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U.S. House Reps. DeSaulnier and Carter Introduce Bipartisan Cancer Care Planning and Communications Act (CCPCA)

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Today, Representatives Mark DeSaulnier (D-CA) and Earl L. “Buddy” Carter (R-GA), co-chairs of the Congressional Cancer Survivors Caucus, introduced the Cancer Care Planning and Communications Act (H.R. 4414), which would create a Medicare service for cancer care planning, a key priority of the National Coalition for Cancer Survivorship. The legislation would improve doctor-patient communication by […]

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NCCS CEO Shelley Fuld Nasso Discusses Cancer Survivorship Issues On “Great.com Talks With…” Podcast

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NCCS CEO Shelley Fuld Nasso recently discussed how we can improve cancer survivors’ lives with Emil Ekvardt, founder of Great.com, on an episode of their “Great.com Talks With…” podcast. Cancer survivors often face long term debilitating effects from cancer treatment such as: fatigue, cognitive issues, depression, and anxiety. Patients need as much help and support […]

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NCCS Advocate Spotlight: Rachel Ferraris

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Advocate Spotlight July 2021 | Rachel Ferraris Nearly all cancer survivors can reflect on their cancer journey and recall one specific moment – the low point. To be able to reflect on that moment is, of course, the real gift. It means you are a survivor. Reaching the light of survivorship though is only done […]

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NCCS Elevate Ambassador Kimberly Richardson Drives Award-Winning SASEP Initiative

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As lifelong Chicagoan Kimberly Richardson trained for the 2013 Chicago Marathon, the unusual lethargy she felt drove her into her doctor’s office. Diagnosed with an ovarian cyst she was scheduled for a routine surgery to remove it. She woke from the surgery to a tap on her shoulder, “Kim, it’s cancer. We’ll talk through it […]

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Nancy Howe’s Cancerversary Keeps Her Moving

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My #cancerversary®, October 16, 1997, was the day I reaffirmed how important it is to listen to my body – it was also the day I finished cancer treatment. My cancer care team told me that while my prognosis wasn’t great, I was in better shape than they expected. I was diagnosed with an aggressive […]

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Survivorship Champions: A New NCCS Initiative for Clinicians and Researchers

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How one survivor’s journey led to her realization of what survivorship care is lacking and the importance of advocating for yourself during survivorship. Note: This post originally appeared in the Spring 2021 issue of HEAL, a survivorship magazine from CURE Today. Shelley Fuld Nasso, MPP By NCCS CEO Shelley Fuld Nasso, MPP Sarah Cohn knows […]

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The Birth of the Cancer Survivorship Movement and How It Transformed Cancer Care for Millions

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Guest Post by Judith L. Pearson Best-Selling Author of From Shadows to Life: A Biography of the Cancer Survivorship Movement “Survivorship has been my passion for three decades, so I might talk your ear off!” When Susie Leigh sent those words in an email to me in the summer of 2017, I had no idea […]

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NCCS Joins Patient, Disability, and Health Care Organizations to Urge U.S. Supreme Court to Protect Medicaid and Rule Against Work Requirements

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Loss of Patient Protections Would Raise Barriers to Health Insurance — Seventeen patient groups representing millions of Americans with pre-existing conditions filed an amicus curiae (“friend-of-the-court”) brief today in the U.S. Court of Appeals for the Fifth Circuit in the case Texas v. United States, citing the devastating impact patients would face should the court uphold the District Court ruling to invalidate the Affordable Care Act (ACA). […]

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NCCS Urges CDC Committee to Include Cancer Survivors in High-Risk Category for COVID-19 Vaccine Distribution

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In a letter to the CDC’s Advisory Committee on Immunization Practices (ACIP), NCCS urged the committee to review the data related to the risks that COVID-19 poses to cancer survivors as they monitor and update the immunization schedule and evaluate states’ flexible use of the schedule. There are serious risks to cancer survivors from infection […]

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NCCS Recommends Making COVID-19 Medicare Telehealth Coverage Expansion Permanent

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NCCS recently submitted a comment letter to the Centers for Medicare and Medicaid (CMS) regarding the Medicare physician fee schedule for calendar year 2021. The comment letter focuses on telehealth-related provisions of the proposed rule, as we are learning from our findings from our Telehealth Project that both patients and providers need more tools and […]

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