• Facebook
  • Rss
  • Twitter
  • Youtube
  • Store
  • Donate
  • 0Shopping Cart
NCCS - National Coalition for Cancer Survivorship
  • About
    • Our Mission
    • Our History
    • Our Leadership
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2020 State of Cancer Survivorship Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
    • What is Advocacy?
    • Cancer Policy and Advocacy Team (CPAT)
    • Elevating Survivorship
    • Survivor Stories
    • Cancerversary
    • State Based Cancer Advocacy
  • Resources
    • Survivorship Checklist
    • Cancer Survival Toolbox
    • Telehealth
    • Publications
      • Talking With Your Doctor
      • Self Advocacy
      • Employment Rights
      • Remaining Hopeful
    • Taking Charge of Your Care
    • Care Planning for Cancer Survivors
    • Tools For Care Providers
    • COVID-19 Resources for Cancer Survivors
    • Order Our Resources
  • News
    • Cancer Convos Podcast
  • Events
    • Ellen L. Stovall Award
      • 2020 Stovall Awards
      • Honorees
      • Sponsors
      • Committees
      • Reception
      • Nominations
    • Cancer Policy Roundtable
      • Fall 2020 Cancer Policy Roundtable
      • Spring 2020 Cancer Policy Roundtable
    • Cancer Policy and Advocacy Team (CPAT) Symposium 2020
    • Webinars
  • Contact Us
  • Search
  • Menu Menu

Year-End MATCH (DEADLINE Dec 31): Donate & Make a Difference | Donate

NCCS Starburst 250px

Health Care Roundup: Texas Court Hears ACA Lawsuit; House, Senate Advance Pharmacy “Gag Clause” Bans; Long-Distance Caregiving; and More

September 7, 2018/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Drug Pricing, Health Care Coverage, Pre-Existing Conditions, Quality Cancer Care, Shared Decision-Making NCCS News /by actualize

In order to bring you the latest cancer-related health care policy and news, we at NCCS combined our ACA Updates and What Caught Our Eye (WCOE) content into a weekly email and blog post. We aim to make this a concise, one-stop summary of what you need to know as we continue working together to make cancer care better for everyone.

Your feedback is always welcome to make our content more useful to you. Please send comments to feedback@canceradvocacy.org.

Subscribe to our email list and receive these updates in your email box each week »


HEALTH CARE HIGHLIGHTS

ACA Troubles in Texas Lawsuit

A lawsuit filed by 20 attorneys general from conservative leaning states saw its day in court this week. Earlier this summer, these attorneys general brought forth a lawsuit claiming that the Affordable Care Act (ACA) is unconstitutional because the individual mandate was repealed by Congress last year.  With the Trump administration taking the very unusual step of declining to protect a federal law passed by Congress, several democratic attorneys general stepped in to argue that repealing the individual mandate does not invalidate the entire law.

Oral arguments were heard Wednesday by Judge Reed O’Connor, who sounded openly opposed to the ACA. The Judge’s questioning gave the impression that he is skeptical of the ACA’s standing without the individual mandate. He gave no indication of when he will make a decision, but either way, there will almost certainly be an appeal and the case could go all the way to the Supreme Court.

Meanwhile, confirmation hearings for Supreme Court nominee, Judge Brett Kavanaugh, are underway. Judge Kavanaugh has not provided any insights into his views on the ACA during the hearings, but if he is confirmed he could be a deciding factor on the future of the ACA.


CHART OF THE WEEK

The ACA’s Pre-Existing Condition Protections Remain Popular with the Public, including Republicans, As Legal Challenge Looms This Week

Kaiser Family Foundation


IMPORTANT READS

House Committee Advances Ban on “Gag Clauses” Saying It Will Reduce Drug Costs

Via Washington Examiner

The House Energy and Commerce’s Health Subcommittee today advanced a series of health care bills. The Washington Examiner notes:

One of the pieces of legislation is a draft bill that bans private insurers and drug middlemen called pharmacy benefit managers from inserting "gag clauses" into contracts with pharmacists. The clause prohibits the pharmacist from telling a consumer it is cheaper to pay for a drug out of pocket rather than through insurance.

It looks as though bipartisan support for such legislation is growing in Congress and could continue to move ahead. The Senate this week unanimously passed a similar 'gag clause' bill targeting Medicare Part D insurers. That bill now awaits action in the House.

Read More »

She’s worn both a hospital gown and a white coat. Now she wants to change how doctors perceive their patients

Via STAT News

This is the inspiring story of Shekinah Elmore. Two weeks after finishing treatment for her third stint with cancer, she began medical school. Based on her experiences as both a patient and a doctor, she’s trying to help change the doctor-patient relationship:

Elmore wanted her peers to recognize that not every person who looks well is well. Her classmates began to draw imaginary lines between themselves, the “healthy,” and their future patients, the “sick.” Elmore herself was proof that those categories aren’t so clear cut. Later, she’d realize how much their use hurts patients.

Read More »

Strategies for Long-Distance Caregiving

Via New York Times

A study called “Closer: A Videoconference Intervention for Distance Caregivers,” research funded by the National Institute of Nursing Research, aims to discern the extent to which using technologies can help distance caregivers connect with their loved ones in meaningful ways. This includes virtually attending visits to be a part of the treatment decision making process.

“Distance caregivers, compared to local caregivers, have higher stress, feel less support, have higher anxiety and more burden,” Dr. Douglas said. “It’s a group that hasn’t been well recognized. We haven’t really done a really good job up until this point in terms of trying to provide services that in some way make being a distance caregiver less stressful and more meaningful.”

Read More »


Related Posts

https://canceradvocacy.org/blog/nccs-health-care-roundup-aug-24-2018/
https://canceradvocacy.org/blog/health-care-roundup-aug-3-2018/

Tags: aca update, affordable care act, Cancer Survivorship, caregivers, Decision-Making, drug pricing, Medicare, pre-existing conditions, What Caught Our Eye
Share this entry
  • Share on Facebook
  • Share on Twitter
https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-09-07 17:32:202020-07-06 10:05:31Health Care Roundup: Texas Court Hears ACA Lawsuit; House, Senate Advance Pharmacy “Gag Clause” Bans; Long-Distance Caregiving; and More
You might also like
NCCS CPAT Symposium Kirby Lewis: My NCCS CPAT Symposium and Hill Day Experience
Incorporating Patient Preferences in Practice Guidelines JAMA Study on End-of-Life Care Shows Increase in Hospice Use and Aggressive Care
NCCS Starburst Thumbnail WCOE: When Doctors Don’t Talk to Doctors, “Below-the-Belt” Cancers, and the Psychological Effects of Chemo
NCCS Starburst Thumbnail WCOE: Poll Finds Women Think Mammograms Should Be Done Annually, Why Your Doctor Won’t ‘Friend You,’ Hospice Use Patterns, Susan Gubar’s Latest
CPAT Members Capitol PACT Act Highlights from the 2016 CPAT Symposium and Hill Day
NCCS Starburst 250px What Caught Our Eye: ACA Premiums; Excessive Cancer Care; Saving Lives With Policy; Horrifying Hospice Care; Cancer Drug Efficacy; and More
pcorithumb NCCS to Join Cancer Twitter Chat on Tuesday, September 29th
increases in risk of certain leukemias NIH study finds increases in risk of certain leukemias related to treatment

Latest News

HHS Humphrey bldg 1200

NCCS, Cancer Groups Urge CMS to Withdraw Most Favored Nation (MFN) Medicare Part B Rule That Will Harm Patients and Reduce Access to Care

December 22, 2020
The National Coalition for Cancer Survivorship (NCCS) joined other member organizations…
Read more
https://canceradvocacy.org/wp-content/uploads/2017/10/HHS-Humphrey-bldg-1200.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2020-12-22 20:27:262021-01-04 21:38:15NCCS, Cancer Groups Urge CMS to Withdraw Most Favored Nation (MFN) Medicare Part B Rule That Will Harm Patients and Reduce Access to Care
NCCS Letter to HHS

NCCS Letter to HHS: Proposed Regulatory Review Rule Would Create Unnecessary Uncertainty for Patients

December 9, 2020
The National Coalition for Cancer Survivorship (NCCS) recently submitted comments…
Read more
https://canceradvocacy.org/wp-content/uploads/HHS-Humphrey-bldg-1200-1030x515-1.jpg 515 1030 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2020-12-09 17:30:502020-12-10 08:22:55NCCS Letter to HHS: Proposed Regulatory Review Rule Would Create Unnecessary Uncertainty for Patients
HHS Humphrey bldg 1200

NCCS Opposes Most Favored Nation (MFN) Rule: New Medicare Part B Drug Payment Model Will Harm Patients

December 3, 2020
The National Coalition for Cancer Survivorship (NCCS) opposes the Most Favored Nation…
Read more
https://canceradvocacy.org/wp-content/uploads/HHS-Humphrey-bldg-1200.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2020-12-03 21:26:462020-12-03 21:28:06NCCS Opposes Most Favored Nation (MFN) Rule: New Medicare Part B Drug Payment Model Will Harm Patients

Take Action

Stovall Award

The Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care is a unique opportunity for patients and survivors to recognize pioneers who are transforming the cancer care system.

Join CPAT

The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

Share Your Story

NCCS represents the millions of Americans who share a common experience – the survivorship experience – living with, through and beyond a cancer diagnosis.

STAY CONNECTED

Together we can improve cancer care for survivors! Sign up to be the first to know about cancer policy issues and ways to take action

  • About
    • Our Mission
    • Our History
    • Our Leadership
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2020 State of Cancer Survivorship Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
    • What is Advocacy?
    • Cancer Policy and Advocacy Team (CPAT)
    • Elevating Survivorship
    • Survivor Stories
    • Cancerversary
    • State Based Cancer Advocacy
  • Resources
    • Survivorship Checklist
    • Cancer Survival Toolbox
    • Telehealth
    • Publications
      • Talking With Your Doctor
      • Self Advocacy
      • Employment Rights
      • Remaining Hopeful
    • Taking Charge of Your Care
    • Care Planning for Cancer Survivors
    • Tools For Care Providers
    • COVID-19 Resources for Cancer Survivors
    • Order Our Resources
  • News
    • Cancer Convos Podcast
  • Events
    • Ellen L. Stovall Award
      • 2020 Stovall Awards
      • Honorees
      • Sponsors
      • Committees
      • Reception
      • Nominations
    • Cancer Policy Roundtable
      • Fall 2020 Cancer Policy Roundtable
      • Spring 2020 Cancer Policy Roundtable
    • Cancer Policy and Advocacy Team (CPAT) Symposium 2020
    • Webinars
  • Contact Us

National Coalition for Cancer Survivorship
8455 Colesville Road  |  Suite 930  |  Silver Spring, MD 20910
877-NCCS-YES  |  info@canceradvocacy.org
Privacy Policy  |  Terms and Conditions

Copyright © 1995-2021 by the National Coalition for Cancer Survivorship
National Coalition for Cancer Survivorship, NCCS, Cancer Survival Toolbox, and related Logos are registered in the United States as trademarks of the National Coalition for Cancer Survivorship.

NCCS Applauds Resolution to Block Short-Term Insurance Plans, Protect Those... Eligibility to Cancer Survivors NCCS Starburst 250px Health Care Roundup: Maryland, Advocacy Groups File Suits to Protect ACA; Emergency...
Scroll to top

Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute