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NCCS - National Coalition for Cancer Survivorship
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Coronavirus feat

Coronavirus and Cancer Resources for Survivors

March 20, 2020/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, COVID-19, Financial Toxicity, Health Care Coverage, Health Equity, Quality Cancer Care, Shared Decision-Making NCCS News /by actualize
UPDATED MAY 12, 2020

NCCS has heard from many survivors who feel uniquely vulnerable due to their history of cancer treatments. And we have heard from people currently in treatment, who are worried about delays in care and navigating a stressed health care system.

We’re partnering and consulting with several cancer organizations and experts to address the questions and concerns survivors have shared. Please bookmark this page, as it will be updated frequently.

Frequently Asked Clinical Questions

Dr. Richard Schilsky and Shelley Fuld Nasso

Richard Schilsky, MD, FACP, FSCT, FASCO, and NCCS CEO Shelley Fuld Nasso

NCCS and the American Society of Clinical Oncology (ASCO) are working together to provide information about how coronavirus 2019 (COVID-19) could potentially affect the health and cancer care of people diagnosed with cancer.

Click the link below to find answers to cancer survivors’ frequently asked clinical questions about COVID-19 from ASCO Chief Medical Officer and Executive Vice President Dr. Richard Schilsky.

Common Questions about Coronavirus 2019 and Cancer: Answers for Patients and Survivors »

We will continue sharing survivors’ clinical questions with ASCO, so if you have questions that are NOT answered here, please let us know.

Cancer Convos PodcastNCCS Podcast Hosts Health Care Experts Who Address Coronavirus’ Impact on Cancer Survivors

Listen to NCCS’ podcast, Cancer Convos, for more insights on COVID-19 and its impact on cancer patients and survivors. Subscribe to Cancer Convos on Apple Podcasts or your favorite podcast app.

How Survivors Can Cope With the Anxiety of COVID-19

Answered by L. Imani Price, PhD.

Dr. L. Imani Price is a licensed psychologist at Women’s InnerFitness and Wellness Center and serves as the Vice Chair of the Board of Directors at Breast Care for Washington, D.C.

Dr. Price suggests this expert advice:

Many survivors are experiencing stress, anxiety, and PTSD from the new expectations and restrictions resulting from the COVID-19 pandemic. These uncertain times can lead to feelings of helplessness and a lack of control over one’s life. This may trigger thoughts of stressful events of the past with worries about one’s health or that of loved ones.

Although experiencing some levels of anxiety and fear can be expected, we do have some control over our lives, despite the global restrictions from the pandemic.

While learning to live indoors:

  1. Develop a routine or schedule for your time, which includes the time you will wake up, time for movement/exercise, regular check-ins with friends, and regular family activities. Having a schedule can help center your emotions and give you a sense of control over your life.
  2. Take a breath. Deep breathing helps reduce stress in the body, reduces muscle tension, and calms the mind. It also increases the flow of oxygen to the brain, which helps with clarity, memory, and wellbeing. You can use DVDs or apps for exercising, find free breathing or meditation apps (Insight Timer or Calm) for techniques, or walk around your home or yard and climb stairs for movement.
  3. Stay in touch with the people you love with virtual communication and telephone calls. Use your time to start a daily conference or virtual call through a free conference or virtual call company with friends for a book club; Bible Study; prayer; or start a recipe exchange club where members alternate bringing new recipes to the group, cook it at the same time, and share the outcomes.
  4. Start a new hobby or learn a new skill. Embrace your creativity to help with mental acuity, expression, and entertainment. Let your creative self shine with these few suggestions and anything else your thoughts will lead you to do.

Food Assistance Program for Cancer Patients

Team Rubicon Coronavirus Food AssistanceTeam Rubicon, in collaboration with Patient Advocate Foundation (PAF) and funded by the Bristol Myers Squibb Foundation, will provide assistance to immunocompromised patients living with cancer, whose ability to access or afford food and other nutritional needs are at risk due to the COVID-19 pandemic.

Eligible patients, their caregivers or care team members can request complimentary delivery of food and other critical supplies directly to their place of residence.

Patients with an identified financial need will be able to apply for a one-time grant of $500 to help pay for food and nutritional needs including groceries, food delivery or pick up and medically-tailored meals.

Apply Now at teamrubiconusa.org »

Helpline for Cancer Support

The Cancer Support Community (CSC) Cancer Support Helpline is staffed by counselors and resource specialists who have extensive years of experience helping people affected by cancer. Counselors and resource specialists can be reached by phone at 1-888-793-9355 or live chat from Monday through Friday, 9:00 a.m. – 9:00 p.m. ET, and Saturday and Sunday from 9:00 a.m. – 5:00 p.m. ET.

Resources About Loss of Health Coverage

This blog on COVID-19 by Karen Pollitz at Kaiser Family Foundation outlines what you can do about losing health coverage during this crisis.

For information about transitioning from job based coverage to other forms of coverage (including Medicaid and COBRA), see these resources:

  • Health coverage options if you’re unemployed
  • Losing Job-based Coverage
  • Medicaid & CHIP coverage
  • COBRA coverage and the Marketplace
  • COBRA Continuation Coverage Questions and Answers
  • Complex Case Scenarios – Preventing Gaps in Health Care Coverage Mini-Series: Transitioning from Employer-Sponsored Coverage to Other Health Coverage – June 5, 2015 (slides)

For information on Special Enrollment Periods, see here:

  • Enroll in or change 2020 plans — only with a Special Enrollment Period

For updated guidance on grace periods for binder and premium payments see here:

  • Payment and Grace Period Flexibilities Associated with the COVID-19 National Emergency

Additional Resources

  • “Coronavirus: What Cancer Patients Need to Know”
    Fred Hutchinson Cancer Research Center
  • “Coronavirus: What People with Cancer Should Know”
    National Cancer Institute
  • “Coronavirus 2019: What People With Cancer Need to Know”
    American Society of Clinical Oncology’s (ASCO) Cancer.Net
  • ASCO – Coronavirus Resources
    ASCO.org
  • “Coronavirus Disease 2019 (COVID-19) in the U.S.”
    Centers for Disease Control and Prevention (CDC)

More Resources to Come!

We will soon be addressing how NCCS is advocating for telework, provisions in the Coronavirus Relief Bill that can help survivors, as well as how to get the exercise and nutrition survivors need while practicing social distancing.

Bookmark this page for more information!

Questions About Coronavirus?

NCCS is seeking answers from public health experts on the coronavirus and its impact on cancer patients and survivors. Please contact us at www.canceradvocacy.org/contact with any questions or concerns you have and what data would be helpful to you as we gather this information.

NCCS Coronavirus Coverage

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Tags: cancer care, Cancer Survivorship, caregivers, coronavirus, COVID-19, financial issues, Medicaid, Medicare
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Latest News

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NCCS Recommends That States Allocate COVID-19 Vaccines to Cancer Care Providers

March 1, 2021
The National Coalition for Cancer Survivorship (NCCS) and the Cancer Leadership Council…
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COVID-19 Vaccines and Cancer: A Conversation with Cancer Expert Otis Brawley, MD

March 1, 2021
The National Coalition for Cancer Survivorship (NCCS) hosted a conversation on February…
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NCCS Joins Patient, Disability, and Health Care Organizations to Urge U.S. Supreme Court to Protect Medicaid and Rule Against Work Requirements

February 25, 2021
Loss of Patient Protections Would Raise Barriers to Health Insurance — Seventeen patient groups representing millions of Americans with pre-existing conditions filed an amicus curiae (“friend-of-the-court”) brief today in the U.S. Court of Appeals for the Fifth Circuit in the case Texas v. United States, citing the devastating impact patients would face should the court uphold the District Court ruling to invalidate the Affordable Care Act (ACA). [...]
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Take Action

Stovall Award

The Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care is a unique opportunity for patients and survivors to recognize pioneers who are transforming the cancer care system.

Join CPAT

The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

Share Your Story

NCCS represents the millions of Americans who share a common experience – the survivorship experience – living with, through and beyond a cancer diagnosis.

STAY CONNECTED

Together we can improve cancer care for survivors! Sign up to be the first to know about cancer policy issues and ways to take action

  • About
    • Our Mission
    • Our History
    • Our Leadership
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2020 State of Cancer Survivorship Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
    • What is Advocacy?
    • Cancer Policy and Advocacy Team (CPAT)
    • Elevating Survivorship
    • Survivor Stories
    • Cancerversary
    • State Based Cancer Advocacy
  • Resources
    • COVID-19 Resources for Cancer Survivors
    • Survivorship Checklist
    • Cancer Survival Toolbox
    • Telehealth
    • Publications
      • Talking With Your Doctor
      • Self Advocacy
      • Employment Rights
      • Remaining Hopeful
    • Cancer Convos Podcast
    • Taking Charge of Your Care
    • Care Planning for Cancer Survivors
    • Tools For Care Providers
    • Order Our Resources
  • News
  • Events
    • From Shadows to Life: A Biography of the Cancer Survivorship Movement
    • Ellen L. Stovall Award
      • 2020 Stovall Awards
      • Honorees
      • Sponsors
      • Committees
      • Reception
      • Nominations
    • Cancer Policy Roundtable
      • Fall 2020 Cancer Policy Roundtable
      • Spring 2020 Cancer Policy Roundtable
    • Cancer Policy and Advocacy Team (CPAT) Symposium 2020
    • Webinars
  • Contact Us

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NCCS Addresses COVID-19 & Cancer Survivorship Coronavirus feat NCCS Starburst 250px Health Care Roundup: COVID-19 Edition
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute