NCCS Joins Other Advocates in Endorsing Bipartisan Medical Debt Relief Act of 2015
This week NCCS joined a diverse group of advocacy groups in endorsing the bipartisan Medical Debt Relief Act of 2015 (H.R. 2362). Medical debts can remain on patients’ credit scores for up to seven years, even after they have been paid or settled, lowering his or her credit score and dramatically affecting the ability to […]
WCOE: NCCS and Partners at #BreakawayfromCancer, the Reality of Living with Stage 4, and Cost-Conscious Care
Reality: Living with Stage 4: The breast cancer no one understands, w/ insight from @jodyms, @fredhutch –https://t.co/xr1MZ5YG8L — Elaine Schattner MD, MA (@ESchattner) May 12, 2015 .@bagit4u We're participating and presenting the public policy advocacy workshop Aug. 16-20 Tucson #cancer #advocacy https://t.co/MlWtHF3QA4 — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) May 14, 2015 Great […]
Guest Post: The Progress of Prevention—The Culmination of 20 Years of Advocacy
Twenty years ago NCCS defined quality cancer care to include a full spectrum of necessary services for cancer patients. These included primary and secondary prevention, early detection, initial treatment, supportive therapies to manage pain, nausea, fatigue, and infections, long-term follow-up, psychosocial services, palliative care, hospice care, and bereavement counseling. This principle, and all of the […]
Revisiting the Fifth Principle of the Imperatives for Quality Cancer Care
This month, as part of the 20 Years Later blog series, we are revisiting the fifth principle of the Imperatives for Quality Cancer Care: Access, Advocacy, and Accountability. This principle states: “People with cancer should be provided a range of benefits by all health care plans that includes primary and secondary prevention, early detection, initial […]
Dr. Atul Gawande’s Recent “Overkill” Article Examines Screening, Overtreatment, and Anxiety
In another excellent piece in the The New Yorker entitled “Overkill,” Dr. Atul Gawande writes about what he calls an “avalanche” of unnecessary care Americans are receiving. With his characteristic mix of hard data, policy analysis, and personal stories, he describes the harms of overtreatment, to both individuals and the health care system. He writes, […]
WCOE: Becoming a Caregiver, Homemade Cards From A Survivor, Quality of Life Talks, and Atul Gawande’s Latest
Susan Gubar's Living With Cancer: Becoming a Caregiver https://t.co/OaEHabDNs0 via @nytimeswell — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) May 8, 2015 A cancer survivor designs the cards she wishes she’d received from friends and family: https://t.co/bKV9SFdVoV via @slate — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) May 8, 2015 It’s Not Just […]
WCOE: The Cancer Care Continuum, Talking Cost with Your Doctor, Negotiating Costs, and Cervical Cancer Screenings’ “Great Success and Enduring Dilemma”
The Cancer Care Continuum #CPAT15 pic.twitter.com/ve2yGApZFK — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) April 29, 2015 Dr. Mayer: Prior to receiving a survivorship care plan, patients must receive a written care plan. #CPAT15 — kelseynepote (@kelseynepote) April 29, 2015 If the doctor is unaware of your financial concerns, she's just going to think […]
Guest Post: Multidisciplinary Care Is the Hallmark of High Quality Care—So Why Doesn’t Everyone Get It?
The fourth principle in the Imperatives for Quality Cancer Care states, “All people diagnosed with cancer should have access to and coverage for services provided by a multidisciplinary team of care providers across the full continuum of care. Health care plans should be held accountable for timely referral to appropriate specialists when symptoms of cancer […]
NCCS Policy and Advocacy Manager Kelsey Nepote Attends and Presents at CancerCon: Takeaways and Steps for Moving Forward
Over the weekend, I had the pleasure of attending and presenting at Stupid Cancer CancerCon in Denver, Colorado. Stupid Cancer is the largest US-based charity that comprehensively addresses young adult cancer through advocacy, research, support, outreach, awareness, mobile health, and social media. CancerCon is their yearly conference and social networking event for the young adult […]
Join Us: “Patient-Care Team Communication: How Can the Survivor Prepare to Manage a Lifetime of Care?” Webinar
The National Coalition for Cancer Survivorship is hosting a free webinar titled, “Patient-Care Team Communication: How Can the Survivor Prepare to Manage a Lifetime of Care?” on Wednesday, April 29 from 3:00pm-4:30pm EDT as part of our Cancer Policy Advocate Training (CPAT) program. The CPAT program aims to train patient advocates on pressing cancer policy issues. […]
NCCS CEO Shelley Fuld Nasso Introduces the Fourth Principle of the Imperatives for Quality Cancer Care (VIDEO)
This month, as part of the 20 Years Later series, we are revisiting the fourth principle of the Imperatives for Quality Cancer Care: Access, Advocacy, and Accountability. Transcript: The fourth principle in the Imperatives for Quality Cancer Care states, “All people diagnosed with cancer should have access to and coverage for services provided by a multidisciplinary […]
Dr. Walter F. Baile Offers Professional’s Perspective on Building the Relationship Between a Physician and a Patient
Dr. Walter F. Baile moderated a panel at the Spring 2015 Cancer Policy Roundtable that included many perspectives on how cancer patients and oncology professionals can collaborate in decision-making that will improve care planning and coordination. Following the panel, Dr. Baile sat down with us to discuss this issue further. In defining shared decision-making as […]
Marlene King Discusses Living with Metastatic Breast Cancer and Collaborative Decision-Making with Her Oncologist
Marlene King was diagnosed with Ductal Carcinoma in Situ (DCIS) in 2008 at the age of 48, and she elected to have a lumpectomy, chemotherapy and radiation. After treatments the cancer seemed to be in remission. In 2011, the cancer returned and she decided it would be best to have to a double mastectomy and reconstructive surgery. However, one […]
NCCS Session at CancerCon 2015 Presents Two Types of Advocacy
This past weekend Kelsey Nepote of NCCS was honored to present a session on patient advocacy at the Stupid Cancer 2015 CancerCon event in Denver. As the largest oncology conference of its kind for the young adult cancer movement, CancerCon brought out hundreds of survivors at different points in the continuum of care, as well as caregivers and loved […]
WCOE: Making Informed Healthcare Decisions, Something We Can All Agree On, and the Power of Advocacy
Few Consumers Are Using Quality, Price Information To Make Health Care Decisions https://t.co/jHm1W09icY — Amy Berman (@NotesOnNursing) April 21, 2015 Conversations w/ advocates @sfuldnasso "Payment reform should focus on quality, not quantity of patient care" @PhRMA https://t.co/xhpKTdG0tr — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) April 24, 2015 Why Many Doctors Don't Follow […]
WCOE: Bi-Partisan Bill Overhauls How Doctors Get Paid, Psychological Effects of Chemo, and the Art of Concealing Cancer
SGR: Bipartisan Senate ends flawed Medicare payment formula https://t.co/9KQkuIFqDr — Alec Stone (@ONSAlec) April 15, 2015 What Is the ‘Doc Fix’? https://t.co/M4Iy0rh8K7 via @WSJPolitics — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) April 15, 2015 Living With Cancer: In and Out of the Closet https://t.co/dd3GxpPVVV via @nytimeswell — NCCS – National Coalition for Cancer […]
WCOE: Replacing the SGR Formula, Patient Advocate Speaks at FDA, and Dr. Peter Ubel talks Patient Needs
#Medicare, replacing the SGR forumula, and the need for quality measures via @sarahkliff https://t.co/LP8CmO69gX — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) April 6, 2015 Shirley Mertz spoke at FDA Pt-Focused Drug Development Mtng. https://t.co/t4sHSiWLWQ Passionate! pic.twitter.com/XdSDrTekx0 — MetastaticBCNetwork (@MBCNbuzz) April 3, 2015 Dr. Peter Ubel (VIDEO) "If we assume that we know what […]
WCOE: The #CancerFilm, Upcoming CME Activity at Kimmel Cancer Center, End-of-Life Discussions, and Fear of Recurrence
CME Activity 4/17 at @HopkinsMedicine Kimmel Cancer Center "Cancer Survivorship: Improving Outcomes, Enhancing Care" https://t.co/kLaWwf9xjP — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) April 2, 2015 Palliative care integrated with oncology treatment is a lifeline to QOL for any age and any stage #hpm #CancerFilm https://t.co/XRRVLvCNDx — Rebecca Kirch (@RebeccaKirch) April 2, 2015 https://twitter.com/buffyjhamilton/status/583448116264882178 […]
Guest Video: Dr. Susan Gubar Discusses the Financial Burdens of Cancer Care
This video post is part of the 2015 Cancer Policy Matters “The Imperatives for Quality Cancer Care: 20 Years Later” blog series. The third principle from the Imperatives for Quality Cancer Care states, “Standards of cancer care should be driven by the quality of care, not only by the cost of care, and should include participation in […]
Guest Video: Dr. Peter Ubel Talks About Values and Preference in Discussions of Costs of Care
This video post is part of the 2015 Cancer Policy Matters “The Imperatives for Quality Cancer Care: 20 Years Later” blog series. The third principle from the Imperatives for Quality Cancer Care states, “Standards of cancer care should be driven by the quality of care, not only by the cost of care, and should include participation in […]
NCCS Submits Comments to House Energy and Commerce Committee on 21st Century Cures Legislation
The National Coalition for Cancer Survivorship (NCCS) submitted comments to the House Energy and Commerce Committee on its 21st Century Cures legislative initiative. In our comments, we urged that the 21st Century Cures effort reflect a goal of ensuring delivery of appropriate treatment to each patient, based on a shared decision-making process. To achieve the […]
WCOE: NPR Series Leading to “Emperor of All Maladies,” Clinical Trials, and the Health Care Payment Learning and Action Network
Living With Cancer: Clinical Trials Looking for Patients https://t.co/sfZ0epUeme — NYTimes Well (@nytimeswell) March 26, 2015 Via @nprnews: "Professional Patient" Dixie Josephson has been going through treatment for #ovariancancer for 15 yrs https://t.co/c5ToN8gabv — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) March 25, 2015 LIVE: @SecBurwell joins President Obama to kick off the Health […]
“The State of Cancer Care in America 2015” Report Provides a Snapshot of Cancer Care and Details Many Challenges in Oncology
In a recently released, detailed 64-page report entitled “The State of Cancer Care in America 2015,” the American Society of Clinical Oncology (ASCO) provided readers with more than a snapshot of what cancer care looks like in America today. Depending on how one measures progress against cancer—e.g., the number of new drugs available to treat cancer, […]
National Coalition for Cancer Survivorship Joins the Health Care Payment Learning and Action Network
Today the National Coalition for Cancer Survivorship (NCCS) joined the Health Care Payment Learning and Action Network and announced its goal in support of alternative payment models that will foster better, more patient-centered cancer care for the nation’s more than 14 million cancer survivors. NCCS Board Chair and cancer survivor, Michael Kappel, attended the inaugural […]
Guest Post by Dr. Claire Snyder: Driving Quality Cancer Care with Patient-Reported Outcomes
Twenty years ago, the National Coalition for Cancer Survivorship’s Imperatives for Quality Cancer Care advocated that “standards of cancer care should be driven by the quality of care.” By giving voice to the patient perspective, patient-reported outcomes (PROs) play a key role in assessing and improving the quality of care and, therefore, in setting these […]
Guest Post by Dr. Michael Neuss Introduces the Third Imperatives Principle: Standards of Care Should Be Driven by Quality of Care
This guest post is part of the 2015 Cancer Policy Matters “The Imperatives for Quality Cancer Care: 20 Years Later” blog series. The third principle from the Imperatives for Quality Cancer Care states, “Standards of cancer care should be driven by the quality of care, not only by the cost of care, and should include participation […]
Journey Forward and ERS Advance Survivorship Care Planning Through Data Integration
Data integration solution addresses one of the barriers associated with creating Care Plans for cancer survivors Journey Forward, a leader in survivorship care planning, and Electronic Registry Services (ERS), a leading provider of cancer registry software, today announced a successful implementation that enhances the use of patient data in after-care plans. Specifically, this enables data […]
WCOE: An ACA Marketplace FAQ, Fear of Recurrence, Seeking a Beautiful Death and Perspectives on Drug Innovation
In today's FAQ: Info about the #ACA marketplace special enrollment period that begins Sundayhttps://t.co/qtF825CflL pic.twitter.com/0XJtBK8jjl — KFF (Kaiser Family Foundation) (@KFF) March 13, 2015 Coping with Fear of Recurrence: Part 1 https://t.co/vj3VUi22vl via @OncNursingNews Prevalence as high as 97% — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) March 12, 2015 https://twitter.com/PallOnc/status/574667577152176129 Advocacy opportunity: Public […]
WCOE: Shared Decision-Making and Getting Doctors to Listen
Components of shared decision-making. #CTACSummit2015 pic.twitter.com/1yjm5MSwDC — Shelley Fuld Nasso (@sfuldnasso) March 3, 2015 Public meeting on breast cancer patient-focused drug dev. April 2, register now https://t.co/1OXRCdQvZM — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) March 2, 2015 "regard the cancer patient as autonomous individual who has the right 2B involved in decisions.." via […]
NCCS CEO Applauds Oncology Care Model in Editorial Appearing in The Cancer Letter
The following editorial appeared in The Cancer Letter on February 27, 2015 The recent announcement by the Innovation Center at the Center for Medicare and Medicaid Services regarding the launch of an Oncology Care Model is an important step toward patient-centered cancer care. In 2013, the Institute of Medicine released its report, “Delivering High-Quality Cancer […]
Decision-Making in Cancer Care: Communication (INFOGRAPHIC)
The second principle of the Imperatives for Quality Cancer Care states, “Quality cancer care should be available in a health care system whose standards and guidelines are developed in consideration of treating the whole person with cancer. Health care plans must regard the cancer patient as an autonomous individual who has the right to be involved in decisions about […]
WCOE: Pace of FDA Drug Approvals, Redesigning Insurance Exchanges, Shared Decision Making, and Thoughts on Data Collection
Too Fast, or Too Slow? Public disagrees over pace of #FDA's new drug approvals https://t.co/gnvqJq56AH via @RAPSorg — ResearchAmerica (@ResearchAmerica) February 25, 2015 Everything I know about a good death I learned from my cat https://t.co/KeC5qEcynk — Shelley Fuld Nasso (@sfuldnasso) February 25, 2015 A Faster Way to Try Many Drugs on Many Cancers https://t.co/EFms6hYq3d […]
Honoring Phyllis Torda, a Fierce Advocate for Patient-Centered Health Care
The National Coalition for Cancer Survivorship (NCCS), notes with sadness the passing of Phyllis Torda, a fierce advocate for patient-centered health care for more than 25 years. We at NCCS first came to know Phyllis when she was with Families USA as their Director of their Health and Social policies. Subsequently, we were very fortunate […]
Guest Post: Palliative Care in Oncology—We’ve Come a Long Way, Baby …But Let’s Not Rest on Our Laurels
“The good physician treats the disease; the great physician treats the patient who has the disease.” -William Osler Since the creation of the National Cancer Act in 1971, the medical establishment—and indeed our entire society—has taken up the powerful metaphor of a “war on cancer” as the approach to attacking and overcoming this dreaded disease. This […]
Guest Post by Dr. Don Dizon: When Even the Best Advice Isn’t Good Enough
Every so often I see a patient who views cancer as a constant threat to be handled — it becomes so significant that it is as if she can never let her guard down. I always worry about this, partly because that singular focus on fighting cancer can sometimes detract one from other aspects of […]
WCOE: Elaine Schattner Reflects on David Carr and Survivorship, Oncology Payment Reform, Patient Perspectives
Reflection On The Death Of David Carr, And Cancer Survivorship, by @ElaineSchattner – https://t.co/6m4TfQE8Ul via @forbes — Elaine Schattner MD, MA (@ESchattner) February 19, 2015 Is CMS Oncology Payment Reform Model "A Toe in the Water When a Plunge is Needed?" https://t.co/boTeVhMSc6 — ASCO (@ASCO) February 19, 2015 "The only cost was thinking not from […]
Guest Post from The Cancer Support Community: Progress Made in Addressing the Psychosocial Needs of People Diagnosed with Cancer
This guest post is part of the 2015 Cancer Policy Matters “The Imperatives for Quality Cancer Care: 20 Years Later” blog series. Although noted in the literature as early as the 1970’s, serving as the foundation for the 1982 establishment of The Wellness Community (now The Cancer Support Community) and certainly referenced in the 1995 NCCS […]
Treating the Whole Person: Understanding and Gaining Access to Palliative Care
As part of our 20 Years Later blog series, NCCS CEO Shelley Fuld Nasso discusses the difference between palliative and end-of-life care, as well as barriers to palliative care in this video. The second principle from the Imperatives for Quality Cancer Care states, “Quality cancer care should be available in a health care system whose […]
WCOE: New CMS Oncology Care Model Offers Hope, End of Life Planning, and ACA Questions Answered
The new #Oncology Care Model offers #cancer patients the hope of better care. @canceradvocacy @CMSinnovates https://t.co/uQA76ALOG3 — Shelley Fuld Nasso (@sfuldnasso) February 13, 2015 "What Does It Mean?" commentary by @drdonsdizon via @ASCO https://t.co/mr83TSTiYe clarity in doctor/patient communication — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) February 12, 2015 #WhatMattersMost – To be able […]
The New Medicare Oncology Care Model Will Improve Quality of Care for Cancer Patients
The National Coalition for Cancer Survivorship (NCCS) applauds the release by the Centers for Medicare and Medicaid Services (CMS) of the Oncology Care Model, a multi-payer program with the goal of providing cancer patients with higher quality, better coordinated care, at a lower cost. The Oncology Care Model builds on the current fee-for-service system for […]
Being Mortal Is Far From Being Morbid: Responding to FRONTLINE’s Profile of Surgeon Atul Gawande and End of Life Care
On public television stations nationwide, the award-winning FRONTLINE series aired a program on February 10th based on the work of noted surgeon and writer, Atul Gawande. In addition to Gawande’s many clinical and surgical talents, he has the rare gift of writing articles and books for all of us, no matter what our level of […]
Revisiting the Second Principle of the Imperatives for Quality Cancer Care—Treating the Whole Person
This month, as part of the 20 Years Later series, we are revisiting the second principle of the Imperatives for Quality Cancer Care: Access, Advocacy, and Accountability. The second principle states, “Quality cancer care should be available in a health care system whose standards and guidelines are developed in consideration of treating the whole person […]
WCOE: World Cancer Day, “Dying Shouldn’t Be So Brutal,” and More on Precision Medicine
Hard for clinicians to give up old practices, even when new evidence reveals that those practices offer little value: https://t.co/n3vFLx199y — Peter Ubel (@peterubel) February 6, 2015 "Dying Shouldn't Be So Brutal" new @nytopinion series on End-of-Life that I will also be writing for–soon, I hope. https://t.co/xughvb75Lh — TheresaBrown (@TheresaBrown) February 3, 2015 https://twitter.com/LlyOncOnCanvas/status/563019956565331968 We […]
NCCS Policy Comments: FDA’s Framework for Regulatory Oversight of Laboratory Developed Tests (LDTs)
NCCS submitted comments to the Food and Drug Administration (FDA) on the Draft Guidance: Framework for Regulatory Oversight of Laboratory Developed Tests (LDTs). We support the FDA’s efforts to develop a strong regulatory framework for LDTs and commend the agency for the open and transparent process it has pursued in developing the framework and receiving […]
President Obama Announces New Precision Medicine Initiative
I was honored to represent NCCS along with leaders in the health care community at the White House on Friday when President Obama announced his new Precision Medicine Initiative. Introducing the President was 19-year-old Harvard Student Elana Simon, who researched her own liver cancer and helped identify the genetic cause of the rare disease. The […]
The Genetic Information Nondiscrimination Act (GINA)
This post is part of a special blog series: “The Imperatives for Quality Cancer Care: 20 Years Later.” Read more from this series. The first imperative states, “People with cancer have the right to a system of universal health care. This access should not be precluded because of preexisting conditions, genetic or other risk factors, […]
WCOE: Obama takes on Precision Medicine, Palliative Care ≠ Hospice, Quantity and Quality of Life, CLRC News, Medicare Payment Reform, and Breast Cancer Patient Communication
Don't miss President Obama speak on his #PrecisionMedicine Initiative at 11:10am ET → https://t.co/zcSZULoCno — White House OSTP 44 (@WHOSTP44) January 30, 2015 What is President Obama's 'precision medicine' plan, and how might it help you? https://t.co/T8sXHBGWm0 — Shelley Fuld Nasso (@sfuldnasso) January 30, 2015 Beautiful post by @drdonsdizon. Palliative care does not mean hospice […]
Second Anniversary of State Exchanges: Affordable Options for Cancer Patients, But the Devil Remains in the Details
Cancer Policy Matters Guest Post by Tanisha Carino, Executive Vice President, Avalere Health Just one year after the launch of the state exchanges, we have seen a remarkable drop in the number of Americans without health insurance. By the end of 2015, Avalere projects 10.5 million people will be enrolled in the exchanges, which will […]
NCCS Joins Colleagues in Submitting Comments to NIH on the Use of a Single Institutional Review Board for Multi-Site Research
Today, NCCS joined colleagues in the cancer community in submitting comments to the National Institutes of Health (NIH) on the Draft NIH Policy on the Use of a Single Institutional Review Board for Multi-Site Research. We commend the National Institutes of Health (NIH) for taking this step to reduce duplication and inefficiency in the initiation […]
The Impetus for Creating the “Imperatives for Quality Cancer Care”
The impetus for creating an issue paper entitled “Imperatives for Quality Cancer Care” (Imperatives) came from a desire for the National Coalition for Cancer Survivorship (NCCS) to have a snapshot of the state of both the art and science of quality cancer care for people diagnosed with cancer across three domains—psychosocial impacts of the diagnosis; physiological […]
The Affordable Care Act & Cancer Survivorship (INFOGRAPHIC)
The first principle of the Imperatives for Quality Cancer Care states, “People with cancer have the right to a system of universal health care. This access should not be precluded because of preexisting conditions, genetic or other risk factors, or employment status.” The Affordable Care Act has impacted these issues more than any other legislation passed in the […]
Chronic Myelogenous Leukemia (CML) Survivor Lisa Gray Talks About Her Experiences with the Affordable Care Act
The Affordable Care Act (ACA) is making great strides in ensuring that, “People with cancer have the right to a system of universal health care in which access is not precluded because of preexisting conditions, genetic or other risks factors, or employment status.” Post by Lisa Gray as part of the “Imperatives for Quality Cancer Care: […]
NCCS CEO Shelley Fuld Nasso Introduces Our New Blog Series
This year, NCCS and a diverse group of guest contributors will revisit the Imperatives for Quality Cancer Care as published in 1995 and evaluate progress made to date in achieving the principles proposed and ensuring that they guide the cancer care experience. Each month, we will review and discuss one of the 12 principles. We […]
Announcing a New Blog Series: “The Imperatives for Quality Cancer Care” 20 Years Later
Read posts from the new blog series: “The Imperatives for Quality Cancer Care” 20 Years Later In 1995, NCCS published Imperatives for Quality Cancer Care: Access, Advocacy, Action, and Accountability (Imperatives), the culmination of an inclusive, community-based process. Adopted at the First National Congress on Cancer Survivorship, the Imperatives represented the community’s first look at […]
WCOE: Attention for Precision Medicine, Cancer Statistics, Coming to Terms, and the Challenge of Paying for Drugs
Precision medicine= right treatment, right person, right time. Excited @WhiteHouse is shedding light on this important issue. #SOTU — ACSCAN (@ACSCAN) January 21, 2015 Predictions for 2015 include 1.6 million new cases of cancer, with 589,000 cancer deaths https://t.co/k8GDabuVv6 — Oncology Nursing News (@OncNursingNews) January 22, 2015 https://twitter.com/NikiBarrPhD/status/558255409862279170 Obama's Precision Medicine Initiative: Paying For Drugs […]
NCCS Joins Colleagues in Submitting Comments to HHS Regarding Proposed Rule on Notice of Benefit and Payment Parameters for 2016
In late December 2014, NCCS joined colleagues in the Cancer Leadership Council in submitting comments to the Department of Health and Human Services (HHS) regarding the proposed rule on notice of benefit and payment parameters for 2016. Many cancer survivors have purchased qualified health plans (QHPs) through the health insurance exchanges and their access to […]
NCCS Joins Colleagues in Submitting Comments to National Association of Insurance Commissioners on the Health Benefit Plan Network Access and Adequacy Model Act
Last week, NCCS joined colleagues in the Cancer Leadership Council (CLC) in submitting comments to the National Association of Insurance Commissioners (NAIC) on the Health Benefit Plan Network Access and Adequacy Model Act. The groups collectively commend the NAIC Regulatory Framework (B) Task Force for including provisions within the act that would offer patients some […]
WCOE: New IOM Report, Control Issues, Tempting Treatment Options, and Patients ‘Right to Try’ New Drugs
New IOM Report: Sharing Clinical Trial Data: Maximizing Benefits, Minimizing Risks https://t.co/neRjKfx8ma #datasharing — NASEM Health (@NASEM_Health) January 14, 2015 "Cancer survivors plagued by lack of personal control" https://t.co/9tRPQrbdzs via @reuters "a wish to return to 'normal'" — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) January 14, 2015 Doing More for Patients Often Does […]
WCOE: FDA News, Medical Debt, the ACA, and Honoring Jessie Gruman
Why The FDA Panel's Nod To Sandoz's Filgrastim (Zarzio) Is Good News For Patients, by @ElaineSchattner – https://t.co/Dle8xM2G9I — Elaine Schattner MD, MA (@ESchattner) January 8, 2015 NEW Policy Insight: High cost sharing can contribute to medical debt. Transparency can help consumers avoid it: https://t.co/p4uh62kkVd — KFF (Kaiser Family Foundation) (@KFF) January 8, 2015 Amid […]
The National Coalition for Cancer Survivorship Establishes the Jessie Gruman Patient Engagement Award
For more than twenty years, the National Coalition for Cancer Survivorship (NCCS) had the privilege of adapting our friend and colleague, Jessie Gruman’s important work into the development of the cancer policy work that we engage in. Jessie’s vision of patient engagement was always ahead of its time, and her books and blogs and participation […]
