WCOE: The Dempsey Challenge, The 100 Day Project, LGBT HealthLink E-Summit, Integrating Palliative Care in Cancer Treatment, and More News
What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. It's finally here! We're @DempChallenge w @CancerAdvocacy @CancerSupportCM @PreventCancer @PatrickDempsey! It's going to be a great #Maine! — BreakawayfromCancer (@BreakawayCancer) October 16, 2015 https://twitter.com/NikiBarrPhD/status/655062042769006592 Dr Diane Portman on Integrating Palliative Care in Cancer Treatment https://t.co/WBn6sq8n0c […]
NCCS to Honor Dr. Richard Pazdur and Ellen Goodman at “Focus on the Care” Reception
Silver Spring, MD — The National Coalition for Cancer Survivorship will host a reception to honor Dr. Richard Pazdur and Ellen Goodman on Wednesday, October 21st in Washington, DC. Survivors, friends, advocates, health providers, researchers, policymakers, and members of the press are invited to attend as we celebrate these individuals who have made cancer care […]
Video Post: Dr. Bob Carlson and Joan McClure Discuss the National Comprehensive Cancer Network Guidelines
The National Comprehensive Cancer Network (NCCN) is a non-profit organization, created by an alliance of 26 leading cancer centers in the United States. At the National Coalition for Cancer Survivorship’s 2015 Spring Cancer Policy Roundtable, Dr. Bob Carlson and Joan McClure of NCCN sat down with us to talk about their organization’s Clinical Practice Guidelines. […]
WCOE: Doctors as Friends, Cancer’s Definitive Effects, Therapy as Art, and More
What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Living With Cancer: My Doctor, My Friend https://t.co/w9qEXXXLka via @nytimeswell — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) October 5, 2015 Cancer: a Defining Experience? https://t.co/vkq8SUCDfV via @usnews — NCCS – National Coalition for […]
Metastatic Breast Cancer: A Student’s Perspective
Recently I had the privilege of attending “A Journey of Courage and Hope: The Johns Hopkins Metastatic Breast Cancer Retreat for Couples.” Facilitated by a renowned leader in patient-centered breast cancer care, Lillie Shockney, this unique retreat for patients and their spouses explores the resources to cope physically, financially, and emotionally with the chronic nature […]
WCOE: Life-saving End-of-life Discussions, New HHS Investment, When Seniors Talk to Med Students, and More
What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. "A nurse with fatal breast cancer says end-of-life discussions saved her life" #choosingwisely @NotesOnNursing https://t.co/cPhjYxPKGt — ABIM Foundation (@ABIMFoundation) September 29, 2015 How does cancer affect people from different populations and groups? This video explains […]
Guest Post by Dr. Patricia Ganz: What Cancer Patients and Their Families Can Do to Coordinate Post-Treatment Care
Twenty years later, the 9th Principle of the NCCS Imperatives for Quality Cancer Care could not be more relevant. Increasingly, patients are required to take more responsibility for their health, using knowledge and self-monitoring tools that have become an essential part of medical care, such as monitoring of blood pressure, physical activity, and weight-—to name […]
Remembering Dr. Brent Whitworth, A Dear Friend and Compassionate Doctor
Post by NCCS CEO Shelley Fuld Nasso Today marks three years since my dear friend, Dr. Daniel Brent Whitworth, passed away at the age of 43, 19 months after being diagnosed with advanced kidney cancer. I met Brent on the first day of orientation week at Rice University in 1987. We became fast friends, had the […]
Caring for Cancer Survivors: A Primary Care Physician’s Perspective on the Last Twenty Years and the Road Ahead
Over the past twenty years, the number of cancer survivors has grown substantially. Survivors are also living longer, getting older, and have numerous medical conditions that require attention. While survivors typically receive general medical care in primary care settings, the role of primary care providers (PCPs) in the long-term follow up of survivorship needs is […]
Amy Berman’s Open Letter in the Washington Post on Shared Decision-Making and Individual Goals
Yesterday in the Washington Post, Amy Berman shared her experience with her cancer treatment. She was diagnosed nearly five years ago with an incurable cancer, and she has made decisions about her treatment that support her goal of living as well as she can for as long as she can. She rejected aggressive treatments, including […]
NCCS to Join Cancer Twitter Chat on Tuesday, September 29th
We are pleased to be joining a Cancer Twitter Chat on Tuesday, September 2, 2015 from 2:00 pm to 3:00 pm EDT. The chat will be hosted by the Patient-Centered Outcomes Research Institute (PCORI), an independent nonprofit, nongovernmental organization located in Washington, DC. PCORI was created to help people make better informed healthcare decisions. NCCS […]
Twenty Years Later Blog Series: Introducing the Ninth Principle of the Imperatives for Quality Cancer Care
As part of our 20 Years Later blog series which examines progress in advancing the principles in the 1995 NCCS publication Imperatives for Quality Cancer Care: Access, Advocacy, Action, and Accountability (Imperatives), this month we will look at the ninth principle of Imperatives: “The responsibility for appropriate long-term medical care must be shared by cancer survivors, […]
WCOE: Sept. 29 Chat About Side Effects, Friends at the End of Life, (Mostly) Living With A Brain Tumor, and More
What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Join us on Sept 29 at 2pm ET for a chat about #cancer side effects & symptoms. Use #CTalk. https://t.co/oix4S5ISms — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) September 27, 2015 https://twitter.com/NikiBarrPhD/status/647408343598809088 Seeing is […]
WCOE: What Nurses Should Be Aware Of When Caring For Older Patients, The Meaning of Teal Ribbons, Breaking Good and Bad News, and More
What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Christian Nelson, PhD, discusses what nurses should be aware of when caring for an older patient with cancer https://t.co/hN7uj53frj — Oncology Nursing News (@OncNursingNews) September 18, 2015 Living With Cancer: Teal Ribbons https://t.co/fcOOPD2G7e — NYTimes […]
NCCS Submits Letters, Joins Cancer Leadership Council and C-P Alliance, in Comments to CMS on Proposed Revisions to Medicare Physician Fee Schedule
NCCS submitted letters to the Centers for Medicare and Medicaid Services (CMS) on its proposed revisions to the Medicare physician fee schedule for calendar year 2016. In our letter, NCCS commended CMS for its efforts to enhance comprehensive care management for certain Medicare beneficiaries. Through improvements in fee-for-service payments and various demonstration initiatives, CMS has made […]
Video Post: Author Susan Gubar Talks About Palliative Care and Living Well with Cancer
The terms “palliative care,” “hospice,” and “end-of-life care” are often used interchangeably, but they are not the same. Palliative care includes symptom management and other supportive care that can be provided throughout cancer treatment, whether a cure for the illness is or is not expected. Patients should expect palliative care throughout treatment, as it is […]
WCOE: How Chemo is Given, PCORI Hosts Twitter Chat About Cancer Side Effects, “Good Cancer,” How Mammography is Both Helping and Hurting, and Lung Cancer Incidence Increases in Never-Smokers
What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. How is chemotherapy given? In many different ways, as we explain: https://t.co/vqUOL5PBtc pic.twitter.com/tS2Xn8fiwe — National Cancer Institute (@theNCI) September 9, 2015 Sept 29 at 2pm ET: join our Twitter chat about #cancer side effects & […]
Video Post: Advocate Marlene King Discusses Communicating End-of-Life Preferences and Quality of Life
In 2008, Marlene King was diagnosed with ductal carcinoma. After treatment, the cancer seemed to be in remission, however in December 2011 the cancer returned in the same breast. She opted for a double mastectomy with expanders and implants. In late July 2012, she learned that her cancer had metastasized to her sternum, as well […]
WCOE: Gynecologic Cancer Awareness Month, A Building Bloom, Double Mastectomies on the Rise for Men with Breast Cancer
What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. It's Gynecologic #Cancer Awareness Month. Learn more about the different cancers here: https://t.co/1RQgV3LeYJ #GynCSM — NCI Cancer Stats (@NCICancerStats) September 3, 2015 A cancer building boom, fueled by economics and an aging population https://t.co/bwjkXxkzHL — […]
Video Post: Dr. Claire Snyder Discusses How Patient-Reported Outcomes Can Improve Cancer Care
In March 2015, Dr. Claire Snyder participated in a panel discussion at the Cancer Policy Roundtable hosted by the National Coalition for Cancer Survivorship. The panel featured perspectives on how cancer patients and oncology professionals can work together to improve care planning and patient outcomes. Following the panel, Dr. Snyder sat down with us to […]
Guest Post by Dr. Melissa Hudson: How Has the Childhood Cancer Survivor Study Informed the Care of Children With Cancer?
Progress in survival for childhood malignancies is tempered by the sequelae of the cancer and its treatment. Compelling evidence supports that childhood cancer survivors are a highly vulnerable group with a substantial risk of adverse health-related and quality-of-life outcomes resulting from their curative cancer therapy, broadly called “late effects”. Observational studies of survivor health outcomes […]
WCOE: Poll Finds Women Think Mammograms Should Be Done Annually, Why Your Doctor Won’t ‘Friend You,’ Hospice Use Patterns, Susan Gubar’s Latest
What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Via @NPR: Poll Finds Most Women Believe Mammograms Should Be Done Annually https://t.co/RNAhxWn8LN — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) August 28, 2015 Via @NPR: Why Your Doctor Won't Friend You On Facebook […]
Guest Post by Amy Abernethy of Flatiron Health: Long-Term Medical Data Collection Improves Care Quality, Outcomes
I once had a patient named Janet. Janet was a curly redhead emergency department nurse. She was vibrant, sweet, and vivacious, had melanoma, and was passionate about her data (her “story” as she liked to call it) being used in ways that would impact the future of cancer care. But this isn’t as easy as […]
NCCS Responds to Draft ASCO Conceptual Framework to Assess the Value of Cancer Treatment Options
NCCS recently submitted comments to the American Society for Clinical Oncology (ASCO) on its proposed value framework. In June, ASCO published a draft of the framework, “A Conceptual Framework to Assess the Value of Cancer Treatment Options,” in the Journal of Clinical Oncology and solicited feedback from stakeholders. ASCO described the framework as “the basis […]
WCOE: How To Know Whether to Believe a Health Study, Cancer Statistics, Minority Access To Care, President Carter’s Cancer, and More
What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. How to Know Whether to Believe a Health Study https://t.co/7gjJF2nTPb via @UpshotNYT #gyncsm via @SGO_org — Dee Sparacio (@womenofteal) August 18, 2015 Our recent issue brief explores racial & ethnic disparities in access to & […]
Twenty Years Later Blog Series: Introducing the Eighth Principle of the Imperatives for Quality Cancer Care
Over the course of 2015, NCCS and a diverse group of guest contributors will revisit the Imperatives for Quality Cancer Care as published in 1995 and evaluate progress made to date in achieving the principles proposed and ensuring that they guide the cancer care experience. The eighth principle of the Imperatives for Quality Cancer Care states, “Systematic long-term […]
Logistic Toxicity and Administrative Burdens for Cancer Survivors and Caregivers
There are many types of toxicities cancer patients face in their treatment. We hear most about the physical toxicities of treatment – nausea, pain, fatigue, heart damage, etc. Fortunately, the non-physical toxicities are getting more attention by physicians, policymakers, and patient advocates. Dr. Yousuf Zafar (@yzafar) has made the term “financial toxicity” – the crippling […]
WCOE: Hunting for Health Care Procedures, Surging Costs of Cancer Care, Getting to Doctors Appointments, Logistic Toxicity, and A Beautiful Piece by Oliver Sacks
What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Sites that are like #Priceline for #healthcare give consumers more power, but brings more responsibility to consumer: https://t.co/JkgQ8yLeYR — Peter Ubel (@peterubel) August 12, 2015 Lots written lately about the soaring cost of #cancer care, […]
WCOE: ACA’s Out-Of-Pocket Maximums, Susan Gubar on Cancer and Loneliness, Pre-hab: Rehab Before Treatment, and Death with Dignity Advocacy
What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. #ACA out-of-pocket maximums create undue burden for some patients https://t.co/qpTJaUAHip #financialtoxicity — Yousuf Zafar, MD MHS (@yzafar) August 4, 2015 When cancer patients need help, they are often surprised to find that long-trusted friends have […]
Guest Post: Developing Clinical Solutions to Improve Survivorship Care: The Value of Partnership
We are living in an exciting and dynamic time for cancer care, witnessing not only tremendous innovations in treatment that have led to a growth in survival rates, but also advances in screening and opportunities for earlier detection. In combination with an aging population, this translates into and unprecedented growth in the numbers of individuals […]
Guest Post: Oncologist and Cancer Survivor Greg Aune Talks Multi-Disciplinary Care
The seventh principle in the Imperatives for Quality Cancer Care states, “Long-term survivors should have access to specialized follow-up clinics that focus on health promotion, disease prevention, rehabilitation, and identification of physiologic and psychological problems. Communication with the primary care physician must be maintained.” Providing his perspective on the state of long-term survivorship care and […]
WCOE: Medicare’s 50th Anniversary, ASCO Post Talks #CPAT15 and #PACTACt, and Helping Patients and Doctors Talk About Death
What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Helping Patients and Doctors Talk About Death https://t.co/H0jFvolViO — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) July 27, 2015 Join us today, at 10:30 am ET for the Medicare and Medicaid 50th celebration! #KeepingUSHealthy […]
Guest Post Series: Dr. Michael Ybarra Offers Innovator Perspective on Oncology Care Model
The Centers for Medicare and Medicaid Services (CMS) recently announced the Oncology Care Model, a new payment model for physician practices administering chemotherapy that aims to provide higher quality, more highly coordinated oncology care at a lower cost to Medicare. This week, we’re presenting several different perspectives on the Oncology Care Model and how it […]
Guest Post Series: NCCS CEO Shelley Fuld Nasso Offers Advocate’s Perspective on Oncology Care Model
The Centers for Medicare and Medicaid Services (CMS) recently announced the Oncology Care Model, a new payment model for physician practices administering chemotherapy that aims to provide higher quality, more highly coordinated oncology care at a lower cost to Medicare. This week, we’re presenting several different perspectives on the Oncology Care Model and how it […]
Video Post: Cancer Patients and Survivors Describe Quality Cancer Care
What is quality cancer care? At a recent NCCS Cancer Policy Advocate Training event, we spoke to cancer patients and survivors about their definitions of quality cancer care. How do you define cancer care? Share your thoughts in the comments and let us know what you think. The Institute of Medicine (IOM) and others have […]
Guest Post Series: Dr. John Cox Offers Physician’s Perspective on Oncology Care Model
The Centers for Medicare and Medicaid Services (CMS) recently announced the Oncology Care Model, a new payment model for physician practices administering chemotherapy that aims to provide higher quality, more highly coordinated oncology care at a lower cost to Medicare. This week, we’re presenting several different perspectives on the Oncology Care Model and how it […]
Cancer Survivorship: You’re Never Really Done
When the Imperatives of Quality Cancer Care were written by NCCS 20 years ago, one principle of quality care stated that, “Long-term survivors should have access to specialized follow-up clinics that focus on health promotion, disease prevention, rehabilitation, and identification of physiologic and psychological problems. Communication with the primary care physician must be maintained.” It […]
Guest Video: Mary McCabe Discusses Survivorship Care Planning and the Delivery of Coordinated Care
At the NCCS Cancer Policy Advocate Training (CPAT) held in Washington, DC from June 24-25, Mary McCabe, RN, MN spoke to patient advocates about survivorship care planning and models for delivering survivorship care. This presentation was part of a larger panel titled, Survivorship Care Planning and the Delivery of Coordinated Care. In alignment with July’s […]
WCOE: Chemo for Late-Stage Cancers, Talking about Drug Prices, the Importance of Care Coordination, and the Rise of End-of-Life Care
"We as oncologists don't want to give up on people, and patients don't want to be given up on." https://t.co/LFsysgxJsi #Chemo at #EOL — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) July 23, 2015 Drug Prices Soar, Prompting Calls for Justification, National Coalition on HealthCare: call for transparency legislat https://t.co/vnOAx3Q3Qw — Daniel Wolfson (@WolfsonD) […]
Twenty Years Later Blog Series: Introducing the Seventh Principle of the Imperatives for Quality Cancer Care
The seventh principle in the Imperatives for Quality Cancer Care states, “Long-term survivors should have access to specialized follow-up clinics that focus on health promotion, disease prevention, rehabilitation, and identification of physiologic and psychological problems. Communication with the primary care physician must be maintained.” Over the last 20 years, survivorship clinics have emerged to address […]
WCOE: Susan Gubar Giving Thoughts of Thanks, Discovering Patients’ Wishes, JAMA Study on Advance Care Planning, and More
Living With Cancer: Curses and Blessings https://t.co/1JPw42OYPC via @nytimeswell — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) July 17, 2015 "The real test for physicians is being willing to meet the challenge of discovering our patient’s true wishes" https://t.co/xfXgeUmODq — Shelley Fuld Nasso (@sfuldnasso) July 17, 2015 See study in @JAMAOnc https://t.co/hsqg7hHU8E on advance […]
Medicare Proposal to Cover Advance Care Planning Conversations Marks an Important Step toward Patient-Centered Care
Last week the Centers for Medicare & Medicaid Services (CMS) announced plans to support Medicare beneficiaries by reimbursing doctors for advance care planning beginning in January 2016. The proposed codes would reimburse for discussions about an individual’s wishes, should he or she becomes too ill to make decisions, and for the completion of an advance […]
WCOE: Shared Decision-Making, Medicare Plans to Pay Doctors to Talk About End-of-Life Care, and Patient Advocate Meets with Congressional Representative
Patients should learn ALL treatment options. @nprnews: Knowing How Doctors Die Can Change End-Of-Life Discussions https://t.co/If5z8vn6bC — Shelley Fuld Nasso (@sfuldnasso) July 7, 2015 "Death panel" was an unfortunate misnomer and we should not perpetuate it. Patients deserve advanced care planning. https://t.co/7c8R63jb7D — Shelley Fuld Nasso (@sfuldnasso) July 9, 2015 "Shared decision-making is a relationship […]
Discussing “Good” and “Hard” Deaths: Columnist Ellen Goodman’s Opinion Piece “How to Talk About Dying”
In a recent opinion post in The New York Times, columnist Ellen Goodman writes intimately about the loss of her parents. Decades after the death of her father, Goodman felt wholly unprepared for the decisions that needed to be made as her mother’s health declined, assuming—like many caregivers and loved ones do—that death would be […]
Advocates from Across the US Discuss Key Survivorship Issues at Cancer Policy Advocate Training
Last week, advocates from across the country came together for the NCCS Cancer Policy Advocate Training (CPAT). Participants spent two days being trained on the most pressing policy issues affecting cancer survivorship care in the United States. The program agenda focused on the needs of cancer survivors from diagnosis to treatment and through long-term survivorship […]
Navigating Cancer Survivorship Without a Net: How Far Have We Come and Where Are We Headed?
Diagnosed, in 1994, with stage three testicular cancer with metastases to several lymph nodes and both lungs followed by an unrelated diagnosis of kidney cancer three months later, I found myself completely unprepared for the journey I was about to embark on. At the age of 25, while many of my friends were planning weddings, […]
Hodgkin’s Lymphoma Survivor Dr. Greg Aune Discusses Issues in Long-Term Survivorship Care
At age 16, Greg Aune was diagnosed with Hodgkin’s Lymphoma and was successfully cured of his disease after undergoing one year of chemotherapy and radiation treatments. His cancer experience led Dr. Aune down a path to becoming a pediatric oncologist and physician scientist. In this video, Dr. Aune discusses issues of long-term survivorship care and […]
WCOE: Supreme Court Ruling Breathes Life Into Affordable Care Act, Patient Advocates in DC for #CPAT15 Visit the Hill to Show Support for PACT Act, Sponsored by Congresswoman Lois Capps and Congressman Charles Boustany
Supreme Court decision is good news for cancer patients who need help purchasing health insurance. #SCOTUS #KingvBurwell — Shelley Fuld Nasso (@sfuldnasso) June 25, 2015 Check out this blog post about yesterday's #PACTAct visits https://t.co/A3JCmpbwxs — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) June 25, 2015 Thank you @RepBoustany for your […]
NCCS Applauds U.S. Supreme Court Ruling Upholding Key Provision of the Patient Protection and Affordable Care Act
The National Coalition for Cancer Survivorship applauds the U.S. Supreme Court ruling in King v. Burwell. In a 6-3 decision authored by Chief Justice John G. Roberts Jr., the Supreme Court upheld tax credits in federal exchanges to help low- and middle-income individuals purchase health insurance, a key provision of the Patient Protection and Affordable […]
Bipartisan Bill to Improve Cancer Care Is Introduced in House by Representatives Capps and Boustany
Planning Actively for Cancer Treatment (PACT) Act (H.R. 2846) would enhance care of millions of Medicare patients Washington, D.C. – Congresswoman Lois Capps (D-CA) and Congressman Charles Boustany, Jr., M.D., (R-LA) today introduced the Planning Actively for Cancer Treatment (PACT) Act (H.R. 2846), which would significantly improve the quality and coordination of care for Medicare […]
NCCS Submits Comments to the Senate Finance Committee in Response to Bipartisan Effort to Improve Care for Medicare Patients with Chronic Conditions
Today the National Coalition for Cancer Survivorship (NCCS) submitted comments to the Senate Finance Committee in response to a bipartisan effort to begin exploring solutions that will improve outcomes for Medicare patients requiring chronic care. Cancer has a major impact on the Medicare program—68% of cancer deaths occurring in individuals 65 years of older, and […]
WCOE: When Doctors Don’t Talk to Doctors, “Below-the-Belt” Cancers, and the Psychological Effects of Chemo
When Doctors Don’t Talk to Doctors https://t.co/kp02F3nj9q via @nytimeswell — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) June 18, 2015 Via @nprnews: It's Time To Pay Attention To 'Below-The-Belt' Cancers https://t.co/baiKgzecyu — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) June 18, 2015 Psychological effects of chemotherapy: Video interview of Susan Gubar https://t.co/ue13Y2v7wc #chemobrain […]
WCOE: Online Health Search Privacy, King v. Burwell Updates, Pain Post-Surgery, and Susan Gubar’s Latest on Living with Cancer
Via @nprnews: Online Health Searches Aren't Always Confidential https://t.co/rfReY21RJu — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) June 9, 2015 In Lumpectomy For Breast Cancer, Taking Out A Bit More Reduces O.R. Revisits https://t.co/hekdE8RRGB via @forbes — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) June 9, 2015 All of our resources on the […]
Guest Post: “Coughing and Spluttering” — NCCS Co-Founder Susie Leigh Writes About Improving Care for Long-Term Survivors
The sixth principle of the Imperatives states, “People with histories of cancer have the right to continued medical follow-up with basic standards of care that include the specific needs of long-term survivors.” NCCS has been on the forefront of incorporating care and survivorship care plans into cancer care. Providing her perspective of the history of […]
NCCS CEO Shelley Fuld Nasso Introduces the Sixth Principle of the Imperatives for Quality Cancer Care
We’re revisiting 20 years of advocacy with our 20 Years Later blog series. In this video, NCCS CEO Shelley Fuld Nasso introduces the 6th principle of the Imperatives for Quality Cancer Care and discusses progress and remaining opportunities for meeting the needs of cancer patients and survivors. (Video transcript): The sixth principle in the Imperatives for […]
Reflections on Cancer Survivors Day: Managing Survivorship for a Lifetime
On Sunday, June 7th, we are reminded by cancer centers to celebrate National Cancer Survivors Day®. Today, there are a sea of colors for different cancer ribbons and wristbands, e.g., the ubiquitous pink for breast cancer, amber for bladder cancer, grey for brain cancer, yellow for all cancers, and so on. But many of us […]
WCOE: Precision/Gene-Targeting Medicine Study, Surgery and Early-Stage Breast Carcinoma, Other Updates
In the News: "Major government cancer study will test precision, gene-targeting medicine" https://t.co/nacNaRCo0K via @KPCC #NCIMatch — National Cancer Institute (@theNCI) June 5, 2015 Doctors Seek Test for Deploying New Life-Extending Cancer Drugs https://t.co/YVluoVMUEb #cancer #immunotherapy — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) June 5, 2015 Via @nprnews: Questions Remain: Surgery and Early-Stage […]
Communication, Quality of Life Issues, and Defining Value at 2015 ASCO Annual Meeting
The annual American Society of Clinical Oncology meeting is often followed by a flurry of announcements and news as developers of cancer drugs present results about their recent clinical trials. While news of new tools to help increase cancer survival rates is always welcome, many patient advocates attend the annual meeting with a focus on […]
WCOE: Touching Tribute in Memory of Chris Tannous, Paying for Cancer Treatment, A Life-Saving Second Opinion, and the Underbelly of Medicine
Did A Study Overreach When It Said A Vaccine Prevents Leukemia? https://t.co/137H1AK7y5 — NPR Health News (@NPRHealth) May 27, 2015 Our hearts are saddened by the loss of AIS Member Chris Tannous. Read this beautiful tribute: https://t.co/fDrAt0ScfG pic.twitter.com/eTvGDfqqeY — Susan G. Komen (@SusanGKomen) May 29, 2015 The #Oncology Care Model is changing the nature of […]
Our Response to the Recent Allegations of Misuse of Donor’s Gifts by Four Cancer Charities
This week, we learned the heartbreaking news that four cancer charities have been accused of misusing donor’s gifts, spent lavishly on inappropriate expenses, and did little to support the cancer patients they claimed to help. On behalf of our colleagues in the cancer community, and the millions of cancer survivors and caregivers, we find this breach […]
