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        • About Us

        • Cancer Nation is the oldest cancer survivor-led non-profit organization in America. We advocate for quality cancer care for all touched by cancer.

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        • Public policy is government action, in the form of legislation, regulation, funding, and other actions. Public policy affects people with cancer and the cancer care system in many ways.

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        • Quality Cancer CareQuality cancer care is essential for patients. Learn how Cancer Nation and others define quality.
        • Access to CareCancer Nation believes cancer care and clinical trials should be affordable and accessible to everyone.
        • Health EquityThe cancer experience is not the same for everyone. Cancer Nation works on policy efforts to reduce disparities in outcomes.
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        • Protecting Access to Medicaid for Cancer Survivors
        • Comprehensive Cancer Survivorship Act (CCSA)The CCSA is a large comprehensive bill introduced in Congress that aims to improve quality of care in all stages of a diagnosis.
        • Cancer Care Planning and Communications Act (CCPCA)CCPCA is a bill that would provide a billable Medicare service code for cancer care planning.
        • DIEP Flap AccessCancer Nation advocates for protection of access to DIEP Flap Breast Reconstruction Surgery for all breast cancer survivors.
        • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
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        • Whether you’re new to cancer advocacy or already have experience as an advocate, there are numerous ways you can get involved with Cancer Nation.

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        • Cancer Nation conducts an annual State of Survivorship Survey, in partnership with Edge Research, to explore the cancer patient and survivor journey. This study captures a range of perspectives to better understand how Cancer Nation can support its mission to advocate for quality cancer care for all.

        • Reports by Year

        • 2025 Survey Report
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        • 2023 Survey ReportThe 2023 Survey explored the caregiver experience for the first time, and features new data on the effect of cancer treatment on employment.
        • 2022 Survey ReportThe 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.
        • 2021 Survey ReportThe 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.
        • 2020 Survey ReportIn the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.
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        • Cancer Survivorship Checklist

        • The Cancer Survivorship Checklist is designed to be a simple, straightforward tool patients and caregivers can use as a guide for information critical to their care wherever they are on the cancer care continuum.

        • Start Your Cancer Survivorship Checklist
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        • Survivorship ResourcesA collection of resources that provide information about navigating the cancer journey.
        • Cancer RehabilitationA supportive health care service that helps improve a person’s functioning during and after cancer treatment.
        • Integrative OncologyA field that combines traditional cancer treatments with therapies that support a person’s natural healing ability.
        • Palliative CareSpecialized medical care for people living with a serious illness that provides relief from the symptoms and stress to improve their quality of life.
        • Cognitive HealingA resource to support cognitive functioning after cancer treatment. Includes cognitive training strategies and tools for both adults and children.
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        • Cancer Nation provides a wide variety of resources for patients, caregivers, and health care professionals.

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581 RESULTS FOR: Cancer Policy Blog

Coronavirus feat

Coronavirus and Cancer Resources for Survivors

March 20, 2020
Cancer survivors have expressed concerns and questions about COVID-19, the coronavirus, and how they may be at higher risk due to their cancer history. Here are some resources about COVID-19 generally, and its impact for cancer survivors specifically. NCCS is seeking answers from public health experts on the coronavirus and its impact on cancer patients and survivors. Please leave a comment [...]
https://canceradvocacy.org/wp-content/uploads/2020/03/Coronavirus-feat.jpg 600 1200 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg actualizedevs2020-03-20 12:24:482020-07-06 09:54:22Coronavirus and Cancer Resources for Survivors
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Health Care Roundup: Senate Hearing w/Pharma CEOs; Medicare for All Introduced; Logistical Toxicity; FDA Warns About Robotic Surgical Devices; More

March 1, 2019
Senate Finance Hearing on Drug Pricing — The Senate Finance Committee held a hearing this week on drug pricing, and Senators questioned seven CEOs from top pharmaceutical companies. While Senators of both parties asked tough questions about pricing practices and price increases, some experts suggested that the hearing was tamer than expected. In the Washington Post, Paige Cunningham wrote, “In the hearing on drug prices [...]
https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg actualizedevs2019-03-01 16:06:362019-03-01 16:06:36Health Care Roundup: Senate Hearing w/Pharma CEOs; Medicare for All Introduced; Logistical Toxicity; FDA Warns About Robotic Surgical Devices; More
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Health Care Roundup: Health Care Spending; Survivorship Care Delivery; Metastatic BC at NY Fashion Week; Susan Gubar on Financial Toxicity; More

February 22, 2019
This week, the Centers for Medicare and Medicaid Services (CMS) published new health care spending projections for the United States. Unsurprisingly, Medicare spending growth is projected to outpace that of other payers in the coming decade due to enrollment growth and higher use of services. See a breakdown of the projections here. On Wednesday, six hospital groups laid out an eight-point plan for dealing with surprise medical billing, [...]
https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg actualizedevs2019-02-22 16:09:372019-02-22 16:09:37Health Care Roundup: Health Care Spending; Survivorship Care Delivery; Metastatic BC at NY Fashion Week; Susan Gubar on Financial Toxicity; More
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Introducing PatientTrueTalk.com – A Way for Advocates to Directly Help the Newly Diagnosed

February 21, 2019
Patient True Talk is the only patient-to-patient registry where patients and/or their caregivers can create profiles with as much information as they feel comfortable sharing, and find matching profiles based on algorithms created by some of the country’s top clinical oncologists. Patients/caregivers can also search along their diagnosis/treatment parameters, refining their search based on the results provided. They can then send secure messages [...]
https://canceradvocacy.org/wp-content/uploads/2018/10/NCCS-Blog-CPM-Logo.jpg 600 1200 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg actualizedevs2019-02-21 15:04:352019-02-21 15:04:35Introducing PatientTrueTalk.com – A Way for Advocates to Directly Help the Newly Diagnosed
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Health Care Roundup: New Health Care Bills; NCCS Co-Founder Susie Leigh on Life After Cancer; Oncology Care Model; Racial Disparities; More

February 15, 2019
Health Care Bills Discussed, ACA Lawsuit News – A group of Democratic lawmakers this week introduced legislation that would allow for a “Medicare Buy-In,” meaning Americans at age 50 could buy into the program for their health care coverage. Spearheaded by Sen. Debbie Stabenow (MI-D) and Rep. Brian Higgins (NY-26), the legislators say the main goal is to promote more affordable coverage. Hearings on the ACA and drug pricing continued this [...]
https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg actualizedevs2019-02-15 15:50:352019-02-15 15:50:35Health Care Roundup: New Health Care Bills; NCCS Co-Founder Susie Leigh on Life After Cancer; Oncology Care Model; Racial Disparities; More
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Health Care Roundup: Drug Pricing; Cancer Deaths Rise Globally; Health Care Champion John Dingell Remembered; Treatment at Home; “Survivor” Debate

February 8, 2019
Drug Pricing at SOTU; House Health Care Hearing — At the State of the Union address, President Trump stated that two of his administration’s health care priorities are to protect individuals with pre-existing conditions and lower drug prices. The address did not specify how to achieve those goals. NCCS commented on several drug pricing proposals released previously by the administration, with a specific focus on what the proposals would mean for patients. [...]
https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg actualizedevs2019-02-08 17:16:242020-10-22 06:58:19Health Care Roundup: Drug Pricing; Cancer Deaths Rise Globally; Health Care Champion John Dingell Remembered; Treatment at Home; “Survivor” Debate
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Health Care Roundup: More Drug Pricing News; Clinical Trial Challenges; Trump Promises Action on Surprise Billing; Fake Cancer Cures; More

February 1, 2019
This week, the House and Senate held several hearings related to health care, including a House Ways and Means Committee hearing titled “Protecting Americans with Pre-Existing Conditions.” The hearing illustrated the stark difference between the two parties’ health care goals. There were also dueling drug pricing hearings this week, one from the House Committee on Oversight and Reform titled, “Examining the Actions of Drug Companies [...]
https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg actualizedevs2019-02-01 16:02:532019-02-01 16:02:53Health Care Roundup: More Drug Pricing News; Clinical Trial Challenges; Trump Promises Action on Surprise Billing; Fake Cancer Cures; More
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NCCS and Cancer Leadership Council Highlight Potential Harm to Patients of Proposed Medicare Part D Changes

January 30, 2019
The Department of Health and Human Services (HHS) released recently a proposed rule to change Medicare Part D’s protected classes drug coverage. In response, NCCS joined with other patient and provider groups of the Cancer Leadership Council (CLC) to comment on how these proposed changes could impact patients. The proposed rule would give Medicare plans the option to limit coverage of drugs in six categories, including cancer drugs. [...]
https://canceradvocacy.org/wp-content/uploads/2017/10/NCCS-Policy-Comments-HHS-bldg.jpg 600 1200 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg actualizedevs2019-01-30 15:15:012019-01-30 15:15:01NCCS and Cancer Leadership Council Highlight Potential Harm to Patients of Proposed Medicare Part D Changes
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Health Care Roundup: Gov’t Shutdown Affects FDA; Health Care Hearings; Insomnia & Cancer; “When Cancer Meets the Internet;” More

January 25, 2019
Gov't Shutdown Affects FDA; Congressional Hearings on Health Care Scheduled – The government shutdown is now the longest in U.S. history. This week, NCCS joined 46 groups in a letter to Congress and President Trump highlighting the impact the shutdown is having on the FDA’s work on behalf of patients. The groups stated that, “…we fear that this continued shutdown not only puts the current health and safety of Americans at risk, but [...]
https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg actualizedevs2019-01-25 15:27:162021-02-12 11:31:42Health Care Roundup: Gov’t Shutdown Affects FDA; Health Care Hearings; Insomnia & Cancer; “When Cancer Meets the Internet;” More
FDA Building

NCCS Joins Letter Highlighting Impact of Gov’t Shutdown on FDA’s Work on Behalf of Patients

January 22, 2019
The National Coalition for Cancer Survivorship (NCCS) joined with 46 other patient and provider organizations to call attention to the impact the government shutdown is having on the work of the Food and Drug Administration (FDA). “On behalf of patients across this country, we are greatly concerned that the agency is currently not fully funded, and thousands of vital FDA employees are not working or able to operate at full capacity. [...]
https://canceradvocacy.org/wp-content/uploads/FDA-Building.jpg 515 1030 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg actualizedevs2019-01-22 17:28:362020-11-23 10:49:40NCCS Joins Letter Highlighting Impact of Gov’t Shutdown on FDA’s Work on Behalf of Patients
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NCCS Health Care Roundup: Opposing Medicare Part D Changes; Medicare-for-All Comparisons; Cancer Patients Suicide Risk Study; More

January 18, 2019
Protecting Medicare Part D's Protected Classes and Congressional Updates — This week, NCCS joined the American Cancer Society Cancer Action Network in a campaign against proposed Medicare Part D changes. More than 50 groups joined the campaign in opposition to the administration’s proposal to change Medicare Part D's protected classes drug coverage, which would give Medicare plans the option to limit coverage of drugs in six categories, [...]
https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg actualizedevs2019-01-18 17:08:572020-07-06 10:12:51NCCS Health Care Roundup: Opposing Medicare Part D Changes; Medicare-for-All Comparisons; Cancer Patients Suicide Risk Study; More
Page 9 of 59«‹7891011›»

Latest News

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Cancer Nation Statement: Medicaid Work Requirements Will Unfairly Burden Cancer Survivors

June 4, 2026
Cancer Nation strongly supports a health care system free of waste, fraud, and abuse. Health care resources must be directed to delivery…
Read more
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Webinar – Understanding Blood-Based Testing in Cancer Care

May 29, 2026
Cancer Nation's Webinar Series presents a clear, practical conversation about advances in blood-based testing and how they're shaping…
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Remembering Susie Leigh: A Founder, a Force, and a Friend

May 28, 2026
Susan (Susie) Leigh, BSN, RN-Retired — one of the founding members of Cancer Nation, a five-time cancer survivor, and one of the…
Read more
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute