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        • About Us

        • Cancer Nation is the oldest cancer survivor-led non-profit organization in America. We advocate for quality cancer care for all touched by cancer.

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        • What is Advocacy?Learn about the different types of cancer advocacy, from personal advocacy to public interest advocacy.
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        • Public policy is government action, in the form of legislation, regulation, funding, and other actions. Public policy affects people with cancer and the cancer care system in many ways.

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        • Quality Cancer CareQuality cancer care is essential for patients. Learn how Cancer Nation and others define quality.
        • Access to CareCancer Nation believes cancer care and clinical trials should be affordable and accessible to everyone.
        • Health EquityThe cancer experience is not the same for everyone. Cancer Nation works on policy efforts to reduce disparities in outcomes.
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        • Protecting Access to Medicaid for Cancer Survivors
        • Comprehensive Cancer Survivorship Act (CCSA)The CCSA is a large comprehensive bill introduced in Congress that aims to improve quality of care in all stages of a diagnosis.
        • Cancer Care Planning and Communications Act (CCPCA)CCPCA is a bill that would provide a billable Medicare service code for cancer care planning.
        • DIEP Flap AccessCancer Nation advocates for protection of access to DIEP Flap Breast Reconstruction Surgery for all breast cancer survivors.
        • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
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        • Whether you’re new to cancer advocacy or already have experience as an advocate, there are numerous ways you can get involved with Cancer Nation.

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        • Cancer Nation conducts an annual State of Survivorship Survey, in partnership with Edge Research, to explore the cancer patient and survivor journey. This study captures a range of perspectives to better understand how Cancer Nation can support its mission to advocate for quality cancer care for all.

        • Reports by Year

        • 2025 Survey Report
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        • 2023 Survey ReportThe 2023 Survey explored the caregiver experience for the first time, and features new data on the effect of cancer treatment on employment.
        • 2022 Survey ReportThe 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.
        • 2021 Survey ReportThe 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.
        • 2020 Survey ReportIn the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.
  • Survivorship Checklist
        • Cancer Survivorship Checklist

        • The Cancer Survivorship Checklist is designed to be a simple, straightforward tool patients and caregivers can use as a guide for information critical to their care wherever they are on the cancer care continuum.

        • Start Your Cancer Survivorship Checklist
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        • Survivorship ResourcesA collection of resources that provide information about navigating the cancer journey.
        • Cancer RehabilitationA supportive health care service that helps improve a person’s functioning during and after cancer treatment.
        • Integrative OncologyA field that combines traditional cancer treatments with therapies that support a person’s natural healing ability.
        • Palliative CareSpecialized medical care for people living with a serious illness that provides relief from the symptoms and stress to improve their quality of life.
        • Cognitive HealingA resource to support cognitive functioning after cancer treatment. Includes cognitive training strategies and tools for both adults and children.
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        • Cancer Nation provides a wide variety of resources for patients, caregivers, and health care professionals.

        • Resources for Survivors and Caregivers

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RESULTS FOR:

Coronavirus feat

Coronavirus and Cancer Resources for Survivors

March 20, 2020
Cancer survivors have expressed concerns and questions about COVID-19, the coronavirus, and how they may be at higher risk due to their cancer history. Here are some resources about COVID-19 generally, and its impact for cancer survivors specifically. NCCS is seeking answers from public health experts on the coronavirus and its impact on cancer patients and survivors. Please leave a comment [...]
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ProtectOurCare 1024px

ACA Update | April 28, 2017: AHCA 2.0 Is Released (Worse for Patients than the Original Bill)

April 28, 2017
As we previously reported, the American Health Care Act (AHCA) – the effort to replace the Affordable Care Act – was not even brought to a vote in the House of Representatives before the spring Congressional recess. Members of Congress confirm that advocates who opposed the AHCA were key to the failure of the original bill. Earlier this week, the full text of an amendment to the AHCA was published and is now being considered [...]
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NCCS Starburst 250px

What Caught Our Eye: A Story of Two Survivors’ Enduring Friendship; GOP Still at Odds on Healthcare; Living with an Ostomy; The Perils of Hype in Cancer

April 28, 2017
What Caught Our Eye is our week-in-review blog series.“This is a story of survivors — of patients who were expected to die more than two decades ago but didn’t.” STAT News’ Bob Tedeschi provides an in-depth look Dr. Brian Druker and three of his patients, including Doralee Mortensen and Judy Orem, who became best friends after meeting in the clinical trials for the cancer drug Gleevec in the late 1990s.
https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg actualizedevs2017-04-28 12:00:342017-04-28 12:00:34What Caught Our Eye: A Story of Two Survivors’ Enduring Friendship; GOP Still at Odds on Healthcare; Living with an Ostomy; The Perils of Hype in Cancer
A Cancer Survivor’s Experience

Pre-Existing Conditions and High Risk Pools: A Cancer Survivor’s Experience Purchasing Insurance Before the ACA

April 26, 2017
My story began ten years ago in April when I was diagnosed with Stage III colon cancer. The treatments were successful in that the cancer cells were eliminated, but my liver was damaged by the toxic effects of the chemotherapy and the radiation. My company was very supportive and I continued to work through my long recovery period. But after several years I found that the travel demands of my job were taking too great [...]
https://canceradvocacy.org/wp-content/uploads/Mike-Kappel-1.jpg 515 1030 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg actualizedevs2017-04-26 13:52:552020-12-01 11:16:10Pre-Existing Conditions and High Risk Pools: A Cancer Survivor’s Experience Purchasing Insurance Before the ACA
ProtectOurCare 1024px

ACA Update | April 21, 2017: House GOP Readies a Revised Health Care Bill

April 21, 2017
“Healthcare is not dead, we’re still working on it.” – Paul Ryan | During recess this week and last, Members of Congress continued to hear from constituents at town hall events where a major focus has been on health care and backlash against efforts to repeal the Affordable Care Act. Meanwhile, the conservative House Freedom Caucus has been working with moderate Republicans to come up with an amendment to add to the [...]
https://canceradvocacy.org/wp-content/uploads/2017/01/ProtectOurCare-1024px.jpg 512 1024 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg actualizedevs2017-04-21 15:45:082017-04-21 15:45:08ACA Update | April 21, 2017: House GOP Readies a Revised Health Care Bill
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What Caught Our Eye: A New GOP Health Plan, Looming Uncertainty for Insurers, Sharing Genetic Cancer Risks with Children, and More

April 21, 2017
Trumpcare is back. And worse than ever. — Via Vox.com — “House Republicans are floating a new amendment to their health care bill — one that would likely cause even more Americans to lose coverage than the last version. Leaders of the staunchly conservative Freedom Caucus and the more moderate Tuesday Group have reportedly hashed out a proposal that would let some states ditch key Obamacare policies, such as the [...]
https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg actualizedevs2017-04-21 15:00:262021-09-29 07:20:29What Caught Our Eye: A New GOP Health Plan, Looming Uncertainty for Insurers, Sharing Genetic Cancer Risks with Children, and More
ProtectOurCare 1024px

ACA Update | April 14, 2017: Town Hall Headlines, Cost-Sharing Subsidies, the “Death Spiral”, and Trump’s Final “Market Stabilization” Rule

April 14, 2017
Although Members of Congress are on recess this week and next, talks of ACA and its future continue. Grassroots support of the ACA has made headlines again at town hall events across the U.S. during this recess. CBS News reports on several town hall meetings, where Republican lawmakers faced intense criticism for their position the American Health Care Act (AHCA). The Hill reports that some Members of Congress are [...]
https://canceradvocacy.org/wp-content/uploads/2017/01/ProtectOurCare-1024px.jpg 512 1024 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg actualizedevs2017-04-14 15:01:532017-04-14 15:01:53ACA Update | April 14, 2017: Town Hall Headlines, Cost-Sharing Subsidies, the “Death Spiral”, and Trump’s Final “Market Stabilization” Rule
NCCS Starburst 250px

What Caught Our Eye: Costs of Care in a For-Profit System; New ACA Reporting; Precision Medicine; PSA Testing; End of Life Care

April 14, 2017
What Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles that caught our attention. Published this week, Elisabeth Rosenthal’s An American Sickness: How Healthcare became Big Business and How You Can Take it Back describes the business of health care and how it fails patients. See her interview with Terry Gross on Fresh Air, as well as her tips for consumers to avoid unnecessary costs. [...]
https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg actualizedevs2017-04-14 13:40:072017-04-14 13:40:07What Caught Our Eye: Costs of Care in a For-Profit System; New ACA Reporting; Precision Medicine; PSA Testing; End of Life Care
ProtectOurCare 1024px

ACA Update | April 10, 2017: New GOP Proposal Would Undermine Pre-Existing Condition Protections

April 10, 2017
As talks of repeal and replace quickly resurfaced after the downfall of the American Health Care Act (AHCA), Republican’s newest proposals are even more devastating for cancer patients than the AHCA would’ve been. The newest Republican health care proposals would eliminate even more patient protections, including the essential health benefits that require insurers to cover services such as chemotherapy, hospital visits, [...]
https://canceradvocacy.org/wp-content/uploads/2017/01/ProtectOurCare-1024px.jpg 512 1024 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg actualizedevs2017-04-10 13:28:242017-04-10 13:28:24ACA Update | April 10, 2017: New GOP Proposal Would Undermine Pre-Existing Condition Protections
NCCS Starburst 250px

What Caught Our Eye: Next Steps for the ACA; Gottlieb’s Confirmation; ASCO Statement on Right-to-Try; Gene Mutations in Childhood Survivors

April 7, 2017
Some key findings of the most recent Kaiser tracking poll: the public thinks it’s a “good thing” that the AHCA failed, believes President Trump and the Republican party are responsible for problems with the ACA going forward, and want to see the Trump administration make the ACA work for consumers. “Despite divided views towards the 2010 health law, three-fourths of the public think President Trump and his administration [...]
https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg actualizedevs2017-04-07 13:50:332021-09-29 06:04:32What Caught Our Eye: Next Steps for the ACA; Gottlieb’s Confirmation; ASCO Statement on Right-to-Try; Gene Mutations in Childhood Survivors

Latest News

A graphic showing the Medicaid.gov website

Cancer Nation Statement: Medicaid Work Requirements Will Unfairly Burden Cancer Survivors

June 4, 2026
Cancer Nation strongly supports a health care system free of waste, fraud, and abuse. Health care resources must be directed to delivery…
Read more
https://canceradvocacy.org/wp-content/uploads/Stock-Medicaid-website-Adobe-927192378.jpg 675 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg NCCS Staff2026-06-04 12:56:142026-06-05 13:42:09Cancer Nation Statement: Medicaid Work Requirements Will Unfairly Burden Cancer Survivors
Image with graphics and text that reads Cancer Nation Understanding Blood-Based Testing in Cancer Care | Watch Now | With Support From: Guardant Health Logo

Webinar – Understanding Blood-Based Testing in Cancer Care

May 29, 2026
Cancer Nation's Webinar Series presents a clear, practical conversation about advances in blood-based testing and how they're shaping…
Read more
https://canceradvocacy.org/wp-content/uploads/Blood-Based-Testing-Webinar-post.jpg 675 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg NCCS Staff2026-05-29 11:28:002026-05-29 11:28:00Webinar – Understanding Blood-Based Testing in Cancer Care
a picture of susie leigh similing wearing a purple top. Words over the photo read In loving memory, Susie Leigh, Cancer Nation Co-founder, 1947-2026

Remembering Susie Leigh: A Founder, a Force, and a Friend

May 28, 2026
Susan (Susie) Leigh, BSN, RN-Retired — one of the founding members of Cancer Nation, a five-time cancer survivor, and one of the…
Read more
https://canceradvocacy.org/wp-content/uploads/Susie-Leigh-In-Memory-blog.jpg 900 1600 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg NCCS Staff2026-05-28 15:14:382026-06-04 14:32:40Remembering Susie Leigh: A Founder, a Force, and a Friend

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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute