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Health Care Roundup: Drug Pricing in TV Ads; Even with Insurance, Serious Illness Can Mean Financial Distress; Fertility in Young Survivors; More

October 19, 2018/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Drug Pricing, Financial Toxicity, Health Care Coverage, Health Equity, Pre-Existing Conditions Health Care Roundup, NCCS News /by actualize
In order to bring you the latest cancer-related health care policy and news, we at NCCS combined our ACA Updates and What Caught Our Eye (WCOE) content into a weekly email and blog post. We aim to make this a concise, one-stop summary of what you need to know as we continue working together to make cancer care better for everyone.

Your feedback is always welcome to make our content more useful to you. Please send comments to feedback@canceradvocacy.org.

Subscribe to our email list and receive these updates in your email box each week »


HEALTH CARE HIGHLIGHT

HHS Proposes Rule Requiring Drug Pricing in TV Ads

On Monday, Department of Health and Human Services (HHS) Secretary Alex Azar announced that HHS introduced a proposed rule to require direct-to-consumer television advertisements for prescription drugs include pricing information. According to the proposed rule, drugs paid for by Medicare or Medicaid must include the list price of the drug if it costs more than $35 for a month’s supply or the usual course of therapy.

Kaiser Health News reports that while this proposal is being endorsed by some groups for attempting to improve transparency, it is criticized by many others for not doing anything to drive down the actual cost of drugs. Further, many patient advocates, including NCCS, fear the new requirements could be confusing for patients due to vast differences in patients’ insurance plans and pharmacy benefits. There is also concern that this approach might inflict sticker shock to patients, especially cancer patients, and they may avoid talking to their care team about a treatment or cause them to avoid a certain treatment all together.


CHART OF THE WEEK

1,495 Americans Describe the Financial Reality of Being Really Sick

The New York Times


IMPORTANT READS

States Act to Safeguard Young Cancer Patients’ Chances to Have Children

Via Kaiser Health News

Many young adult cancer survivors are faced with the challenge of making some difficult choices in fertility preservation before starting treatment. Slowly, state by state, we are seeing some progress to include this benefit in insurance plans.

Read More »

Hiding My Cancer Under the Hijab

Via New York Times Well Blog

Saema Khandaker, a cancer survivor and physician, writes a beautiful essay on the intersection of being a cancer patient and identity.

Read More »

Cartoons Offer a Peek into Cancer Immunotherapy—and Scientists’ Minds

Via STAT News

Check out the collection of cartoons that author Neil Canavan has collected over the past two years from scientists illustrating cancer immunotherapy.

Read More »

Republicans Are Suddenly Running Ads on Pre-existing Conditions. But How Accurate Are They?

Via New York Times Upshot

Pre-existing conditions protections are critical for cancer survivors and for the past two years, these protections and the ACA have been continuously threatened. As the midterm elections approach, more and more candidates on both sides of the aisle are pledging to protect individuals with pre-existing conditions, but not all of their records indicate they would follow through on their rhetoric and actually preserve these protections. Check out this article on candidates and their legislative record on pre-existing condition protections.

Read More »

Widening Divide Between Medicaid Expansion and Non-Expansion States

Via Protect Our Care

As the fight for Medicaid Expansion lives on in several states, the release of a new U.S. Government Accountability Office (GAO) report reinforces what many already know—that people in states that have not expanded Medicaid have compromised access to health care.

The new GAO report is not only a call to action for states that haven’t expanded Medicaid yet, it’s a call for change in leadership. Medicaid expansion is front and center in many competitive governor’s races around the country, and this report shows why: Your ability to access medical care when you need it shouldn’t depend on who you are, how much money you make or what your ZIP code is, but unfortunately that’s the reality for far too many Americans living in states that refuse to expand Medicaid.

Read More »


Related Posts

https://canceradvocacy.org/blog/health-care-roundup-oct-12-2018/
https://canceradvocacy.org/blog/health-care-roundup-oct-5-2018/

Tags: aca update, affordable care act, Cancer Survivorship, childhood cancer, drug pricing, financial issues, financial toxicity, health care roundup, HHS, Medicaid, Medicare, pre-existing conditions, What Caught Our Eye
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Latest News

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NCCS, Cancer Groups Urge CMS to Withdraw Most Favored Nation (MFN) Medicare Part B Rule That Will Harm Patients and Reduce Access to Care

December 22, 2020
The National Coalition for Cancer Survivorship (NCCS) joined other member organizations…
Read more
https://canceradvocacy.org/wp-content/uploads/2017/10/HHS-Humphrey-bldg-1200.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2020-12-22 20:27:262021-01-04 21:38:15NCCS, Cancer Groups Urge CMS to Withdraw Most Favored Nation (MFN) Medicare Part B Rule That Will Harm Patients and Reduce Access to Care
NCCS Letter to HHS

NCCS Letter to HHS: Proposed Regulatory Review Rule Would Create Unnecessary Uncertainty for Patients

December 9, 2020
The National Coalition for Cancer Survivorship (NCCS) recently submitted comments…
Read more
https://canceradvocacy.org/wp-content/uploads/HHS-Humphrey-bldg-1200-1030x515-1.jpg 515 1030 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2020-12-09 17:30:502020-12-10 08:22:55NCCS Letter to HHS: Proposed Regulatory Review Rule Would Create Unnecessary Uncertainty for Patients
HHS Humphrey bldg 1200

NCCS Opposes Most Favored Nation (MFN) Rule: New Medicare Part B Drug Payment Model Will Harm Patients

December 3, 2020
The National Coalition for Cancer Survivorship (NCCS) opposes the Most Favored Nation…
Read more
https://canceradvocacy.org/wp-content/uploads/HHS-Humphrey-bldg-1200.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2020-12-03 21:26:462020-12-03 21:28:06NCCS Opposes Most Favored Nation (MFN) Rule: New Medicare Part B Drug Payment Model Will Harm Patients

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  • About
    • Our Mission
    • Our History
    • Our Leadership
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2020 State of Cancer Survivorship Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
    • What is Advocacy?
    • Cancer Policy and Advocacy Team (CPAT)
    • Elevating Survivorship
    • Survivor Stories
    • Cancerversary
    • State Based Cancer Advocacy
  • Resources
    • Survivorship Checklist
    • Cancer Survival Toolbox
    • Telehealth
    • Publications
      • Talking With Your Doctor
      • Self Advocacy
      • Employment Rights
      • Remaining Hopeful
    • Taking Charge of Your Care
    • Care Planning for Cancer Survivors
    • Tools For Care Providers
    • COVID-19 Resources for Cancer Survivors
    • Order Our Resources
  • News
    • Cancer Convos Podcast
  • Events
    • Ellen L. Stovall Award
      • 2020 Stovall Awards
      • Honorees
      • Sponsors
      • Committees
      • Reception
      • Nominations
    • Cancer Policy Roundtable
      • Fall 2020 Cancer Policy Roundtable
      • Spring 2020 Cancer Policy Roundtable
    • Cancer Policy and Advocacy Team (CPAT) Symposium 2020
    • Webinars
  • Contact Us

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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute