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Cancer Policy And Advocacy Team (CPAT) Virtual Symposium 2022
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Link to: 2022 State of Cancer Survivorship Survey
2022 State Of Survivorship Survey Results
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NCCS News
NCCS Warns HHS Reorganization Could Harm Cancer Patients and Slow Research
On April 8, 2025, NCCS and other member organizations of The Cancer Leadership Council issued a response to the Department ...
NCCS Endorses Bipartisan ROCR Act to Reform Medicare Payments for Radiation Therapy
In a united appeal, NCCS joined more than 100 organizations in endorsing the Radiation Oncology Case Rate (ROCR) Act of ...
NCCS Welcomes Lisa Montez and Stephen Whisnant to Board of Directors
The National Coalition for Cancer Survivorship (NCCS) is pleased to announce the appointment of Lisa Montez and Stephen Whisnant to ...
Two Diagnoses, One Mission: Tracy and Tim Steffek on Advocating for Survivors
Advocate Spotlight: Tracy and Tim Steffek When Tracy Steffek finally smiled again after losing half her tongue to cancer, it ...
NCCS Announces New Elevate Ambassadors Selected to Improve Survivorship In Their Communities
The National Coalition for Cancer Survivorship (NCCS) is proud to announce the participants of the 2025 Elevating Survivorship program. After ...
NCCS to Recognize Susan Leigh, BSN, RN and Desirée Walker with 2025 Ellen L. Stovall Award
The National Coalition for Cancer Survivorship (NCCS) is proud to announce the recipients of the 2025 Ellen L. Stovall Award ...
Kirby Lewis – A Relentless Voice for Male Breast Cancer and Survivorship
Advocate Spotlight: Kirby Lewis In March 2012, Kirby Lewis discovered a small lump near his left nipple. At 51 years ...
NCCS Urges the Supreme Court of the United States to Protect the Rights of Individuals with Medicaid Coverage
Today, the National Coalition for Cancer Survivorship (NCCS), along with partner organizations, filed an amicus curiae brief with the Supreme ...
A Voice for Change: Rebecca Muñoz’s AYA Cancer Journey of Advocacy and Research
Advocate Spotlight: Rebecca Muñoz When Rebecca Muñoz felt an unexpected lump in her breast at just 29 years old, she ...
From Diagnosis to Determination: Lou Lanza’s Commitment to Survivorship Advocacy
Advocate Spotlight: Lou Lanza “Hearing the words ‘you have cancer’ is like getting hit by a bus,” recalls Lou Lanza ...
NCCS Mourns the Passing of President Jimmy Carter and Celebrates His Example of Cancer Survivorship
The National Coalition for Cancer Survivorship (NCCS) mourns the death of President Jimmy Carter at age 100. He lived life ...
Webinar – Family Building and Cancer
The National Coalition for Cancer Survivorship (NCCS) recently presented the webinar “Family Building and Cancer,” for an audience of health ...
Monique Wilson – Spreading Joy and Purpose Through Advocacy
Advocate Spotlight: Monique Wilson Diagnosed with breast cancer in 2016, Monique Wilson has turned what could have been a story ...
Webinar – Multi Cancer Early Detection Tools (MCED): The Promise and Challenges
The National Coalition for Cancer Survivorship (NCCS) hosted an insightful webinar discussion exploring the groundbreaking field of multi-cancer early detection ...
From Research to Advocacy: Dottington Fullwood Champions Equity in Cancer Survivorship
Advocate Spotlight: Dottington Fullwood, EdD, CHES Dr. Dottington Fullwood’s connection to cancer began with a deeply personal and professional commitment ...
NCCS Presents The State of Cancer Survivorship: 2024 Survey Results
The National Coalition for Cancer Survivorship (NCCS) conducts an annual State of Survivorship Survey, in partnership with Edge Research, to ...
Susie Leigh – Founding a Movement, Shaping the Future
Advocate Spotlight: Susan (Susie) Leigh, BSN, RN A Vietnam veteran, an oncology nurse, a four-time cancer survivor, and one of ...
Breaking Down Barriers: Marielle McLeod’s Commitment to Elevating Voices in Cancer Care
Advocate Spotlight: Marielle McLeod Marielle McLeod’s experience with health care began long before she ever faced her own cancer diagnosis ...
From Empathy to Action: Andrea Anampa-Guzmán’s Commitment to Survivorship Through Care and Advocacy
Advocate Spotlight: Dr. Andrea Anampa-Guzmán Dr. Andrea Anampa-Guzmán’s experience in health care began in Lima, Peru, where she was born ...
Patients First: Samantha & Samuel Siegel’s Marriage of Medicine and Advocacy
Advocate Spotlight: Drs. Samantha and Samuel Siegel Samantha and Samuel Siegel started medical school together at Jefferson Medical College in ...
Inspiring Change: Sandra Calloway Fields’ Survivorship Journey from Diagnosis to Advocacy
Advocate Spotlight: Sandra Calloway Fields Sandra Calloway Fields was first diagnosed with ovarian cancer in 2012. Just a month after ...
Advocating for Change: Ethan Schilling’s Path from Childhood Cancer to Survivor Advocate
Ethan (R) with his twin brother Derek (L).Advocate Spotlight: Ethan Schilling A childhood cancer survivor himself, Ethan Schilling’s work as ...
Webinar: Making Integrative Oncology Regular & Routine: A Practical Guide to Meeting the Demands of Patients and the Needs of Health Systems
The National Coalition for Cancer Survivorship (NCCS) Presents the Survivorship Champions webinar “Making Integrative Oncology Regular & Routine: A Practical ...
Webinar: Black Men Taking Charge of Our Health – A Fireside Chat About “Knowing Your Numbers”
April is National Minority Health Month, a time to raise awareness about the importance of improving the health of racial ...
Finding Hope in Adversity: Alyssa Fischer-Reeder’s Path to Survivorship
In 2003, Alyssa Fischer-Reeder graduated from American University in Washington, DC, with a BA in Education and Communication and decided ...
NCCS Submits Comments to CMS on its Medicare Prescription Payment Plan Guidance
NCCS submitted comments to the Centers for Medicare and Medicaid Services (CMS) on the second part of its draft guidance ...
Webinar – Compassion in Oncology: A Powerful Antidote to a Patient’s Negative Emotions
The National Coalition for Cancer Survivorship (NCCS) Presents “Compassion in Oncology: A Powerful Antidote to a Patient’s Negative Emotions,” a ...
Arti Varanasi – Transforming Research and Caregiving into Advocacy
Advocate Spotlight: Arti Varanasi, PhD Arti Varanasi, PhD, MPH, CPH is the Founder, President and CEO of Advancing Synergy, a ...
In Memoriam: C. Norman “Norm” Coleman, MD, Esteemed Researcher and Advocate for Global Health Equity
The National Coalition for Cancer Survivorship (NCCS) mourns the loss of Dr. C. Norman “Norm” Coleman, an esteemed researcher, clinician, ...
Webinar: Managing Function and Quality of Life of Head and Neck Cancer Survivors
The National Coalition for Cancer Survivorship (NCCS) hosted a Cancer Policy and Advocacy Team (CPAT) webinar discussing quality of life ...
Together We Can: Yvonne McLean Florence’s Journey from Breast Cancer Survivor to Advocate
Yvonne and her husband CalvinAdvocate Spotlight: Yvonne McLean Florence Before her cancer diagnosis, Yvonne McLean Florence had a full life ...
NCCS Submits Comments on March-In Rights
The National Coalition for Cancer Survivorship (NCCS) joined fellow member organizations of the Cancer Leadership Council in submitting comments on ...
Webinar: Making the Mouth-Body Connection in Cancer Care
The National Coalition for Cancer Survivorship (NCCS) presents a webinar about oral care — an aspect of cancer treatment that ...
Webinar: NCCS Cancer Policy Roundtable Highlights
During our Fall Cancer Policy Roundtable in November 2023, NCCS hosted a compelling series of panels and guest speakers, discussing ...
Heart for the Future: Medical Students’ Passion for Cancer Survivorship Fuels Their Future as Oncologists
Advocate Spotlight: Katherine Li, Ryan Hannon, and Noah Davis Katherine Li, Ryan Hannon, and Noah Davis aren’t your average medical ...
While Staying Healthy in Survivorship Can Be Expensive, Many Insurers Offer Programs to Reduce the Cost
As cancer survivors strive to maintain healthy lifestyles, many are faced with financial hardships and sacrifices due to the high ...
Webinar – Reconnecting to Life After Cancer: Permission to Feel
The National Coalition for Cancer Survivorship (NCCS) presents “Reconnecting to Life After Cancer: Permission to Feel,” a webinar featuring Kathy ...
The Advocate Within: Tamron Little’s Remarkable Journey of Turning Trauma into Triumph
Tamron LittleAdvocate Spotlight: Tamron Little Tamron Little was a 21-year-old college student and pregnant with her first child when she ...
The Not-So-Good Cancer: Mary Glen’s Inspiring Advocacy Journey
Advocate Spotlight: Mary Glen Mary Glen was serving as an active-duty Army officer, deployed to South Korea in August 2020 ...
NCCS Presents 8th Annual Ellen L. Stovall Awards to Phuong Gallagher and Mary McCabe, RN for Their Innovation and Dedication to Cancer Survivors
FOR IMMEDIATE RELEASE October 30, 2023 Washington, D.C. – The National Coalition for Cancer Survivorship (NCCS) presented the 8th annual ...
NCCS, Cancer Leadership Council Express Strong Support for NIH Director Nominee Monica Bertagnolli
Monica Bertagnolli, MDThe National Coalition for Cancer Survivorship (NCCS) strongly supports the nomination of Dr. Monica Bertagnolli to be the ...
The Path to Purpose: Marlena Murphy Finds Meaning in the Challenges
Marlena MurphyAdvocate Spotlight: Marlena Murphy Marlena Murphy’s cancer journey began when she discovered a lump in her left breast during ...
NCCS Presents The State of Cancer Survivorship: 2023 Survey Results
The National Coalition for Cancer Survivorship (NCCS) conducts an annual State of Survivorship Survey, in partnership with Edge Research, to ...
Brett Wilson – Navigating Childhood Cancer and Finding Purpose in Advocacy
Advocate Spotlight: Brett Wilson Brett Wilson’s cancer experience started when she was just two years old. Her mother was concerned ...
NCCS Submits Comments on 2024 Medicare Physician Fee Schedule Proposed Rule
NCCS submitted a letter to the Centers for Medicare and Medicaid Services (CMS), offering comments on the Medicare physician fee ...
Registration Open: 2023 State of Survivorship Survey Results Briefing | October 3
The National Coalition for Cancer Survivorship (NCCS) conducts an annual State of Survivorship Survey, in partnership with Edge Research, to ...
CMS Announces It Will Retain Breast Reconstruction Codes, A Reversal That Protects Patient Access to DIEP Flap Surgery
Yesterday, the Centers for Medicare and Medicaid Services (CMS) announced that it will retain procedure codes for breast cancer reconstruction, ...
Championing Survivorship: Woody Brokenburr’s Lifelong Dedication to Cancer Advocacy
Woodrow “Woody” Brokenburr was diagnosed with cancer when he was 9 years old, after a biopsy revealed that the lump ...
NCCS Announces New Elevate Ambassadors Selected to Improve Survivorship In Their Communities
The National Coalition for Cancer Survivorship (NCCS) is proud to announce the participants of the 2023 – 2024 Elevating Survivorship ...
NCCS to Recognize Phuong Gallagher and Mary McCabe, RN, with 2023 Ellen L. Stovall Award
NCCS is pleased to announce the 2023 winners of the Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care ...
Championing Survivorship: Nurse Practitioner Sanna Ali’s Dedication to a Career in Cancer Survivorship
Sanna Ali is a dedicated Nurse Practitioner currently pursuing her PhD in Nursing at The George Washington University. Sanna started ...
NCCS Board Member in STAT News Op-Ed: CMS must protect access to the ‘gold standard of breast reconstruction’
STAT News recently published an op-ed by NCCS Board Vice Chair Lisa D. T. Rice on the threat to access ...
NCCS Applauds the Re-Introduction of the Comprehensive Cancer Survivorship Act (CCSA)
On Friday, Representatives Debbie Wasserman Schultz (D-FL-25), Brian Fitzpatrick (R-PA-1), and Mark DeSaulnier (D-CA-10) and Senators Amy Klobuchar (D-MN) and ...
Arsenic and Advocacy: Sarah Cohn’s Experience with Rare Leukemia Spurs Action
Diagnosed with a rare form of leukemia called acute promyelocytic leukemia (APL), Sarah Cohn’s cancer diagnosis at the age of ...
NCCS Urges CMS to Preserve Access to DIEP Flap Breast Reconstruction
Today, the Centers for Medicare and Medicaid Services (CMS) hosted a public meeting, in which they sought input on its decision ...
Webinar – Survivorship at Atrium Health Wake Forest Baptist Comprehensive Cancer Center: Creating a Practical Workflow
The National Coalition for Cancer Survivorship (NCCS) hosted a Survivorship Champions webinar about survivorship care implementation, “Survivorship at Atrium Health ...
Sandra Finestone, PsyD: Be Bold and Don’t Hesitate – A 30-year Survivor’s Advice on Advocacy
Advocate Spotlight: Sandra Finestone, PsyD A cancer diagnosis can be overwhelming and life-changing, but for Sandra Finestone, it ignited a ...
Accessing COVID-19 Resources After the Public Health Emergency Ends
The COVID-19 public health emergency (PHE), which has been in effect since early 2020, will end on May 11, 2023 ...
NCCS Urges Insurance Companies to Preserve Access to DIEP Flap Breast Reconstruction
This week, NCCS joined other patient advocacy organizations and medical professional societies in submitting a letter to the CEOs of ...
Webinar – Amplifying Your Message: Advocating Through Traditional Media Channels
NCCS hosted a CPAT webinar on leveraging traditional media for cancer advocacy with public relations and marketing expert Michael Holtz ...
NCCS and Cancer Leadership Council Issue Comments on Implementation of Medicare Drug Price Negotiation Program
NCCS joined with other member organizations of the Cancer Leadership Council (CLC) in a letter to the Centers for Medicare ...
Lisa Rice – My Breast Cancer Journey: Many Lessons Learned and More in Store
Reposted with permission from the author, Lisa D. T. Rice, SM, a breast cancer survivor, advocate, and NCCS board member, ...
Ruth Travis: Cancer Is Not a Death Sentence. It’s a License to Live.
Advocate Spotlight: Ruth Travis Ruth Travis knows the power of early detection. She started getting regular mammograms when she was ...
NCCS Urges President Biden and Congress to Support and Protect Medicaid
This week, NCCS joined with more than 30 patient advocacy organizations as part of the Partnership to Protect Coverage to ...
NCCS Advocates for Access to DIEP Flap Breast Reconstruction Surgery
The National Coalition for Cancer Survivorship recently joined the Community Breast Reconstruction Alliance (CBRA), a group of patient advocacy organizations ...
Betsy Glosik: A Cancer Survivor’s Journey Towards Integrative Healing and Advocacy
Advocate Spotlight: Betsy Glosik For Betsy Glosik, the early 2000s brought one trauma after another. She lost her aunt to ...
Webinar – Implementing the ASCO Guidelines for Exercise, Nutrition, and Weight Management with Your Patients and Practice
The National Coalition for Cancer Survivorship (NCCS) hosted a Survivorship Champions webinar discussing the American Society for Clinical Oncology’s (ASCO) ...
Webinar – How to Lead a Heart Healthy Life – Norrisa Haynes, MD
In this webinar hosted by NCCS, Cardiologist Dr. Norrisa Haynes of Yale University presents the basics of heart disease, including ...
Erin Cummings’s Journey as a Long-Term Hodgkin’s Lymphoma Survivor
Advocate Spotlight: Erin Cummings Diagnosed with Hodgkin’s Lymphoma during her freshman year of high school at the age of 15, ...
Sharon Rivera-Sanchez: Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy
Advocate Spotlight: Sharon Rivera-Sanchez As a Triple Negative Breast Cancer survivor, Sharon turned her personal experience into a passion for ...
NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act
Representative Debbie Wasserman Schultz (FL-23), a champion for cancer survivors and a survivor herself, held a press conference today to ...
Alique Topalian: Childhood Cancer and the Frightening Realities of the Survivorship Journey
Alique, age 4, during treatment for AML.Advocate Spotlight – Alique Topalian, PhD, MPH Alique was first diagnosed with Acute Myeloid ...
NCCS Joins Cancer Leadership Council in Urging Congress to Include Priorities in Year-End Package
NCCS joined with other member organizations of the Cancer Leadership Council (CLC) in a letter urging Congress to include several ...
Amanda Helms: Care Planning, Mental Health, and Palliative Care are Essential to Quality Cancer Care
Amanda Helms was enjoying a bubble bath while reading a book when she looked down and noticed a lump on ...
NCCS Presents The State of Cancer Survivorship: 2022 Survey Results
The National Coalition for Cancer Survivorship (NCCS) conducts an annual State of Survivorship Survey, in partnership with Edge Research, to ...
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