“What would health care measurement look like if it reflected what patients and caregivers say matters most to them?”
Quality measurement in cancer care is primarily focused on ensuring patients get the right tests and treatments, not whether those treatments help cancer survivors live well during and after cancer. NCCS embarked on an initiative to define quality measures by engaging survivors themselves to identify what’s important to measure.
NCCS was awarded a grant from the American Institutes for Research (AIR), with support from the Robert Wood Johnson Foundation, to lead a group of cancer survivors in defining a new quality measure concept: redefining functional status (RFS) following a cancer diagnosis. With a unique project design that put patients in the driver’s seat, NCCS was the only patient advocacy organization selected in a highly competitive selection process.
In this webinar, you will:
- Learn how cancer survivors defined the concept of “redefining functional status” and how to measure it;
- Hear from project co-leads Shelley Fuld Nasso (NCCS) and Kristen McNiff (KM Healthcare Consulting), as well as survivor committee members, about the project methodology, findings, and lessons learned;
- Understand the value in patient advocacy organizations taking a leading role in quality measurement development.
Together, we hope to leverage this project to shape quality measurement and ensure cancer survivors live well during and after cancer treatment.