Tag Archive for: Cancer Survivorship

Diagnosed with Cancer? Consider Living Life Like a Professional Cyclist

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Guest Post by Mark Corroto — I recommend those diagnosed with cancer consider living life as if they are a professional cyclist. Ok, not racing 100 miles and climbing 10,000 feet of elevation, but attending to their minds and bodies as if preparing for the Amgen Tour of California. Cyclists look for every edge they can proffer to defeat opponents. For example, World Champion Peter Sagan is said to get 9 hours of sleep a night, and many […]

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Health Care Roundup: Health Care Proposals Compared; ‘Surprise Billing’ Under Scrutiny; How Cancer Disrupts Young Adults’ Lives; Medicare Part D; More

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Comparing Health Care Proposals – As Medicare-for-all and other public health care proposals continue to be released by Members of Congress, Kaiser Family Foundation created a great interactive summary which they update regularly to compare these plans. Most recently, Senator and presidential candidate Bernie Sanders introduced his Medicare-for-all bill in the Senate. | Surprise Billing – Surprise medical billing has been getting a lot of attention […]

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Health Care Roundup: NCCS Joins Court Brief in ACA Suit; Challenges of Care Coordination; A Stage 4 Survivor on Living in the Present; More

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NCCS Joins Amicus Brief in ACA Lawsuit — On April 1, seventeen patient groups, including NCCS, filed an amicus curiae (“friend-of-the-court”) brief in the U.S. Court of Appeals for the Fifth Circuit in the case Texas v. United States. The brief cited the devastating impact patients would face should the court uphold the district court ruling to invalidate the Affordable Care Act (ACA). The patient groups argue the law was intended to help protect patients with pre-existing […]

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17 Patient Groups Urge Appeals Court to Uphold Health Care Law

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Loss of Patient Protections Would Raise Barriers to Health Insurance — Seventeen patient groups representing millions of Americans with pre-existing conditions filed an amicus curiae (“friend-of-the-court”) brief today in the U.S. Court of Appeals for the Fifth Circuit in the case Texas v. United States, citing the devastating impact patients would face should the court uphold the District Court ruling to invalidate the Affordable Care Act (ACA). […]

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Health Care Roundup: Kansas Moves Medicaid Expansion; CDC Study: How Patients Reduce Their Drug Costs; Where EHRs Went Wrong; More

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Kansas House Sends Medicaid Expansion to Senate – This week, Kansas is one step closer to expanding Medicaid in the state, after lawmakers passed a bill in the House that would add coverage for an estimated 150,000 Kansans. The expansion bill will head to the Senate where the outcome is unknown. From the Wichita Eagle: “The plan expands eligibility for medical assistance to all adults who are under 65 and make less than 133 percent […]

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Health Care Roundup: White House Proposes Health Care Cuts; NCI’s Sharpless to Head FDA; Care Planning; Patient Safety; More

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White House Releases FY 2020 Budget – Earlier this week, the White House released the President’s Budget. This year’s budget proposes to repeal and replace the Affordable Care Act (ACA) and cap Medicaid, and cuts federal health spending by $659 billion over 10 years. The budget also proposes shaving $818 billion from projected spending on Medicare over 10 years and cutting nearly $1.5 trillion from projected spending on Medicaid. […]

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Health Care Roundup: FDA’s Gottlieb Steps Down; Hearings on High Costs; Coping with Cancer’s Aftermath; Why Insurers Deny Claims; More

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FDA Commissioner Gottlieb Announces Resignation — On Tuesday, Dr. Scott Gottlieb, commissioner of the Food and Drug Administration, announced that he would be resigning in the next month. Two focus areas during Commissioner Gottlieb’s tenure at the FDA include curbing vaping and making generic drugs more accessible. Dr. Gottlieb says he is stepping down from his role in order to spend more time with his family. Congress Holds […]

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Introducing PatientTrueTalk.com – A Way for Advocates to Directly Help the Newly Diagnosed

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Patient True Talk is the only patient-to-patient registry where patients and/or their caregivers can create profiles with as much information as they feel comfortable sharing, and find matching profiles based on algorithms created by some of the country’s top clinical oncologists. Patients/caregivers can also search along their diagnosis/treatment parameters, refining their search based on the results provided. They can then send secure messages […]

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Health Care Roundup: New Health Care Bills; NCCS Co-Founder Susie Leigh on Life After Cancer; Oncology Care Model; Racial Disparities; More

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Health Care Bills Discussed, ACA Lawsuit News – A group of Democratic lawmakers this week introduced legislation that would allow for a “Medicare Buy-In,” meaning Americans at age 50 could buy into the program for their health care coverage. Spearheaded by Sen. Debbie Stabenow (MI-D) and Rep. Brian Higgins (NY-26), the legislators say the main goal is to promote more affordable coverage. Hearings on the ACA and drug pricing continued this […]

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Health Care Roundup: Gov’t Shutdown Affects FDA; Health Care Hearings; Insomnia & Cancer; “When Cancer Meets the Internet;” More

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Gov’t Shutdown Affects FDA; Congressional Hearings on Health Care Scheduled – The government shutdown is now the longest in U.S. history. This week, NCCS joined 46 groups in a letter to Congress and President Trump highlighting the impact the shutdown is having on the FDA’s work on behalf of patients. The groups stated that, “…we fear that this continued shutdown not only puts the current health and safety of Americans at risk, but […]

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Link to: Survivorship Champions

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Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.

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Link to: Cancer Policy and Advocacy Team (CPAT)

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The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

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Link to: Survivor Stories

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NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.

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