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Guest Post by Judith L. Pearson Best-Selling Author of From Shadows to Life: A Biography of the Cancer Survivorship Movement “Survivorship has been my passion for three decades, so I might talk your ear off!” When Susie Leigh sent those words in an email to me in the summer of 2017, I had no idea […]
Loss of Patient Protections Would Raise Barriers to Health Insurance — Seventeen patient groups representing millions of Americans with pre-existing conditions filed an amicus curiae (“friend-of-the-court”) brief today in the U.S. Court of Appeals for the Fifth Circuit in the case Texas v. United States, citing the devastating impact patients would face should the court uphold the District Court ruling to invalidate the Affordable Care Act (ACA). […]
In a letter to the CDC’s Advisory Committee on Immunization Practices (ACIP), NCCS urged the committee to review the data related to the risks that COVID-19 poses to cancer survivors as they monitor and update the immunization schedule and evaluate states’ flexible use of the schedule. There are serious risks to cancer survivors from infection […]
NCCS recently submitted a comment letter to the Centers for Medicare and Medicaid (CMS) regarding the Medicare physician fee schedule for calendar year 2021. The comment letter focuses on telehealth-related provisions of the proposed rule, as we are learning from our findings from our Telehealth Project that both patients and providers need more tools and […]
By Kim Bowles Founder Not Putting On a Shirt When I woke up from surgery and realized my surgeon had overridden my wishes, I was angry. I thought that because I had been clear with him, that I was safe. But as I began speaking with other women, I discovered that I was not alone […]
Kathy LaTour, breast cancer survivor, author of The Breast Cancer Companion, and co-founder of CURE Magazine, died on June 19. Kathy served as an NCCS board member from 1992 to 1996. After her cancer diagnosis in 1986, she turned her formidable writing talents to informing and supporting cancer patients and survivors. When Diane Balma was […]
Who better to help scientists research cancer than those who live with it?NCCS Elevate Ambassador Kimberly Richardson is partnering with University of Illinois College of Medicine students to launch an educational program for scientists and cancer survivors. “Survivors Advising Scientists Educational Program” is a model developed by Richardson while she participated in the National Coalition […]
We aim to make the Health Care Roundup a concise, one-stop summary of what you need to know as we continue working together to make cancer care better for everyone. Your feedback is always welcome to make our content more useful to you. Please send comments to feedback@canceradvocacy.org. Subscribe to our email list and receive […]
The National Coalition for Cancer Survivorship (NCCS) is proud to announce 14 patient leaders selected to serve as Ambassadors for the 2020 Elevating Survivorship program. Elevate Ambassadors will receive support, mentorship, networking opportunities, and virtual training from NCCS to develop and execute a plan of action to improve survivorship care in their community — whether […]
This month, the National Coalition for Cancer Survivorship (NCCS) launched a project to identify and share cancer patients’ and survivors’ perspectives on telehealth in cancer care. Regulatory, societal and practice changes associated with the COVID-19 pandemic have led to an increased use of telehealth, including in various aspects of cancer care. In this rapidly changing […]
The Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care is a unique opportunity for patients and survivors to recognize pioneers who are transforming the cancer care system.
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute