• Link to Facebook
  • Link to X
  • Link to Youtube
  • Link to Instagram
  • Link to LinkedIn
  • Link to Rss this site
  • Store
  • Donate
  • About
        • About Us

        • Cancer Nation is the oldest cancer survivor-led non-profit organization in America. We advocate for quality cancer care for all touched by cancer.

        • About NCCS

        • Our Mission
        • What is Advocacy?Learn about the different types of cancer advocacy, from personal advocacy to public interest advocacy.
        • Our HistoryRead how Cancer Nation’s leaders coined the term “cancer survivor,” and established the nation’s first survivor-led non-profit organization.
        • Our Team
        • Financial Information
        • Employment
        • Contact Us
        • Support Our Mission

        • Make A GiftSupport our mission of quality cancer care for all with a gift to Cancer Nation.
        • The 1986 ClubMake a monthly commitment to support Cancer Nation, empower cancer survivors, and advance public policy.
        • Ways to GiveLearn about other ways you can contribute to Cancer Nation such as planned giving, employer matches, shopping online, and more.
        • Partnerships
  • News
    • Cancer Nation News
    • Advocate SpotlightEach month, Cancer Nation highlights a cancer survivorship advocate, sharing their story and the work they do in their communities.
    • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
    • Issue StatementsRead Cancer Nation statements on pressing issues and developments in Washington affecting cancer survivors and their families.
  • Policy
        • Policy

        • Public policy is government action, in the form of legislation, regulation, funding, and other actions. Public policy affects people with cancer and the cancer care system in many ways.

        • Our Policy Priorities

        • Quality Cancer CareQuality cancer care is essential for patients. Learn how Cancer Nation and others define quality.
        • Access to CareCancer Nation believes cancer care and clinical trials should be affordable and accessible to everyone.
        • Health EquityThe cancer experience is not the same for everyone. Cancer Nation works on policy efforts to reduce disparities in outcomes.
        • Current Issues

        • Protecting Access to Medicaid for Cancer Survivors
        • Comprehensive Cancer Survivorship Act (CCSA)The CCSA is a large comprehensive bill introduced in Congress that aims to improve quality of care in all stages of a diagnosis.
        • Cancer Care Planning and Communications Act (CCPCA)CCPCA is a bill that would provide a billable Medicare service code for cancer care planning.
        • DIEP Flap AccessCancer Nation advocates for protection of access to DIEP Flap Breast Reconstruction Surgery for all breast cancer survivors.
        • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
        • Issue StatementsRead Cancer Nation statements on pressing issues and developments in Washington affecting cancer survivors and their families.
        • Quality Measurement Research
  • Get Involved
        • Get Involved

        • Whether you’re new to cancer advocacy or already have experience as an advocate, there are numerous ways you can get involved with Cancer Nation.

        • Join Cancer Nation

        • Cancer Nation AdvocatesA program that brings together individuals who care about cancer care to learn how policy shapes our health care system—and how we can improve it together.
        • Cancer Nation Leadership AcademyEmerging leaders improving cancer care in their communities.
        • Cancer Nation Corporate Council
        • Advocacy OpportunitiesThis page provides a list of upcoming events, webinars, conferences, and advocacy campaigns from Cancer Nation and other leading cancer organizations.
        • Connect with Us

        • Subscribe to Cancer Nation Updates
        • Follow Cancer Nation on Social Media
        • Survivor Stories
        • Cancerversary
        • Support Cancer Nation

        • Make A Gift
        • Ways to Give
        • The 1986 Club
  • Survivorship Survey
        • State of Survivorship Survey

        • Cancer Nation conducts an annual State of Survivorship Survey, in partnership with Edge Research, to explore the cancer patient and survivor journey. This study captures a range of perspectives to better understand how Cancer Nation can support its mission to advocate for quality cancer care for all.

        • Reports by Year

        • 2025 Survey Report
        • 2024 Survey Report
        • 2023 Survey ReportThe 2023 Survey explored the caregiver experience for the first time, and features new data on the effect of cancer treatment on employment.
        • 2022 Survey ReportThe 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.
        • 2021 Survey ReportThe 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.
        • 2020 Survey ReportIn the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.
  • Survivorship Checklist
        • Cancer Survivorship Checklist

        • The Cancer Survivorship Checklist is designed to be a simple, straightforward tool patients and caregivers can use as a guide for information critical to their care wherever they are on the cancer care continuum.

        • Start Your Cancer Survivorship Checklist
        • Survivorship Checklist Guide for Clinicians
        • Resources for Cancer Survivors

        • Survivorship ResourcesA collection of resources that provide information about navigating the cancer journey.
        • Cancer RehabilitationA supportive health care service that helps improve a person’s functioning during and after cancer treatment.
        • Integrative OncologyA field that combines traditional cancer treatments with therapies that support a person’s natural healing ability.
        • Palliative CareSpecialized medical care for people living with a serious illness that provides relief from the symptoms and stress to improve their quality of life.
        • Cognitive HealingA resource to support cognitive functioning after cancer treatment. Includes cognitive training strategies and tools for both adults and children.
  • Resources
        • Resources

        • Cancer Nation provides a wide variety of resources for patients, caregivers, and health care professionals.

        • Resources for Survivors and Caregivers

        • Health Insurance & Open Enrollment
        • Cancer Survival ToolboxA free, award-winning audio program created by leading cancer organizations to help people better meet & understand the challenges of their illness.
        • Ina® The Intelligent Nutrition Assistant
        • Telehealth
        • Care Planning for Cancer Survivors
        • Remaining Hopeful
        • Self Advocacy
        • Talking With Your Doctor
        • Taking Charge of Your Care
        • Order Our Resources
        • Resources for Health Care Professionals

        • Tools For Care Providers
        • Telehealth Project
        • Survivorship Champions Webinars
        • Survivorship Checklist Guide for Clinicians
  • Events
    • 2026 Cancer Nation Summit
    • Igniting Hope Awards Reception
    • Ellen L. Stovall Award
      • 2025 Winners
      • Awardees
      • Nominations
      • Committees
    • Cancer Nation Webinars
    • Cancer Nation Policy Roundtable
      • Fall 2025
      • Spring 2025
      • Fall 2024
      • Spring 2024
      • Fall 2023
      • Spring 2023
  • 0

NCCS is now Cancer Nation. Find out more about our next chapter.    Join Us

NCCS Policy Comments DOL Labor

NCCS Letter to DOL: Proposed Association Health Plans Rule “Will Increase Costs for Cancer Survivors and Others with Significant Health Needs”

March 8, 2018/in Cancer Nation News, Cancer Policy Blog, Department of Labor, Policy Comments Access to Care, Affordable Care Act Cancer Nation News, Policy Comments

The National Coalition for Cancer Survivorship (NCCS) submitted comments on the proposed rule on Association Health Plans (AHPs) and expressed serious reservations that the proposed rule will weaken the individual and small group markets that provide health insurance coverage to many Americans with a history of cancer.

For those who now receive their insurance through AHPs, cost of coverage may be reduced. However, the coverage offered in AHPs may well be inadequate for all but those with near-perfect health. Cancer patients will likely find that AHP coverage will not meet their care needs.

NCCS believes that the proposed rule on AHPs fails to honor the goals of the Executive Order to improve coverage and affordability of health insurance for Americans. The proposed rule, if finalized as drafted, would also leave consumers at risk of fraudulent and insolvent AHPs. The action that would be in the interest of American health care consumers would be the withdrawal of the proposed rule and a reconsideration of the standards for AHPs to ensure that coverage through AHPs meets the standards and protections of the Affordable Care Act (ACA).

Read the full letter below.


NCCS Logo

 

March 6, 2018

The Honorable R. Alexander Acosta
Secretary
Department of Labor
200 Constitution Avenue, NW
Washington, DC 20210

Re: Definition of Employer Under Section 3(5) of ERISA – Association Health Plans (RIN 1210-AB85)

Dear Secretary Acosta:

The National Coalition for Cancer Survivorship (NCCS), a national organization representing survivors of all types of cancer in efforts to protect access to quality cancer care for all, appreciates the opportunity to comment on the proposed rule on Association Health Plans (AHPs).

We have serious reservations that the proposed rule will weaken the individual and small group markets that provide health insurance coverage to many Americans with a history of cancer. For those who now receive their insurance through AHPs, cost of coverage may be reduced. However, the coverage offered in AHPs may well be inadequate for any but those with near-perfect health. Cancer patients will likely find that AHP coverage will not meet their care needs.

The Department of Labor has undertaken this effort to revise the regulations governing AHPs consistent with the Executive Order of fall 2017, which urged several departments to take action to expand the range and address the affordability of health plan choices for Americans. The proposed rule falls short of that aim, as it will increase costs for cancer survivors and others with significant health care needs who rely on the individual and small group markets. Moreover, cancer patients and others with serious and life-threatening illnesses who receive coverage through AHPs may find their coverage to be inadequate. On the critical measure of protecting Americans’ access to adequate and affordable insurance coverage, the proposed rule falls short. In fact, it moves the health insurance system in the wrong direction on both counts.

Coverage and Affordability in AHPs

The proposed rule would permit AHPs to be considered a multi-employer plan under the Employee Retirement Security Act of 1974 (ERISA). The so-called “look through” doctrine established in a 2011 Centers for Medicare & Medicaid Services (CMS) guidance subjects AHPs sold to individuals and small groups to the Affordable Care Act (ACA) requirements and consumer protections. If the proposed rule is finalized, the “look- through” doctrine would no longer apply.

Under the proposed rule, AHP coverage would no longer be subject to essential health benefit requirements. Based on past experience with AHP coverage, we anticipate that maternity care, prescription drug coverage, and mental health coverage would be among the benefits that might be at risk in AHP plans. For people with cancer, the elimination of the prescription drug coverage would make AHP coverage wholly inadequate, as drugs are typically part of multi-disciplinary cancer care.

Although the proposed rule prevents AHPs from undertaking health status rating of separate employers, the rule would appear to allow groups or associations to base premium rates on other factors, including gender, age, industry, and other factors that estimate health care utilization. Small businesses that have employees who are older, disproportionately women, or likely to be high health care utilizers might be subject to higher premiums. These increased premiums would be passed along to individual consumers.

The proposed rule would apply the HIPAA nondiscrimination provisions to AHPs. Although we applaud this provision of the proposed rule, we note that AHPs can engage in a variety of actions that will result in discrimination against people with significant health needs. As discussed above, AHPs will have flexibility in establishing premium rates and in benefit design, and this power with regard to premiums and benefit design will result in discouraging people with significant health needs from enrolling in AHPS and will result in healthier groups enrolling in AHP coverage. Discrimination against those with significant health needs will be accomplished in spite of the HIPAA protections.

The proposed rule may lead to AHP coverage that is affordable for young and healthy Americans. However, even those consumers will find their coverage inadequate if they encounter any health issues, including a cancer diagnosis, during the plan year. For those consumers who have health conditions that require treatment, the affordability of coverage will be of little comfort if the coverage is wholly inadequate.

The solution to these problems of affordability and adequacy of coverage would be to retain the “look-through” doctrine if the AHP is offering coverage to individuals and small employers. This would ensure that ACA protections remain in place for AHPs for these populations.

Notification of Consumers Regarding Minimum Value

The Departments requests information about required notices to consumers in AHPs. We urge that AHPs be required to provide notice to employer groups and possible beneficiaries regarding the plans offered and whether they meet standards for minimum value. The notices should also advise beneficiaries that, if plans do not meet minimum value standards, they have a right to receive coverage through the health insurance marketplaces and they may also be eligible for premium assistance.

We recommend that employer groups and potential beneficiaries be notified that AHPs do not cover certain essential health benefits. They should also be notified of appeal rights, summary of benefits and coverage, and summary plan descriptions.

Disruption of the Individual and Small Group Markets

We are concerned that the coverage that is offered through AHPs will be inadequate for all but the healthiest Americans. Many individuals are healthy and without health care needs until the moment of their diagnosis with cancer. As a result, we are concerned about the exposure to significant health care costs that will result from AHPs.

Despite our misgivings about the inadequacy of AHP coverage, both because of limited benefits and significant cost-sharing requirements, we believe these plans will be aggressively marketed and purchased by younger and healthier Americans. This will result in market segmentation and a risk pool in the individual and small group markets of older Americans who are above average utilizers of health care. For cancer patients who rely on coverage through the individual and small group markets, premiums will increase and adequate coverage may be beyond their reach.

Retain Standards and Regulatory Authority that Prevent Fraud in AHPs

We recommend that the commonality of interest test be retained for AHPs. The commonality of interest test requires employers participating in an AHP to show a commonality of interest and prevents them from forming an AHP solely for the purpose of offering insurance. The commonality of interest test has been one of the protections against AHPs that commit fraud and experience financial insolvency. This test is one means of protecting consumers from purchasing coverage that is fraudulent or purchasing from an entity that goes bankrupt in the middle of a benefit year.

The proposed rule goes aggressively in the opposite direction, by encouraging employers to form associations SOLELY for the purpose of offering health insurance. The proposed rule is also unclear on the preemption of state law. We urge that the Department clarify that those entities considered single employer AHPs would have to comply with laws in the states in which they operate and continue to be subject to state oversight and regulation. Retaining state authority would help protect consumers from AHPs that are fraudulent or insolvent.

* * *

NCCS believes that the proposed rule on AHPs fails to honor the goals of the Executive Order to improve coverage and affordability of health insurance for Americans. The proposed rule, if finalized as drafted, would also leave consumers at risk of fraudulent and insolvent AHPs. The action that would be in the interest of American health care consumers would be the withdrawal of the proposed rule and a reconsideration of the standards for AHPs. This reconsideration should result in a proposal ensuring that coverage through AHPs meets the standards and protections of the ACA.

Sincerely,

Shelley Fuld Nasso, MPP
Chief Executive Officer

# # #

Download the full letter to the Department of Labor » [PDF]


Read more NCCS Policy Comments »

Related Posts

https://canceradvocacy.org/policy-comments/nccs-letter-serious-reservations-right-to-try-legislation/

https://canceradvocacy.org/blog/aca-update-jan-5-2018/

Tags: affordable care act, Association Health Plans, cancer care, Department of Labor, policy comments
Share this entry
  • Share on Facebook
  • Share on X
  • Share on WhatsApp
  • Share on LinkedIn
https://canceradvocacy.org/wp-content/uploads/2018/03/NCCS-Policy-Comments-DOL-Labor.jpg 600 1200 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg actualizedevs2018-03-08 13:05:512018-03-08 13:05:51NCCS Letter to DOL: Proposed Association Health Plans Rule “Will Increase Costs for Cancer Survivors and Others with Significant Health Needs”

Latest News

A graphic showing the Medicaid.gov website

Cancer Nation Statement: Medicaid Work Requirements Will Unfairly Burden Cancer Survivors

June 4, 2026
Cancer Nation strongly supports a health care system free of waste, fraud, and abuse. Health care resources must be directed to delivery…
Read more
https://canceradvocacy.org/wp-content/uploads/Stock-Medicaid-website-Adobe-927192378.jpg 675 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg NCCS Staff2026-06-04 12:56:142026-06-05 13:42:09Cancer Nation Statement: Medicaid Work Requirements Will Unfairly Burden Cancer Survivors
Image with graphics and text that reads Cancer Nation Understanding Blood-Based Testing in Cancer Care | Watch Now | With Support From: Guardant Health Logo

Webinar – Understanding Blood-Based Testing in Cancer Care

May 29, 2026
Cancer Nation's Webinar Series presents a clear, practical conversation about advances in blood-based testing and how they're shaping…
Read more
https://canceradvocacy.org/wp-content/uploads/Blood-Based-Testing-Webinar-post.jpg 675 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg NCCS Staff2026-05-29 11:28:002026-05-29 11:28:00Webinar – Understanding Blood-Based Testing in Cancer Care
a picture of susie leigh similing wearing a purple top. Words over the photo read In loving memory, Susie Leigh, Cancer Nation Co-founder, 1947-2026

Remembering Susie Leigh: A Founder, a Force, and a Friend

May 28, 2026
Susan (Susie) Leigh, BSN, RN-Retired — one of the founding members of Cancer Nation, a five-time cancer survivor, and one of the…
Read more
https://canceradvocacy.org/wp-content/uploads/Susie-Leigh-In-Memory-blog.jpg 900 1600 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg NCCS Staff2026-05-28 15:14:382026-06-04 14:32:40Remembering Susie Leigh: A Founder, a Force, and a Friend

Take Action

Link to: Survivorship Champions

Get Involved in Research

Cancer Nation conducts an annual Survivorship Survey to explore how patients and survivors are living with, through, and beyond cancer. This study captures a range of perspectives to better understand how Cancer Nation can support its mission to advocate for quality cancer care for all.

Learn More and Request Data Here »
Link to: Cancer Nation Advocates

Join Cancer Nation Advocates

Cancer Nation Advocates is a a program that brings together individuals who care about cancer care to learn how policy shapes our health care system—and how we can improve it together

Learn More and Join »
Link to: Survivor Stories

Share Your Story

Cancer Nation represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.

Share Your Story »
  • About
    • Our Mission
    • What is Advocacy?
    • Our History
    • Our Team
    • Financial Information
    • Employment
    • Contact Us
    • Make A Gift
    • The 1986 Club
    • Ways to Give
    • Partnerships
  • News
    • Cancer Nation News
    • Advocate Spotlight
    • Policy Comments
    • Issue Statements
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Protecting Access to Medicaid for Cancer Survivors
    • Comprehensive Cancer Survivorship Act (CCSA)
    • Cancer Care Planning and Communications Act (CCPCA)
    • DIEP Flap Access
    • Policy Comments
    • Issue Statements
    • Quality Measurement Research
  • Get Involved
    • Cancer Nation Advocates
    • Cancer Nation Leadership Academy
    • Cancer Nation Corporate Council
    • Advocacy Opportunities
    • Subscribe to Cancer Nation Updates
    • Follow Cancer Nation on Social Media
    • Survivor Stories
    • Cancerversary
    • Make A Gift
    • The 1986 Club
    • Ways to Give
  • Survivorship Survey
    • 2025 Survey Report
    • 2024 Survey Report
    • 2023 Survey Report
    • 2022 Survey Report
    • 2021 Survey Report
    • 2020 Survey Report
  • Survivorship Checklist
    • Start Your Cancer Survivorship Checklist
    • Survivorship Resources
    • Cancer Rehabilitation
    • Integrative Oncology
    • Palliative Care
    • Cognitive Healing
    • Survivorship Checklist Guide for Clinicians
  • Resources
    • Cancer Survival Toolbox
    • Telehealth
    • Health Insurance & Open Enrollment
    • Care Planning for Cancer Survivors
    • Ina® The Intelligent Nutrition Assistant
    • Remaining Hopeful
    • Self Advocacy
    • Talking With Your Doctor
    • Taking Charge of Your Care
    • Order Our Resources
    • Tools For Care Providers
    • Telehealth Project
    • Survivorship Champions Webinars
    • Survivorship Checklist Guide for Clinicians
  • Events
    • 2026 Cancer Nation Summit
    • Igniting Hope Awards Reception
    • Ellen L. Stovall Award
      • 2025 Winners
      • Awardees
      • Nominations
      • Committees
    • Cancer Nation Webinars
    • Cancer Nation Policy Roundtable
      • Fall 2025
      • Spring 2025
      • Fall 2024
      • Spring 2024
      • Fall 2023
      • Spring 2023
  • Search
  • Cart

Charity Navigator Four-Star Rating

Cancer Nation Logo

Cancer Nation
8455 Colesville Road  |  Suite 1025 | Silver Spring, MD 20910
info@canceradvocacy.org | (877) NCCS-YES
Privacy Policy  |  Terms and Conditions

Copyright © 1995-2026 by Cancer Nation. National Coalition for Cancer Survivorship, NCCS, Cancer Survival Toolbox, Cancerversary, and related Logos are registered in the United States as trademarks of Cancer Nation (formerly the National Coalition for Cancer Survivorship).

Link to: NCCS Joins Letter Expressing “Serious Reservations” About “Right to Try” Legislation Link to: NCCS Joins Letter Expressing “Serious Reservations” About “Right to Try” Legislation NCCS Joins Letter Expressing “Serious Reservations” About “Right...Fotolia 23428619 S e1461260836640 Link to: Reps. DeSaulnier and Poe Introduce Bipartisan “Cancer Care Planning and Communications Act” Link to: Reps. DeSaulnier and Poe Introduce Bipartisan “Cancer Care Planning and Communications Act” Fotolia 23428619 S e1461260836640Reps. DeSaulnier and Poe Introduce Bipartisan “Cancer Care Planning and Communications...
Scroll to top Scroll to top Scroll to top

This website uses cookies to improve user experience. By continuing to use this site, you agree to our Privacy Policy. Learn More.

Get Updates From Cancer Nation

Be the first to hear about cancer policy and survivorship issues! Subscribe and receive the twice-monthly Cancer Nation News, invites to webinars and events, and more.

  • This field is for validation purposes and should be left unchanged.

Connect With Us

Twitter     Facebook     Instagram     LinkedIn     YouTube

Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute