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Cancer survivors have expressed concerns and questions about COVID-19, the coronavirus, and how they may be at higher risk due to their cancer history. Here are some resources about COVID-19 generally, and its impact for cancer survivors specifically. NCCS is seeking answers from public health experts on the coronavirus and its impact on cancer patients and survivors. Please leave a comment […]
The Supreme Court agreed on Monday to hear a third major challenge to the Affordable Care Act (ACA). The court did not say when it would hear the case, but arguments are likely to begin this fall, with a decision in the spring or summer of 2021. Read Vox’s primer to learn about the entire case and what is expected to happen next. The ACA has been the law of the land for ten years now. NCCS celebrated this milestone with other patient advocacy […]
How Should Patients Be Protected From “Surprise” Medical Bills? The Latest: Democratic and Republican House staffers met with Speaker Pelosi’s office to try to protect patients from getting large “surprise” medical bills. There was no breakthrough, according to The Hill. The Issue: Patients can receive extremely high medical bills during emergency situations when they are taken to an out-of-network hospital, or from out-of-network providers, even […]
NCCS joined with other patient groups in an amicus brief (a friend of the court brief) this week to challenge the administration’s October 2019 proclamation that would prevent immigrants from entering the U.S. if they cannot show they will be covered by approved health insurance within 30 days of entering the U.S. The proclamation would allow ACA-exempt, short-term limited duration insurance plans which, as we have reported, do not provide […]
“What would health care measurement look like if it reflected what patients and caregivers say matters most to them?” Quality measurement in cancer care is primarily focused on ensuring patients get the right tests and treatments, not whether those treatments help cancer survivors live well during and after cancer. NCCS embarked on an initiative to define quality measures by engaging survivors themselves to identify what’s important to measure. […]
Supreme Court Will Not Consider ACA Lawsuit Until After 2020 Election – The Supreme Court announced on January 21 that it would not consider the ACA lawsuit on an expedited basis before the 2020 election. NCCS is disappointed in this decision but remains hopeful the Supreme Court will hear the case later this year. NCCS recently joined with other patient groups in an amicus brief to the Court asking them to fast-track consideration of whether […]
House Members Solicit Public Input on “Cures 2.0” Bill – Representatives Fred Upton (R-MI) and Diana DeGette (D-CO) released a request for public input on a potential new bill they are calling “Cures 2.0” which would build on the 21st Century Cures Act. The duo says this legislation would focus on improving patients’ access to digital health products and new medical therapies. The bill would speed up insurance coverage by Medicare, Medicaid, […]
It is with profound sadness that we acknowledge the passing of Fitzhugh Mullan, MD, the co-founder and first president of the National Coalition of Cancer Survivorship, on November 30, 2019. As a young physician in 1975, Fitz was diagnosed with cancer at a time a cancer diagnosis was commonly a death sentence, often kept secret from friends, family, and coworkers. Always an activist for the rights of the disadvantaged, ten years after his own cancer experience, […]
Open enrollment for the Affordable Care Act’s (ACA) Healthcare.gov marketplace is in full swing. After major technical glitches, in addition to cuts to enrollment marketing and assistance, the number of enrollees is down this year from past years. As the Washington Post reports, the administration is also redirecting some Healthcare.gov users to private insurance exchanges that sell “junk” health plans — short-term limited duration plans that do not include […]
Washington, D.C. – The National Coalition for Cancer Survivorship (NCCS) presented the 4th annual Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care to Dr. Harmar Brereton and Dana Dornsife on November 13. Named for former NCCS CEO Ellen Stovall, who died in 2016 due to complications from three cancer treatments, the award highlights those who continue Ellen’s work of transforming cancer care to further incorporate […]
Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute