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As part of our 20 Years Later blog series which examines progress in advancing the principles in the 1995 NCCS publication Imperatives for Quality Cancer Care: Access, Advocacy, Action, and Accountability (Imperatives), this month we will look at the ninth principle of Imperatives: “The responsibility for appropriate long-term medical care must be shared by cancer survivors, […]
In 2008, Marlene King was diagnosed with ductal carcinoma. After treatment, the cancer seemed to be in remission, however in December 2011 the cancer returned in the same breast. She opted for a double mastectomy with expanders and implants. In late July 2012, she learned that her cancer had metastasized to her sternum, as well […]
What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. It's Gynecologic #Cancer Awareness Month. Learn more about the different cancers here: https://t.co/1RQgV3LeYJ #GynCSM — NCI Cancer Stats (@NCICancerStats) September 3, 2015 A cancer building boom, fueled by economics and an aging population https://t.co/bwjkXxkzHL — […]
There are many types of toxicities cancer patients face in their treatment. We hear most about the physical toxicities of treatment – nausea, pain, fatigue, heart damage, etc. Fortunately, the non-physical toxicities are getting more attention by physicians, policymakers, and patient advocates. Dr. Yousuf Zafar (@yzafar) has made the term “financial toxicity” – the crippling […]
In a recent opinion post in The New York Times, columnist Ellen Goodman writes intimately about the loss of her parents. Decades after the death of her father, Goodman felt wholly unprepared for the decisions that needed to be made as her mother’s health declined, assuming—like many caregivers and loved ones do—that death would be […]
Dr. Walter F. Baile moderated a panel at the Spring 2015 Cancer Policy Roundtable that included many perspectives on how cancer patients and oncology professionals can collaborate in decision-making that will improve care planning and coordination. Following the panel, Dr. Baile sat down with us to discuss this issue further. In defining shared decision-making as […]
Marlene King was diagnosed with Ductal Carcinoma in Situ (DCIS) in 2008 at the age of 48, and she elected to have a lumpectomy, chemotherapy and radiation. After treatments the cancer seemed to be in remission. In 2011, the cancer returned and she decided it would be best to have to a double mastectomy and reconstructive surgery. However, one […]
On public television stations nationwide, the award-winning FRONTLINE series aired a program on February 10th based on the work of noted surgeon and writer, Atul Gawande. In addition to Gawande’s many clinical and surgical talents, he has the rare gift of writing articles and books for all of us, no matter what our level of […]
In “Seeing the ‘Invisible Patient,’”Jane Gross addresses the burden of caregiving and how often caregivers’ health, both physical and mental, is overlooked. Ms. Gross refers to an article published in the Journal of the American Medical Association (JAMA) that provides recommendations for lessening the burden and provides a list of questions that doctors and other health […]
Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute