Guest Blog: Example of a Case Impacted by the Help-Hurt Tool
/in Cancer News, Cancer Policy Blog Care Planning, Palliative Care, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS NewsMs. M is an 81-year-old woman with Stage IV Pancreatic Cancer. She had remained in great health until her recent diagnosis, after which her energy had plummeted and she was spending over half the day in bed. Overwhelmed with the sight of their loved one losing her strength with each passing day, her family had […]
Guest Blog: Improving How Doctors and Patients Have Difficult Conversations
/in Cancer News, Cancer Policy Blog Care Planning, Palliative Care, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS NewsHaving cancer is terrifying. Period. Often, well-intended doctors find themselves unable to mitigate this panic. As humans we are challenged with this disease as old as our chromosomes, struck at the core of our identity, of our body, of our sense of self. We are removed from work, from a normal agenda, from our families, […]
NCCS Comments on Medicare Access and CHIP Reauthorization Act of 2015 (MACRA) Proposed Rule
/in Cancer Policy Blog, CMS, NCCS News, Policy Comments Payment Reform, Quality Cancer Care, Survivorship Care NCCS News, Policy CommentsNCCS submitted comments to the Centers for Medicare and Medicaid Services (CMS) on the proposed rule on the Medicare Access and CHIP Reauthorization Act of 2015 (MACRA). Our comments focus on the role of consumers in identification, development, and endorsement of quality measures. As health care delivery and payment transition from a volume-based system, it […]
NCCS Joins Letter to Reagan-Udall Foundation Regarding the Expanded Access Navigator Program
/in Cancer Policy Blog, FDA, NCCS News, Policy Comments NCCS News, Policy CommentsNCCS joined with patient advocacy organizations in the Cancer Leadership Council (CLC) in submitting comments to the Reagan-Udall Foundation regarding the Draft Project Proposal for the Expanded Access Navigator for Individual Patient Access. In our letter, we commend the revisions to guidance documents, FDA educational materials, and the FDA website related to expanded access and […]
News You Didn’t Hear From ASCO’s Annual Meeting
/in Cancer News, Cancer Policy Blog, NCCS News Palliative Care, Quality Cancer Care, Survivorship Care NCCS NewsWe are nearing the end of the 2016 ASCO Annual Meeting in Chicago and looking forward to Vice President Joe Biden’s address on the National Cancer Moonshot Initiative this afternoon. The ASCO Annual Meeting provides updates on treatment advances and is followed by patients, physicians, biotech companies, and investors. Immuno-oncology is once again the hot […]
CPAT Webinar Available Online: “A Conversation Around Shared Decision-Making and A Patient Revolution—and The Role of the PACT Act”
/in Cancer Policy Blog NCCS News“Let me introduce you to Maria Lisa. Maria Lisa is a patient from Peru, like I am, and she lives in Alaska. I would like to spend a few seconds here looking closely at her face and her situation. …Maria Lisa looks overwhelmed and tired. This is in part because Maria Lisa lives with multiple […]
Guest Post: Important To Weigh In On Survivorship Issues For Moonshot
/in Cancer News, Cancer Policy Blog NCCS News“For the loved ones we’ve all lost, for the family we can still save, let’s make America the country that cures cancer once and for all.” With these words, President Obama launched his vision for the National Cancer Moonshot Initiative during his 2016 State of the Union address, which Vice President Joe Biden is leading. […]
Join the NCCS Cancer Policy & Advocacy Team: Empowering Those Touched by Cancer to Change Cancer Care
/in Cancer Policy Blog, NCCS News NCCS NewsIf you have ever wanted to use your cancer journey—either as a survivor or as a caregiver—to make a difference, you are invited to join the NCCS Cancer Policy & Advocacy Team (CPAT)! Driven by the energy and experiences of the CPAT Steering Committee, CPAT provides cancer survivors and caregivers with tools and training that […]
A Voice for Cancer Survivors in the PDUFA Stakeholder Meetings
/in Cancer News, Cancer Policy Blog, FDA, NCCS News, Policy Comments NCCS News, Policy CommentsIn 1992, Congress passed the first Prescription Drug User Fee Act (PDUFA), a law that allows the Food and Drug Administration (FDA) to collect fees from drug companies that apply to the FDA for approval to market their drugs for specific medical conditions, e.g., a chemotherapy drug for ALK-positive lung cancer. All drugs that treat […]
NCCS Joins Patient Advocates in Proposing Alternative Approach to CMS’ Part B Drug Payment Demonstration
/in Cancer Policy Blog, CMS, NCCS News, Policy Comments Access to Care, Health Care Coverage, Payment Reform, Quality Cancer Care NCCS News, Policy CommentsNCCS joined with patient advocacy organizations in the Cancer Leadership Council (CLC) in submitting comments to the Centers for Medicare and Medicaid Services (CMS) on its proposed Part B drug payment demonstration project. Over many years, the CLC has advocated reforms in Medicare reimbursement for cancer care, to support the delivery of evidence-based care that […]
CMS’ Hospital Compare Star Ratings a Valuable Tool for Cancer Survivors to Make Informed Decisions About Their Care
/in Cancer News, Cancer Policy Blog, CMS, NCCS News, Policy Comments Access to Care, Affordable Care Act, Health Care Coverage, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News, Policy CommentsThe Centers for Medicare and Medicaid Services (CMS) announced that they are postponing the release of their Hospital Compare Star Ratings. This is an unfortunate delay, as these ratings will serve as a valuable tool for cancer survivors and their families to have the information necessary to make informed decisions about where they receive care. […]
WCOE: Traveling for Treatment, Bipartisan Cancer Policy, Some Tumors Evade Targeted Therapy, Treatment vs Hype, Clinical Trials Info
/in Cancer News, Cancer Policy Blog Access to Care, Clinical Trials NCCS NewsWhat Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. From @cure_magazine On the Road to Recovery: Traveling for #Cancer Treatment https://t.co/TFFijL2dpT #survivorship — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) March 9, 2016 Via @RollCall: #Cancer Experiences Could Help Forge Bipartisan Policy https://t.co/aBxTEO1UiX […]
Watch the Complete Video Recording of the Ellen Stovall Tribute Service
/in Cancer News, Cancer Policy Blog, NCCS News Care Planning, Quality Cancer Care NCCS NewsOn February 24, 2016, a tribute to celebrate the life and legacy of Ellen Stovall was held at the Carnegie Institution for Science in Washington, D.C. Family, friends, and colleagues shared their touching memories about a woman who was dedicated to her family, a three-time cancer survivor, and a tireless advocate on behalf of all […]
WCOE: Financial Issues Increase Pain, Ovarian Cancer Overlooked, Helping Patients Sleep, Colon Cancer Facts, and Missing Radiation Sessions
/in Cancer News, Cancer Policy Blog Palliative Care, Quality Cancer Care, Shared Decision-Making NCCS NewsWhat Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Sad (terrible!) and true, evidently: For Cancer Patients, Pain May Rise as Finances Dwindle – https://t.co/aORJocqABQ via @phillyhealthsci — Elaine Schattner MD, MA (@ESchattner) March 1, 2016 Experts find that #OvarianCancer still gets less medical […]
Vice President Joe Biden’s Tribute to Ellen Stovall’s Legacy
/in Cancer News, Cancer Policy Blog NCCS NewsAt yesterday’s moving tribute to Ellen Stovall, the following letter from Vice President Joe Biden was read to those in attendance. We wanted to be sure to share it with all of you. Dear Friends: It is with great sadness that I join you today in mourning the loss of Ellen Stovall—a beloved mother, spouse, […]
WCOE: Effects of Financial Toxicity, Patient Database Helps Researchers Nationally, New CLRC Handbook for Survivors, Metastatic Cancer and Employment
/in Cancer News, Cancer Policy Blog Care Planning, Financial Toxicity, Health Equity, Quality Cancer Care NCCS NewsWhat Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. #FinancialToxicity and high #costs of care create an undue physical & emotional burden on #cancer #survivors: https://t.co/5TecXglJjC — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) February 17, 2016 Ohio State-led patient database fills national […]
Guest Post: For the Love of My Mother
/in Cancer News, Cancer Policy Blog Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS NewsIn 1983, my mother was diagnosed with breast cancer. I was in college at the time and flew home to be by her side when she awoke from a radical mastectomy. My mother was fearless in the face of a disease that few spoke about outside of very private spaces. As a 22 year old, […]
WCOE: Peter Ubel Explores Healthcare Spending, Surgery Volume & Care Quality, Dr. Dizon Says “I Don’t Know,” and The Survivor Running Biden’s Moonshot
/in Cancer News, Cancer Policy Blog NCCS NewsWhat Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. "Time to de-vilify healthcare debates…All these folks are responding to systemic incentives." @peterubel https://t.co/KbIXvlHf0m — Shelley Fuld Nasso (@sfuldnasso) February 12, 2016 How does receiving #cancer #surgery in high-volume #California hospitals affect quality? https://t.co/gkaZw9cp9G — […]
WCOE: Genetic Testing for Cancer Survivors, Survivorship as a ‘Chronic Condition,’ Post-Treatment Neuropathy, Moonshot Funding
/in Cancer News, Cancer Policy Blog Quality Cancer Care, Survivorship Care NCCS NewsWhat Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Insurer's approval of genetic testing for some cancers raises questions https://t.co/zxk1j3y7EG via @usatoday — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) February 3, 2016 Important question: Is Cancer Survivorship a 'Complex Chronic Condition'? https://t.co/KxBYz3kAaS […]
NCCS Submits Comments to the Senate Finance Committee’s Bipartisan Chronic Care Working Group
/in Cancer News, Cancer Policy Blog, Policy Comments Access to Care, Health Care Coverage NCCS News, Policy CommentsNCCS recently submitted comments on the Senate Finance Committee’s “Bipartisan Chronic Care Working Group Policy Options Document” in response to the working group’s request for comments on possible policy options outlined in its report. Formed in May 2015, the working group is seeking ideas on how Medicare can improve the care of beneficiaries with multiple, […]
Join NCCS to Celebrate the Life and Legacy of Ellen Lewis Stovall
/in Cancer News, Cancer Policy Blog, NCCS News NCCS NewsThe National Coalition for Cancer Survivorship invites you to celebrate the life and legacy of Ellen Lewis Stovall. The tribute will be held on Wednesday, February 24, 2016 at the Carnegie Institution for Science in Washington, DC at 3:00pm. The address for the Carnegie Institution for Science: 1530 P Street NW Washington, DC 20005 Valet […]
WCOE: NCCS Moonshot Op-Ed, ACA Enrollment Deadline, Susan Gubar, BRCA Gene and Family, Poor Treatment Outcomes for Minorities
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Clinical Trials NCCS NewsWhat Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. NCCS CEO @sfuldnasso op-ed in @TheHill on #CancerMoonshot: Three questions @VP Biden's team needs to answer. https://t.co/3NAGYoyfHQ — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) January 28, 2016 Still need health ins. for 2016? […]
WCOE: Childhood Survivor Study on Cost, Dr. Gawande talks Care Quality, Lilly’s Tribute to Ellen, Smita Bhatia in Cure Magazine
/in Cancer News, Cancer Policy Blog Palliative Care, Quality Cancer Care NCCS NewsWhat Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Serious issue for survivors of childhood cancer. Childhood Cancer Survivors Forgo Care Because of Cost https://t.co/wpsMkuCI6D — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) January 22, 2016 "Death is not an inherent failure. Neglect […]
WCOE: ASCO Cancer Survivorship Symposium, Honoring Ellen Stovall at #SurvOnc16
/in Cancer News, Cancer Policy Blog Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS NewsWhat Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. ASCO Announces Creation of Ellen L. Stovall Award @canceradvocacy https://t.co/fRA0EncZHj #SurvOnc16 — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) January 15, 2016 Mary McCabe, RN, MA ends presentation with future cancer survivorship research needs. […]
ASCO Announces Creation of Ellen L. Stovall Award
/in Cancer News, Cancer Policy Blog, NCCS News NCCS NewsThe American Society of Clinical Oncology (ASCO) today announced the creation of the Ellen L. Stovall Award and Lecture for Advancement of Cancer Survivorship Care, intended to recognize and promote the work of pioneers and leaders in the growing field of survivorship. The annual award will honor Ellen’s contributions to the cancer survivorship movement and […]
Honoring Ellen Stovall, a Hero in Cancer Advocacy
/in Cancer News, Cancer Policy Blog, NCCS News NCCS NewsA note from NCCS CEO Shelley Fuld Nasso: Dear Friends, I write to you with the devastating news that the cancer community lost a hero this week. Our dear friend and colleague, Ellen Stovall, passed away on January 5th due to cardiac complications related to her cancer treatments. A 44-year survivor of three cancer diagnoses, […]
Remembering Ellen Stovall: Arrangements Announcement
/in Cancer News, Cancer Policy Blog, NCCS News NCCS NewsTo all of Ellen’s friends and family, here are the plans for the coming week. Funeral services for Ellen Stovall will be livestreamed at 1 PM on Sunday, January 10 from Congregation Beth Israel in Honesdale, PA. This is the synagogue where Ellen was named, confirmed, and married. She is going home. Click this link LIVESTREAM, […]
Ellen Stovall: One Person Can Make a Difference
/in Cancer News, Cancer Policy Blog, NCCS News NCCS NewsFrom 1992 to 2008, Ellen Stovall was the president and CEO of NCCS, the oldest survivor-led organization advocating for quality cancer care for all Americans. This video, filmed and produced in 2008, features interviews from NCCS co-founders Dr. Patti Ganz and Dr. Fitzhugh Mullan, Dr. Julia Rowland, Dr. Zeke Emanuel, the late General H. Norman […]
Remembering Ellen Stovall: A Message from Sandy Welton, Chairman of the Board of NCCS
/in Cancer News, Cancer Policy Blog, NCCS News NCCS News20 Years Later Series Wrap-Up: Julia Rowland Shares a History of the Imperatives and the Current Challenges in Survivorship
/in Cancer News, Cancer Policy Blog Quality Cancer Care, Shared Decision-Making NCCS NewsThis post is part of our 20 Years Later blog series which examines progress in advancing the principles in the 1995 NCCS publication Imperatives for Quality Cancer Care: Access, Advocacy, Action, and Accountability (Imperatives). The Twelfth Principle states, “Cancer survivors, health care providers and other key constituency groups must work together to increase public awareness; educate consumers, professionals, and […]
Guest Video: Meghan Gutierrez of LRF Discusses Progress in Lymphoma Treatment and Advocacy
/in Cancer News, Cancer Policy Blog NCCS NewsThis post is part of our 20 Years Later blog series which examines progress in advancing the principles in the 1995 NCCS publication Imperatives for Quality Cancer Care: Access, Advocacy, Action, and Accountability (Imperatives). The Twelfth Principle states, “Cancer survivors, health care providers and other key constituency groups must work together to increase public awareness; educate consumers, professionals, and […]
WCOE: Current Status of State Medicaid Expansion, Diversity of Clinical Trials, ACA Enrollment Deadline Extended
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Clinical Trials, Quality Cancer Care, Survivorship Care NCCS NewsWhat Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. UPDATED #MedicaidExpansion map: Includes status changes for #Virginia & #Utah https://t.co/03PuV7IlHO pic.twitter.com/bAtfVjd1vs — KFF (Kaiser Family Foundation) (@KFF) December 17, 2015 Via @NPR: Clinical Trials Still Don't Reflect The Diversity Of America https://t.co/wfziapU5Xu — NCCS […]
WCOE: ACA Enrollment Deadlines, Talking About President Carter’s Cancer, Tissue Donation and Cancer Research
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act NCCS NewsWhat Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Help us share these #ACA enrollment deadlines! pic.twitter.com/5hivYFf0Fh — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) December 10, 2015 3.5m uninsured people could have a $0 premium contribution or pay less for a health […]
The Affordable Care Act Open Enrollment Period: Key Points on Plan Selection and Enrollment Deadlines
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Care Coordination, Health Care Coverage, Quality Cancer Care NCCS NewsThe 2016 Affordable Care Act (ACA) open enrollment period ends January 31. There are some other important things to know about enrollment deadlines, especially if you already have an ACA plan or Medicaid coverage through the ACA. Key points on deadlines for renewing or getting health insurance If you need health insurance, you can get […]
WCOE: Evidence for Early Palliative Care in Cancer Patients, Big Data, #GivingTuesday, and “Hurry Up and Wait”
/in Cancer News, Cancer Policy Blog NCCS NewsWhat Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Black Friday. Cyber Monday. #GivingTuesday. 12/1 pic.twitter.com/pOgF0ictOW — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) November 30, 2015 Seeking a Cancer-Free World https://t.co/Xn9oK6yWIR via @nytimeswell — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) […]
NCCS Offers Comments on Alternative Payment Models for Cancer Care as Part of the Merit-Based Incentive Payment System (MIPS)
/in Cancer News, Cancer Policy Blog, Policy Comments Access to Care, Care Planning, Health Care Coverage, Payment Reform, Quality Cancer Care NCCS News, Policy CommentsNCCS submitted comments to the Centers for Medicare and Medicaid Services (CMS) in response to its request for feedback on the implementation key provisions of the Medicare Access and CHIP Reauthorization Act of 2015 (MACRA). Specifically, we offered comments on alternative payment models for cancer care as part of the Merit-Based Incentive Payment System (MIPS). […]
Event Announcement: Attend An Evening for Cancer Survivors & Caregivers in San Francisco on January 14th
/in Cancer News, Cancer Policy Blog, NCCS News NCCS NewsA special event for cancer survivors and caregivers will be taking place on January 14 from 6:30 PM to 9:00 PM at the San Francisco Marriott Marquis. An Evening for Cancer Survivors & Caregivers is presented by ASCO and the Conquer Cancer Foundation in collaboration with CancerCare, Cancer Support Community, LIVESTRONG, and the National Coalition […]
Dr. Julia Rowland Discusses the Importance of Psychosocial Care: Engagement and Dialogue
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Care Planning, Clinical Trials, Quality Cancer Care, Quality Measurement, Shared Decision-Making NCCS NewsThis post is part of our 20 Years Later blog series which examines progress in advancing the principles in the 1995 NCCS publication Imperatives for Quality Cancer Care: Access, Advocacy, Action, and Accountability(Imperatives). The eleventh principle states that “Psychosocial research is integral to comprehensive cancer care and, as such, psychosocial outcome measures should be included in all future clinical […]
WCOE: 65 Charts Illustrate Consumer Options from Kaiser, Low Income Is a Barrier to Clinical Trial Enrollment, NCCS CPAT Webinar Archives, and Resources for Spanish-Speaking Individuals
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act NCCS NewsWhat Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. NEW: 65 charts give a detailed look at deductibles, copayments & coinsurance in 2016 #ACA marketplace plans https://t.co/UAedAePXLI — KFF (Kaiser Family Foundation) (@KFF) November 16, 2015 New on Cancer Currents: Low Income Is a […]
WCOE: Impact of Discussions About Financial Burdens, Cancer’s Toll in Rural America, Autoimmune Diseases and Childhood Cancer Survivors
/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act NCCS NewsWhat Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Patient-provider discussions about financial burdens has positive impact on treatment costs https://t.co/05o7iPnlGc — Oncology Nursing News (@OncNursingNews) November 13, 2015 Found too late: Cancer's devastating toll in rural America, https://t.co/GcbHl0E2CO pic.twitter.com/XidLxrIhEA — Liz Szabo (@LizSzabo) […]
Video Post: Dr. Fred Smith Discusses Payment Systems in Cancer Care
/in Cancer News, Cancer Policy Blog Care Coordination, Care Planning, Clinical Guidelines, Quality Cancer Care, Shared Decision-Making NCCS NewsEarlier this year, Dr. Fred Smith participated in a National Coalition for Cancer Survivorship Cancer Policy Roundtable panel addressing the question of whether new cancer care payment systems foster the delivery of the right treatment at the right time. VIDEO TRANSCRIPT: I’m Fred Smith, I’m a practicing medical oncologist in the Washington community area and […]
WCOE: Open Enrollment, Lung Cancer Awareness, and a New Series on Healthcare Delivery from The Commonwealth Fund
/in Cancer News, Cancer Policy Blog NCCS NewsWhat Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Today is the 1st day you can enroll in a 2016 insurance plan via the Health Insurance Marketplace-Important dates at https://t.co/FFc30B4R1o — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) November 1, 2015 Did you […]
WCOE: Cancer Causing Infections, the Uncertainty of Prognosis, A Grim Breast Cancer Milestone for Black Women, Important Healthcare Marketplace Dates, and the Financial Toll of Cancer
/in Cancer News, Cancer Policy Blog Payment Reform, Quality Cancer Care NCCS NewsWhat Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Some viruses and other infectious agents can cause cancer in infected people. Here's a list: https://t.co/SMtaEBaIor — National Cancer Institute (@theNCI) October 28, 2015 The Uncertainty of Prognosis in Cancer: You Don’t Have an Expiration […]
Guest Post by Diane Blum: Developing the Systems to Meet the Psychosocial Needs as Part of Comprehensive Cancer Care
/in Cancer News, Cancer Policy Blog Clinical Guidelines, Payment Reform, Quality Cancer Care NCCS NewsTwenty years later, the 10th principle of the NCCS publication Imperatives for Quality Cancer Care: Access, Advocacy, Action, and Accountability (Imperatives), is as critical and significant as it was in 1995. When it was written, it followed years of psychosocial research that demonstrated that cancer created an emotional crisis for patients and families. It […]
Guest Post by Elizabeth J. Clark: Self-Advocacy is Critical to Quality Cancer Care
/in Cancer News, Cancer Policy Blog Care Coordination, Palliative Care, Quality Cancer Care, Survivorship Care NCCS NewsIn the past twenty years, many advances have been made in ensuring quality cancer care for persons living with cancer. Individuals now have better treatments, more options, more cures, and longer periods when they are cancer-free or in remission. Enhanced insurance coverage, especially the passage of the Affordable Care Act, has contributed to innovative programming in survivorship and […]
Celebrating the 2015 NCCS Focus on the Care Honorees in Pictures and Video
/in Cancer News, Cancer Policy Blog, NCCS News Care Coordination, Palliative Care, Quality Cancer Care, Shared Decision-Making NCCS NewsLast week we celebrated two individuals how have made cancer care better for survivors and their families—Dr. Richard Pazdur and Ellen Goodman. We were joined by survivors, advocates, researchers, innovators, and friends at our 2015 Focus on the Care reception in Washington, DC on Wednesday, October 21, 2015. In addition to our special attendees and […]
Video Post: A Special Celebration of the Life and Advocacy of Jessie Gruman, the Founder of the Center for Advancing Health
/in Cancer News, Cancer Policy Blog Care Coordination, Quality Cancer Care NCCS NewsFor more than twenty years, the National Coalition for Cancer Survivorship (NCCS) had the privilege of adapting our friend and colleague, Jessie Gruman’s important work into the development of the cancer policy work that we engage in. Jessie’s vision of patient engagement was always ahead of its time, and her books and blogs and participation […]
WCOE: Deciding About Dying, Discourse Surrounding New Mammogram Guidelines, Biden’s Commitment to Helping People with Cancer, and Breast Cancer in Developing World
/in Cancer News, Cancer Policy Blog Access to Care, Care Coordination, Clinical Trials, Palliative Care, Quality Cancer Care, Shared Decision-Making NCCS NewsWhat Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Living With Cancer: Deciding About Dying https://t.co/PvWH2UaBM2 — NYTimes Well (@nytimeswell) October 22, 2015 We commend Vice President Biden for his commitment to helping people affected by cancer. https://t.co/anRZc6FlHx — NCCS – National Coalition for […]
NCCS Celebrates “Focus on the Care” Reception in Honor of Dr. Richard Pazdur and Ellen Goodman
/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Clinical Trials, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS NewsLast night survivors, advocates, researchers, innovators, and friends gathered at our 2015 Focus on the Care reception in celebration of two honorees who have used their unique talents to help the millions of people affected by cancer. We are grateful for all who attended to show their support for Dr. Richard Pazdur and Ellen Goodman—two […]
Twenty Years Later Blog Series: Introducing the Tenth Principle of the Imperatives for Quality Cancer Care
/in Cancer News, Cancer Policy Blog Care Coordination, Care Planning, Psychosocial Care, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS NewsThis month, as part of our 20 Years Later blog series, we are revisiting the tenth principle of the 1995 NCCS publication Imperatives for Quality Cancer Care: Access, Advocacy, Action, and Accountability (Imperatives). The tenth principle states that “The provision of psychosocial services must be safeguarded and promoted. Persons diagnosed with cancer should receive psychosocial […]
Video Post: Dr. Keith Flaherty Discusses Genetics of Cancer, Targeted Therapies, and Clinical Trials
/in Cancer News, Cancer Policy Blog Access to Care, Clinical Guidelines, Clinical Trials, Quality Cancer Care NCCS NewsDr. Keith T. Flaherty gave the keynote talk at our 2015 Spring Cancer Policy Roundtable where he addressed the issues of the genetics of cancer and personalization in cancer treatment. Dr. Flaherty later joined us to further discuss these topics and the need for understanding the biologic basis of an individual patient’s cancer. While we […]
Announcing Two New Additions to the NCCS Leadership Team: An Introduction from Our CEO
/in Cancer News, Cancer Policy Blog, NCCS News NCCS NewsDear Friends, I am thrilled to announce two new additions to the NCCS leadership team, Elena Jeannotte and Christin Engelhardt. They both bring unique skills and experiences that will support our mission as we work towards making cancer care better for survivors and their loved ones. Elena Jeannotte joined NCCS as the Director of Philanthropy this […]
WCOE: The Dempsey Challenge, The 100 Day Project, LGBT HealthLink E-Summit, Integrating Palliative Care in Cancer Treatment, and More News
/in Cancer News, Cancer Policy Blog Care Coordination, Care Planning, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS NewsWhat Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. It's finally here! We're @DempChallenge w @CancerAdvocacy @CancerSupportCM @PreventCancer @PatrickDempsey! It's going to be a great #Maine! — BreakawayfromCancer (@BreakawayCancer) October 16, 2015 https://twitter.com/NikiBarrPhD/status/655062042769006592 Dr Diane Portman on Integrating Palliative Care in Cancer Treatment https://t.co/WBn6sq8n0c […]
NCCS to Honor Dr. Richard Pazdur and Ellen Goodman at “Focus on the Care” Reception
/in Cancer News, Cancer Policy Blog, NCCS News Quality Cancer Care, Survivorship Care NCCS NewsSilver Spring, MD — The National Coalition for Cancer Survivorship will host a reception to honor Dr. Richard Pazdur and Ellen Goodman on Wednesday, October 21st in Washington, DC. Survivors, friends, advocates, health providers, researchers, policymakers, and members of the press are invited to attend as we celebrate these individuals who have made cancer care […]
Video Post: Dr. Bob Carlson and Joan McClure Discuss the National Comprehensive Cancer Network Guidelines
/in Cancer News, Cancer Policy Blog Care Coordination, Care Planning, Clinical Guidelines, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS NewsThe National Comprehensive Cancer Network (NCCN) is a non-profit organization, created by an alliance of 26 leading cancer centers in the United States. At the National Coalition for Cancer Survivorship’s 2015 Spring Cancer Policy Roundtable, Dr. Bob Carlson and Joan McClure of NCCN sat down with us to talk about their organization’s Clinical Practice Guidelines. […]
WCOE: Doctors as Friends, Cancer’s Definitive Effects, Therapy as Art, and More
/in Cancer News, Cancer Policy Blog Quality Cancer Care, Survivorship Care NCCS NewsWhat Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Living With Cancer: My Doctor, My Friend https://t.co/w9qEXXXLka via @nytimeswell — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) October 5, 2015 Cancer: a Defining Experience? https://t.co/vkq8SUCDfV via @usnews — NCCS – National Coalition for […]
Metastatic Breast Cancer: A Student’s Perspective
/in Cancer News, Cancer Policy Blog Care Coordination, Care Planning, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS NewsRecently I had the privilege of attending “A Journey of Courage and Hope: The Johns Hopkins Metastatic Breast Cancer Retreat for Couples.” Facilitated by a renowned leader in patient-centered breast cancer care, Lillie Shockney, this unique retreat for patients and their spouses explores the resources to cope physically, financially, and emotionally with the chronic nature […]
WCOE: Life-saving End-of-life Discussions, New HHS Investment, When Seniors Talk to Med Students, and More
/in Cancer News, Cancer Policy Blog Care Planning, Palliative Care, Payment Reform, Quality Cancer Care NCCS NewsWhat Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. "A nurse with fatal breast cancer says end-of-life discussions saved her life" #choosingwisely @NotesOnNursing https://t.co/cPhjYxPKGt — ABIM Foundation (@ABIMFoundation) September 29, 2015 How does cancer affect people from different populations and groups? This video explains […]
Guest Post by Dr. Patricia Ganz: What Cancer Patients and Their Families Can Do to Coordinate Post-Treatment Care
/in Cancer News, Cancer Policy Blog Care Coordination, Care Planning, Clinical Guidelines, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS NewsTwenty years later, the 9th Principle of the NCCS Imperatives for Quality Cancer Care could not be more relevant. Increasingly, patients are required to take more responsibility for their health, using knowledge and self-monitoring tools that have become an essential part of medical care, such as monitoring of blood pressure, physical activity, and weight-—to name […]
Remembering Dr. Brent Whitworth, A Dear Friend and Compassionate Doctor
/in Cancer News, Cancer Policy Blog Care Planning, Palliative Care, Quality Cancer Care, Shared Decision-Making NCCS NewsPost by NCCS CEO Shelley Fuld Nasso Today marks three years since my dear friend, Dr. Daniel Brent Whitworth, passed away at the age of 43, 19 months after being diagnosed with advanced kidney cancer. I met Brent on the first day of orientation week at Rice University in 1987. We became fast friends, had the […]