• Link to Facebook
  • Link to X
  • Link to Youtube
  • Link to Instagram
  • Link to LinkedIn
  • Link to Rss this site
  • Store
  • Donate
  • About
        • About Us

        • Cancer Nation is the oldest cancer survivor-led non-profit organization in America. We advocate for quality cancer care for all touched by cancer.

        • About NCCS

        • Our Mission
        • What is Advocacy?Learn about the different types of cancer advocacy, from personal advocacy to public interest advocacy.
        • Our HistoryRead how Cancer Nation’s leaders coined the term “cancer survivor,” and established the nation’s first survivor-led non-profit organization.
        • Our Team
        • Financial Information
        • Employment
        • Contact Us
        • Support Our Mission

        • Make A GiftSupport our mission of quality cancer care for all with a gift to Cancer Nation.
        • The 1986 ClubMake a monthly commitment to support Cancer Nation, empower cancer survivors, and advance public policy.
        • Ways to GiveLearn about other ways you can contribute to Cancer Nation such as planned giving, employer matches, shopping online, and more.
        • Partnerships
  • News
    • Cancer Nation News
    • Advocate SpotlightEach month, Cancer Nation highlights a cancer survivorship advocate, sharing their story and the work they do in their communities.
    • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
    • Issue StatementsRead Cancer Nation statements on pressing issues and developments in Washington affecting cancer survivors and their families.
  • Policy
        • Policy

        • Public policy is government action, in the form of legislation, regulation, funding, and other actions. Public policy affects people with cancer and the cancer care system in many ways.

        • Our Policy Priorities

        • Quality Cancer CareQuality cancer care is essential for patients. Learn how Cancer Nation and others define quality.
        • Access to CareCancer Nation believes cancer care and clinical trials should be affordable and accessible to everyone.
        • Health EquityThe cancer experience is not the same for everyone. Cancer Nation works on policy efforts to reduce disparities in outcomes.
        • Current Issues

        • Protecting Access to Medicaid for Cancer Survivors
        • Comprehensive Cancer Survivorship Act (CCSA)The CCSA is a large comprehensive bill introduced in Congress that aims to improve quality of care in all stages of a diagnosis.
        • Cancer Care Planning and Communications Act (CCPCA)CCPCA is a bill that would provide a billable Medicare service code for cancer care planning.
        • DIEP Flap AccessCancer Nation advocates for protection of access to DIEP Flap Breast Reconstruction Surgery for all breast cancer survivors.
        • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
        • Issue StatementsRead Cancer Nation statements on pressing issues and developments in Washington affecting cancer survivors and their families.
        • Quality Measurement Research
  • Get Involved
        • Get Involved

        • Whether you’re new to cancer advocacy or already have experience as an advocate, there are numerous ways you can get involved with Cancer Nation.

        • Join Cancer Nation

        • Cancer Nation AdvocatesA program that brings together individuals who care about cancer care to learn how policy shapes our health care system—and how we can improve it together.
        • Cancer Nation Leadership AcademyEmerging leaders improving cancer care in their communities.
        • Cancer Nation Corporate Council
        • Advocacy OpportunitiesThis page provides a list of upcoming events, webinars, conferences, and advocacy campaigns from Cancer Nation and other leading cancer organizations.
        • Connect with Us

        • Subscribe to Cancer Nation Updates
        • Follow Cancer Nation on Social Media
        • Survivor Stories
        • Cancerversary
        • Support Cancer Nation

        • Make A Gift
        • Ways to Give
        • The 1986 Club
  • Survivorship Survey
        • State of Survivorship Survey

        • Cancer Nation conducts an annual State of Survivorship Survey, in partnership with Edge Research, to explore the cancer patient and survivor journey. This study captures a range of perspectives to better understand how Cancer Nation can support its mission to advocate for quality cancer care for all.

        • Reports by Year

        • 2025 Survey Report
        • 2024 Survey Report
        • 2023 Survey ReportThe 2023 Survey explored the caregiver experience for the first time, and features new data on the effect of cancer treatment on employment.
        • 2022 Survey ReportThe 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.
        • 2021 Survey ReportThe 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.
        • 2020 Survey ReportIn the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.
  • Survivorship Checklist
        • Cancer Survivorship Checklist

        • The Cancer Survivorship Checklist is designed to be a simple, straightforward tool patients and caregivers can use as a guide for information critical to their care wherever they are on the cancer care continuum.

        • Start Your Cancer Survivorship Checklist
        • Survivorship Checklist Guide for Clinicians
        • Resources for Cancer Survivors

        • Survivorship ResourcesA collection of resources that provide information about navigating the cancer journey.
        • Cancer RehabilitationA supportive health care service that helps improve a person’s functioning during and after cancer treatment.
        • Integrative OncologyA field that combines traditional cancer treatments with therapies that support a person’s natural healing ability.
        • Palliative CareSpecialized medical care for people living with a serious illness that provides relief from the symptoms and stress to improve their quality of life.
        • Cognitive HealingA resource to support cognitive functioning after cancer treatment. Includes cognitive training strategies and tools for both adults and children.
  • Resources
        • Resources

        • Cancer Nation provides a wide variety of resources for patients, caregivers, and health care professionals.

        • Resources for Survivors and Caregivers

        • Health Insurance & Open Enrollment
        • Cancer Survival ToolboxA free, award-winning audio program created by leading cancer organizations to help people better meet & understand the challenges of their illness.
        • Ina® The Intelligent Nutrition Assistant
        • Telehealth
        • Care Planning for Cancer Survivors
        • Remaining Hopeful
        • Self Advocacy
        • Talking With Your Doctor
        • Taking Charge of Your Care
        • Order Our Resources
        • Resources for Health Care Professionals

        • Tools For Care Providers
        • Telehealth Project
        • Survivorship Champions Webinars
        • Survivorship Checklist Guide for Clinicians
  • Events
    • 2026 Cancer Nation Summit
    • Igniting Hope Awards Reception
    • Ellen L. Stovall Award
      • 2025 Winners
      • Awardees
      • Nominations
      • Committees
    • Cancer Nation Webinars
    • Cancer Nation Policy Roundtable
      • Fall 2025
      • Spring 2025
      • Fall 2024
      • Spring 2024
      • Fall 2023
      • Spring 2023
  • 0

NCCS is now Cancer Nation. Find out more about our next chapter.    Join Us

FacebookProfile3

Guest Post Series: NCCS CEO Shelley Fuld Nasso Offers Advocate’s Perspective on Oncology Care Model

July 29, 2015/in Cancer News, Cancer Policy Blog Access to Care, Care Planning, Health Care Coverage, Payment Reform, Quality Cancer Care Cancer Nation News

The Centers for Medicare and Medicaid Services (CMS) recently announced the Oncology Care Model, a new payment model for physician practices administering chemotherapy that aims to provide higher quality, more highly coordinated oncology care at a lower cost to Medicare. This week, we’re presenting several different perspectives on the Oncology Care Model and how it will impact patients, providers, and cancer therapies. Be sure to read the perspectives from Dr. Michael Ybarra, Senior Director, Alliance Development, PhRMA and oncologist Dr. John Cox. 


This month marks the 50th anniversary of the Medicare program. There has been significant press coverage of the Medicare program over the last 50 years, and a study published in JAMA yesterday reported strong improvements in care for Medicare beneficiaries in a number of areas.

Reception shelley

Post by NCCS CEO Shelley Fuld Nasso, MPP (pictured at 2014 NCCS event)

Given that half of all cancer diagnoses are in individuals age 65 or over, the Medicare program is critical to the delivery of quality cancer care for Americans with cancer. However, the current fee-for-service does not promote patient-centered, well-coordinated care, as Dr. John Cox eloquently described in his recent blog post.

We believe that it is essential to change the way we deliver care to cancer patients, and in particular, to improve the doctor-patient discussion about treatment options to ensure that patients’ needs, values, and preferences are considered in decision-making. In order to change delivery, we must change the way we pay for care.

NCCS has long advocated for a thorough, patient-centered cancer care planning process, at diagnosis and at major transition points in care, including the transition to survivorship. Patients need and deserve a care plan that outlines their treatment and post-treatment care. It’s not about checking a box that a piece of paper was handed to a patient – it’s about truly engaging patients in decision-making about their care; ensuring that they are informed about their treatment options, including both benefits and risks of treatment; and respecting their autonomy to be involved in decisions to the degree they wish to participate.

“The Oncology Care Model (OCM) begins to address these disincentives in the system by encouraging practices to transform the way they deliver care to be more patient-centered.”
In order to deliver this kind of care, physicians need time to spend with their patients. If you ask patients what they want and need from their care, and how they define quality care, they want TIME with their care team. They want to be seen as a person, not a tumor or a diagnosis or a case. The current system does not support this kind of care delivery. In fact, it provides strong disincentives for physicians to spend the kind of time that individuals facing cancer need during the most difficult time in their lives.

The Oncology Care Model (OCM) begins to address these disincentives in the system by encouraging practices to transform the way they deliver care to be more patient-centered. Key elements include the requirements for care planning, 24/7 access to physicians, and care coordination and navigation. It is not a perfect model, but it’s an important start. NCCS has been outspoken in providing a patient perspective on this important proposal and has shared comments with the Center for Medicare and Medicaid Innovation (CMMI).

We believe the OCM holds significant promise of boosting patient satisfaction and improving the overall quality of care, and we look forward to continuing to engage with CMMI through the implementation and evaluation of the model, so that we can learn from it and help disseminate the best practices and lessons learned.

As we celebrate 50 years of Medicare, we must not lose sight of the need to improve the way we care for our nation’s seniors with cancer.

Tags: cancer care, Cancer Survivorship, care planning, Medicare, Oncology Care Model, quality
Share this entry
  • Share on Facebook
  • Share on X
  • Share on WhatsApp
  • Share on LinkedIn
https://canceradvocacy.org/wp-content/uploads/2014/06/FacebookProfile3.png 280 280 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg actualizedevs2015-07-29 16:34:562015-07-29 16:34:56Guest Post Series: NCCS CEO Shelley Fuld Nasso Offers Advocate’s Perspective on Oncology Care Model

Latest News

A graphic showing the Medicaid.gov website

Cancer Nation Statement: Medicaid Work Requirements Will Unfairly Burden Cancer Survivors

June 4, 2026
Cancer Nation strongly supports a health care system free of waste, fraud, and abuse. Health care resources must be directed to delivery…
Read more
https://canceradvocacy.org/wp-content/uploads/Stock-Medicaid-website-Adobe-927192378.jpg 675 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg NCCS Staff2026-06-04 12:56:142026-06-05 13:42:09Cancer Nation Statement: Medicaid Work Requirements Will Unfairly Burden Cancer Survivors
Image with graphics and text that reads Cancer Nation Understanding Blood-Based Testing in Cancer Care | Watch Now | With Support From: Guardant Health Logo

Webinar – Understanding Blood-Based Testing in Cancer Care

May 29, 2026
Cancer Nation's Webinar Series presents a clear, practical conversation about advances in blood-based testing and how they're shaping…
Read more
https://canceradvocacy.org/wp-content/uploads/Blood-Based-Testing-Webinar-post.jpg 675 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg NCCS Staff2026-05-29 11:28:002026-05-29 11:28:00Webinar – Understanding Blood-Based Testing in Cancer Care
a picture of susie leigh similing wearing a purple top. Words over the photo read In loving memory, Susie Leigh, Cancer Nation Co-founder, 1947-2026

Remembering Susie Leigh: A Founder, a Force, and a Friend

May 28, 2026
Susan (Susie) Leigh, BSN, RN-Retired — one of the founding members of Cancer Nation, a five-time cancer survivor, and one of the…
Read more
https://canceradvocacy.org/wp-content/uploads/Susie-Leigh-In-Memory-blog.jpg 900 1600 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg NCCS Staff2026-05-28 15:14:382026-06-04 14:32:40Remembering Susie Leigh: A Founder, a Force, and a Friend

Take Action

Link to: Survivorship Champions

Get Involved in Research

Cancer Nation conducts an annual Survivorship Survey to explore how patients and survivors are living with, through, and beyond cancer. This study captures a range of perspectives to better understand how Cancer Nation can support its mission to advocate for quality cancer care for all.

Learn More and Request Data Here »
Link to: Cancer Nation Advocates

Join Cancer Nation Advocates

Cancer Nation Advocates is a a program that brings together individuals who care about cancer care to learn how policy shapes our health care system—and how we can improve it together

Learn More and Join »
Link to: Survivor Stories

Share Your Story

Cancer Nation represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.

Share Your Story »
  • About
    • Our Mission
    • What is Advocacy?
    • Our History
    • Our Team
    • Financial Information
    • Employment
    • Contact Us
    • Make A Gift
    • The 1986 Club
    • Ways to Give
    • Partnerships
  • News
    • Cancer Nation News
    • Advocate Spotlight
    • Policy Comments
    • Issue Statements
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Protecting Access to Medicaid for Cancer Survivors
    • Comprehensive Cancer Survivorship Act (CCSA)
    • Cancer Care Planning and Communications Act (CCPCA)
    • DIEP Flap Access
    • Policy Comments
    • Issue Statements
    • Quality Measurement Research
  • Get Involved
    • Cancer Nation Advocates
    • Cancer Nation Leadership Academy
    • Cancer Nation Corporate Council
    • Advocacy Opportunities
    • Subscribe to Cancer Nation Updates
    • Follow Cancer Nation on Social Media
    • Survivor Stories
    • Cancerversary
    • Make A Gift
    • The 1986 Club
    • Ways to Give
  • Survivorship Survey
    • 2025 Survey Report
    • 2024 Survey Report
    • 2023 Survey Report
    • 2022 Survey Report
    • 2021 Survey Report
    • 2020 Survey Report
  • Survivorship Checklist
    • Start Your Cancer Survivorship Checklist
    • Survivorship Resources
    • Cancer Rehabilitation
    • Integrative Oncology
    • Palliative Care
    • Cognitive Healing
    • Survivorship Checklist Guide for Clinicians
  • Resources
    • Cancer Survival Toolbox
    • Telehealth
    • Health Insurance & Open Enrollment
    • Care Planning for Cancer Survivors
    • Ina® The Intelligent Nutrition Assistant
    • Remaining Hopeful
    • Self Advocacy
    • Talking With Your Doctor
    • Taking Charge of Your Care
    • Order Our Resources
    • Tools For Care Providers
    • Telehealth Project
    • Survivorship Champions Webinars
    • Survivorship Checklist Guide for Clinicians
  • Events
    • 2026 Cancer Nation Summit
    • Igniting Hope Awards Reception
    • Ellen L. Stovall Award
      • 2025 Winners
      • Awardees
      • Nominations
      • Committees
    • Cancer Nation Webinars
    • Cancer Nation Policy Roundtable
      • Fall 2025
      • Spring 2025
      • Fall 2024
      • Spring 2024
      • Fall 2023
      • Spring 2023
  • Search
  • Cart

Charity Navigator Four-Star Rating

Cancer Nation Logo

Cancer Nation
8455 Colesville Road  |  Suite 1025 | Silver Spring, MD 20910
info@canceradvocacy.org | (877) NCCS-YES
Privacy Policy  |  Terms and Conditions

Copyright © 1995-2026 by Cancer Nation. National Coalition for Cancer Survivorship, NCCS, Cancer Survival Toolbox, Cancerversary, and related Logos are registered in the United States as trademarks of Cancer Nation (formerly the National Coalition for Cancer Survivorship).

Link to: Video Post: Cancer Patients and Survivors Describe Quality Cancer Care Link to: Video Post: Cancer Patients and Survivors Describe Quality Cancer Care Video Post: Cancer Patients and Survivors Describe Quality Cancer CareCourage Carries Hope Link to: Guest Post Series: Dr. Michael Ybarra Offers Innovator Perspective on Oncology Care Model Link to: Guest Post Series: Dr. Michael Ybarra Offers Innovator Perspective on Oncology Care Model Fotolia 73341760 SGuest Post Series: Dr. Michael Ybarra Offers Innovator Perspective on Oncology...
Scroll to top Scroll to top Scroll to top

This website uses cookies to improve user experience. By continuing to use this site, you agree to our Privacy Policy. Learn More.

Get Updates From Cancer Nation

Be the first to hear about cancer policy and survivorship issues! Subscribe and receive the twice-monthly Cancer Nation News, invites to webinars and events, and more.

  • This field is for validation purposes and should be left unchanged.

Connect With Us

Twitter     Facebook     Instagram     LinkedIn     YouTube

Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute