guidance issued on October 22nd that gives states greater ability to skirt patient protections included in the Affordable Care Act: “The guidance issued by the Administration gives states free reign to undermine critical protections for millions of Americans living with pre-existing conditions […]
NCCS Concerned About New CMS Guidance on 1332 Waiver Process
/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Affordable Care Act, Health Care Coverage NCCS NewsThe National Coalition for Cancer Survivorship (NCCS) is extremely concerned by the Centers for Medicare and Medicaid Services’ (CMS) new guidance document that significantly alters the standards that states must meet in order to be granted a waiver from certain Affordable Care Act (ACA) requirements. The Trump administration would permit states to revise the rules of their health insurance markets significantly, including to authorize […]
NCCS Expresses Reservations Regarding Effectiveness and Impact of New CMS Drug Pricing Proposal
/in Cancer News, Cancer Policy Blog Access to Care, Drug Pricing, Financial Toxicity, Health Equity Issue Statements, NCCS NewsA focus of the National Coalition for Cancer Survivorship (NCCS) since it was founded over thirty years ago continues to be empowering patients to make informed decisions, and this includes transparency about the cost of health care. The Centers for Medicare & Medicaid Services (CMS) recently proposed that list prices be included in direct-to-consumer (DTC) television advertisements of drugs that are reimbursed by Medicare and Medicaid. […]
Health Care Roundup: Drug Pricing in TV Ads; Even with Insurance, Serious Illness Can Mean Financial Distress; Fertility in Young Survivors; More
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Drug Pricing, Financial Toxicity, Health Care Coverage, Health Equity, Pre-Existing Conditions Health Care Roundup, NCCS NewsHHS Proposes Rule Requiring Drug Pricing in TV Ads – On Monday, Department of Health and Human Services (HHS) Secretary Alex Azar announced that HHS introduced a proposed rule to require direct-to-consumer television advertisements for prescription drugs include pricing information. According to the proposed rule, drugs paid for by Medicare or Medicaid must include the list price of the drug if it costs more than $35 for a month’s supply […]
Health Care Roundup: Patient Orgs Push Back on ‘Junk Insurance’; Rx ‘Gag Clause’ Bans; What Survivors Wish Others Understand; ACA Premiums; More
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Drug Pricing, Health Care Coverage Health Care Roundup, NCCS NewsNCCS & Patient Orgs Push Back on Short-term Plans — Recently, the Centers for Medicare and Medicaid Services (CMS) announced it would allow insurers to offer expanded short-term, limited duration plans, known as “junk insurance.” This action led NCCS to join several other national organizations in filing an amicus curiae brief in support of a lawsuit that challenges the regulation authorizing short-term health insurance plans. The amicus brief […]
NCCS Joins 11 Organizations in Filing Amicus Curiae Brief Supporting Lawsuit Challenging Short-Term Health Plans
/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Affordable Care Act, Health Care Coverage, Pre-Existing Conditions NCCS NewsThe National Coalition for Cancer Survivorship (NCCS) joined 11 other patient groups in filing an amicus curiae (or “friend of the court”) brief in support of the lawsuit that challenges the regulation authorizing short-term health insurance plans. The amicus curiae brief explains to the court the potentially devastating impact of short-term health insurance plans on people with cancer and other Americans with serious and chronic diseases. […]
Health Care Roundup: Medicare ‘Step Therapy’ Concerns; Alternative Cancer Treatment Risks; Immunotherapy Scientists Win Nobel Prize; More
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Health Care Coverage Health Care Roundup, NCCS NewsHEALTH CARE HIGHLIGHT – NCCS Submits Concerns to HHS Regarding New “Step Therapy” Plan – NCCS joined with other cancer organizations of the Cancer Leadership Council (CLC) in a letter to the Department of Health and Human Services (HHS) and the Centers for Medicare and Medicaid Services (CMS) regarding the new plan announced on August 7 that gives Medicare Advantage plans the option of applying step therapy for […]
NCCS Joins with Cancer Leadership Council to Outline Concerns Regarding New “Step Therapy” Plan
/in Cancer News, Cancer Policy Blog, CMS, HHS, NCCS News, Policy Comments Access to Care, Drug Pricing, Health Care Coverage NCCS News, Policy CommentsNCCS joined with other cancer organizations of the Cancer Leadership Council (CLC) in a letter to the Department of Health and Human Services (HHS) and the Centers for Medicare and Medicaid Services (CMS) regarding the new plan announced on August 7 that gives Medicare Advantage plans the option of applying step therapy for physician-administered and other Part B drugs. The letter outlines several concerns regarding the application of step therapy […]
NCCS Congratulates Nobel Prize in Medicine Winners for Cancer Immunotherapy Research
/in Cancer News, NCCS News NCCS NewsSilver Spring, MD – The National Coalition for Cancer Survivorship (NCCS) issued the following statement after the announcement of this year’s winners for the Nobel Prize in Medicine, James P. Allison and Tasuku Honjo, whose research into the human immune system led to immunotherapy cancer drugs. “The National Coalition for Cancer Survivorship (NCCS) congratulates Dr. James Allison and Dr. Tasuku Honjo for their breakthrough research […]
Health Care Roundup: NCCS on Proposed OPPS Changes; Bipartisan Proposal to End ‘Surprise Billing’; Medicaid Work Req’s; Financial Toxicity Survey; More
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Financial Toxicity, Health Care Coverage, Health Equity, Payment Reform, Quality Cancer Care NCCS NewsHEALTH CARE HIGHLIGHTS—NCCS submitted a letter to the Centers for Medicare and Medicaid Services (CMS) on the proposed update to the hospital outpatient prospective payment system, known as OPPS, for calendar year 2019. In the letter, NCCS addressed the proposed “site neutral” payments, which would reduce patient cost-sharing but could have other unintended consequences for patient access. NCCS also commented on […]
NCCS Submits Recommendations to CMS Regarding Proposed Changes to Hospital Outpatient Prospective Payment System (OPPS)
/in Cancer Policy Blog, CMS, HHS, NCCS News, Policy Comments Access to Care, Health Care Coverage, Payment Reform, Quality Cancer Care NCCS News, Policy CommentsNCCS submitted a letter to the Centers for Medicare and Medicaid Services (CMS) on the proposed update to the hospital outpatient prospective payment system, known as OPPS, for calendar year 2019. In the letter, NCCS outlines support for a change in payment for clinical services that are provided at off-campus provider-based departments that will reduce cost-sharing for patients for clinic visits. Additionally, CMS included a “request for information” […]
NCCS Joins Cancer Leadership Council Recommendations to FDA Regarding the Biosimilar Action Plan
/in Cancer News, Cancer Policy Blog, FDA, NCCS News, Policy Comments Financial Toxicity, Health Equity NCCS News, Policy CommentsNCCS joined with other organizations of the Cancer Leadership Council (CLC) in commenting on the FDA Biosimilar Action Plan (BAP). The comment letter commended the FDA for the development of a plan that balances both innovation and competition. The letter stated that these products provide significant benefits to cancer patients, but that they also come at a significant expense to patients and the health care system. […]
Health Care Roundup: ‘Misleading’ Pre-Existing Conditions Bill; Clinical Trials Lack Black Patients; ‘Cancer Coaching’ Ethics; Young Adult Cancer Advocates
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Clinical Trials, Disparities in Outcomes, Financial Toxicity, Health Equity, Pre-Existing Conditions Health Care Roundup, NCCS NewsNCCS and 30+ Patient Orgs Raise Concerns Over Senate Pre-Ex Bill — This week, NCCS and more than 30 other patient advocacy organizations submitted a letter to Senator Tillis (R-NC) detailing why his bill does not go far enough in protecting pre-existing conditions despite his intentions. The bill title, “Ensuring Coverage for Patients with Pre-Existing Conditions Act” (S.3388), is misleading and, if passed, would not provide adequate coverage […]
NCCS Raises Concerns Over Impact on Patients of Medicare Physician Fee Schedule Revisions
/in Cancer News, Cancer Policy Blog, CMS, HHS, NCCS News, Policy Comments Access to Care, Health Care Coverage, Payment Reform, Quality Cancer Care NCCS News, Policy CommentsNCCS submitted comments to the Centers for Medicare and Medicaid Services (CMS) on the Medicare physician fee schedule revisions proposed for calendar year 2019 and proposed revisions in the Quality Payment Program. In our comments, NCCS addressed proposed changes to evaluation and management services, which are provided in the office or outpatient setting and are a critical element of cancer care. CMS proposed creating a […]
Health Care Roundup: Maryland, Advocacy Groups File Suits to Protect ACA; Emergency Resources for Survivors; False Hope in Precision Medicine; More
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Drug Pricing, Financial Toxicity, Health Care Coverage, Health Equity, Pre-Existing Conditions Health Care Roundup, NCCS NewsThis week, the US Census Bureau released health insurance coverage estimates for 2017. Between 2016 and 2017, the overall uninsured rate did not change significantly, but 14 states experienced an increase in the number of uninsured individuals, due to poverty status or whether the state expanded Medicaid. While coverage numbers dropped in many states, the Trump Administration continues to cut ACA navigator funding, which […]
Health Care Roundup: Texas Court Hears ACA Lawsuit; House, Senate Advance Pharmacy “Gag Clause” Bans; Long-Distance Caregiving; and More
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Drug Pricing, Health Care Coverage, Pre-Existing Conditions, Quality Cancer Care, Shared Decision-Making NCCS NewsIn order to bring you the latest cancer-related health care policy and news, we at NCCS combined our ACA Updates and What Caught Our Eye (WCOE) content into a weekly email and blog post. We aim to make this a concise, one-stop summary of what you need to know as we continue working together to make cancer care better […]
NCCS Applauds Resolution to Block Short-Term Insurance Plans, Protect Those with Pre-Existing Conditions
/in Cancer News, Cancer Policy Blog, Congress, HHS, NCCS News, Policy Comments Access to Care, Affordable Care Act, Health Care Coverage, Pre-Existing Conditions Issue Statements, NCCS News, Policy CommentsWashington, DC – NCCS applauds the efforts of Senator Tammy Baldwin (D-WI) and 30 of her colleagues to advance a resolution blocking the final rule permitting expansion of short-term plans. The final rule extending the availability of short-term plans will put more Americans at risk of purchasing junk insurance plans and will also undermine the individual insurance markets on which many people with cancer rely. “NCCS considers these new short-term plans a serious threat,” […]
Health Care Roundup: Kasich on Medicaid Expansion Success; New Cervical Cancer Screening Choices; a Nurse’s ‘Gut Feeling’; and More
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Clinical Guidelines, Disparities in Outcomes, Financial Toxicity, Health Care Coverage, Health Equity, Quality Cancer Care, Survivorship Care NCCS NewsCourt Throws Out KY Governor’s Medicaid Countersuit — Kentucky Governor Matt Bevin (R) lost a lawsuit against Medicaid recipients who are challenging the Governor’s attempt to implement Medicaid work requirements. Earlier this year, Bevin was also unsuccessful in moving forward with his plans in changing components of Medicaid expansion in the state when a federal court sided with the same Medicaid recipients. […]
Health Care Roundup: ‘Junk Insurance;’ High Costs and Forgone Care; Reinsurance; Patient Safety After Hospital Mergers
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Financial Toxicity, Health Equity, Palliative Care, Pre-Existing Conditions, Quality Cancer Care NCCS NewsTrump Admin Continues Push to Make Short-Term Health Plans More Acceptable — On Wednesday, the Trump administration made it easier for short-term plans to reach more consumers in another move to try to halt further ACA progress. While short-term plans are inexpensive, they do not cover pre-existing conditions and the range for medical services is much more limited. […]
NCCS Statement on HHS Final Rule for Short-Term, Limited Duration Health Plans
/in Cancer Policy Blog, CMS, HHS, NCCS News, Policy Comments Access to Care, Affordable Care Act, Health Care Coverage, Pre-Existing Conditions NCCS News, Policy CommentsThe National Coalition for Cancer Survivorship (NCCS) issued the following statement regarding the Trump administration’s announcement of the final rule on short-term, limited-duration health insurance plans: “NCCS is deeply concerned that the Administration’s new rule on short-term, limited-duration plans, called ‘junk insurance’ by health insurance experts, will harm cancer patients and survivors by providing inadequate coverage for cancer care […]
Health Care Roundup: “Toxic Town” in WV Battles High Cancer Rates; CMS News: Risk Adjustment, 340b, Site-Neutral Payments; Hospital Costs; More
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Drug Pricing, Health Care Coverage NCCS NewsCMS Resumes ACA Risk Adjustment Payments — The Centers for Medicare and Medicaid Services (CMS) announced it will continue payments—amounting to $10.4 billion—to the Affordable Care Act’s (ACA) risk-adjustment program. The program was established to ensure that risk is spread across insurance companies. Recently, in one of the many efforts to dismantle the ACA, CMS announced that it would halt the payments, […]
Health Care Roundup: Trump Drug Pricing Plan; HHS Cuts ACA Navigator Funding; CAR-T Therapy Coverage Issues; Biosimilar News; and More
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Drug Pricing, Health Care Coverage NCCS NewsComment Period Closed for Trump Drug Pricing Plan — Comments for the Department of Health and Human Services’ (HHS) drug pricing proposal were due this week. The plan, introduced by the Trump administration, outlined proposals seeking to increase competition, reduce out-of-pocket costs and incentivize better negotiations for lower drug prices. NCCS joined with other organizations of the Cancer Leadership Council (CLC) to provide comments […]
NCCS Awarded American Institutes for Research Grant to Develop New Outcome Measure: “Return to Functional Status”
/in Cancer News, Cancer Policy Blog, NCCS News Clinical Guidelines, Quality Cancer Care, Survivorship Care NCCS NewsUPDATE FEBRUARY 2020: Read a summary of this research project at www.canceradvocacy.org/RFS. The National Coalition for Cancer Survivorship (NCCS) was awarded a grant from the American Institutes for Research (AIR), with support from the Robert Wood Johnson Foundation, to develop a new quality measure concept for “return to functional status.” NCCS will use a novel […]
NCCS Joins Cancer Leadership Council Comment Letter Regarding the Drug Pricing Blueprint “American Patients First”
/in Cancer News, Cancer Policy Blog, HHS, NCCS News, Policy Comments Access to Care, Affordable Care Act, Drug Pricing, Health Care Coverage NCCS News, Policy CommentsThe National Coalition for Cancer Survivorship (NCCS) joined with other organizations of the Cancer Leadership Council (CLC) to provide comments regarding the Trump administration’s drug pricing blueprint, “American Patients First.” Sent to Department of Health and Human Services Secretary Alex Azar, the letter outlines the groups’ concerns and asks questions of HHS about the plan’s […]
A Medical School Perspective: Beyond the Science, We Must Learn to Communicate with Patients
/in Cancer News, Cancer Policy Blog Doctor-Patient Communication, Palliative Care, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS NewsBy Nainika Nanda, MD — Survivorship. What does this mean? Oncology highlights patients currently battling cancer. However, survivorship encompasses a longer timeline. Cancer requires lifelong care, which is achieved through proper doctor-patient communication. In fact, this relationship is a keystone of medicine. Unfortunately, it can lose focus in the sea of information medical students must master. A common analogy for medical education is […]
Health Care Roundup: CMS Halts ACA Risk Payments, Slashes Navigator Funding; Long-Term Outcomes for Young Survivors; Drug Pricing; More
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Drug Pricing, Financial Toxicity, Health Equity, Pre-Existing Conditions NCCS NewsCMS Halts ACA Risk-Adjustment Payments and Cuts Funding for Health Coverage Navigators — This week, the Centers for Medicare and Medicaid Services (CMS) announced two new actions that could harm the Affordable Care Act (ACA) marketplaces and enrollment. Last Saturday, CMS announced that it would halt the risk-adjustment program, including $10 billion in payments due to insurers for costs incurred last year. […]
Health Care Roundup: Association Health Plans and ACA Repeal; Benefits of Exercise for Childhood Survivors; NIH Grant System; and More
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Financial Toxicity, Health Equity, Pre-Existing Conditions NCCS NewsAssociation Health Plans Rule Finalized – The association health plans (AHP) rule was finalized by the Labor Department as the Trump administration continues its efforts to strike down the Affordable Care Act (ACA) through regulatory action. While marketed as a way for small businesses and trade groups to sell cheaper coverage, the rule allows plans NOT to cover the ACA’s 10 “essential health benefits.” NCCS joined with the Cancer Leadership Council […]
NCCS Announces Winners of the 2018 Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care
/in Cancer News, Cancer Policy Blog, NCCS News NCCS NewsLongtime NCCS CEO Ellen Stovall made a lasting impact on the cancer community, both personally and professionally, through her warmth, generosity, and spirit of collaboration as she worked to make cancer care better for all patients. Shortly after she died in 2016 due to cardiac complications from her cancer treatment, the National Coalition for Cancer […]
Health Care Roundup: DoJ Decision Not to Defend ACA Puts Patient Protections At Risk; “Cancer Treatment Beyond Mutant-Hunting”
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Financial Toxicity, Health Equity, Pre-Existing Conditions NCCS NewsHEALTH CARE HIGHLIGHTS – ACA Pre-Existing Conditions Protections are at Risk – As we reported last week, the Department of Justice (DoJ) determined that it will NOT defend the Affordable Care Act (ACA) in the lawsuit filed by the state of Texas and several other states. In fact, the DoJ is breaking with long-held legal precedent to defend laws passed by Congress. Instead, the DoJ has decided to support the legal argument of several attorneys general […]
Health Care Roundup: DOJ Won’t Defend ACA Provisions in Court, Health Care’s Role in 2018 Midterms, and More
/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Affordable Care Act, Clinical Trials, Drug Pricing, Financial Toxicity, Health Equity, Pre-Existing Conditions NCCS NewsAdministration Action Threatens Coverage for People with Pre-existing Conditions — In a court filing yesterday, the Department of Justice (DOJ) stated that it would not defend key provisions of the Affordable Care Act in a lawsuit brought by Texas and several other states. One provision is the individual mandate, which was repealed in the tax bill passed by Congress and signed into law last December. Also at issue in the case is coverage and […]
Health Care Roundup: Virginia to Expand Medicaid, Colorectal Screening Guidelines, How the ‘Bewildering’ Health Insurance Industry Works, and More
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Clinical Guidelines, Drug Pricing, Health Care Coverage, Quality Cancer Care, Survivorship Care NCCS NewsVirginia Votes to Expand Medicaid — Both chambers of the Virginia Legislature moved a budget bill Wednesday that would expand Medicaid through the Affordable Care Act (ACA). The bill would make Virginia the 33rd state to expand Medicaid under Obamacare and could lead to as many as 400,000 people being newly covered. “As a doctor, I’m so proud of the significant step we’ve taken together to help Virginians get quality, affordable […]
NCCS Statement on the Passage of the STAR Childhood Cancer Act and the Right to Try Act
/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Clinical Trials NCCS NewsSilver Spring, MD – The National Coalition for Cancer Survivorship issued the following statement regarding passage of both the Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act (S. 292) and the Trickett Wendler, Frank Mongiello, Jordan McLinn, and Matthew Bellina Right to Try Act (S. 204). Both are now headed to the President’s desk […]
Health Care Roundup: 2018 Cancer Status Report; Childhood Cancer STAR Act Passes; “When a Rural Hospital Shuts Down;” and More
/in Cancer News, Cancer Policy Blog Access to Care, Clinical Trials, Health Care Coverage NCCS NewsHEALTH CARE HIGHLIGHTS – Annual Cancer Status Report Released – On Tuesday, the Annual Report to the Nation on the Status of Cancer was released. This report is a collaborative effort of NCI, CDC, ACS, and NAACCR. The report includes mortality data through 2015. It shows that, from 1999 to 2015, overall cancer death rates decreased by 1.8 percent per year among men and by 1.4 percent per year among women. […]
NCCS Joins Cancer Leadership Council to Oppose Right to Try Legislation in the House
/in Cancer News, Cancer Policy Blog, Congress, FDA, NCCS News, Policy Comments Access to Care, Clinical Guidelines, Clinical Trials, Quality Cancer Care NCCS News, Policy CommentsThe National Coalition for Cancer Survivorship joined with other organizations of the Cancer Leadership Council (CLC) in a letter to House leadership to oppose House consideration of the Trickett Wendler, Frank Mongiello, Jordan McLinn, and Matthew Bellina Right to Try Act (S. 204).The legislation passed the House on May 22 and goes to the President […]
Health Care Roundup: Drug Pricing Plan, 2019 Premium Increases, Short-Term Plans, Medicare Mulls Covering Gene Therapies, and More
/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Affordable Care Act, Drug Pricing, Financial Toxicity, Health Care Coverage, Health Equity NCCS NewsTrump Administration Promotes a Drug Pricing Plan – On Friday, May 11, 2018, President Trump announced a drug pricing blueprint to address prescription drug prices. Initial media coverage of the plan suggested that the blueprint failed to honor the President’s campaign commitment to negotiation of drug prices. Overall, the press and policymaker reaction to the plan was muted, with some suggesting that the plan would have limited impact. […]
Cancer Policy News Roundup: Proposed Cuts to CHIP, Association Health Plans in Farm Bill, Prescribing Exercise for Cancer Patients, and More
/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Affordable Care Act, Financial Toxicity, Health Equity NCCS NewsA new weekly roundup of policy news affecting the cancer community. In order to bring you the latest cancer-related health care policy and news, we are combining our ACA Updates and What Caught Our Eye (WCOE) content into a weekly email and blog post. We aim to make this a concise, one-stop summary of what you need to know as we continue working together to make cancer care better for everyone. […]
What Caught Our Eye: ACA Auto-Enrollment; Lack of Care Plan Implementation; Second Opinions; ‘Cancer’s New Superheroes’; More
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Care Planning, Clinical Trials, Financial Toxicity, Health Care Coverage, Health Equity, Quality Cancer Care, Survivorship Care NCCS NewsWhat Caught Our Eye (WCOE) is our week-in-review blog series. “Making Heath Insurance Enrollment As Automatic As Possible” — Via Health Affairs Blog — In December 2017, the Republican Congress, working with the Trump administration, repealed the tax penalties enforcing the Affordable Care Act’s (ACA) individual mandate, effective in 2019. Although the degree of the mandate’s efficacy is uncertain, its repeal is sure to lead to additional Americans […]
What Caught Our Eye: “The True Cost of Cheap Health Insurance;” Living with Metastatic Disease; Cancer Control in Native Populations; More
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Clinical Trials, Health Care Coverage, Pre-Existing Conditions NCCS NewsWhat Caught Our Eye (WCOE), is our week-in-review blog series. “The True Cost of Cheap Health Insurance” — Any day now, the Trump administration is expected to release new regulations to make short-term health-insurance plans last a lot longer. In a fact sheet about the forthcoming changes, the administration said it wants to extend access to the plans—which now expire after three months, and offer too few services to qualify for the […]
ACA Update | Submit Your Comments on Expansion of Harmful Short-Term Health Plans Before Monday, April 23 Deadline
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Health Care Coverage NCCS NewsIf you haven’t already submitted comments regarding the short-term limited-duration proposed rule, please take 5 minutes to do so before the deadline on Monday night! NCCS recently hosted a webinar on what these short-term plans mean for cancer survivors. See the webinar blog post for step-by-step instructions on how to submit comments to ensure cancer patients’ voices are heard. Another ACA development occurred this week. […]
ACA Update | How Short-Term Health Plans Would Drive Up ACA Premiums and How Advocates Can Make Their Voice Heard
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Health Care Coverage, Pre-Existing Conditions NCCS NewsIn February, the Trump administration released proposed rules that would loosen regulations on short-term limited-duration health insurance coverage. Short-term plans are very concerning as they are not subject to the ACA’s critical patient protections that have helped so many Americans, including millions of cancer patients. These plans can deny coverage due to a preexisting condition or charge people more based on their health status, […]
How to Voice Opposition to the Proposed Rule for Short-Term Limited Duration Coverage
/in Cancer Policy Blog, NCCS News Access to Care, Affordable Care Act, Financial Toxicity, Health Care Coverage, Health Equity, Pre-Existing Conditions NCCS NewsCall to Action – Tell the Trump administration that short-term, limited-duration insurance plans will harm people with cancer. Participate in the public comment period on the proposed short-term insurance regulation by filing comments electronically to the Secretary of Health & Human Services. After Congress failed to repeal and replace the Affordable Care Act, the Trump administration launched a number of actions aimed at repealing […]
ACA Update April 6, 2018 | New Iowa Law Allows Health Plans That Exclude Preexisting Condition Protections
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Financial Toxicity, Health Care Coverage, Health Equity, Pre-Existing Conditions NCCS NewsEarlier this week, Iowa passed a law allowing the sale of health plans that are not subject to the important patient protection rules and regulations contained in the Affordable Care Act (ACA). The law includes very specific carveout language that basically selects the Iowa Farm Bureau to partner with a designated insurance company (Wellmark) to offer so-called “health benefit plans” with no preexisting condition or essential health benefit protections. […]
WCOE: Health Care Access and Affordability; FDA’s Plans to Better Incorporate Patient Voice in Drug Development; Patient Portal Pitfalls; and More
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Drug Pricing, Financial Toxicity, Health Equity, Quality Cancer Care, Survivorship Care NCCS NewsWhat Caught Our Eye (WCOE) is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. — “Why Some Americans Are Risking It and Skipping Health Insurance” — In tiny Marion, North Carolina, the Buchanans decided that $1,800 a month was too much to pay for health insurance, and are going without it for the first time in their lives. […]
Patient Assistance Programs: Do They Help or Hurt?
/in Cancer News, Cancer Policy Blog Access to Care, Drug Pricing, Financial Toxicity, Health Equity, Quality Cancer Care, Survivorship Care NCCS NewsBy Rishi Sachdev and Yousuf Zafar, MD — New cancer drugs have improved prognoses for patients, but that improvement in effectiveness has come at a steep cost. The price tag of new anticancer drugs has been increasing at a significant pace, with the latest—Kymriah by Novartis—priced at $475,000 per treatment. These ever-increasing costs result in higher out-of-pocket costs for patients, which have been shown to worsen outcomes. […]
ACA Update March 23, 2018 | Congress Passes Spending Bill, Leaves Out ACA Market Stabilization
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Health Care Coverage NCCS NewsThe spending bill, known as the omnibus, passed – but the push for ACA stabilization was not included. Beginning last summer, Senators Alexander and Murray were working on a bipartisan package that would aim to stabilize the ACA through cost-sharing reduction payments, outreach funding and reinsurance funding. In early December, Senator Collins pledged her vote on the Republican tax bill in exchange for ACA stabilization funding. […]
WCOE: No Action on ACA Stabilization Bill; ‘Black Cancer Matters’; Risks of At-Home Genetic Testing; Hospital Payment Reform; and More
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Disparities in Outcomes, Drug Pricing, Financial Toxicity, Health Equity, Payment Reform, Quality Cancer Care NCCS NewsWhat Caught Our Eye (WCOE), is our week-in-review blog series. “Health insurers say the GOP-led Congress’ inaction on ACA stabilization legislation is sure to hurt consumers” Bruce Japsen, Forbes.com — After months of negotiating around an ACA stabilization package that was set to be included in this week’s spending bill, no agreement was made and the stabilization provisions were left out of the spending package all together. […]
NCCS Joins Cancer Leadership Council to Oppose the Latest Version of Right to Try Act
/in Cancer News, Cancer Policy Blog, NCCS News, Policy Comments Access to Care, Clinical Trials NCCS News, Policy CommentsNCCS joined the Cancer Leadership Council to express serious reservations about the latest version of the Trickett Wendler, Frank Mongiello, Jordan McLinn, and Matthew Bellina Right to Try Act, released on March 10, 2018. We oppose the latest version of right to try legislation because it makes a hollow promise to patients and removes the […]
WCOE: HHS Hints at Lax ACA Regulation; Burden of High Drug Costs; FDA’s Gottlieb Blasts ‘Rigged Payment Scheme’; Home BRCA Testing; More
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Drug Pricing, Financial Toxicity, Health Equity NCCS NewsWhat Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. – “Trump Administration Blocks Idaho’s Plan to Circumvent Health Law” –
While rejecting Idaho’s plan in its current form, Ms. Verma encouraged the state to keep trying, and she suggested that, “with certain modifications,” its proposal might be accepted. […]
ACA Update March 9, 2018 | HHS Says ‘Not Quite’ to Idaho’s Illegal Health Plans, Supports Expansion of Skinny Short-Term Coverage
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Health Care Coverage, Pre-Existing Conditions NCCS NewsAs we reported recently, Idaho regulators announced they would allow the sale of insurance plans that don’t adhere to the Affordable Care Act’s (ACA) requirements and patient protections. Blue Cross of Idaho was planning to sell insurance plans that are priced based on applicants’ health status. But in a decision announced in a letter to Idaho’s governor yesterday, the Centers for Medicare and Medicaid (CMS) said that the administration […]
Reps. DeSaulnier and Poe Introduce Bipartisan “Cancer Care Planning and Communications Act”
/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Care Planning, Clinical Guidelines, Health Care Coverage, Quality Cancer Care, Shared Decision-Making NCCS NewsAdvocated for by NCCS, the bill would increase comprehensive cancer care planning for millions of Medicare beneficiaries. Washington, D.C. – Today, Rep. Mark DeSaulnier (D-CA) and Rep. Ted Poe (R-TX), both cancer survivors and co-chairs of the Congressional Cancer Survivors Caucus, introduced H.R. 5160, the Cancer Care Planning and Communications (CCPC) Act. A longtime legislative […]
NCCS Letter to DOL: Proposed Association Health Plans Rule “Will Increase Costs for Cancer Survivors and Others with Significant Health Needs”
/in Cancer Policy Blog, Department of Labor, NCCS News, Policy Comments Access to Care, Affordable Care Act NCCS News, Policy CommentsThe National Coalition for Cancer Survivorship (NCCS) submitted comments on the proposed rule on Association Health Plans (AHPs) and expressed serious reservations that the proposed rule will weaken the individual and small group markets that provide health insurance coverage to many Americans with a history of cancer. For those who now receive their insurance through […]
NCCS Joins Letter Expressing “Serious Reservations” About “Right to Try” Legislation
/in Cancer Policy Blog, Congress, FDA, NCCS News, Policy Comments Access to Care, Clinical Trials NCCS News, Policy CommentsNCCS joined with colleagues in the Cancer Leadership Council to express serious reservations about proposed “right to try” legislation that will remove the Food and Drug Administration (FDA) from the approval process for patient access to an investigational therapy outside a clinical trial. NCCS does not believe that right to try legislation removing FDA from […]
What Caught Our Eye: NCI Chief Sharpless Interviewed; Expert Patients; “Why We Didn’t Seek Right to Try”; Progress in Survivorship Care; and More
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Care Planning, Clinical Trials, Quality Cancer Care, Shared Decision-Making NCCS NewsWhat Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. – Health Insurance – “Bait And Switch: The Sneaky Way Your Employer Just Passed Healthcare Costs Onto You” By Peter Ubel, Forbes.com — With increasing frequency, employers are directing their workers to the kind of high deductible, high out-of-pocket insurance plans that leave workers financially responsible […]
Remembering Catherine Logan Carrillo, a Pioneer of the Survivorship Movement
/in Cancer News, Cancer Policy Blog, NCCS News NCCS NewsCatherine Logan Carrillo, co-founder of NCCS and its first Executive Director, died February 19 in Albuquerque, New Mexico. Catherine founded Living Through Cancer, which eventually became People Living Through Cancer (PLTC), one of the first community-based peer support organizations for people dealing with cancer. After reading Dr. Fitzhugh Mullan’s seminal article, “Seasons of Survival: Reflections of a Physician with Cancer,” in […]
What Caught Our Eye: Multiple Proposals Continue to Weaken ACA Patient Protections; Breast Cancer Cost Survey; Editing Genes to Treat Cancer
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Financial Toxicity, Health Equity, Pre-Existing Conditions NCCS NewsWhat Caught Our Eye is our week-in-review blog series — “Understanding Short-Term Limited Duration Health Insurance” — Karen Pollitz, Kaiser Family Foundation — The Health and Human Services Department published new rules Tuesday that expand access to short term health plans that exclude patients with preexisting conditions and don’t cover basic services like prescription drugs.
ACA Update February 16, 2018 | Idaho Insurer Rolls Out Health Plans That Violate ACA Regulations, Including Pre-Existing Condition Protections
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Pre-Existing Conditions NCCS NewsTwo weeks ago, NCCS reported in our ACA Update that Idaho regulators said they would allow the sale of insurance plans that don’t adhere to the Affordable Care Act’s (ACA) requirements. This week, the state took it a step further when Blue Cross of Idaho unveiled health plans that break the ACA’s federal health laws in several ways. Blue Cross of Idaho will attempt to sell insurance plans that are priced based on applicants’ health status. […]