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Health Care Roundup: ACA Open Enrollment News; Head and Neck Survivor Mental Health Study; Fear of Recurrence Webinar; More

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Open Enrollment for ACA Now Underway — Open enrollment for 2019 ACA plans began yesterday and will run through December 15, 2018. Despite numerous attempts to repeal the ACA in 2017 and an ongoing court case in Texas, the ACA continues ahead, business as usual, for the most part. Many Americans will qualify for financial help that lowers their monthly premiums to between $50 and $100. Tara Siegel Bernard reports in the New York Times […]

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NCCS Webinar Video: “Understanding Fear of Cancer Recurrence”

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Those with a cancer experience are all too familiar with the anxiety that many experience wondering and waiting if and how cancer may return. New research is helping shed more light on what exactly “fear of cancer recurrence” means as a measurable patient outcome, psychological and emotional factors that may increase or decrease it, and […]

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NCCS Awarded American Institutes for Research Grant to Develop New Outcome Measure: “Return to Functional Status”

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UPDATE FEBRUARY 2020: Read a summary of this research project at www.canceradvocacy.org/RFS. The National Coalition for Cancer Survivorship (NCCS) was awarded a grant from the American Institutes for Research (AIR), with support from the Robert Wood Johnson Foundation, to develop a new quality measure concept for “return to functional status.” NCCS will use a novel […]

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A Medical School Perspective: Beyond the Science, We Must Learn to Communicate with Patients

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By Nainika Nanda, MD — Survivorship. What does this mean? Oncology highlights patients currently battling cancer. However, survivorship encompasses a longer timeline. Cancer requires lifelong care, which is achieved through proper doctor-patient communication. In fact, this relationship is a keystone of medicine. Unfortunately, it can lose focus in the sea of information medical students must master. A common analogy for medical education is […]

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The Dempsey Center – An Oasis for Anyone Facing Cancer in Maine

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On behalf of the National Coalition for Cancer Survivorship (NCCS), I had the wonderful opportunity to visit Lewiston, Maine, in October for the annual Dempsey Challenge. Hundreds of cyclists rode between 10 and 100 miles to raise funds for the Dempsey Center. After attending the cancer survivors’ walk with hundreds of local survivors, patients and advocates, I had the chance to visit the Dempsey Center to see first-hand the incredible programs and services […]

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Mommy, Where’s Your Hair? (And Other Questions I Faced as a Parent with Cancer)

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It’s one thing to have cancer, and quite another to have children witness it. At age 37, I was diagnosed with Stage IV inflammatory breast cancer; I had a large tumor in my left breast, and the cancer had spread to lymph nodes and a rib. And I had a 14-month-old son and a 4-year-old daughter. Parenting with cancer is sadly not an uncommon phenomenon; […]

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Guest Post: For the Love of a Friend

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My dear friend Avery[1], a woman I’ve known since we were 10 years old (in 5th grade together) was diagnosed with inflammatory breast cancer (IBC) in 2006. Having observed my mother’s battle with breast cancer in the 1980s, I considered myself a veteran of the struggle. Times change. Diseases evolve. The intervening years—from the 80s […]

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Guest Post: For the Love of My Mother

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In 1983, my mother was diagnosed with breast cancer. I was in college at the time and flew home to be by her side when she awoke from a radical mastectomy. My mother was fearless in the face of a disease that few spoke about outside of very private spaces. As a 22 year old, […]

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WCOE: ASCO Cancer Survivorship Symposium, Honoring Ellen Stovall at #SurvOnc16

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What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. ASCO Announces Creation of Ellen L. Stovall Award @canceradvocacy https://t.co/fRA0EncZHj #SurvOnc16 — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) January 15, 2016 Mary McCabe, RN, MA ends presentation with future cancer survivorship research needs. […]

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Guest Post by Elizabeth J. Clark: Self-Advocacy is Critical to Quality Cancer Care

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  In the past twenty years, many advances have been made in ensuring quality cancer care for persons living with cancer. Individuals now have better treatments, more options, more cures, and longer periods when they are cancer-free or in remission. Enhanced insurance coverage, especially the passage of the Affordable Care Act, has contributed to innovative programming in survivorship and […]

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