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NCCS - National Coalition for Cancer Survivorship
  • About
        • About Us

        • NCCS is the oldest cancer survivor-led non-profit organization in America. We advocate for quality cancer care for all touched by cancer.

        • About NCCS

        • Our Mission
        • What is Advocacy?Learn about the different types of cancer advocacy, from personal advocacy to public interest advocacy.
        • Our HistoryRead how NCCS’s leaders coined the term “cancer survivor,” and established the nation’s first survivor-led non-profit organization.
        • Our Team
        • Financial Information
        • Employment
        • Contact Us
        • Support Our Mission

        • Make A GiftSupport our mission of quality cancer care for all with a gift to NCCS.
        • The 1986 ClubMake a monthly commitment to support NCCS, empower cancer survivors, and advance public policy.
        • Ways to GiveLearn about other ways you can contribute to NCCS such as planned giving, employer matches, shopping online, and more.
        • Partnerships
  • News
    • NCCS News
    • Advocate SpotlightEach month, NCCS highlights a cancer survivorship advocate, sharing their story and the work they do in their communities.
    • Policy CommentsRead NCCS’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
    • Issue StatementsRead NCCS statements on pressing issues and developments in Washington affecting cancer survivors and their families.
  • Policy
        • Policy

        • Public policy is government action, in the form of legislation, regulation, funding, and other actions. Public policy affects people with cancer and the cancer care system in many ways.

        • Our Policy Priorities

        • Quality Cancer CareQuality cancer care is essential for patients. Learn how NCCS and others define quality.
        • Access to CareNCCS believes cancer care and clinical trials should be affordable and accessible to everyone.
        • Health EquityThe cancer experience is not the same for everyone. NCCS works on policy efforts to reduce disparities in outcomes.
        • Current Issues

        • Comprehensive Cancer Survivorship Act (CCSA)The CCSA is a large comprehensive bill introduced in Congress that aims to improve quality of care in all stages of a diagnosis.
        • Cancer Care Planning and Communications Act (CCPCA)CCPCA is a bill that would provide a billable Medicare service code for cancer care planning.
        • DIEP Flap AccessNCCS advocates for protection of access to DIEP Flap Breast Reconstruction Surgery for all breast cancer survivors.
        • Policy CommentsRead NCCS’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
        • Issue StatementsRead NCCS statements on pressing issues and developments in Washington affecting cancer survivors and their families.
        • Quality Measurement Research
  • Get Involved
        • Get Involved

        • Whether you’re new to cancer advocacy or already have experience as an advocate, there are numerous ways you can get involved with NCCS.

        • Join NCCS

        • Cancer Policy and Advocacy Team (CPAT)CPAT is a program for survivors and caregivers to learn about pressing issues that affect quality cancer care, in order to be engaged as advocates in public policy.
        • Elevating SurvivorshipA patient-led initiative — NCCS mentors advocates (Elevate Ambassadors) to fill vital gaps in survivorship care in their community.
        • Survivorship ChampionsAn NCCS program for clinicians and researchers who are interested in improving care for cancer survivors.
        • Advocacy OpportunitiesThis page provides a list of upcoming events, webinars, conferences, and advocacy campaigns from NCCS and other leading cancer organizations.
        • Connect with Us

        • Subscribe to NCCS Updates
        • Follow NCCS on Social Media
        • Survivor Stories
        • Cancerversary
        • Support NCCS

        • Make A Gift
        • Ways to Give
        • The 1986 Club
  • Survivorship Survey
        • State of Cancer Survivorship

        • NCCS conducts an annual State of Survivorship Survey, in partnership with Edge Research, to delve into the cancer patient and survivor journey. This study captures a range of perspectives to better understand how NCCS can support its mission to advocate for quality cancer care for all.

        • Reports by Year

        • 2023 Survey ReportThe 2023 Survey explored the caregiver experience for the first time, and features new data on the effect of cancer treatment on employment.
        • 2022 Survey ReportThe 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.
        • 2021 Survey ReportThe 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.
        • 2020 Survey ReportIn the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.
  • Survivorship Checklist
        • Cancer Survivorship Checklist

        • The Cancer Survivorship Checklist is designed to be a simple, straightforward tool patients and caregivers can use as a guide for information critical to their care wherever they are on the cancer care continuum.

        • Start Your Cancer Survivorship Checklist
        • Survivorship Checklist Guide for Clinicians
        • Resources for Cancer Survivors

        • Survivorship ResourcesA collection of resources that provide information about navigating the cancer journey.
        • Cancer RehabilitationA supportive health care service that helps improve a person’s functioning during and after cancer treatment.
        • Integrative OncologyA field that combines traditional cancer treatments with therapies that support a person’s natural healing ability.
  • Resources
        • Resources

        • NCCS provides a wide variety of resources for both patients and caregivers.

        • Resources for Survivors and Caregivers

        • Cancer Survival ToolboxA free, award-winning audio program created by leading cancer organizations to help people better meet & understand the challenges of their illness.
        • Telehealth
        • Care Planning for Cancer Survivors
        • Remaining Hopeful
        • Self Advocacy
        • Talking With Your Doctor
        • Taking Charge of Your Care
        • Order Our Resources
        • Resources for Health Care Professionals

        • Tools For Care Providers
        • Telehealth Project
        • Survivorship Champions Webinars
        • Survivorship Checklist Guide for Clinicians
  • Events
    • Ellen L. Stovall Award
      • 2023 Winners
      • Awardees
      • Reception and Sponsorship
      • Committees
      • Nominations
    • Cancer Policy Roundtable (CPR)
      • Spring 2023 CPR
      • Fall 2022 CPR
      • Spring 2022 CPR
    • 2023 Survivorship Survey
    • Webinars
  • 0

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Tag Archive for: CMS

Health Care Roundup: NCCS Meets with Senate Offices Re CMS Waivers; Poor Hospital Quality; Married vs. Single May Impact Cancer Treatment; More

December 7, 2018/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Financial Toxicity, Health Care Coverage, Health Equity, Pre-Existing Conditions Health Care Roundup, NCCS News

NCCS Meets with Senate Offices to Share Serious Concerns Regarding New CMS Waiver Guidance — This week, NCCS and other organizations in the Cancer Leadership Council participated in meetings with Senate offices to discuss the Centers for Medicare and Medicaid Services’ (CMS) recent waiver guidance. This guidance would permit states to pursue waivers that would undermine the Affordable Care Act (ACA) and its patient protections. […]

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https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-12-07 15:41:002018-12-07 15:41:00Health Care Roundup: NCCS Meets with Senate Offices Re CMS Waivers; Poor Hospital Quality; Married vs. Single May Impact Cancer Treatment; More

Health Care Roundup: CMS Issues New Waiver Options to States to Undermine ACA; Open Enrollment Numbers Still Lag; Role of AI in Health Care; More

November 30, 2018/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Health Care Coverage, Pre-Existing Conditions, Quality Cancer Care, Survivorship Care NCCS News

CMS Issues New Waiver Options to Undermine the Affordable Care Act — This week, the Centers for Medicare and Medicaid Services (CMS) released four new waiver concepts that would allow states to pursue alternatives to the ACA. This announcement follows recent CMS guidance that outlined broad authority to the states to design their health care systems through a waiver of key ACA requirements and provides states with more specific […]

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https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-11-30 15:29:142018-11-30 15:29:14Health Care Roundup: CMS Issues New Waiver Options to States to Undermine ACA; Open Enrollment Numbers Still Lag; Role of AI in Health Care; More

NCCS Strongly Objects to New CMS Waiver Options That Seek to Further Undermine the ACA

November 29, 2018/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Affordable Care Act, Financial Toxicity, Health Care Coverage, Health Equity, Pre-Existing Conditions NCCS News

NCCS issued the following statement regarding today’s announcement by the Trump administration outlining options states can pursue to circumvent the Affordable Care Act (ACA). Today’s announcement of these policy options follows previous Centers for Medicare and Medicaid Services (CMS) guidance that outlined broad authority to the states to design their health care systems through a “waiver” of key ACA requirements and provides states […]

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NCCS Expresses Reservations Regarding Effectiveness and Impact of New CMS Drug Pricing Proposal

October 22, 2018/in Cancer News, Cancer Policy Blog Access to Care, Drug Pricing, Financial Toxicity, Health Equity Issue Statements, NCCS News

A focus of the National Coalition for Cancer Survivorship (NCCS) since it was founded over thirty years ago continues to be empowering patients to make informed decisions, and this includes transparency about the cost of health care. The Centers for Medicare & Medicaid Services (CMS) recently proposed that list prices be included in direct-to-consumer (DTC) television advertisements of drugs that are reimbursed by Medicare and Medicaid. […]

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Health Care Roundup: Patient Orgs Push Back on ‘Junk Insurance’; Rx ‘Gag Clause’ Bans; What Survivors Wish Others Understand; ACA Premiums; More

October 12, 2018/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Drug Pricing, Health Care Coverage Health Care Roundup, NCCS News

NCCS & Patient Orgs Push Back on Short-term Plans — Recently, the Centers for Medicare and Medicaid Services (CMS) announced it would allow insurers to offer expanded short-term, limited duration plans, known as “junk insurance.” This action led NCCS to join several other national organizations in filing an amicus curiae brief in support of a lawsuit that challenges the regulation authorizing short-term health insurance plans. The amicus brief […]

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https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-10-12 16:20:422020-07-06 10:05:23Health Care Roundup: Patient Orgs Push Back on ‘Junk Insurance’; Rx ‘Gag Clause’ Bans; What Survivors Wish Others Understand; ACA Premiums; More

Health Care Roundup: Medicare ‘Step Therapy’ Concerns; Alternative Cancer Treatment Risks; Immunotherapy Scientists Win Nobel Prize; More

October 5, 2018/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Health Care Coverage Health Care Roundup, NCCS News

HEALTH CARE HIGHLIGHT – NCCS Submits Concerns to HHS Regarding New “Step Therapy” Plan – NCCS joined with other cancer organizations of the Cancer Leadership Council (CLC) in a letter to the Department of Health and Human Services (HHS) and the Centers for Medicare and Medicaid Services (CMS) regarding the new plan announced on August 7 that gives Medicare Advantage plans the option of applying step therapy for […]

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NCCS Joins with Cancer Leadership Council to Outline Concerns Regarding New “Step Therapy” Plan

October 3, 2018/in Cancer News, Cancer Policy Blog, CMS, HHS, NCCS News, Policy Comments Access to Care, Drug Pricing, Health Care Coverage NCCS News, Policy Comments

NCCS joined with other cancer organizations of the Cancer Leadership Council (CLC) in a letter to the Department of Health and Human Services (HHS) and the Centers for Medicare and Medicaid Services (CMS) regarding the new plan announced on August 7 that gives Medicare Advantage plans the option of applying step therapy for physician-administered and other Part B drugs. The letter outlines several concerns regarding the application of step therapy […]

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https://canceradvocacy.org/wp-content/uploads/2017/10/NCCS-Policy-Comments-HHS-bldg.jpg 600 1200 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-10-03 13:53:522020-07-06 10:05:25NCCS Joins with Cancer Leadership Council to Outline Concerns Regarding New “Step Therapy” Plan

NCCS Submits Recommendations to CMS Regarding Proposed Changes to Hospital Outpatient Prospective Payment System (OPPS)

September 27, 2018/in Cancer Policy Blog, CMS, HHS, NCCS News, Policy Comments Access to Care, Health Care Coverage, Payment Reform, Quality Cancer Care NCCS News, Policy Comments

NCCS submitted a letter to the Centers for Medicare and Medicaid Services (CMS) on the proposed update to the hospital outpatient prospective payment system, known as OPPS, for calendar year 2019. In the letter, NCCS outlines support for a change in payment for clinical services that are provided at off-campus provider-based departments that will reduce cost-sharing for patients for clinic visits. Additionally, CMS included a “request for information” […]

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https://canceradvocacy.org/wp-content/uploads/2017/10/NCCS-Policy-Comments-HHS-bldg.jpg 600 1200 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-09-27 14:45:362020-10-08 16:12:50NCCS Submits Recommendations to CMS Regarding Proposed Changes to Hospital Outpatient Prospective Payment System (OPPS)

NCCS Raises Concerns Over Impact on Patients of Medicare Physician Fee Schedule Revisions

September 17, 2018/in Cancer News, Cancer Policy Blog, CMS, HHS, NCCS News, Policy Comments Access to Care, Health Care Coverage, Payment Reform, Quality Cancer Care NCCS News, Policy Comments

NCCS submitted comments to the Centers for Medicare and Medicaid Services (CMS) on the Medicare physician fee schedule revisions proposed for calendar year 2019 and proposed revisions in the Quality Payment Program. In our comments, NCCS addressed proposed changes to evaluation and management services, which are provided in the office or outpatient setting and are a critical element of cancer care. CMS proposed creating a […]

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https://canceradvocacy.org/wp-content/uploads/2017/10/NCCS-Policy-Comments-HHS-bldg.jpg 600 1200 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-09-17 16:06:352020-07-06 10:05:31NCCS Raises Concerns Over Impact on Patients of Medicare Physician Fee Schedule Revisions

NCCS Statement on HHS Final Rule for Short-Term, Limited Duration Health Plans

August 1, 2018/in Cancer Policy Blog, CMS, HHS, NCCS News, Policy Comments Access to Care, Affordable Care Act, Health Care Coverage, Pre-Existing Conditions NCCS News, Policy Comments

The National Coalition for Cancer Survivorship (NCCS) issued the following statement regarding the Trump administration’s announcement of the final rule on short-term, limited-duration health insurance plans: “NCCS is deeply concerned that the Administration’s new rule on short-term, limited-duration plans, called ‘junk insurance’ by health insurance experts, will harm cancer patients and survivors by providing inadequate coverage for cancer care […]

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https://canceradvocacy.org/wp-content/uploads/2017/10/NCCS-Policy-Comments-HHS-bldg.jpg 600 1200 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-08-01 13:07:052018-08-01 13:07:05NCCS Statement on HHS Final Rule for Short-Term, Limited Duration Health Plans
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Latest News

Advocate Spotlight: Mary Glen, with photo of Mary.

The Not-So-Good Cancer: Mary Glen’s Inspiring Advocacy Journey

November 8, 2023
Advocate Spotlight: Mary Glen Mary Glen was serving as an active-duty Army officer, deployed to South Korea in August 2020. Just…
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https://canceradvocacy.org/wp-content/uploads/Mary-Glen-Advocate-Spotlight-Blog-Banner.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-11-08 11:55:412023-11-08 11:55:41The Not-So-Good Cancer: Mary Glen’s Inspiring Advocacy Journey
Mary McCabe and Phuong Gallagher, Stovall Award winners, with NCCS CEO Shelley Fuld Nasso

NCCS Presents 8th Annual Ellen L. Stovall Awards to Phuong Gallagher and Mary McCabe, RN for Their Innovation and Dedication to Cancer Survivors

October 30, 2023
FOR IMMEDIATE RELEASE  October 30, 2023 Washington, D.C. – The National Coalition for Cancer Survivorship (NCCS) presented the…
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https://canceradvocacy.org/wp-content/uploads/Mary-McCabe-Shelley-Fuld-Nasso-Phuong-Gallagher-Stovall-Awards-2023-web.jpg 628 1200 Kara Kenan https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png Kara Kenan2023-10-30 09:31:232023-10-30 12:35:48NCCS Presents 8th Annual Ellen L. Stovall Awards to Phuong Gallagher and Mary McCabe, RN for Their Innovation and Dedication to Cancer Survivors
picture of National Institutes of Health building in Bethesda, MD

NCCS, Cancer Leadership Council Express Strong Support for NIH Director Nominee Monica Bertagnolli

October 18, 2023
The National Coalition for Cancer Survivorship (NCCS) strongly supports the nomination of Dr. Monica Bertagnolli to be the Director…
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https://canceradvocacy.org/wp-content/uploads/National-Institutes-of-Health-NIH-1200px.jpg 628 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-10-18 11:54:422023-10-18 11:57:58NCCS, Cancer Leadership Council Express Strong Support for NIH Director Nominee Monica Bertagnolli

Take Action

Link to: Survivorship Champions

Become a Survivorship Champion

Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.

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Link to: Cancer Policy and Advocacy Team (CPAT)

Join CPAT

The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

Learn More and Join »
Link to: Survivor Stories

Share Your Story

NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.

Share Your Story »

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  • About
    • Our Mission
    • What is Advocacy?
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  • Events
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute