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Advocate Spotlight January 2022 | Rebecca Esparza In August of 2001, 30-year-old Rebecca Esparza noticed her clothes weren’t fitting the way they should. Although she was an avid fan of step aerobics and running, her stomach seemed to be consistently bloated. By September, Rebecca felt the need to make an appointment with her gynecologist, even […]
Today, Representatives Mark DeSaulnier (D-CA) and Earl L. “Buddy” Carter (R-GA), co-chairs of the Congressional Cancer Survivors Caucus, introduced the Cancer Care Planning and Communications Act (H.R. 4414), which would create a Medicare service for cancer care planning, a key priority of the National Coalition for Cancer Survivorship. The legislation would improve doctor-patient communication by […]
Advocate Spotlight July 2021 | Rachel Ferraris Nearly all cancer survivors can reflect on their cancer journey and recall one specific moment – the low point. To be able to reflect on that moment is, of course, the real gift. It means you are a survivor. Reaching the light of survivorship though is only done […]
How one survivor’s journey led to her realization of what survivorship care is lacking and the importance of advocating for yourself during survivorship. Note: This post originally appeared in the Spring 2021 issue of HEAL, a survivorship magazine from CURE Today. Shelley Fuld Nasso, MPP By NCCS CEO Shelley Fuld Nasso, MPP Sarah Cohn knows […]
NCCS recently submitted a comment letter to the Centers for Medicare and Medicaid (CMS) regarding the Medicare physician fee schedule for calendar year 2021. The comment letter focuses on telehealth-related provisions of the proposed rule, as we are learning from our findings from our Telehealth Project that both patients and providers need more tools and […]
This month, the National Coalition for Cancer Survivorship (NCCS) launched a project to identify and share cancer patients’ and survivors’ perspectives on telehealth in cancer care. Regulatory, societal and practice changes associated with the COVID-19 pandemic have led to an increased use of telehealth, including in various aspects of cancer care. In this rapidly changing […]
By Nainika Nanda, MD — Survivorship. What does this mean? Oncology highlights patients currently battling cancer. However, survivorship encompasses a longer timeline. Cancer requires lifelong care, which is achieved through proper doctor-patient communication. In fact, this relationship is a keystone of medicine. Unfortunately, it can lose focus in the sea of information medical students must master. A common analogy for medical education is […]
As the repeal and replace debate continues in Washington, the Brookings Institution spearheaded a study to look at what is and isn’t working with the Affordable Care Act. Their look at five states who implemented the ACA in various ways is informative to help inform where we go from here.
Earlier this year, the National Coalition for Cancer Survivorship (NCCS) conducted focus groups with patients and oncologists to gain insight into this critical relationship, hear what patients and physicians consider good communication, and determine what strategies could improve effective communication. An article describing the learnings from the focus groups was published in the October 2016 […]
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Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute