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What Caught Our Eye: NCI Chief Sharpless Interviewed; Expert Patients; “Why We Didn’t Seek Right to Try”; Progress in Survivorship Care; and More

March 2, 2018/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Care Planning, Clinical Trials, Quality Cancer Care, Shared Decision-Making NCCS News
What Caught Our Eye (WCOE), March 2, 2018
What Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention.

Health Insurance

“Bait And Switch: The Sneaky Way Your Employer Just Passed Healthcare Costs Onto You”

More Americans are now on high out-of-pocket health insurance plans through their employers. The premiums may be cheaper, but these plans are not always great bargains for workers. @forbeshealth https://t.co/3aJYPHOXVy pic.twitter.com/mX1TeM23Ul

— Peter Ubel (@peterubel) March 2, 2018

By Peter Ubel, Forbes.com — With increasing frequency, employers are directing their workers to the kind of high deductible, high out-of-pocket insurance plans that leave workers financially responsible for a surprising portion of their healthcare expenses.
Read More »

“Congress Races The Clock In Quest To Bring Stability To Individual Insurance Market”

tick tick tick. Congress's window for stabilizing individual insurance markets is closing fast. my latest:https://t.co/Hsja5rRu7V

— julie rovner (@jrovner) March 2, 2018

By Julie Rovner, Kaiser Health News — Congress is running out of time if members want to come up with legislation to stabilize the individual insurance market. While Republicans and Democrats still feud over the fate of the Affordable Care Act, a bipartisan group of senators and House members has been working since last summer on measures to keep prices from rising out of control and undermining the individual market where people who don’t get insurance through work or the government buy policies.
Read More »


Cancer Policy

“His six-month “listening tour” almost over, Sharpless discusses his vision for NCI”

His six-month “listening tour” almost over, Sharpless discusses his vision for NCI (https://t.co/JfGyWlwTlw) pic.twitter.com/XeIV6nltVd

— The Cancer Letter (@TheCancerLetter) February 26, 2018

By Paul Goldberg, The Cancer Letter — “The notion that cancer’s not one disease, but thousands of diseases is really starting to sink in, and the implications of that fact are being felt throughout [NCI], and it means we have to change how we do everything. I hope that the early days of the Sharpless administration will be remembered as a time when we really bought into that reality and did some things differently,” NCI Director Norman “Ned” Sharpless said in a conversation with The Cancer Letter.
Read More »

“I have brain cancer. Drug companies and med schools should be compensating me for my expertise”

I’ve learned that my knowledge is extremely valuable. I’ve also learned that it is undervalued.https://t.co/FAnLNzbA0G pic.twitter.com/H0TfgMBtcm

— STAT (@statnews) February 27, 2018

By Adam Hayden, STAT News — Expert patients offer value when it comes to medical education or the development of medical devices and drugs. It’s time for them to get the compensation they deserve for improving the health care experience for everyone.
Read More »

“A 25-Year Experience of US Food and Drug Administration Accelerated Approval of Malignant Hematology and Oncology Drugs and Biologics”

Nice FDA study of all 93 heme-onc indications approved via accelerated pathway as of 5/17; 55% fulfilled PMRs, verifying benefit 3.5 yrs (on avg) after approval, but 40% yet to complete confirmatory trial(s) or verified benefit, 5% withdrawn from market https://t.co/7dDHzVcQN4

— Joseph Ross (@jsross119) March 2, 2018

Scientific Review Published in JAMA Oncology — Accelerated approval (AA) is a US Food and Drug Administration (FDA) expedited program intended to speed the approval of drugs and biologics that may demonstrate a meaningful advantage over available therapies for diseases that are serious or life-threatening.
Read More »


Coping with Cancer

“My Mom Just Died From Cancer. Here’s Why We Didn’t Seek #RightToTry”

My Mom had 30 years of good living due to drugs developed in the 70s War on Cancer. But when her silent breast cancer reappeared in her bones in 2014, she kept the faith, staying with treatments that had passed the muster of clinical trials. https://t.co/n0GNlAM9IM #RightToTry

— David Kroll (@davidkroll) March 1, 2018

By Dave Kroll, Forbes.com — Few events are more jarring to the human experience than being diagnosed with an acutely life-threatening illness. Perhaps as devastating – or even worse – is when that person is a loved one, especially a child or a young life-partner.

And if you’re a young person, having a parent or close relative diagnosed with a terminal illness may be the most emotionally devastating experience you’ve faced to date.
Read More »

“Patricia A. Ganz, MD, on Progress in Cancer Survivorship Care”

Via ASCO Post — Patricia A. Ganz, MD, of the University of California, Los Angeles, and this year’s recipient of the Ellen Stovall Award for Advancement of Cancer Survivorship Care, discusses her 30-year-long career researching and advocating for survivors and quality care.
Read the post on ASCOpost.com »


More From “What Caught Our Eye” »

Follow us on Twitter: @CancerAdvocacy


Tags: affordable care act, Cancer Survivorship, care planning, caregivers, clinical trials, drug approvals, FDA, NCI, right to try, What Caught Our Eye
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Sandra Finestone, PsyD: Be Bold and Don’t Hesitate – A 30-year Survivor’s Advice on Advocacy

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  • About
    • Our Mission
    • Our History
    • The 1986 Club
    • Our Team
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • State of Survivorship Survey
      • 2022 Survey
      • 2021 Survey
      • 2020 Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
    • What is Advocacy?
    • Cancer Policy and Advocacy Team (CPAT)
    • Advocate Engagement Opportunities
    • Survivorship Champions
    • Subscribe to NCCS Updates
    • Elevating Survivorship
    • Survivor Stories
    • Cancerversary
    • State-Based Cancer Advocacy
  • Resources
    • COVID-19 Resources for Cancer Survivors
    • Survivorship Checklist
    • Cancer Survival Toolbox
    • Cancer Rehabilitation
    • Integrative Oncology
    • Publications
      • Talking With Your Doctor
      • Self Advocacy
      • Employment Rights
      • Remaining Hopeful
    • Telehealth
    • Taking Charge of Your Care
    • Care Planning for Cancer Survivors
    • Tools For Care Providers
    • Order Our Resources
  • News
  • Events
    • Ellen L. Stovall Award
      • 2022 Winners
      • Awardees
      • Reception and Sponsorship
      • Committees
      • Nominations
    • Cancer Policy Roundtable (CPR)
      • Fall 2022 CPR
      • Spring 2022 CPR
      • Fall 2021 CPR
      • Spring 2021 CPR
      • Fall 2020 CPR
      • Spring 2020 CPR
    • Cancer Policy and Advocacy Team (CPAT) Virtual Symposium 2022
    • 2022 State of Survivorship Survey Results
    • Webinars
  • Contact Us

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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute