Public Policy Draft - NCCS - National Coalition for Cancer Survivorship

Public Policy

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Policy Priorities

Quality Cancer Care

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Access to Care

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Health Equity

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Our Work

Redefining Functional Status (RFS)

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State of Survivorship Survey

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Cancer Care Planning and Communications Act (CCPCA)

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Policy Comments

CMS Announces It Will Retain Breast Reconstruction Codes, A Reversal That Protects Patient Access to DIEP Flap Surgery

Yesterday, the Centers for Medicare and Medicaid Services (CMS) announced that it will retain procedure codes for breast cancer reconstruction, ...

NCCS Urges CMS to Preserve Access to DIEP Flap Breast Reconstruction

Today, the Centers for Medicare and Medicaid Services (CMS) hosted a public meeting, in which they sought input on its decision ...

Accessing COVID-19 Resources After the Public Health Emergency Ends

The COVID-19 public health emergency (PHE), which has been in effect since early 2020, will end on May 11, 2023 ...

NCCS and Cancer Leadership Council Issue Comments on Implementation of Medicare Drug Price Negotiation Program

NCCS joined with other member organizations of the Cancer Leadership Council (CLC) in a letter to the Centers for Medicare ...

NCCS Joins With Patient Advocates and Health Care Professionals to Call on CMS to Ensure Access to DIEP Flap Breast Reconstruction

WASHINGTON, DC, April 3, 2023 – Advocates for individuals in need of breast reconstruction surgery delivered a letter and petition ...

NCCS Joins Cancer Leadership Council in Urging Congress to Include Priorities in Year-End Package

NCCS joined with other member organizations of the Cancer Leadership Council (CLC) in a letter urging Congress to include several ...

NCCS Joins Groups in Urging Reinstatement of Emergency Paid Sick and Family Leave in Supplemental COVID-19 Relief Package

NCCS has advocated for the inclusion of paid family and medical leave in the Build Back Better Act and will ...

NCCS Joins Coalition in Challenging ‘Junk’ Insurance Plans

NCCS joined with other members of the Partnership to Protect Coverage coalition in sending a letter to the Departments of ...

NCCS Pushes for Inclusion of Critical Health Care Provisions in Reconciliation Package

NCCS joined with other advocacy groups in sending letters to congressional leadership supporting the inclusion of several critical provisions in ...

NCCS Comments on CMS-Proposed Benefit and Payment Parameters for 2022

NCCS submitted comments to the Departments of the Treasury and Health and Human Services and the Centers for Medicare and ...

NCCS Joins Coalition Urging Congress to Improve Health Care Coverage Affordability and Access

NCCS joined the Partnership to Protect Coverage coalition in a letter urging Congress to pass legislation to address affordable health ...

NCCS Recommends That States Allocate COVID-19 Vaccines to Cancer Care Providers

The National Coalition for Cancer Survivorship (NCCS) and the Cancer Leadership Council (CLC) sent a letter to the CDC’s Advisory ...

NCCS and Other Cancer Groups Urge HHS to Keep Six Protected Classes in Medicare Part D Drug Plans

The National Coalition for Cancer Survivorship (NCCS) joined with the Cancer Leadership Council (CLC) in urging Health and Human Services ...

NCCS Urges CDC Committee to Include Cancer Survivors in High-Risk Category for COVID-19 Vaccine Distribution

In a letter to the CDC’s Advisory Committee on Immunization Practices (ACIP), NCCS urged the committee to review the data ...

NCCS, Cancer Groups Urge CMS to Withdraw Most Favored Nation (MFN) Medicare Part B Rule That Will Harm Patients and Reduce Access to Care

The National Coalition for Cancer Survivorship (NCCS) joined other member organizations of the Cancer Leadership Council (CLC) in a letter ...

NCCS Letter to HHS: Proposed Regulatory Review Rule Would Create Unnecessary Uncertainty for Patients

The National Coalition for Cancer Survivorship (NCCS) recently submitted comments urging the Department of Health and Human Services (HHS) to ...

NCCS Recommends Making COVID-19 Medicare Telehealth Coverage Expansion Permanent

NCCS recently submitted a comment letter to the Centers for Medicare and Medicaid (CMS) regarding the Medicare physician fee schedule ...

NCCS and Cancer Groups Make Recommendations to CMS Regarding Proposed 2021 Hospital Outpatient Prospective Payment System (OPPS)

NCCS joined with other cancer patient and provider groups in a comment letter to the Centers for Medicare and Medicaid ...

NCCS and Cancer Groups Urge National Academy of Medicine to Include Cancer Patients in Phase IB COVID-19 Vaccine Allocation

NCCS joined with a group of patient and provider advocacy groups in a letter to the National Academy of Medicine ...

NCCS Submits Comments to CMS on Oncology Care First Model

The National Coalition for Cancer Survivorship (NCCS) submitted comments in response to an Informal Request for Information on the proposed ...

NCCS Joins Coalition of Organizations Urging Congress to Extend the Medical Expense Deduction Permanently

The National Coalition for Cancer Survivorship (NCCS) joined with AARP and 47 other organizations in letters to the House and ...

NCCS Urges FDA to Finalize Graphic Health Warnings for Cigarette Packs and Advertisements

The National Coalition for Cancer Survivorship (NCCS) joined with public health and medical organizations in a comment letter to the ...

NCCS Concerned That Proposed ACA Rule Changes Could Raise Costs for Patients and Disrupt Treatment

NCCS and member organizations of the Cancer Leadership Council (CLC) submitted comments to the Department of Health and Human Services ...

NCCS and Cancer Leadership Council Highlight Potential Harm to Patients of Proposed Medicare Part D Changes

The Department of Health and Human Services (HHS) released recently a proposed rule to change Medicare Part D’s protected classes ...

NCCS Letter to CMS Highlights Concerns About Proposed Medicare Part B Reforms

On December 31st, NCCS submitted our final comment letter of the year to the Centers for Medicare and Medicaid Services ...

NCCS “Not Persuaded” Drug Pricing in DTC Ads Will Improve Doctor-Patient Communication

Earlier this year, the Centers for Medicare and Medicaid Services (CMS) issued a proposed rule that would require information about ...

NCCS Joins with Cancer Leadership Council to Outline Concerns Regarding New “Step Therapy” Plan

NCCS joined with other cancer organizations of the Cancer Leadership Council (CLC) in a letter to the Department of Health ...

NCCS Submits Recommendations to CMS Regarding Proposed Changes to Hospital Outpatient Prospective Payment System (OPPS)

NCCS submitted a letter to the Centers for Medicare and Medicaid Services (CMS) on the proposed update to the hospital ...

NCCS Joins Cancer Leadership Council Recommendations to FDA Regarding the Biosimilar Action Plan

NCCS joined with other organizations of the Cancer Leadership Council (CLC) in commenting on the Food and Drug Administration’s (FDA) ...

NCCS Raises Concerns Over Impact on Patients of Medicare Physician Fee Schedule Revisions

NCCS submitted comments to the Centers for Medicare and Medicaid Services (CMS) on the Medicare physician fee schedule revisions proposed ...

NCCS Applauds Resolution to Block Short-Term Insurance Plans, Protect Those with Pre-Existing Conditions

Washington, DC – The National Coalition for Cancer Survivorship (NCCS) applauds the efforts of Senator Tammy Baldwin (D-WI) and 30 ...

NCCS Statement on HHS Final Rule for Short-Term, Limited Duration Health Plans

The National Coalition for Cancer Survivorship (NCCS) issued the following statement regarding the Trump administration’s announcement of the final rule ...

NCCS Joins Cancer Leadership Council Comment Letter Regarding the Drug Pricing Blueprint “American Patients First”

The National Coalition for Cancer Survivorship (NCCS) joined with other organizations of the Cancer Leadership Council (CLC) to provide comments ...

NCCS Joins Cancer Leadership Council to Oppose Right to Try Legislation in the House

The National Coalition for Cancer Survivorship joined with other organizations of the Cancer Leadership Council (CLC) in a letter to ...

NCCS Joins Cancer Leadership Council to Oppose the Latest Version of Right to Try Act

NCCS joined the Cancer Leadership Council to express serious reservations about the latest version of the Trickett Wendler, Frank Mongiello, ...

NCCS Letter to DOL: Proposed Association Health Plans Rule “Will Increase Costs for Cancer Survivors and Others with Significant Health Needs”

The National Coalition for Cancer Survivorship (NCCS) submitted comments on the proposed rule on Association Health Plans (AHPs) and expressed ...

NCCS Joins Letter Expressing “Serious Reservations” About “Right to Try” Legislation

NCCS joined with colleagues in the Cancer Leadership Council to express serious reservations about proposed “right to try” legislation that ...

NCCS Concerned With Impact of Tax Bill on Cancer Patients

Silver Spring, MD – The National Coalition for Cancer Survivorship (NCCS) issued the following statement regarding Congressional passage of the ...

NCCS Joins Letter to Congress Opposing Health Care Cuts in Tax Reform Legislation

NCCS and the 11 other member organizations of the Cancer Leadership Council sent a letter to Congress expressing “serious concerns ...

NCCS Joins AARP In Opposing Medical Expense Deduction Repeal

NCCS joined a letter, spearheaded by AARP and sent to all members of the House of Representatives, opposing the proposed ...

NCCS Letter to HHS Highlights “Deep Reservations” Concerning Massachusetts 1115 Waiver

The National Coalition for Cancer Survivorship (NCCS) sent a letter to Eric Hargan, Acting Secretary of the Department of Health ...

NCCS Statement on President Trump’s Harmful Health Care Executive Order

October 12, 2017 Silver Spring, MD – President Trump signed an executive order on health care today that directs federal ...

NCCS Sends Letter to Sen. Finance Committee Opposing Graham-Cassidy ACA Repeal

The National Coalition for Cancer Survivorship (NCCS) sent a letter to the Senate Finance Committee in response to a request ...

NCCS Joins Cancer Groups to Oppose Graham-Cassidy ACA Repeal in a Letter to Senate Leadership

NCCS joins patient and provider organizations in the Cancer Leadership Council (CLC) in opposing the Graham-Cassidy-Heller Johnson legislation to repeal ...

NCCS Submits Comments to CMS, Stresses Importance of ACA and Outlines Steps to Strengthen Law

The National Coalition for Cancer Survivorship (NCCS) submitted comments to the Centers for Medicare and Medicaid Services (CMS) in response ...

NCCS Joins 120 Patient, Provider, and Consumer Organizations to Oppose Medicaid Cuts and Funding Caps

The National Coalition for Cancer Survivorship (NCCS) joined with 120 leading patient, provider and consumer organizations to express grave concerns ...

NCCS Sends Letter to Sen. Hatch on Health Care Reform Priorities

Silver Spring, MD – The National Coalition for Cancer Survivorship (NCCS) sent a letter to Sen. Orrin Hatch (R-UT), Chairman ...

NCCS Joins Cancer Organizations to Express Opposition to the American Health Care Act

NCCS joined with patient advocacy organizations in the Cancer Leadership Council (CLC) in submitting a letter to Congressional leaders regarding ...

87 Organizations Call on Congress to Protect Medicaid

Bethesda, MD – 87 organizations issued a letter today calling on Congress to take a hard look at the likely ...

NCCS Submits Comments on CMS Proposed ACA Market Stabilization Rule

NCCS submitted comments to the Centers for Medicare and Medicaid Services (CMS) on the proposed rule that is intended to ...

NCCS Joins Letter to Congressional Leaders Regarding the Affordable Care Act

NCCS joined with patient advocacy organizations in the Cancer Leadership Council (CLC) in submitting a letter to Congressional leaders regarding ...

NCCS Comments on CMS’s Proposed Revisions to the 2017 Physician Fee Schedule

NCCS submitted comments to the Centers for Medicare and Medicaid Services (CMS) on the proposed revisions to the 2017 Physician ...

NCCS Comments on the FDA’s PDUFA Proposed Commitment Letter

PDUFA: Related Post A Voice for Cancer Survivors in the PDUFA Stakeholder Meetings In 1992, Congress passed the first Prescription ...

NCCS Comments on Medicare Access and CHIP Reauthorization Act of 2015 (MACRA) Proposed Rule

NCCS submitted comments to the Centers for Medicare and Medicaid Services (CMS) on the proposed rule on the Medicare Access ...

NCCS Joins Letter to Reagan-Udall Foundation Regarding the Expanded Access Navigator Program

NCCS joined with patient advocacy organizations in the Cancer Leadership Council (CLC) in submitting comments to the Reagan-Udall Foundation regarding ...

A Voice for Cancer Survivors in the PDUFA Stakeholder Meetings

In 1992, Congress passed the first Prescription Drug User Fee Act (PDUFA), a law that allows the Food and Drug ...

NCCS Joins Patient Advocates in Proposing Alternative Approach to CMS’ Part B Drug Payment Demonstration

NCCS joined with patient advocacy organizations in the Cancer Leadership Council (CLC) in submitting comments to the Centers for Medicare ...

CMS’ Hospital Compare Star Ratings a Valuable Tool for Cancer Survivors to Make Informed Decisions About Their Care

Post by Shelley Fuld NassoThe Centers for Medicare and Medicaid Services (CMS) announced that they are postponing the release of ...

NCCS Submits Comments to the Senate Finance Committee’s Bipartisan Chronic Care Working Group

NCCS recently submitted comments on the Senate Finance Committee’s “Bipartisan Chronic Care Working Group Policy Options Document” in response to ...

NCCS Offers Comments on Alternative Payment Models for Cancer Care as Part of the Merit-Based Incentive Payment System (MIPS)

NCCS submitted comments to the Centers for Medicare and Medicaid Services (CMS) in response to its request for feedback on ...

NCCS Submits Letters, Joins Cancer Leadership Council and C-P Alliance, in Comments to CMS on Proposed Revisions to Medicare Physician Fee Schedule

NCCS submitted letters to the Centers for Medicare and Medicaid Services (CMS) on its proposed revisions to the Medicare physician ...

NCCS Responds to Draft ASCO Conceptual Framework to Assess the Value of Cancer Treatment Options

NCCS recently submitted comments to the American Society for Clinical Oncology (ASCO) on its proposed value framework. In June, ASCO ...

NCCS Submits Comments to the Senate Finance Committee in Response to Bipartisan Effort to Improve Care for Medicare Patients with Chronic Conditions

Today the National Coalition for Cancer Survivorship (NCCS) submitted comments to the Senate Finance Committee in response to a bipartisan ...

NCCS Joins Other Advocates in Endorsing Bipartisan Medical Debt Relief Act of 2015

This week NCCS joined a diverse group of advocacy groups in endorsing the bipartisan Medical Debt Relief Act of 2015 ...

NCCS Submits Comments to House Energy and Commerce Committee on 21st Century Cures Legislation

The National Coalition for Cancer Survivorship (NCCS) submitted comments to the House Energy and Commerce Committee on its 21st Century ...

The New Medicare Oncology Care Model Will Improve Quality of Care for Cancer Patients

The National Coalition for Cancer Survivorship (NCCS) applauds the release by the Centers for Medicare and Medicaid Services (CMS) of ...

NCCS Policy Comments: FDA’s Framework for Regulatory Oversight of Laboratory Developed Tests (LDTs)

NCCS submitted comments to the Food and Drug Administration (FDA) on the Draft Guidance: Framework for Regulatory Oversight of Laboratory ...

NCCS Joins Colleagues in Submitting Comments to NIH on the Use of a Single Institutional Review Board for Multi-Site Research

Today, NCCS joined colleagues in the cancer community in submitting comments to the National Institutes of Health (NIH) on the ...

NCCS Joins Colleagues in Submitting Comments to HHS Regarding Proposed Rule on Notice of Benefit and Payment Parameters for 2016

In late December 2014, NCCS joined colleagues in the Cancer Leadership Council in submitting comments to the Department of Health ...

NCCS Joins Colleagues in Submitting Comments to National Association of Insurance Commissioners on the Health Benefit Plan Network Access and Adequacy Model Act

Last week, NCCS joined colleagues in the Cancer Leadership Council (CLC) in submitting comments to the National Association of Insurance ...

NCCS Policy Comments: Recommending Cancer Survivorship as a Topic for FDA Patient-Focused Drug Development Meetings

Last week, NCCS submitted comments to the U.S. Food and Drug Administration (FDA) regarding the series of patient-focused drug development ...

NCCS Offers Policy Comments: Strategies for Increasing Patient Participation in FDA Review Activities

The Food and Drug Administration Safety and Innovation Act (FDASIA) authorized a patient-focused drug development program, and in the years ...

NCCS Offers Comments to the Centers for Medicare and Medicaid Innovation on their proposed Oncology Care Model

Click here to view all of NCCS’ policy comments. Recently, NCCS submitted comments to the Center for Medicare and Medicaid ...

NCCS and CLC Policy Comments: 2015 Physician Fee Schedule

Recently, NCCS joined colleagues in the Cancer Leadership Council (CLC) in submitting comments to the Centers for Medicare and Medicaid ...

Balancing Patient Protections and Innovation: NCCS Applauds FDA Action to Regulate Laboratory-Developed Tests

The National Coalition for Cancer Survivorship (NCCS) commends the Food and Drug Administration (FDA) for taking critical steps to ensure ...

NCCS Responds to 21st Century Cures Initiative Call to Action

The United States House of Representatives’ Energy and Commerce Committee released a Call to Action and announced the 21st Century ...

Why We Care About Physician Payment

Why should patients care about how physicians are paid? Because the way we as a country, and Medicare as the ...

NCCS Applauds Test of Care Choices for Cancer Patients

The National Coalition for Cancer Survivorship (NCCS) applauds the recent decision by Health and Human Services Secretary Kathleen Sebelius to ...

NCCS Joins Colleagues in Commending the Work of the Senate Finance Committee on the SGR Repeal

NCCS joined colleagues in the Cancer Leadership Council in commending the work of the Senate Finance Committee on the SGR ...

NCCS Joins Alliance for Childhood Cancer in Submitting Comments to FDA

NCCS joined the Alliance for Childhood Cancer in submitting comments to the Food and Drug Administration (FDA) following the January ...

Advocating for Clear Coverage for Clinical Trial Services for Medicare Advantage Enrollees

NCCS joined with 20 patient advocacy groups and professional societies to urge the Centers for Medicare and Medicaid Services (CMS) ...

NCCS Joins Cancer Leadership Council (CLC) in Comments to CMS Regarding “Protected Classes”

NCCS joined its colleagues in the Cancer Leadership Council in urging the Centers for Medicare & Medicaid Services (CMS) to ...

NCCS Joins Colleagues in the CLC in Submitting Comments on 2015 Letter to Issuers

This week the National Coalition for Cancer Survivorship (NCCS) joined colleagues in the Cancer Leadership Council (CLC)–a coalition that represents ...

NCCS Policy Comments: Rewarding Quality of Care Among Other Measures in SGR Legislative Proposal

NCCS submitted comments to the Senate Finance Committee and the House Ways & Means Committee on a draft proposal to ...

NCCS Joins Colleagues in Offering Advice Regarding Standards for Sharing Patient-Specific Clinical Trials Data

The National Coalition for Cancer Survivorship joined colleagues in the cancer advocacy community in offering advice to the Food and ...

NCCS Joins Patient and Professional Organizations in Urging Congressional Leadership to End the Shutdown

The National Coalition for Cancer Survivorship (NCCS) joined more than 20 patient and professional organizations in the Cancer Leadership Council ...

NCCS Comments on Proposed Physician Fee Schedule for 2014

NCCS submitted comments to the Centers for Medicare and Medicaid Services (CMS) on the proposed rule that addresses Medicare Part ...

NCCS Submits Comments in Follow-Up to FDA Patient-Focused Public Meeting

NCCS submitted comments to the Food and Drug Administration (FDA) as a follow-up to the Lung Cancer Patient-Focused Drug Development ...

NCCS Joins Patient Advocate Colleagues in Commenting on FDA Document on Expedited Programs for Serious Conditions

NCCS joined its patient advocate colleagues in the Cancer Leadership Council in comments on a Food and Drug Administration (FDA) ...

NCCS Comments on Quality Measures for PPS-Exempt Cancer Hospitals

NCCS filed comments in support of proposed cancer care quality measures that will be utilized to assess the cancer care ...

NCCS endorses the Carolyn Pryce Conquer Childhood Cancer Reauthorization Act

NCCS is a member of the Alliance for Childhood Cancer and joined with the Alliance to support the introduction of ...

Cancer Leadership Council Statement: Reform Medicare Payment for Patient-Focused Care

NCCS joined its colleagues in the Cancer Leadership Council in publishing a statement of principles to guide reform of Medicare ...

NCCS and Colleagues Comment on FDA Strategies Regarding Drug Shortages

NCCS joined colleagues in the cancer patient and provider community in providing advice to the Food and Drug Administration (FDA) ...

NCCS Joins Colleagues in Offering Comments on an Alternative Approval Pathway

NCCS joined its colleagues in the patient advocate and cancer care provider community in offering comments to the Food and ...

Cancer Leadership Council Submits Comments on the Proposed Rule on Medicaid Cost-Sharing and Other Issues

NCCS joined colleagues in the cancer advocacy community in submitting comments regarding proposed standards for the expanded Medicaid program that ...

NCCS Files Comments on Proposed Rule Setting Standards Related to Essential Health Benefits, Actuarial Value, and Accreditation

The Honorable Kathleen Sebelius Secretary Department of Health and Human Services 200 Independence Avenue, S.W. Washington, D.C. 20201 Re: CMS-9980-P, ...

Cancer Leadership Council Comments on Essential Health Benefits

On December 26, 2012 the Cancer Leadership Council, a patient-centered forum of national advocacy organizations addressing public policy issues in cancer, ...

Comments on Medication Adherence to Office of Surgeon General

Department of Health and Human Services Office of the Surgeon General Room 710-H 200 Independence Avenue, SW Washington, DC 20201 ...

NCCS continues support of the minimum coverage provisions of the Affordable Care Act

Today, the U.S. Supreme Court began three days of arguments in the historic case on the constitutionality of the national ...

NCCS and CLC Comments on PCORI research priorities

Joe Selby, M.D., M.P.H Executive Director Patient-Centered Outcomes Research Institute Re: Draft National Priorities for Research and Research Agenda Dear ...

Cancer Leadership Council recommendations on Essential Health Benefits Bulletin

The Honorable Kathleen Sebelius Department of Health and Human Services 200 Independence Avenue, S.W. Washington, D.C. 20201 Re: Essential Health ...

Essential Health Benefits Bulletin, issued by Center for Consumer Information and Insurance Oversight

The Honorable Kathleen Sebelius Department of Health and Human Services 200 Independence Avenue, SW Washington, DC 20201 Re: Essential Health ...

Status as a grandfathered health plan

Patient Protection and Affordable Care Act NCCS endorsed Cancer Leadership Council comments The Honorable Kathleen Sebelius Secretary Department of Health ...

Dependent coverage of children to age 26

Patient Protection and Affordable Care Act The Honorable Kathleen Sebelius Secretary Department of Health and Human Services 200 Independence Avenue, ...

About Us

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What is Advocacy?

Learn about the different types of cancer advocacy—from advocating for your own care, to advocating for cancer care policy changes at the local, state, or national level.

Cancer Policy & Advocacy Team (CPAT)

CPAT is a program for survivors and caregivers to learn about pressing issues that affect quality cancer care, in order to be engaged as advocates in public policy.

Survivorship Champions

Survivorship Champions is an NCCS program for clinicians and researchers who are interested in improving care for cancer survivors.

Elevating Survivorship

Elevating Survivorship is a patient-led initiative to improve survivorship care. NCCS mentors advocates (Elevate Ambassadors) to fill vital gaps in survivorship care in their community.

Survivor Stories

Cancer survivors share their stories of survivorship.

Cancerversary

State Based Cancer Advocacy

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Become a Survivorship Champion

Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.

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Join CPAT

The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

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Share Your Story

NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.

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