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What Caught Our Eye: ACA Auto-Enrollment; Lack of Care Plan Implementation; Second Opinions; ‘Cancer’s New Superheroes’; More

May 4, 2018/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Care Planning, Clinical Trials, Financial Toxicity, Health Care Coverage, Health Equity, Quality Cancer Care, Survivorship Care NCCS News /by actualize
What Caught Our Eye (WCOE), May 4, 2018
What Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention.

Affordable Care Act

“Making Heath Insurance Enrollment As Automatic As Possible”

I was pleased to join with bipartisan co-authors @standorn @FamiliesUSA and Jim Capretta @AEI to describe @Health_Affairs Blog how we can make health insurance more affordable and accessible: https://t.co/GjGQv0ylGz

— Lanhee J. Chen (@lanheechen) May 2, 2018

Via Health Affairs Blog — In December 2017, the Republican Congress, working with the Trump administration, repealed the tax penalties enforcing the Affordable Care Act’s (ACA) individual mandate, effective in 2019. Although the degree of the mandate’s efficacy is uncertain, its repeal is sure to lead to additional Americans going without coverage, exacerbating the instability that now affects the individual insurance markets of many states.

In this context, it is incumbent on federal and state policymakers to enact replacement policies for the ACA’s individual mandate. More fundamentally, the individual market’s core dysfunction remains in place: Many young and healthy consumers remain outside the market, increasing average risk levels and premiums, and leaving millions of people needlessly uninsured. Those enrollment choices involve the perception and the reality of unaffordable coverage, but they also reflect burdens of enrollment and plan selection that have an outsize impact on program participation.
Read More »


Cancer Policy

“The Forgotten Piece of Continuum of Care”

Years after their implementation, survivorship care plans are often an afterthought: https://t.co/WNq0FfHYbj #cancertreatment #cancersurvivors

— CURE Magazine (@cure_magazine) May 2, 2018

Via CURE Magazine — In 2005, the National Research Council and Institutes of Medicine published “From Cancer Patient to Cancer Survivor: Lost in Transition,” the first comprehensive document on cancer survivorship, which included 10 recommendations. First, it called for health care providers and patient advocates to recognize survivorship as its own, distinct phase of cancer care. The second recommendation advised that a survivorship care plan (SCP) be provided for all patients.
Read More »

“CDC Eyes Review of Gynecological Cancer Screens”

@CDCgov plans to review whether gynecologists should do more cancer screening before hysterectomies and other common procedures, according to sources. W/@jenniferlevitz. https://t.co/Q2AYr0s0E1

— Betsy McKay (@betswrites) May 3, 2018

Via Wall Street Journal — The Centers for Disease Control and Prevention plans to review whether gynecologists should conduct more cancer screening before common procedures such as hysterectomies, according to people familiar with the agency’s plans.
Read More »

“Paying For Value: Lessons From The Medicare Hospice Benefit”

In today's @Health_Affairs blog @JoanMTeno makes a very good point that the #Medicare #Hospice benefit design was optimized for an old cancer framework and the subsequent updates are tweaks to the same chassishttps://t.co/PVvokwHK7c

— David Anderson (@bjdickmayhew) May 2, 2018

Via Health Affairs Blog — The reimbursement system and the pathway of least resistance are aligned with “doing more” instead of focusing on in-depth conversations or formulating and executing plans of care that promote person- and family-centered care.
Read More »


Coping with Cancer

“Love Your Cancer Doctor? Get a Second Opinion”

Love Your Cancer Doctor? Get a Second Opinion https://t.co/9GuedSklKn

— NYTimes Well (@nytimeswell) May 2, 2018

Via New York Times Well Blog — You don’t think twice about getting multiple bids for a construction or plumbing project, so why hesitate on multiple “bids” for your health?

I learned the value of a second opinion a year and a half ago when two breast cancer surgeons presented me with very different treatment options.
Read More »

“The ‘Ross-Wonders’, Cancer’s New Superheroes”

This is such a great story. Well done! “In this case, it was the patients themselves who organized as a group” to launch a ROS1 study. “As far as I know it’s the first time that’s happened.” @GoldmanLisa @JFreemanDaily @lil_lytnin #lcsm #PrecisionMedicine https://t.co/JQNNeU1t8w

— Dave Bjork (@bjork5) May 3, 2018

Via Forbes — You’ve likely never heard the story of how three young women, who call themselves “ROS1ders” from a rare form of lung cancer they share, may be turning the nation’s 46-year-old war on cancer on its head. The women were diagnosed with a gene mutation called a ROS1 fusion. Less then 2 percent of lung cancer patients have that trait. They soon found out there was little research being conducted because of the difficulty in finding and collecting tissue samples. In other words they were stuck with existing treatments and a drug designed for other types of lung cancers. Their future did not look bright.
Read More »

“The Latest Look at FDA’s Breakthrough Designation Finds No Benefits from Cancer Meds”

STAT Plus: “The term breakthrough may also be used to justify exceptionally high prices.” https://t.co/i79FzhUvqx

— STAT (@statnews) May 2, 2018

Via STAT News — The idea of a breakthrough therapy was promoted to speed approvals of medicines that held promise for treating a life-threatening disease and demonstrated substantial improvement over existing drugs. However, a new study finds that while cancer drugs considered to be breakthroughs were approved more quickly, they were not safer, more novel, or more effective than drugs not given this designation.

The study examined 58 new cancer medicines that were approved by the Food and Drug Administration between 2012 and 2017. Of these, 25 — or 43 percent — received breakthrough therapy designation. The median time to a first FDA approval was 5.2 years for drugs that given a breakthrough designation versus 7.1 years for cancer medicines that were not considered to be breakthroughs.
Read More »

“Corners of the Immunotherapy Space are Getting Crowded. Is that a Problem?”

Five approved checkpoint-inhibitor drugs rev up the immune system to fight cancer. Forty-five similar ones are in clinical trials. https://t.co/ZeIGafFHjT

— STAT (@statnews) May 1, 2018

Via STAT News — There’s an overabundance of copycat drugs in the cancer immunotherapy space, with companies pouring millions into developing drugs that add only incremental value to patients.

That was the general consensus from a panel of biotech experts who spoke here Monday at the Milken Institute Global Conference — a commingling of Wall Street titans, policy wonks, industry leaders, and Hollywood elites. While excitement around harnessing the immune system to attack cancer is justifiable, they said, the way in which company resources are allocated in the immunotherapy space is skewed.

“The immuno-oncology field is too crowded,” said Pablo Legorreta, CEO of Royalty Pharma, a New York-based venture capital firm. “We don’t need 30 similar drugs, because a lot of them will become me-too drugs. And that’s not OK for patients.”
Read More »


More From “What Caught Our Eye” »

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Tags: affordable care act, Cancer Survivorship, care planning, clinical trials, FDA, financial issues, Medicare, screening, What Caught Our Eye
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Latest News

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COVID-19 Vaccines and Cancer: A Conversation with Cancer Expert Otis Brawley, MD

March 1, 2021
The National Coalition for Cancer Survivorship (NCCS) hosted a conversation on February…
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National Quality Forum Names NCCS CEO Shelley Fuld Nasso to 2021 Leadership Consortium Roster

February 24, 2021
NOTE: This press release was originally published on the National Quality Forum (NQF)…
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NCCS and Other Cancer Groups Urge HHS to Keep Six Protected Classes in Medicare Part D Drug Plans

February 19, 2021
The National Coalition for Cancer Survivorship (NCCS) joined with the Cancer Leadership…
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  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2020 State of Cancer Survivorship Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
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    • Cancer Policy and Advocacy Team (CPAT)
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    • Care Planning for Cancer Survivors
    • Tools For Care Providers
    • Order Our Resources
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    • Cancer Policy and Advocacy Team (CPAT) Symposium 2020
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  • Contact Us

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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute