• Link to Facebook
  • Link to X
  • Link to Youtube
  • Link to Instagram
  • Link to LinkedIn
  • Link to Rss this site
  • Store
  • Donate
  • About
        • About Us

        • Cancer Nation is the oldest cancer survivor-led non-profit organization in America. We advocate for quality cancer care for all touched by cancer.

        • About NCCS

        • Our Mission
        • What is Advocacy?Learn about the different types of cancer advocacy, from personal advocacy to public interest advocacy.
        • Our HistoryRead how Cancer Nation’s leaders coined the term “cancer survivor,” and established the nation’s first survivor-led non-profit organization.
        • Our Team
        • Financial Information
        • Employment
        • Contact Us
        • Support Our Mission

        • Make A GiftSupport our mission of quality cancer care for all with a gift to Cancer Nation.
        • The 1986 ClubMake a monthly commitment to support Cancer Nation, empower cancer survivors, and advance public policy.
        • Ways to GiveLearn about other ways you can contribute to Cancer Nation such as planned giving, employer matches, shopping online, and more.
        • Partnerships
  • News
    • Cancer Nation News
    • Advocate SpotlightEach month, Cancer Nation highlights a cancer survivorship advocate, sharing their story and the work they do in their communities.
    • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
    • Issue StatementsRead Cancer Nation statements on pressing issues and developments in Washington affecting cancer survivors and their families.
  • Policy
        • Policy

        • Public policy is government action, in the form of legislation, regulation, funding, and other actions. Public policy affects people with cancer and the cancer care system in many ways.

        • Our Policy Priorities

        • Quality Cancer CareQuality cancer care is essential for patients. Learn how Cancer Nation and others define quality.
        • Access to CareCancer Nation believes cancer care and clinical trials should be affordable and accessible to everyone.
        • Health EquityThe cancer experience is not the same for everyone. Cancer Nation works on policy efforts to reduce disparities in outcomes.
        • Current Issues

        • Protecting Access to Medicaid for Cancer Survivors
        • Comprehensive Cancer Survivorship Act (CCSA)The CCSA is a large comprehensive bill introduced in Congress that aims to improve quality of care in all stages of a diagnosis.
        • Cancer Care Planning and Communications Act (CCPCA)CCPCA is a bill that would provide a billable Medicare service code for cancer care planning.
        • DIEP Flap AccessCancer Nation advocates for protection of access to DIEP Flap Breast Reconstruction Surgery for all breast cancer survivors.
        • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
        • Issue StatementsRead Cancer Nation statements on pressing issues and developments in Washington affecting cancer survivors and their families.
        • Quality Measurement Research
  • Get Involved
        • Get Involved

        • Whether you’re new to cancer advocacy or already have experience as an advocate, there are numerous ways you can get involved with Cancer Nation.

        • Join Cancer Nation

        • Cancer Nation AdvocatesA program that brings together individuals who care about cancer care to learn how policy shapes our health care system—and how we can improve it together.
        • Cancer Nation Leadership AcademyEmerging leaders improving cancer care in their communities.
        • Cancer Nation Corporate Council
        • Advocacy OpportunitiesThis page provides a list of upcoming events, webinars, conferences, and advocacy campaigns from Cancer Nation and other leading cancer organizations.
        • Connect with Us

        • Subscribe to Cancer Nation Updates
        • Follow Cancer Nation on Social Media
        • Survivor Stories
        • Cancerversary
        • Support Cancer Nation

        • Make A Gift
        • Ways to Give
        • The 1986 Club
  • Survivorship Survey
        • State of Survivorship Survey

        • Cancer Nation conducts an annual State of Survivorship Survey, in partnership with Edge Research, to explore the cancer patient and survivor journey. This study captures a range of perspectives to better understand how Cancer Nation can support its mission to advocate for quality cancer care for all.

        • Reports by Year

        • 2025 Survey Report
        • 2024 Survey Report
        • 2023 Survey ReportThe 2023 Survey explored the caregiver experience for the first time, and features new data on the effect of cancer treatment on employment.
        • 2022 Survey ReportThe 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.
        • 2021 Survey ReportThe 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.
        • 2020 Survey ReportIn the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.
  • Survivorship Checklist
        • Cancer Survivorship Checklist

        • The Cancer Survivorship Checklist is designed to be a simple, straightforward tool patients and caregivers can use as a guide for information critical to their care wherever they are on the cancer care continuum.

        • Start Your Cancer Survivorship Checklist
        • Survivorship Checklist Guide for Clinicians
        • Resources for Cancer Survivors

        • Survivorship ResourcesA collection of resources that provide information about navigating the cancer journey.
        • Cancer RehabilitationA supportive health care service that helps improve a person’s functioning during and after cancer treatment.
        • Integrative OncologyA field that combines traditional cancer treatments with therapies that support a person’s natural healing ability.
        • Palliative CareSpecialized medical care for people living with a serious illness that provides relief from the symptoms and stress to improve their quality of life.
        • Cognitive HealingA resource to support cognitive functioning after cancer treatment. Includes cognitive training strategies and tools for both adults and children.
  • Resources
        • Resources

        • Cancer Nation provides a wide variety of resources for patients, caregivers, and health care professionals.

        • Resources for Survivors and Caregivers

        • Health Insurance & Open Enrollment
        • Cancer Survival ToolboxA free, award-winning audio program created by leading cancer organizations to help people better meet & understand the challenges of their illness.
        • Ina® The Intelligent Nutrition Assistant
        • Telehealth
        • Care Planning for Cancer Survivors
        • Remaining Hopeful
        • Self Advocacy
        • Talking With Your Doctor
        • Taking Charge of Your Care
        • Order Our Resources
        • Resources for Health Care Professionals

        • Tools For Care Providers
        • Telehealth Project
        • Survivorship Champions Webinars
        • Survivorship Checklist Guide for Clinicians
  • Events
    • 2026 Cancer Nation Summit
    • Igniting Hope Awards Reception
    • Ellen L. Stovall Award
      • 2025 Winners
      • Awardees
      • Nominations
      • Committees
    • Cancer Nation Webinars
    • Cancer Nation Policy Roundtable
      • Fall 2025
      • Spring 2025
      • Fall 2024
      • Spring 2024
      • Fall 2023
      • Spring 2023
  • 0

NCCS is now Cancer Nation. Find out more about our next chapter.    Join Us

NCCS Starburst 250px

Health Care Roundup: DOJ Won’t Defend ACA Provisions in Court, Health Care’s Role in 2018 Midterms, and More

June 8, 2018/in Cancer Nation News, Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Clinical Trials, Drug Pricing, Financial Toxicity, Health Equity, Pre-Existing Conditions Cancer Nation News
In order to bring you the latest cancer-related health care policy and news, we at NCCS combined our ACA Updates and What Caught Our Eye (WCOE) content into a weekly email and blog post. We aim to make this a concise, one-stop summary of what you need to know as we continue working together to make cancer care better for everyone.

Your feedback is always welcome to make our content more useful to you. Please send comments to feedback@canceradvocacy.org.

Subscribe to our email list and receive these updates in your email box each week »


HEALTH CARE HIGHLIGHTS

Administration Action Threatens Coverage for People with Pre-existing Conditions

In a court filing yesterday, the Department of Justice (DOJ) stated that it would not defend key provisions of the Affordable Care Act in a lawsuit brought by Texas and several other states. One provision is the individual mandate, which was repealed in the tax bill passed by Congress and signed into law last December. Also at issue in the case is coverage and premiums for people with pre-existing conditions. In a blog post for The Commonwealth Fund, Timothy Jost explains the Trump administration’s action and the potential consequences for people with pre-existing conditions:

If the judge buys the administration’s argument, and if his ruling is upheld on appeal, 52 million Americans with preexisting conditions could face denial of coverage or higher premiums. The administration’s argument would also allow insurers to charge women, older people, and people in certain occupations higher premiums. This policy change would jeopardize coverage not just for consumers in the individual market, but also people with preexisting conditions who have employer-sponsored coverage. If these people lost or left their jobs, they may not be able to get individual market coverage.

NCCS will continue to monitor the situation and share ways that advocates can weigh in on this important issue for cancer survivors.

HHS Won’t Prohibit “Silver Loading” on ACA Plans

When President Trump stopped cost-sharing reduction payments to insurers, they began a practice known as “silver loading.” The insurers targeted their premium price increases into the silver-level plans of the Affordable Care Act. Since the silver plans are the benchmarks for determining subsidies, silver loading resulted in higher subsidies for people who chose those plans while leaving bronze and gold plans with minimal increases. This practice helped consumers but cost the federal government more in subsidy payments. HHS Secretary Alex Azar this week confirmed during a congressional committee hearing that the administration would not seek to stop insurers from doing this in 2019, but refused to confirm if future efforts to stop the practice would or would not be pursued.
More on Kaiser Health News »

Health Care Taking Center Stage Again?

Since last year’s bruising fight in Congress to repeal the Affordable Care Act and until last night’s DOJ decision, health care has largely stayed out of the spotlight.  As Vox's Dylan Scott puts it:

Repeal was a clean, simple, and big story. “Sabotage” — in the form of cutting CSRs, expanding non-Obamacare insurance, and slashing outreach — is more nebulous. People still care about health care, but they aren't hearing about it in the news every day anymore. The threat on health care can feel less real, even if sabotage is having very concrete effects.

However, trends are emerging that may bring health care back into the national spotlight, especially in light of recent developments regarding the legal challenge in Texas.  Axios points out “prescription drug costs are the issue du jour. Premiums for ACA coverage are also skyrocketing. Medicare’s financial footing is getting weaker.” More and more people are not just hearing about health care issues like last year, they’re starting to feel the impacts this year and could be a factor in the upcoming midterm elections. “This will be the first midterm in a decade that Obamacare will not be the issue that unites and energizes Republicans.”


IMPORTANT READS

Revised Michigan Medicaid Proposal Would Still Reduce Coverage and Access to Care

Via Center on Budget and Policy Priorities

While we’re seeing some encouraging trends with several states moving towards Medicaid expansion, there are also some very concerning examples. Michigan is near passage of bill that would add work requirements for Medicaid coverage. By one estimate, 54,000 Michiganders would lose their health care coverage. Further, the “new bill puts Michigan’s entire Medicaid expansion under the Affordable Care Act (ACA) — covering 670,000 people — at risk. That’s because Michigan would be required to end its expansion if the federal Centers for Medicare & Medicaid Services (CMS) doesn’t approve an additional waiver that raises premiums on some Medicaid beneficiaries.”
Read More »

Live Like Lola

Via Washington Post

The Washington Post, through words and photos, shares the powerful story of Lola Muñoz. A young girl facing diffuse intrinsic pontine gliomas (DIPG), an aggressive brain cancer. “For nearly a year and a half, photojournalist Moriah Ratner followed Lola and the Muñoz family on a journey marked by pain as well as laughter, fear as well as joy, anguish and finally peace. Her camera captured a girl dealing with inevitable loss while trying resolutely to live.”
Read More »

Op-Ed: “The ‘cruel joke’ of compassionate use and right to try: Pharma companies don’t have to comply”

Via STAT News

The father of a child with a rare-disease provides a blunt perspective on compassionate use and right to try. He points out that: “While the FDA has a compassionate use program to allow people access to experimental drugs, it can’t compel a company to provide those drugs. The newly signed ‘right-to-try’ law doesn’t either.”
Read More »


Tags: aca update, Advocacy, affordable care act, Cancer Survivorship, clinical trials, drug pricing, financial issues, pre-existing conditions, What Caught Our Eye
Share this entry
  • Share on Facebook
  • Share on X
  • Share on WhatsApp
  • Share on LinkedIn
https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg actualizedevs2018-06-08 17:36:052018-06-08 17:36:05Health Care Roundup: DOJ Won’t Defend ACA Provisions in Court, Health Care’s Role in 2018 Midterms, and More

Latest News

A graphic showing the Medicaid.gov website

Cancer Nation Statement: Medicaid Work Requirements Will Unfairly Burden Cancer Survivors

June 4, 2026
Cancer Nation strongly supports a health care system free of waste, fraud, and abuse. Health care resources must be directed to delivery…
Read more
https://canceradvocacy.org/wp-content/uploads/Stock-Medicaid-website-Adobe-927192378.jpg 675 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg NCCS Staff2026-06-04 12:56:142026-06-05 13:42:09Cancer Nation Statement: Medicaid Work Requirements Will Unfairly Burden Cancer Survivors
Image with graphics and text that reads Cancer Nation Understanding Blood-Based Testing in Cancer Care | Watch Now | With Support From: Guardant Health Logo

Webinar – Understanding Blood-Based Testing in Cancer Care

May 29, 2026
Cancer Nation's Webinar Series presents a clear, practical conversation about advances in blood-based testing and how they're shaping…
Read more
https://canceradvocacy.org/wp-content/uploads/Blood-Based-Testing-Webinar-post.jpg 675 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg NCCS Staff2026-05-29 11:28:002026-05-29 11:28:00Webinar – Understanding Blood-Based Testing in Cancer Care
a picture of susie leigh similing wearing a purple top. Words over the photo read In loving memory, Susie Leigh, Cancer Nation Co-founder, 1947-2026

Remembering Susie Leigh: A Founder, a Force, and a Friend

May 28, 2026
Susan (Susie) Leigh, BSN, RN-Retired — one of the founding members of Cancer Nation, a five-time cancer survivor, and one of the…
Read more
https://canceradvocacy.org/wp-content/uploads/Susie-Leigh-In-Memory-blog.jpg 900 1600 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg NCCS Staff2026-05-28 15:14:382026-06-04 14:32:40Remembering Susie Leigh: A Founder, a Force, and a Friend

Take Action

Link to: Survivorship Champions

Get Involved in Research

Cancer Nation conducts an annual Survivorship Survey to explore how patients and survivors are living with, through, and beyond cancer. This study captures a range of perspectives to better understand how Cancer Nation can support its mission to advocate for quality cancer care for all.

Learn More and Request Data Here »
Link to: Cancer Nation Advocates

Join Cancer Nation Advocates

Cancer Nation Advocates is a a program that brings together individuals who care about cancer care to learn how policy shapes our health care system—and how we can improve it together

Learn More and Join »
Link to: Survivor Stories

Share Your Story

Cancer Nation represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.

Share Your Story »
  • About
    • Our Mission
    • What is Advocacy?
    • Our History
    • Our Team
    • Financial Information
    • Employment
    • Contact Us
    • Make A Gift
    • The 1986 Club
    • Ways to Give
    • Partnerships
  • News
    • Cancer Nation News
    • Advocate Spotlight
    • Policy Comments
    • Issue Statements
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Protecting Access to Medicaid for Cancer Survivors
    • Comprehensive Cancer Survivorship Act (CCSA)
    • Cancer Care Planning and Communications Act (CCPCA)
    • DIEP Flap Access
    • Policy Comments
    • Issue Statements
    • Quality Measurement Research
  • Get Involved
    • Cancer Nation Advocates
    • Cancer Nation Leadership Academy
    • Cancer Nation Corporate Council
    • Advocacy Opportunities
    • Subscribe to Cancer Nation Updates
    • Follow Cancer Nation on Social Media
    • Survivor Stories
    • Cancerversary
    • Make A Gift
    • The 1986 Club
    • Ways to Give
  • Survivorship Survey
    • 2025 Survey Report
    • 2024 Survey Report
    • 2023 Survey Report
    • 2022 Survey Report
    • 2021 Survey Report
    • 2020 Survey Report
  • Survivorship Checklist
    • Start Your Cancer Survivorship Checklist
    • Survivorship Resources
    • Cancer Rehabilitation
    • Integrative Oncology
    • Palliative Care
    • Cognitive Healing
    • Survivorship Checklist Guide for Clinicians
  • Resources
    • Cancer Survival Toolbox
    • Telehealth
    • Health Insurance & Open Enrollment
    • Care Planning for Cancer Survivors
    • Ina® The Intelligent Nutrition Assistant
    • Remaining Hopeful
    • Self Advocacy
    • Talking With Your Doctor
    • Taking Charge of Your Care
    • Order Our Resources
    • Tools For Care Providers
    • Telehealth Project
    • Survivorship Champions Webinars
    • Survivorship Checklist Guide for Clinicians
  • Events
    • 2026 Cancer Nation Summit
    • Igniting Hope Awards Reception
    • Ellen L. Stovall Award
      • 2025 Winners
      • Awardees
      • Nominations
      • Committees
    • Cancer Nation Webinars
    • Cancer Nation Policy Roundtable
      • Fall 2025
      • Spring 2025
      • Fall 2024
      • Spring 2024
      • Fall 2023
      • Spring 2023
  • Search
  • Cart

Charity Navigator Four-Star Rating

Cancer Nation Logo

Cancer Nation
8455 Colesville Road  |  Suite 1025 | Silver Spring, MD 20910
info@canceradvocacy.org | (877) NCCS-YES
Privacy Policy  |  Terms and Conditions

Copyright © 1995-2026 by Cancer Nation. National Coalition for Cancer Survivorship, NCCS, Cancer Survival Toolbox, Cancerversary, and related Logos are registered in the United States as trademarks of Cancer Nation (formerly the National Coalition for Cancer Survivorship).

Link to: Health Care Roundup: Virginia to Expand Medicaid, Colorectal Screening Guidelines, How the ‘Bewildering’ Health Insurance Industry Works, and More Link to: Health Care Roundup: Virginia to Expand Medicaid, Colorectal Screening Guidelines, How the ‘Bewildering’ Health Insurance Industry Works, and More Health Care Roundup: Virginia to Expand Medicaid, Colorectal Screening Guidelines,...NCCS Starburst 250px Link to: Health Care Roundup: DoJ Decision Not to Defend ACA Puts Patient Protections At Risk; “Cancer Treatment Beyond Mutant-Hunting” Link to: Health Care Roundup: DoJ Decision Not to Defend ACA Puts Patient Protections At Risk; “Cancer Treatment Beyond Mutant-Hunting” NCCS Starburst 250pxHealth Care Roundup: DoJ Decision Not to Defend ACA Puts Patient Protections...
Scroll to top Scroll to top Scroll to top

This website uses cookies to improve user experience. By continuing to use this site, you agree to our Privacy Policy. Learn More.

Get Updates From Cancer Nation

Be the first to hear about cancer policy and survivorship issues! Subscribe and receive the twice-monthly Cancer Nation News, invites to webinars and events, and more.

  • This field is for validation purposes and should be left unchanged.

Connect With Us

Twitter     Facebook     Instagram     LinkedIn     YouTube

Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute