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NCCS Letter to CMS Highlights Concerns About Proposed Medicare Part B Reforms

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On December 31st, NCCS submitted our final comment letter of the year to the Centers for Medicare and Medicaid Services regarding the advance notice of proposed rulemaking for the Medicare Part B drug program.
In the letter, we outlined concerns that this proposal could have on Medicare beneficiaries such as impacts on patient access to innovative therapies, as well as concerns regarding the enormous scope of the test. NCCS suggested […]

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Remembering Jennifer Friar Groves

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By CEO Shelley Fuld Nasso — I’d like to share the story of my dear friend, Jennifer Friar Groves, who died earlier this month at the age of 32 from metastatic breast cancer. She gave me her permission to share her story, and in fact, she desperately wanted her story to be shared. Jennifer was diagnosed with breast cancer in April 2016 at the age of 29. She lived in Booneville, Mississippi, in northern Mississippi near Tupelo. She was too young for regular […]

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NCCS “Not Persuaded” Drug Pricing in DTC Ads Will Improve Doctor-Patient Communication

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Earlier this year, the Centers for Medicare and Medicaid Services (CMS) issued a proposed rule that would require information about drug costs be included in direct-to-consumer (DTC) advertisements of prescription drugs and biological products. NCCS issued a statement regarding the proposal, saying, “While we understand […]

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NCCS Statement on District Court Ruling Affordable Care Act Unconstitutional

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Silver Spring, M.D. – The National Coalition for Cancer Survivorship (NCCS), a national organization representing survivors of all forms of cancer, released the following statement after the federal district court in the Northern District of Texas declared the Affordable Care Act unconstitutional. “The court’s decision declaring the Affordable Care Act (ACA) unconstitutional puts millions of […]

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Remembering Kathryn West

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Last weekend, the patient advocacy community lost a fierce advocate, leader, and innovator in raising awareness of the issues cancer survivors experience. Kathryn West, oncology nurse and fierce advocate for cancer patients, died of cancer herself in Los Angeles last Sunday. NCCS first met Kathryn through her role as Advocacy Director for Amgen. Her vision to increase awareness of resources for people affected by cancer led her to champion the […]

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NCCS Health Care Roundup: Gov’t Shutdown Threat; NCCS Webinar; Analysis of 8 Democratic Universal Health Care Plans; More

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After days of tense negotiations, the House and Senate left town Thursday with no plan to avoid a partial government shutdown. The House will return December 19, leaving only 72 hours for both parties to reach an agreement before a shutdown goes into effect at midnight on December 21. Most of the tension surrounding the potential shutdown surrounds funding for President Trump’s border wall. This week, NCCS hosted a post-election webinar […]

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Health Care Roundup: NCCS Meets with Senate Offices Re CMS Waivers; Poor Hospital Quality; Married vs. Single May Impact Cancer Treatment; More

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NCCS Meets with Senate Offices to Share Serious Concerns Regarding New CMS Waiver Guidance — This week, NCCS and other organizations in the Cancer Leadership Council participated in meetings with Senate offices to discuss the Centers for Medicare and Medicaid Services’ (CMS) recent waiver guidance. This guidance would permit states to pursue waivers that would undermine the Affordable Care Act (ACA) and its patient protections. […]

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Health Care Roundup: CMS Issues New Waiver Options to States to Undermine ACA; Open Enrollment Numbers Still Lag; Role of AI in Health Care; More

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CMS Issues New Waiver Options to Undermine the Affordable Care Act — This week, the Centers for Medicare and Medicaid Services (CMS) released four new waiver concepts that would allow states to pursue alternatives to the ACA. This announcement follows recent CMS guidance that outlined broad authority to the states to design their health care systems through a waiver of key ACA requirements and provides states with more specific […]

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NCCS Strongly Objects to New CMS Waiver Options That Seek to Further Undermine the ACA

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NCCS issued the following statement regarding today’s announcement by the Trump administration outlining options states can pursue to circumvent the Affordable Care Act (ACA). Today’s announcement of these policy options follows previous Centers for Medicare and Medicaid Services (CMS) guidance that outlined broad authority to the states to design their health care systems through a “waiver” of key ACA requirements and provides states […]

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NCCS Presents 3rd Annual Ellen L. Stovall Award to Gay Crawford and Dr. Norman Coleman, Their 40+ Year Careers Focused on Improving Patient-Centered Cancer Care

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NCCS hosted the 3rd annual Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care reception. Named for former NCCS CEO, Ellen Stovall, who died in 2016 due to complications from three cancer treatments, the award seeks to highlight those who continue Ellen’s work of transforming cancer care to further incorporate patients’ goals, needs, and values. This year’s honorees are Gay Crawford, founding director of Cancer CAREpoint, and Dr. Norman Coleman, senior investigator at the National Cancer Institute. […]

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Link to: Cancer Policy and Advocacy Team (CPAT)

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The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

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