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NCCS - National Coalition for Cancer Survivorship
  • About
        • About Us

        • NCCS is the oldest cancer survivor-led non-profit organization in America. We advocate for quality cancer care for all touched by cancer.

        • About NCCS

        • Our Mission
        • What is Advocacy?Learn about the different types of cancer advocacy, from personal advocacy to public interest advocacy.
        • Our HistoryRead how NCCS’s leaders coined the term “cancer survivor,” and established the nation’s first survivor-led non-profit organization.
        • Our Team
        • Financial Information
        • Employment
        • Contact Us
        • Support Our Mission

        • Make A GiftSupport our mission of quality cancer care for all with a gift to NCCS.
        • The 1986 ClubMake a monthly commitment to support NCCS, empower cancer survivors, and advance public policy.
        • Ways to GiveLearn about other ways you can contribute to NCCS such as planned giving, employer matches, shopping online, and more.
        • Partnerships
  • News
    • NCCS News
    • Advocate SpotlightEach month, NCCS highlights a cancer survivorship advocate, sharing their story and the work they do in their communities.
    • Policy CommentsRead NCCS’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
    • Issue StatementsRead NCCS statements on pressing issues and developments in Washington affecting cancer survivors and their families.
  • Policy
        • Policy

        • Public policy is government action, in the form of legislation, regulation, funding, and other actions. Public policy affects people with cancer and the cancer care system in many ways.

        • Our Policy Priorities

        • Quality Cancer CareQuality cancer care is essential for patients. Learn how NCCS and others define quality.
        • Access to CareNCCS believes cancer care and clinical trials should be affordable and accessible to everyone.
        • Health EquityThe cancer experience is not the same for everyone. NCCS works on policy efforts to reduce disparities in outcomes.
        • Current Issues

        • Comprehensive Cancer Survivorship Act (CCSA)The CCSA is a large comprehensive bill introduced in Congress that aims to improve quality of care in all stages of a diagnosis.
        • Cancer Care Planning and Communications Act (CCPCA)CCPCA is a bill that would provide a billable Medicare service code for cancer care planning.
        • DIEP Flap AccessNCCS advocates for protection of access to DIEP Flap Breast Reconstruction Surgery for all breast cancer survivors.
        • Policy CommentsRead NCCS’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
        • Issue StatementsRead NCCS statements on pressing issues and developments in Washington affecting cancer survivors and their families.
        • Quality Measurement Research
  • Get Involved
        • Get Involved

        • Whether you’re new to cancer advocacy or already have experience as an advocate, there are numerous ways you can get involved with NCCS.

        • Join NCCS

        • Cancer Policy and Advocacy Team (CPAT)CPAT is a program for survivors and caregivers to learn about pressing issues that affect quality cancer care, in order to be engaged as advocates in public policy.
        • Elevating SurvivorshipA patient-led initiative — NCCS mentors advocates (Elevate Ambassadors) to fill vital gaps in survivorship care in their community.
        • Survivorship ChampionsAn NCCS program for clinicians and researchers who are interested in improving care for cancer survivors.
        • Advocacy OpportunitiesThis page provides a list of upcoming events, webinars, conferences, and advocacy campaigns from NCCS and other leading cancer organizations.
        • Connect with Us

        • Subscribe to NCCS Updates
        • Follow NCCS on Social Media
        • Survivor Stories
        • Cancerversary
        • Support NCCS

        • Make A Gift
        • Ways to Give
        • The 1986 Club
  • Survivorship Survey
        • State of Cancer Survivorship

        • NCCS conducts an annual State of Survivorship Survey, in partnership with Edge Research, to delve into the cancer patient and survivor journey. This study captures a range of perspectives to better understand how NCCS can support its mission to advocate for quality cancer care for all.

        • Reports by Year

        • 2023 Survey ReportThe 2023 Survey explored the caregiver experience for the first time, and features new data on the effect of cancer treatment on employment.
        • 2022 Survey ReportThe 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.
        • 2021 Survey ReportThe 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.
        • 2020 Survey ReportIn the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.
  • Survivorship Checklist
        • Cancer Survivorship Checklist

        • The Cancer Survivorship Checklist is designed to be a simple, straightforward tool patients and caregivers can use as a guide for information critical to their care wherever they are on the cancer care continuum.

        • Start Your Cancer Survivorship Checklist
        • Survivorship Checklist Guide for Clinicians
        • Resources for Cancer Survivors

        • Survivorship ResourcesA collection of resources that provide information about navigating the cancer journey.
        • Cancer RehabilitationA supportive health care service that helps improve a person’s functioning during and after cancer treatment.
        • Integrative OncologyA field that combines traditional cancer treatments with therapies that support a person’s natural healing ability.
  • Resources
        • Resources

        • NCCS provides a wide variety of resources for both patients and caregivers.

        • Resources for Survivors and Caregivers

        • Cancer Survival ToolboxA free, award-winning audio program created by leading cancer organizations to help people better meet & understand the challenges of their illness.
        • Telehealth
        • Care Planning for Cancer Survivors
        • Remaining Hopeful
        • Self Advocacy
        • Talking With Your Doctor
        • Taking Charge of Your Care
        • Order Our Resources
        • Resources for Health Care Professionals

        • Tools For Care Providers
        • Telehealth Project
        • Survivorship Champions Webinars
        • Survivorship Checklist Guide for Clinicians
  • Events
    • Ellen L. Stovall Award
      • 2023 Winners
      • Awardees
      • Reception and Sponsorship
      • Committees
      • Nominations
    • Cancer Policy Roundtable (CPR)
      • Spring 2023 CPR
      • Fall 2022 CPR
      • Spring 2022 CPR
    • 2023 Survivorship Survey
    • Webinars
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54 SEARCH RESULTS FOR: Clinical Guidelines

NCCS to Recognize Phuong Gallagher and Mary McCabe, RN, with 2023 Ellen L. Stovall Award

July 19, 2023/in NCCS News Access to Care, Clinical Guidelines, Clinical Trials, Doctor-Patient Communication, Health Equity, Psychosocial Care, Quality Cancer Care, Quality Measurement, Survivorship Care NCCS News

NCCS is pleased to announce the 2023 winners of the Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care are Phuong Gallagher and Mary McCabe, RN, MA. They will be recognized at the 2023 Ellen L. Stovall Award Reception on Thursday, October 26, 2023. NCCS presents the Stovall Award annually to two recipients who […]

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https://canceradvocacy.org/wp-content/uploads/2023-Ellen-L.-Stovall-Award-Winners-1200px.png 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-07-19 15:45:562023-07-19 16:25:30NCCS to Recognize Phuong Gallagher and Mary McCabe, RN, with 2023 Ellen L. Stovall Award

Webinar – Survivorship at Atrium Health Wake Forest Baptist Comprehensive Cancer Center: Creating a Practical Workflow

May 12, 2023/in NCCS News Care Coordination, Care Planning, Clinical Guidelines, Doctor-Patient Communication, Exercise and Rehabilitation, Integrative Oncology, Palliative Care, Psychosocial Care, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News

The National Coalition for Cancer Survivorship (NCCS) hosted a Survivorship Champions webinar about survivorship care implementation, “Survivorship at Atrium Health Wake Forest Baptist Comprehensive Cancer Center: Creating a Practical Workflow.” In this webinar, Dr. Stacy Wentworth and Jill Hyson, MSN, NP-C discuss survivorship care as a critical component of a patient’s cancer journey. The presenters […]

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https://canceradvocacy.org/wp-content/uploads/Atrium-Health-Wake-Forest-Baptist-update-POST.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-05-12 12:42:192023-08-21 14:52:16Webinar – Survivorship at Atrium Health Wake Forest Baptist Comprehensive Cancer Center: Creating a Practical Workflow

Webinar – Implementing the ASCO Guidelines for Exercise, Nutrition, and Weight Management with Your Patients and Practice

March 3, 2023/in NCCS News Care Coordination, Clinical Guidelines, Doctor-Patient Communication, Exercise and Rehabilitation, Quality Cancer Care, Survivorship Care NCCS News

The National Coalition for Cancer Survivorship (NCCS) hosted a Survivorship Champions webinar discussing the American Society for Clinical Oncology’s (ASCO) Guidelines for Exercise, Nutrition, and Weight Management and how to best implement them in a clinical setting. Sami Mansfield, founder of Cancer Wellness for Life, and Wendy Demark-Wahnefried, PhD, RD, a professor of nutrition sciences […]

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https://canceradvocacy.org/wp-content/uploads/Implementing-ASCO-Guidelines-Webinar-Post-web.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-03-03 12:40:302023-03-03 12:42:40Webinar – Implementing the ASCO Guidelines for Exercise, Nutrition, and Weight Management with Your Patients and Practice

NCCS Presents The State of Cancer Survivorship: 2022 Survey Results

October 28, 2022/in Cancer News, NCCS News Access to Care, Care Coordination, Care Planning, Clinical Guidelines, Clinical Trials, Disparities in Outcomes, Doctor-Patient Communication, Exercise and Rehabilitation, Financial Toxicity, Health Equity, Psychosocial Care, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News

The National Coalition for Cancer Survivorship (NCCS) conducts an annual State of Survivorship Survey, in partnership with Edge Research, to delve into the cancer patient and survivor journey. This study captures a range of perspectives to better understand how NCCS can support its mission to advocate for quality cancer care for all. The 2022 State […]

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https://canceradvocacy.org/wp-content/uploads/Survey-2022-feat-img.jpg 628 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-10-28 13:03:532023-06-05 12:39:32NCCS Presents The State of Cancer Survivorship: 2022 Survey Results

NCCS to Recognize Patricia Ganz, MD and Alicia Staley with 2022 Ellen L. Stovall Award

August 30, 2022/in NCCS News Access to Care, Clinical Guidelines, Clinical Trials, Doctor-Patient Communication, Health Equity, Psychosocial Care, Quality Cancer Care, Quality Measurement, Survivorship Care NCCS News

NCCS is pleased to announce the 2022 winners of the Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care are Patricia A. Ganz, MD, and Alicia Staley. They will be recognized at the 2022 Ellen L. Stovall Award Reception on Wednesday, November 16. NCCS presents the Stovall Award annually to two recipients who have […]

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https://canceradvocacy.org/wp-content/uploads/Stovall-2022-Awardee-Image-wide.jpg 628 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-08-30 15:37:312022-08-30 15:42:16NCCS to Recognize Patricia Ganz, MD and Alicia Staley with 2022 Ellen L. Stovall Award

Webinar – Beyond the Checkbox: Delivering Meaningful Cancer Survivorship Care in a Community Setting

May 20, 2022/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Care Coordination, Care Planning, Clinical Guidelines, Doctor-Patient Communication, Palliative Care, Psychosocial Care, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News

Dr. Crystal Labbato joined NCCS to deliver a presentation about providing an effective model of cancer survivorship care in a community setting. Dr. Labbato is the Survivorship Program Coordinator for Baptist Health Louisville and LaGrange hospitals in Kentucky. Nearly 17 years since the Institute of Medicine released their landmark report, “From Cancer Patient to Cancer […]

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https://canceradvocacy.org/wp-content/uploads/Beyond-the-Checkbox-Crystal-Labbato.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-05-20 13:39:272022-08-02 04:51:49Webinar – Beyond the Checkbox: Delivering Meaningful Cancer Survivorship Care in a Community Setting

NCCS Urges CDC Committee to Include Cancer Survivors in High-Risk Category for COVID-19 Vaccine Distribution

January 28, 2021/in CDC, NCCS News, Policy Comments Access to Care, Clinical Guidelines, COVID-19, Pre-Existing Conditions, Quality Cancer Care, Survivorship Care NCCS News, Policy Comments

In a letter to the CDC’s Advisory Committee on Immunization Practices (ACIP), NCCS urged the committee to review the data related to the risks that COVID-19 poses to cancer survivors as they monitor and update the immunization schedule and evaluate states’ flexible use of the schedule. There are serious risks to cancer survivors from infection […]

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https://canceradvocacy.org/wp-content/uploads/CDC-Website.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2021-01-28 22:34:532021-01-28 22:42:08NCCS Urges CDC Committee to Include Cancer Survivors in High-Risk Category for COVID-19 Vaccine Distribution

NCCS Letter to HHS: Proposed Regulatory Review Rule Would Create Unnecessary Uncertainty for Patients

December 9, 2020/in Cancer News, HHS, NCCS News, Policy Comments Access to Care, Clinical Guidelines, Health Care Coverage, Payment Reform, Quality Cancer Care, Quality Measurement NCCS News, Policy Comments

The National Coalition for Cancer Survivorship (NCCS) recently submitted comments urging the Department of Health and Human Services (HHS) to withdraw a recent proposed rule that would require the review of HHS rules that are more than 10 years old. If implemented, this proposed rule would automatically eliminate regulations that are 10 years old or […]

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https://canceradvocacy.org/wp-content/uploads/HHS-Humphrey-bldg-1200-1030x515-1.jpg 515 1030 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2020-12-09 17:30:502021-11-02 08:21:26NCCS Letter to HHS: Proposed Regulatory Review Rule Would Create Unnecessary Uncertainty for Patients

Health Care Roundup: Insights on Telehealth, Decline in Medical Visits, Standards of Care, and More

May 22, 2020/in Cancer News, Cancer Policy Blog Clinical Guidelines, COVID-19, Quality Cancer Care, Survivorship Care NCCS News

We aim to make the Health Care Roundup a concise, one-stop summary of what you need to know as we continue working together to make cancer care better for everyone. Your feedback is always welcome to make our content more useful to you. Please send comments to feedback@canceradvocacy.org. Subscribe to our email list and receive […]

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https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2020-05-22 16:58:172021-09-29 03:56:34Health Care Roundup: Insights on Telehealth, Decline in Medical Visits, Standards of Care, and More

2020 NCCS Elevate Ambassadors Selected to Improve Survivorship Care in Local Communities

May 22, 2020/in Cancer News, Cancer Policy Blog, NCCS News Clinical Guidelines, Quality Cancer Care, Survivorship Care NCCS News

The National Coalition for Cancer Survivorship (NCCS) is proud to announce 14 patient leaders selected to serve as Ambassadors for the 2020 Elevating Survivorship program. Elevate Ambassadors will receive support, mentorship, networking opportunities, and virtual training from NCCS to develop and execute a plan of action to improve survivorship care in their community — whether […]

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https://canceradvocacy.org/wp-content/uploads/2019/01/Elevating-Survivorship-Logo-web-FB-TW.png 600 1200 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2020-05-22 14:41:212021-03-30 13:05:082020 NCCS Elevate Ambassadors Selected to Improve Survivorship Care in Local Communities
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Latest News

Webinar – Reconnecting to Life After Cancer: Permission to Feel

December 7, 2023
The National Coalition for Cancer Survivorship (NCCS) presents "Reconnecting to Life After Cancer: Permission to Feel," a webinar featuring…
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https://canceradvocacy.org/wp-content/uploads/Kathy-Washburn-CPAT-Webinar-Cancer-Coach-post.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-12-07 18:00:382023-12-07 18:00:38Webinar – Reconnecting to Life After Cancer: Permission to Feel
NCCS Advocate Spotlight: Tamron Little

The Advocate Within: Tamron Little’s Remarkable Journey of Turning Trauma into Triumph

December 6, 2023
Advocate Spotlight: Tamron Little Tamron Little was a 21-year-old college student and pregnant with her first child when she was…
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https://canceradvocacy.org/wp-content/uploads/Tamron-Little-Advocate-Spotlight-Blog-Banner.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-12-06 10:24:262023-12-06 10:24:26The Advocate Within: Tamron Little’s Remarkable Journey of Turning Trauma into Triumph
Advocate Spotlight: Mary Glen, with photo of Mary.

The Not-So-Good Cancer: Mary Glen’s Inspiring Advocacy Journey

November 8, 2023
Advocate Spotlight: Mary Glen Mary Glen was serving as an active-duty Army officer, deployed to South Korea in August 2020. Just…
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https://canceradvocacy.org/wp-content/uploads/Mary-Glen-Advocate-Spotlight-Blog-Banner.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-11-08 11:55:412023-11-08 11:55:41The Not-So-Good Cancer: Mary Glen’s Inspiring Advocacy Journey

Take Action

Link to: Survivorship Champions

Become a Survivorship Champion

Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.

Learn More and Join »
Link to: Cancer Policy and Advocacy Team (CPAT)

Join CPAT

The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

Learn More and Join »
Link to: Survivor Stories

Share Your Story

NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.

Share Your Story »

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  • About
    • Our Mission
    • What is Advocacy?
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  • Events
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      • 2023 Winners
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      • Reception and Sponsorship
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute