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WCOE: Hunting for Health Care Procedures, Surging Costs of Cancer Care, Getting to Doctors Appointments, Logistic Toxicity, and A Beautiful Piece by Oliver Sacks

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What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Sites that are like #Priceline for #healthcare give consumers more power, but brings more responsibility to consumer: https://t.co/JkgQ8yLeYR — Peter Ubel (@peterubel) August 12, 2015 Lots written lately about the soaring cost of #cancer care, […]

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Navigating Cancer Survivorship Without a Net: How Far Have We Come and Where Are We Headed?

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Diagnosed, in 1994, with stage three testicular cancer with metastases to several lymph nodes and both lungs followed by an unrelated diagnosis of kidney cancer three months later, I found myself completely unprepared for the journey I was about to embark on.   At the age of 25, while many of my friends were planning weddings, […]

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WCOE: Supreme Court Ruling Breathes Life Into Affordable Care Act, Patient Advocates in DC for #CPAT15 Visit the Hill to Show Support for PACT Act, Sponsored by Congresswoman Lois Capps and Congressman Charles Boustany

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  Supreme Court decision is good news for cancer patients who need help purchasing health insurance. #SCOTUS #KingvBurwell — Shelley Fuld Nasso (@sfuldnasso) June 25, 2015   Check out this blog post about yesterday's #PACTAct visits https://t.co/A3JCmpbwxs — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) June 25, 2015   Thank you @RepBoustany for your […]

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Guest Post: “Coughing and Spluttering” — NCCS Co-Founder Susie Leigh Writes About Improving Care for Long-Term Survivors

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The sixth principle of the Imperatives states, “People with histories of cancer have the right to continued medical follow-up with basic standards of care that include the specific needs of long-term survivors.” NCCS has been on the forefront of incorporating care and survivorship care plans into cancer care. Providing her perspective of the history of […]

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NCCS CEO Shelley Fuld Nasso Introduces the Sixth Principle of the Imperatives for Quality Cancer Care

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We’re revisiting 20 years of advocacy with our 20 Years Later blog series. In this video, NCCS CEO Shelley Fuld Nasso introduces the 6th principle of the Imperatives for Quality Cancer Care and discusses progress and remaining opportunities for meeting the needs of cancer patients and survivors. (Video transcript): The sixth principle in the Imperatives for […]

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Reflections on Cancer Survivors Day: Managing Survivorship for a Lifetime

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On Sunday, June 7th, we are reminded by cancer centers to celebrate National Cancer Survivors Day®.  Today, there are a sea of colors for different cancer ribbons and wristbands, e.g., the ubiquitous pink for breast cancer, amber for bladder cancer, grey for brain cancer, yellow for all cancers, and so on.  But many of us […]

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Revisiting the Fifth Principle of the Imperatives for Quality Cancer Care

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This month, as part of the 20 Years Later blog series, we are revisiting the fifth principle of the Imperatives for Quality Cancer Care: Access, Advocacy, and Accountability. This principle states: “People with cancer should be provided a range of benefits by all health care plans that includes primary and secondary prevention, early detection, initial […]

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Guest Post: Multidisciplinary Care Is the Hallmark of High Quality Care—So Why Doesn’t Everyone Get It?

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The fourth principle in the Imperatives for Quality Cancer Care states, “All people diagnosed with cancer should have access to and coverage for services provided by a multidisciplinary team of care providers across the full continuum of care. Health care plans should be held accountable for timely referral to appropriate specialists when symptoms of cancer […]

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Marlene King Discusses Living with Metastatic Breast Cancer and Collaborative Decision-Making with Her Oncologist

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Marlene King was diagnosed with Ductal Carcinoma in Situ (DCIS) in 2008 at the age of 48, and she elected to have a lumpectomy, chemotherapy and radiation.  After treatments the cancer seemed to be in remission.   In 2011, the cancer returned and she decided it would be best to have to a double mastectomy and reconstructive surgery. However, one […]

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Guest Post by Dr. Michael Neuss Introduces the Third Imperatives Principle: Standards of Care Should Be Driven by Quality of Care

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This guest post is part of the 2015 Cancer Policy Matters “The Imperatives for Quality Cancer Care: 20 Years Later” blog series. The third principle from the Imperatives for Quality Cancer Care states, “Standards of cancer care should be driven by the quality of care, not only by the cost of care, and should include participation […]

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