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How one survivor’s journey led to her realization of what survivorship care is lacking and the importance of advocating for yourself during survivorship. Note: This post originally appeared in the Spring 2021 issue of HEAL, a survivorship magazine from CURE Today. Shelley Fuld Nasso, MPP By NCCS CEO Shelley Fuld Nasso, MPP Sarah Cohn knows […]
The National Coalition for Cancer Survivorship (NCCS) is proud to announce 14 patient leaders selected to serve as Ambassadors for the 2020 Elevating Survivorship program. Elevate Ambassadors will receive support, mentorship, networking opportunities, and virtual training from NCCS to develop and execute a plan of action to improve survivorship care in their community — whether […]
NCCS hosted a conversation this week about managing anxiety, stress, and grief with psychologist Dr. Imani Price and a panel of cancer survivors and advocates. Dr. Price shared tips on how to cope with stress during this unique time and included strategies such as connecting with friends and family virtually, taking time to get outside each day, getting sufficient sleep, and eating well. Randall Broad, Erin Cummings, Loretta Herring, and Sharon Rivera-Sanchez, all cancer survivors […]
Washington, D.C. – The National Coalition for Cancer Survivorship (NCCS) presented the 4th annual Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care to Dr. Harmar Brereton and Dana Dornsife on November 13. Named for former NCCS CEO Ellen Stovall, who died in 2016 due to complications from three cancer treatments, the award highlights those who continue Ellen’s work of transforming cancer care to further incorporate […]
As part of its Elevating Survivorship initiative, NCCS fielded an online survey to understand cancer survivorship experiences and needs across a range of cancer patients. NCCS and our partner patient advocacy organizations promoted the survey to our constituents, and 1,380 cancer survivors responded. Some of the key findings include […]
(NCCS) is pleased to announce that the 2019 winners of the Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care are Harmar Brereton, MD, founder of the Northeast Regional Cancer Institute, and Dana Dornsife, founder and board chair of the Lazarex Cancer Foundation. Now in its fourth year, the cancer community’s embrace of the award named after longtime NCCS CEO Ellen Stovall continues to be a testament to her lasting […]
Patient True Talk is the only patient-to-patient registry where patients and/or their caregivers can create profiles with as much information as they feel comfortable sharing, and find matching profiles based on algorithms created by some of the country’s top clinical oncologists. Patients/caregivers can also search along their diagnosis/treatment parameters, refining their search based on the results provided. They can then send secure messages […]
Open Enrollment for ACA Now Underway — Open enrollment for 2019 ACA plans began yesterday and will run through December 15, 2018. Despite numerous attempts to repeal the ACA in 2017 and an ongoing court case in Texas, the ACA continues ahead, business as usual, for the most part. Many Americans will qualify for financial help that lowers their monthly premiums to between $50 and $100. Tara Siegel Bernard reports in the New York Times […]
Those with a cancer experience are all too familiar with the anxiety that many experience wondering and waiting if and how cancer may return. New research is helping shed more light on what exactly “fear of cancer recurrence” means as a measurable patient outcome, psychological and emotional factors that may increase or decrease it, and […]
UPDATE FEBRUARY 2020: Read a summary of this research project at www.canceradvocacy.org/RFS. The National Coalition for Cancer Survivorship (NCCS) was awarded a grant from the American Institutes for Research (AIR), with support from the Robert Wood Johnson Foundation, to develop a new quality measure concept for “return to functional status.” NCCS will use a novel […]
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Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute