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Advocates from Across the US Discuss Key Survivorship Issues at Cancer Policy Advocate Training

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Madeline LongGill and Staff CPAT

Left to Right: Kelsey Nepote (NCCS Policy and Advocacy Manager), Shelley Fuld Nasso (NCCS CEO), Madeline Long-Gill (CPAT Attendee and Founder & President of Supporting Our Sisters International Inc.), and Elizabeth Goss (NCCS Policy Counsel)

Last week, advocates from across the country came together for the NCCS Cancer Policy Advocate Training (CPAT). Participants spent two days being trained on the most pressing policy issues affecting cancer survivorship care in the United States. The program agenda focused on the needs of cancer survivors from diagnosis to treatment and through long-term survivorship care. In addition, the program considered policy activities that may foster or support reforms to make the cancer care system more responsive to survivors’ needs.

The first day included panels focused on current research findings regarding late and long-term effects, survivorship care planning and the delivery of coordinated care, and challenges facing the cancer care workforce. The second day included presentations that examined if new value-based cancer care payment systems foster better survivorship care and addressed disparities in survivorship care.

In addition to the training, many advocates participated in a lobby day and met with representatives from their Congressional offices seeking support for the Planning Actively for Cancer Treatment (PACT) Act (H.R. 2846). The PACT Act—a bipartisan effort being led by Congresswoman Lois Capps (CA-24) and Congressman Charles Boustany (LA-3)—would establish a new Medicare service for cancer care planning. Many of the advocates did not receive coordinated care while undergoing treatment and did not receive a survivorship care plan once treatment ended. This legislation is personal to these individuals and many more.

We are grateful to those who attended and the esteemed faculty that presented and look forward to continuing this program with a closing webinar, which is open to the public, on Wednesday, August 5 from 3:00pm-4:30pm EDT. This program was made possible through the support of Lilly Oncology, Merck, Novartis, and Pfizer.

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The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

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