NCCS Starburst 250px

WCOE: Health Care Access and Affordability; FDA’s Plans to Better Incorporate Patient Voice in Drug Development; Patient Portal Pitfalls; and More

/in , , , , , , ,
What Caught Our Eye (WCOE), March 30, 2018
What Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention.

Affordable Care Act

“Why Some Americans Are Risking It and Skipping Health Insurance”

Via Bloomberg — In tiny Marion, North Carolina, the Buchanans decided that $1,800 a month was too much to pay for health insurance, and are going without it for the first time in their lives.
Read More »

“Patterns in Health Care Access and Affordability Among Cancer Survivors During Implementation of Affordable Care Act”

Via JAMA Oncology — What are the issues with health care access and affordability for cancer survivors compared with non-cancer-affected control respondents, and how did the proportion of survivors reporting these issues change over time?
Read More »

Coping With Cancer

“Without Context or Cushion, Do Online Medical Records Make Sense?”

Via Washington Post — As she herded her two young sons into bed one evening late last December, Laura Devitt flipped through her phone to check on the routine blood tests that had been performed as part of her annual physical. She logged onto the patient portal link on her electronic medical record, scanned the results and felt her stomach clench with fear.
Read More »

Cancer News

“With $150M gift, Rogels will help U-M Cancer Center Transform Cancer Research, Care”

Via University of Michigan Medicine — Richard and Susan Rogel are on a mission to boost innovative cancer research and develop the next generation of cancer pioneers — and they are committing $150 million to the University of Michigan Comprehensive Cancer Center to realize that vision.
Read More »

Cancer and Drugs

“A Billionaire Couple is Pumping Money into the Drug Pricing Debate. Can They Loosen Pharma’s Grip?”

Via STAT News — John Arnold is legendary for turning contrarian bets into heaps of money. The soft-spoken Texan was a whiz kid trader at Enron before its fall. He then ran his own hedge fund, specializing in energy trading. Before he turned 34, he was a billionaire.
Read More »

“Statement from FDA Commissioner Scott Gottlieb, MD, on FDA’s Efforts to Enhance the Patient Perspective and Experience in Drug Development and Review”

By — Benefit-risk assessment is at the heart of what we do to ensure that Americans have access to medical products that are safe, effective and meet their needs.
Read More »

More From “What Caught Our Eye” »

Follow us on Twitter: @CancerAdvocacy

Take Action

Link to: Survivorship Champions

Become a Survivorship Champion

Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.

Join us today! »
Link to: Cancer Policy and Advocacy Team (CPAT)

Join CPAT

The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

Link to: Survivor Stories

Share Your Story

NCCS represents the millions of Americans who share a common experience – the survivorship experience – living with, through and beyond a cancer diagnosis.

STAY CONNECTED

Together we can improve cancer care for survivors! Sign up to be the first to know about cancer policy issues and ways to take action

  • This field is for validation purposes and should be left unchanged.

National Coalition for Cancer Survivorship
8455 Colesville Road  |  Suite 930  |  Silver Spring, MD 20910
877-NCCS-YES  |  info@canceradvocacy.org
Privacy Policy  |  Terms and Conditions

Copyright © 1995-2023 by the National Coalition for Cancer Survivorship
National Coalition for Cancer Survivorship, NCCS, Cancer Survival Toolbox, and related Logos are registered in the United States as trademarks of the National Coalition for Cancer Survivorship.

Patient Assistance Programs: Do They Help or Hurt?Patient Assistance ProgramsProtectOurCare 1024pxACA Update April 6, 2018 | New Iowa Law Allows Health Plans That Exclude Preexisting...