“Finding Information” explains how to use many of the different resources available to find information that will help you understand your kind of cancer and its treatment. After listening to this Toolbox program, you will be better prepared to:
Find good information on the kind of cancer you have and on the types of treatment that offer the best records for success
Pick the experts you respect and trust to be part of your healthcare team
Know when and how to seek a second opinion
Look for what is new in the treatment of your kind of cancer
Know that the decisions you have made about your cancer and its treatment are based on the right kind and right amount of information
Finding Information on the Internet
On the Internet, cancer survivors can get information available throughout the world, all at the touch of a few keystrokes on a computer in their home, library, or community center. It can be hard to find your way around the Internet at first. You may need to ask for help. A word of caution: There is a great deal of very helpful, reliable, factual information available on the Internet, but there is also a lot of misinformation. It is important to be sure your sources are reliable and to check information further. The most reliable medical information will come from well-known cancer organizations, research facilities, hospitals, libraries, government agencies, and professional journals.
There are many good books to help you get comfortable with using the Internet. Also, many of the companies that provide Internet access offer free classes to help beginners learn how to use the Internet. Community colleges, senior centers, information specialists in community or hospital libraries, or the cancer information specialist in a cancer resource center may also be able to provide some beginning instruction to help you get started.
Triage Cancer is a national, nonprofit organization that provides education on the practical and legal issues that may impact individuals diagnosed with cancer and their caregivers. Triage Cancer provides a myriad of online tools and resources, including written educational materials (e.g., Quick Guides, checklists, manuals, etc.), international, national, and state resources, a chart of state laws, and a series of animated videos.
www.CancerCare.org | (800) 813-4673
A national organization that provides free professional support services to anyone affected by cancer: including people with cancer, caregivers, loved ones and the bereaved. Programs—including counseling and support groups, education, financial assistance, and practical help—are provided by professional oncology social workers free of charge. Counseling and some materials are available in Spanish.
www.cancer.gov | (800) 422-6237
The National Cancer Institute (NCI) is the U.S. government’s principal agency for cancer research. Their Cancer.gov website provides access to many types of information resources covering different cancers, treatments, and supportive care. NCI’s toll-free Cancer Information Service (800-4-CANCER) operates Mon-Fri from 8am to 8pm ET and is staffed by information specialists who can answer cancer-related questions.
www.cancer.org | (800) 227-2345
Cancer.org provides information about specific cancers and has resources for supportive care and services around the country. Additionally, ACS’s toll-free number is staffed 24/7 by cancer information specialists.
The Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care is a unique opportunity for patients and survivors to recognize pioneers who are transforming the cancer care system.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
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NCCS represents the millions of Americans who share a common experience – the survivorship experience – living with, through and beyond a cancer diagnosis.
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