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20years

Treating the Whole Person: Understanding and Gaining Access to Palliative Care

February 18, 2015/in Cancer News, Cancer Policy Blog Care Coordination, Care Planning, Palliative Care, Quality Cancer Care NCCS News /by actualize

As part of our 20 Years Later blog series, NCCS CEO Shelley Fuld Nasso discusses the difference between palliative and end-of-life care, as well as barriers to palliative care in this video.


The second principle from the Imperatives for Quality Cancer Care states, “Quality cancer care should be available in a health care system whose standards and guidelines are developed in consideration of treating the whole person with cancer. Health care plans must regard the cancer patient as an autonomous individual who has the right to be involved in decisions about his or her care.”

Treating the whole person with cancer means treating the symptoms and side effects of cancer, not just the tumor or disease. Over the last twenty years, the medical specialty of palliative medicine has emerged, with a focus on improving patients’ quality of life. Palliative care has been called an extra layer of support for patients facing serious illness.

Palliative care is not the same as end-of-life care and, in fact, should be provided to patients during any serious illness, at any stage of the illness. Even individuals with early-stage, potentially curable cancer face challenges throughout their treatment and afterward and need the support of palliative care.

A groundbreaking study released in 2010 showed that individuals with metastatic lung cancer who were offered palliative care early, along with their chemotherapy and other treatments, had better outcomes those who only received the usual oncology care. They ended chemotherapy earlier, spent more time in hospice, and experienced less suffering before they died. But the most surprisingly result was that they lived longer. This study changed the way many people viewed palliative care and provided the evidence that palliative care needs to be part of cancer care for everyone.

Physician societies have defined the elements of palliative care that should be standard for oncology care, and many oncologists are incorporating these elements into their regular practice. Efforts to reform payment for cancer care have also considered ways to improve symptom management and care coordination.

Still, not all people with cancer have access to palliative care today. There are numerous barriers, but the most unfortunate one is a cultural and perception problem. Many physicians and patients alike still equate palliative care with hospice and end-of-life care. While palliative care is an important element of end-of-life care, it is much more than that.

NCCS believes that planning and coordination of care, proper symptom management, and early incorporation of palliative care will encourage the appropriate utilization of cancer care resources while also protecting the quality of cancer care and ensuring patient satisfaction with their care.

Other Resources

Palliative Doctors provides information about palliative care. PalliativeDoctors.org is the patient site of the American Academy of Hospice and Palliative Medicine (AAHPM).

Study: Early Palliative Care for Patients with Metastatic Non–Small-Cell Lung Cancer

Archived Post: NCCS Offers Comments to the Centers for Medicare and Medicaid Innovation on their proposed Oncology Care Model

 

Tags: 20 Years Later, Cancer Survivorship, care planning, end of life, ePatient, Palliative Care, quality
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  • About
    • Our Mission
    • Our History
    • Our Leadership
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2020 State of Cancer Survivorship Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
    • What is Advocacy?
    • Cancer Policy and Advocacy Team (CPAT)
    • Elevating Survivorship
    • Survivor Stories
    • Cancerversary
    • State Based Cancer Advocacy
  • Resources
    • Survivorship Checklist
    • Cancer Survival Toolbox
    • Telehealth
    • Publications
      • Talking With Your Doctor
      • Self Advocacy
      • Employment Rights
      • Remaining Hopeful
    • Taking Charge of Your Care
    • Care Planning for Cancer Survivors
    • Tools For Care Providers
    • COVID-19 Resources for Cancer Survivors
    • Order Our Resources
  • News
    • Cancer Convos Podcast
  • Events
    • Ellen L. Stovall Award
      • 2020 Stovall Awards
      • Honorees
      • Sponsors
      • Committees
      • Reception
      • Nominations
    • Cancer Policy Roundtable
      • Fall 2020 Cancer Policy Roundtable
      • Spring 2020 Cancer Policy Roundtable
    • Cancer Policy and Advocacy Team (CPAT) Symposium 2020
    • Webinars
  • Contact Us

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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute