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Tag Archive for: Patient Navigation

WCOE: ASCO Cancer Survivorship Symposium, Honoring Ellen Stovall at #SurvOnc16

January 15, 2016/in Cancer News, Cancer Policy Blog Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News

What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. ASCO Announces Creation of Ellen L. Stovall Award @canceradvocacy https://t.co/fRA0EncZHj #SurvOnc16 — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) January 15, 2016 Mary McCabe, RN, MA ends presentation with future cancer survivorship research needs. […]

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Guest Post by Elizabeth J. Clark: Self-Advocacy is Critical to Quality Cancer Care

October 29, 2015/in Cancer News, Cancer Policy Blog Care Coordination, Palliative Care, Quality Cancer Care, Survivorship Care NCCS News

  In the past twenty years, many advances have been made in ensuring quality cancer care for persons living with cancer. Individuals now have better treatments, more options, more cures, and longer periods when they are cancer-free or in remission. Enhanced insurance coverage, especially the passage of the Affordable Care Act, has contributed to innovative programming in survivorship and […]

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NCCS to Honor Dr. Richard Pazdur and Ellen Goodman at “Focus on the Care” Reception

October 16, 2015/in Cancer News, Cancer Policy Blog, NCCS News Quality Cancer Care, Survivorship Care NCCS News

Silver Spring, MD — The National Coalition for Cancer Survivorship will host a reception to honor Dr. Richard Pazdur and Ellen Goodman on Wednesday, October 21st in Washington, DC.  Survivors, friends, advocates, health providers, researchers, policymakers, and members of the press are invited to attend as we celebrate these individuals who have made cancer care […]

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Video Post: Dr. Bob Carlson and Joan McClure Discuss the National Comprehensive Cancer Network Guidelines

October 15, 2015/in Cancer News, Cancer Policy Blog Care Coordination, Care Planning, Clinical Guidelines, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News

The National Comprehensive Cancer Network (NCCN) is a non-profit organization, created by an alliance of 26 leading cancer centers in the United States. At the National Coalition for Cancer Survivorship’s 2015 Spring Cancer Policy Roundtable, Dr. Bob Carlson and Joan McClure of NCCN sat down with us to talk about their organization’s Clinical Practice Guidelines. […]

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WCOE: Doctors as Friends, Cancer’s Definitive Effects, Therapy as Art, and More

October 9, 2015/in Cancer News, Cancer Policy Blog Quality Cancer Care, Survivorship Care NCCS News

What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Living With Cancer: My Doctor, My Friend https://t.co/w9qEXXXLka via @nytimeswell — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) October 5, 2015 Cancer: a Defining Experience? https://t.co/vkq8SUCDfV via @usnews — NCCS – National Coalition for […]

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Metastatic Breast Cancer: A Student’s Perspective

October 8, 2015/in Cancer News, Cancer Policy Blog Care Coordination, Care Planning, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News

Recently I had the privilege of attending “A Journey of Courage and Hope: The Johns Hopkins Metastatic Breast Cancer Retreat for Couples.” Facilitated by a renowned leader in patient-centered breast cancer care, Lillie Shockney, this unique retreat for patients and their spouses explores the resources to cope physically, financially, and emotionally with the chronic nature […]

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Guest Post by Dr. Patricia Ganz: What Cancer Patients and Their Families Can Do to Coordinate Post-Treatment Care

September 30, 2015/in Cancer News, Cancer Policy Blog Care Coordination, Care Planning, Clinical Guidelines, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News

Twenty years later, the 9th Principle of the NCCS Imperatives for Quality Cancer Care could not be more relevant. Increasingly, patients are required to take more responsibility for their health, using knowledge and self-monitoring tools that have become an essential part of medical care, such as monitoring of blood pressure, physical activity, and weight-—to name […]

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https://canceradvocacy.org/wp-content/uploads/2015/01/20years.gif 500 500 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2015-09-30 18:12:182020-10-21 11:55:39Guest Post by Dr. Patricia Ganz: What Cancer Patients and Their Families Can Do to Coordinate Post-Treatment Care

Twenty Years Later Blog Series: Introducing the Ninth Principle of the Imperatives for Quality Cancer Care

September 28, 2015/in Cancer News, Cancer Policy Blog Care Planning, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News

As part of our 20 Years Later blog series which examines progress in advancing the principles in the 1995 NCCS publication Imperatives for Quality Cancer Care: Access, Advocacy, Action, and Accountability (Imperatives), this month we will look at the ninth principle of Imperatives: “The responsibility for appropriate long-term medical care must be shared by cancer survivors, […]

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WCOE: What Nurses Should Be Aware Of When Caring For Older Patients, The Meaning of Teal Ribbons, Breaking Good and Bad News, and More

September 18, 2015/in Cancer News, Cancer Policy Blog Palliative Care, Quality Cancer Care, Survivorship Care NCCS News

What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Christian Nelson, PhD, discusses what nurses should be aware of when caring for an older patient with cancer https://t.co/hN7uj53frj — Oncology Nursing News (@OncNursingNews) September 18, 2015 Living With Cancer: Teal Ribbons https://t.co/fcOOPD2G7e — NYTimes […]

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Logistic Toxicity and Administrative Burdens for Cancer Survivors and Caregivers

August 15, 2015/in Cancer News, Cancer Policy Blog, NCCS News Care Coordination, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News

There are many types of toxicities cancer patients face in their treatment. We hear most about the physical toxicities of treatment – nausea, pain, fatigue, heart damage, etc. Fortunately, the non-physical toxicities are getting more attention by physicians, policymakers, and patient advocates. Dr. Yousuf Zafar (@yzafar) has made the term “financial toxicity” – the crippling […]

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Latest News

Brett Wilson – Navigating Childhood Cancer and Finding Purpose in Advocacy

September 13, 2023
Advocate Spotlight: Brett Wilson Brett Wilson's cancer experience started when she was just two years old. Her mother was concerned…
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Registration Open: 2023 State of Survivorship Survey Results Briefing | October 3

September 7, 2023
The National Coalition for Cancer Survivorship (NCCS) conducts an annual State of Survivorship Survey, in partnership with Edge…
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We did it! DIEP Flap Codes Saved

CMS Announces It Will Retain Breast Reconstruction Codes, A Reversal That Protects Patient Access to DIEP Flap Surgery

August 22, 2023
Yesterday, the Centers for Medicare and Medicaid Services (CMS) announced that it will retain procedure codes for breast cancer reconstruction,…
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https://canceradvocacy.org/wp-content/uploads/DIEP-Flap-Reconstruction-CMS-Codes.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-08-22 14:26:202023-08-22 14:26:20CMS Announces It Will Retain Breast Reconstruction Codes, A Reversal That Protects Patient Access to DIEP Flap Surgery

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The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute